Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 At 07:48 PM 2/28/01 -0500, you wrote: >What a sensitive young man!!! I wish that there were other hearing impaired >and deaf kids for Steph to get to know. Maybe your kids could share emails/pictures? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 At 08:23 PM 2/28/01 -0500, you wrote: >i am about 20 miles south of Boston in Brockton. Suki, I don't know about Boston, but just over the border in RI, there's the Rhode Island Graham Bell Association, which has periodic meetings and parties, etc. This might be a good opportunity for Steph to meet some other kids her age who are oral and using hearing aids. Let me know if you'd like specific information about it...it's free for the first year to join. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 Daphne, I am in Concord, Mass, right next to Lexington. My son is only 2 1/2, so I don't yet have personal knowledge about the school system here, but everyone raves about it. The preschool program for speech delayed and HI kids is here in town, I've already seen tennis balls on the chairs and table legs in the elementary school, my daughter's kindergarten class has a soundfield FM system, and everyone I talk to (sped dir, school psych, nurse) has some knowledge of hearing loss and its issues. There seems to be a number of kids throughout the system with hearing aids, which means my son should have a peer group as well as mentors. As I said, I don't have personal knowledge yet, but it's coming! I also hear Newton, Mass, has excellent programs for kids with hearing loss, particularly at the high school level. Good luck, Stefanie mom to Ben, 2 1/2, severe HOH, Phonak Novo Fortes >Suki >Where in Mass. are you? We are considering a move from RI to the Lexington >area because we cannot afford the private schools here and the public school >options in our city are abysmal (and my husband works in Lexington) > > is little and won't be a teen for many years but it would be nice to go >where there were some other HI children. In RI I do have a nice little >community (Hi Kerri!) of hard of hearing children and their families. It >would be a reason to stay (if the schools weren't so horriffic!). > >Good luck to you. > >-Daphne >mom to 4 1/2 mild-moderate, Leo 3 normally hearing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 > Suki (and others) have brought up what is a commonality among many Hard of > Hearing kids. (Deaf kids too, but hold that for a moment) It is an issue > of identity. Many times I have heard from parents that they would have > preferred their child to be " totally " deaf so that they knew where they > would fit. HH kids struggle to find a place in both communities. They can > get enough to " pass " within the hearing community,but miss enough to > question themselves and their abilities. > > I remember early on wishing Petya was either deaf or hearing. HoH is in the middle and even parents of deaf kids at times treated me like we didn't belong. We are finding our way now and Petya has made the decision herself to be auditory/oral but it still breaks my heart sometimes that she is somewhere in the middle/ Barb (who seems to be very verbal today) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 Stefanie, The schools in your area have always sounded great and I'm happy to hear that confirmed. Since my husband works in Lexington (and commutes an hour each way to get there) we think often of moving. But the housing $$/taxes-- ouch! We think that it may cost the same to stay here in Providence and have our kids go to private school as it would be to move up there. Of course the commute would be shorter... Either way I have to come up with a way to pay for either/ or. Tomorrow I go to visit a new public elementary school here that has lots of experience with special needs kids. I'm keeping my fingers crossed that it's a good match. Thanks for the reply. -Daphne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 > She refuses to learn sign language > because no other kids at school would know it! JD refuses to learn it because he doesn't like it (never has - though I do, but I won't get into that). > She is truly alone in this as > far as peers that are just like her. I can't believe that in a city with > almost 30 elementary schools, 4 junior highs and a high school with 4000 > students, that there aren't more non-hearing kids. He used to be that way too. We used to live in a school district where he was the only child with a hearing loss who didn't use sign language as their primary means of communication - and we lived in a town with a regional day school for the deaf in it. I hope that at least we've been able to give you a few ideas so far. With a mom like you who obviously cares, how can your daughter help but turn out wonderful! Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 > I had checked with the Federation for Children with Special Needs and the > only places that have any type of activities are places that the buses do not > go to !! They are all north of boston or not in range of time limitations. > Due to galucoma probs I do not drive and am stuck in my little city!!!! Write to the folks who are in charge of these places and activities and explain your problem. Perhaps they can arrange for a volunteer family to come visit you, in a safe public place, once a month or so. If I lived in the area, I certainly would come visit - but it's a very long drive from San . ;-) Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 > it's free for the first > year to join. The chapter or national? For National, it's free for the first 6 months. You can find an application for the free membership here: http://www.listen-up.org/agbell.htm Hugs, Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 > we > did try to get social skills into this last IEP, You may find some helpful info to help you here: http://www.listen-up.org/teach.htm#soc I put this here because social skills are generally VERY difficult to get into an IEP. For those who have been able to get them, congratulations! Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 In a message dated 2/28/01 11:10:19 PM Eastern Standard Time, listenup@... writes: > I hope that at least we've been able to give you a few ideas so far. With a > mom like you > who obviously cares, how can your daughter help but turn out wonderful! > > Hugs, > Kay > > > You all have given me some wonderful ideas!!!! Thanks for the thumbs up! Suki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2001 Report Share Posted February 28, 2001 In a message dated 2/28/01 11:17:08 PM Eastern Standard Time, listenup@... writes: > . If I lived in the area, I certainly would come visit - > but it's a very long drive from San . ;-) > > Kay > > > LOL !! It would be an even longer walk for me!! suki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 I have found that each source of information has only a little piece of the total. Keep asking and looking for resources. Probably the Federation gave you everything they knew, but other people may know about other activities. I wish there were one central index, but it doesn't exist. I have been trying to compile a list of camps for deaf kids and have put out requests in several lists. If you want to see what I have found, go to http://fuzzyears.homestead.com/index.html , then into the forum and look in the folder on " Articles, Books, and Information " - There is a thread on Camps where I have collected what I have found so far. Judith > Ask your case manager if there are activities for the deaf and hard of > hearing. Even if you can't find anyone her age exposure to others, > especially sucessful deaf adults can be valuable. > > Barb > > > I had checked with the Federation for Children with Special Needs and the only places that have any type of activities are places that the buses do not go to !! They are all north of boston or not in range of time limitations. Due to galucoma probs I do not drive and am stuck in my little city!!!! suki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Sorry - I guess I forgot and posted the same information twice. I guess that means I really think it would help. Judith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Hi Judith, I noticed this posting as I too have a 10 daughter who is facing Middle School Next year & I am " freaking out " . Will she get lost in the schuffle? I am interested in learning from the parents whose kids have gone through this & can maybe give us some pointers. What state do you live in I am in Charlotte, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 Hi Darla, So how are you handling the transition into middle--do you feel comfortable with it? Is your child mainstreamed? Boy or Girl?--Are the services good in your area? Gi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 , I also have a 10 year old, soon to be 11, who is going to middle school next year. I'm in Georgia--near Atlanta. Darla On Tue, 6 Mar 2001 09:01:00 EST gjstarfish@... writes: > Hi Judith, > I noticed this posting as I too have a 10 daughter who is facing > Middle > School Next year & I am " freaking out " . Will she get lost in the > schuffle? > I am interested in learning from the parents whose kids have gone > through > this & can maybe give us some pointers. What state do you live in I > am in > Charlotte, NC > > ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 I'm in Los Angeles, California. My daughter who is deaf and her sister who has CP, low vision, and emotional/behavioral problems, are both at the mercy of the Los Angeles Unified School District. My other kids (whose issues include being HOH, ADD/ADHD, endocrine problems) are in a private school which has a college prep approach, even in elementary school. I continually worry about whether I am making the best choices for any of them. I have two kids who are grown (19 and 21) and I'm still not sure that I did the best with them. One of them was diagnosed as ADHD at 20, and I think I knew it when he was little, but didn't know how much it hurt him. He says that the struggle he went through was " OK, Mom, you did the best you knew. " At least he came out of it a wonderful, caring, creative person, even if it didn't have to be so hard. My daughter spent her high school years in a residential treatment facility in another state because of severe emotional problems. I have been second guessed on that decision by lots of people, and yet I have more confidence that it was the right choice that any of the other educational decisions I've made. My kids are all adopted, from foster care, with prenatal exposure to drugs. That said, my kids are all wonderful and I am incredibly lucky to have them. Judith p.s. My favorite pediatrician moved to North Caroline a few years ago (how dare he desert us?) - If you ever run across Harold , he's outstanding. He always took time to explain and teach me, and to encourage me, enough so that I went back to school for a nursing degree. I think he wears his lab coat to cover his wings. Re: HOH Teens Hi Judith, I