Re: Repositioning -any success?-

[Guest guest]

Hi ,

Yes, Hannah was diagnosed as severe. Actually, the official

diagnosis from our neurosurgeon was " the worst case I've ever

seen. " Lucky us . There are pics of her in the Hannah B folder

if you're looking for a comparison. I wish you the best of luck

w/the repoing!

> Thanks . We live in Syracuse. I don't have a lot of

information on the band as we are hoping to succeed with

repositioning. I'll let you know more if we have to go down that

road. You said that your daughter had severe plagio. Was " severe "

an actual diagnosis? I had asked the doctors if her plagio was

severe and how it compared to other babies they have seen. All they

said was that they didn't think it was severe. Needless to say,

they didn't give me a whole lot of info. It seems severe to me

seeing that her ear is pushed forward...

>

> (mom to maddie)

> Re: Repositioning -any success?

>

>

> Hi and welcome to the group. I see Christie already gave you a

> great reply, and I'd echo everything she told you. My daughter

had

> severe plagio and in the short time we repoed it got no better,

so

> we banded her at 4.5 mos. I've also never heard of a helmet

used

> only at night, except for some parents who are told to do this

at

> the end of treatment. Where do you live? I'm curious what type

of

> band your neruo was talking about.

> , mom to Hannah, DOCband #3 3/30

> Cape Cod, Ma

>

> --- In Plagiocephaly , " plmhoy333 " <phoy@t...>

wrote:

> > I have a 4 1/2 month old girl with plagio (right side is flat,

ear

> > is pushed forward and a slight bulge of the forhead). We have

> been

> > repositioning her for 2 months, and while we have seen some

> > improvement, we still have a way to go. We have seen a ped

> > neurosurgeon who was not overly concerned and would not make a

> > recommendation as whether or not we should get a helmet. We

have

> > decided to try repositioning for another month or so...and

then re-

> > evaluate the situation. I'm interested in hearing from others

who

> > have had success with repositioning. We work had at

repositioning

> > her when we are at home, but I have no control over this when

she

> is

> > at day care (although I think they do a pretty good job).

Also, I

> > find myself getting up several times a night to turn her

head.

> For

> > those who have had success at repositioning...did you keep

your

> baby

> > off his/her flat side at all times, or was this just

impossible

> and

> > you did your best to keep him/her off it most of the time?

> >

> > Also, the ped neursugeon said that she would just have to

where

> the

> > helmet at night when she is sleeping. I was under the

impression

> > that the helmet had to be worn for most of the day (23

hours).

> Has

> > anyone ever been told this?

>

>

>

> For more plagio info