noticed this posting as I too have a 10 daughter who is facing Middle School Next year & I am " freaking out " . Will she get lost in the schuffle? I am interested in learning from the parents whose kids have gone through this & can maybe give us some pointers. What state do you live in I am in Charlotte, NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 In a message dated 3/7/2001 8:38:43 AM Eastern Standard Time, rancefam@... writes: > The services here are the very bare minimum, > Darla, what ever happened with the transliterator issue that you had there. Elaine Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 We don't transition to middle school until next year. Yes, my child is mainstreamed. He's a boy. The services here are the very bare minimum, if that, until I push for something. It's frustrating, but seems to be the norm. Darla On Tue, 6 Mar 2001 17:15:14 EST gjstarfish@... writes: > Hi Darla, > So how are you handling the transition into middle--do you feel > comfortable > with it? Is your child mainstreamed? Boy or Girl?--Are the services > good in > your area? > Gi > > All messages posted to this list are private and confidential. Each > post is the intellectual property of the author and therefore > subject to copyright restrictions. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 In a message dated 3/7/2001 1:46:51 PM Eastern Standard Time, rancefam@... writes: > (for > Unfortunately, you will probably have to battle for anything and everything because you are " one of those trouble making parents " ...........Thats too bad, but hang tough! Take care, Elaine Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 Elaine, We went to mediation. We got the school to agree to SOME training (very minimal) and got the transliterator to take a proficiency test. All of this could have been accomplished without the cost of mediation (for which the school now views me as their enemy) if open communication was a priority for the school system. We had to fight for an FM system, and other things, as well. Recognition of the importance of qualified personnel remains a problem. We're hanging in there! Thanks for your interest (and great memory!). Darla On Wed, 7 Mar 2001 13:06:11 EST beat4girl@... writes: > In a message dated 3/7/2001 8:38:43 AM Eastern Standard Time, > rancefam@... writes: > > > > The services here are the very bare minimum, > > > > Darla, what ever happened with the transliterator issue that you had > there. > Elaine > > Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2001 Report Share Posted March 7, 2001 Thanks! Darla On Wed, 7 Mar 2001 14:45:47 EST beat4girl@... writes: > In a message dated 3/7/2001 1:46:51 PM Eastern Standard Time, > rancefam@... writes: > > > > (for > > > > Unfortunately, you will probably have to battle for anything and > everything > because you are " one of those trouble making > parents " ...........Thats too > bad, but hang tough! > Take care, > Elaine > > Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 In a message dated 3/9/01 10:01:53 PM Eastern Standard Time, dlarkin@... writes: > Thanks, Suki. I wonder if there is a site for this already??? And how would > one be set up?? > > I do think it would be great for teens; it is hard enough being a teenager, > I can't imagine adding on a disability to it.... > > Debbie > Hi Debbie, I am not sure if this should be discussed here or privately but since it would benefit so many, I am talking about it here. To set up a list, one just has to go to yahoo-groups and form a group. I know I would feel better if an adult moderated it. It is easy to form a group on yahoo-groups. suki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 In a message dated 3/9/01 11:34:08 PM Eastern Standard Time, listenup@... writes: > http://www.deafkids.com/ - contains a monitored chatroom just for deaf and > HH kids, age 17 > and below. It¹s free and open 24 hours a day. Deaf/HH kids from the U.S. > and abroad are > invited to stop by. To ensure the safety of all visitors, the DeafKids.com > chatroom uses a > log system. Records are kept of all visitors. There¹s also a filter system > to protect kids > against unacceptable language (such as profanity, sexual slang, vulgar > insults, and > racial/ethnic slurs.) If any visitor types in an unacceptable word, it¹s > automatically > changed to a designated substitute word before it appears online. > > Hugs, > Kay > > awesome kay!!! This sounds like a good place to start! suki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Suki, It looks like Kay found one for us, THANKS KAY!!! I am working daylight today, so I plan on checking into this this evening, if you are interested. Maybe we need to discuss this privately from this point??? Debbie Re: HOH Teens > In a message dated 3/9/01 10:01:53 PM Eastern Standard Time, > dlarkin@... writes: > > > > Thanks, Suki. I wonder if there is a site for this already??? And how would > > one be set up?? > > > > I do think it would be great for teens; it is hard enough being a teenager, > > I can't imagine adding on a disability to it.... > > > > Debbie > > > > Hi Debbie, > > I am not sure if this should be discussed here or privately but since it > would benefit so many, I am talking about it here. To set up a list, one > just has to go to yahoo-groups and form a group. I know I would feel better > if an adult moderated it. It is easy to form a group on yahoo-groups. > > suki > > > Quote Link to comment Share on other sites More sharing options...
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