Off Topic Posts

[Guest guest]

Although we enjoy Off Topic (OT) posts and want to know what is

going on in your

lives outside of the plagio world, we need to eliminate forwarding

any jokes, poems, or questions unrelated to our children and medical

questions. We ask that simple questions that can be found by doing

a quick Internet search be left off the board.

> You are more than welcome to share your OT questions during our

> Monday night chats.

> In addition, if you are posting a personal question or OT post

that

> you would

> like a response to, feel free to post and please provide your

> personal email

> address so that the answers are able to come to you directly. If

you

> are replying to that particular OT post, please email that person

> directly with your reply.

> Please understand that it is not that we aren't interested in what

is

> going

> on in your lives, but new members entering the board can become

quite

> confused.

> As well as those who receive posts directly into their inboxes can

> become overwhelmed quite quickly when they are filled with OT

> posts.

> We're averaging 3,000+ messages posted to our group monthly, this

is

> wonderful.

> It shows what an active and wonderful group we are. But as new

> members and

> moderators trying to sift thru all of those posts can become

> overwhelming.

> We all appreciate your cooperation with this request.

> Your group moderators:

> , Debbie, Christie, Dustie, Natasha, , , &

Sandy

[Guest guest]

What is nystagmus?

[low dose naltrexone] Off Topic Posts

I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options.

-do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others.

I have SPMS, according to my doctor. My walking and balance are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems?

Joyce

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

HI! JOYCE, MY NAME IS ANITA. I FEEL AS YOU DO. I COME HERE TO READ ABOUT LDN, WHICH I AM TAKING 3.0 MG. I HAVE "CHRONIC PROGRESSIVE". WHICH LEVEL THAT IS, I DO NOT KNOW. I DO NOT HAVE A NEUROLOGIST. HAVEN'T HAD ONE IN ABOUT 15 YRS. I GUESS. BUT I AM TRYING TO FIND ONE HERE WHO WILL TAKE MY MED-I-CAL. I HATE THIS INSURANCE BUSINESS. I'M DOING THE BEST THAT I CAN. TAKE CARE. HAVE A BLESSED DAY. GOD BLESS

EVERYONE.Dan Madden <madden@...> wrote: What is nystagmus? [low dose naltrexone] Off Topic Posts I'm with on this one--I come here to read about LDN. It is easy enough to start your own group for any other purpose, and if members here feel the need to socialize why not start your own group? Or e-mail to each other privately. There are plenty of options. -do we have any idea how many on this Board are taking LDN for RRMS, PPMS or SPMS? I just wondered if we had an idea whether there is some group that gets more benefit than the others. I have SPMS, according to my doctor. My walking and balance

are not better, but some of the other newer sympoms have really subsided, including what was a very annoying nystagmus. Has anyone else had an imporovent with eye problems? Joyce Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

Too busy to feel that way. LOL. However, they're there... so it's not like there aren't other options. Even A Home Away from Home is another option, no?

[low dose naltrexone] Re: Off Topic Posts

lol, whatsamatter Larry, feeling a little lonely?>> yep yep yep... there are other places around for that..

[Guest guest]

Sure it is, I post there everyday. All of the message boards are slow, and have been lately. They have always been somewhat 'spurty' My 'Getting Better' forum is a ghost town lately. My opinion is people are getting sick of tired of being sick and tired. I cant think of any supplement, diet, anything that has worked, other than maybe helping a person feel somewhat better, above and beyond the MS. It seems like we've tried everything, from the normal to the bizarre, and still nothing works for everybody, or even MOST of everybody. LDN probably works for more people than anything else I've seen. But when you want to say something, I dont think you should have to go to another site to say it just because someone feels it's not professional. This is an open forum, for discussion and communication. I'm doing ok, you're doing ok, maybe everybody isnt doing ok, maybe posting some stupid comment here is a way for some people to communicate with other people. What's wrong with that? Sure this site is about LDN, but it's also about the people who use it. The rules say no 'blatant' off topic discussions, I would think those type of discussions would include types of things like sex, religion, politics, etc. Not about something stupid like the thread that people are getting so upset about. The thread was destined to die anyway, the only thing all of this created was stress, and I thought that's what we're trying to avoid.

[low dose naltrexone] Re: Off Topic Posts

lol, whatsamatter Larry, feeling a little lonely?>> yep yep yep... there are other places around for that..

[Guest guest]

I have learned so much about MS and LDN

and other treatments that work for people and I think it would be a shame not

to share these things. I don’t think anyone thinks there is only one

treatment, and obviously diet, flu vaccinations, etc are all important topics

to anyone on this site. Does anyone know if LDN helps epilepsy? I have a

friend that has two children with severe epilepsy—wondering if this would

help. Thanks. Conni

Re: [low dose naltrexone]

Re: Off Topic Posts

Sure it is, I

post there everyday. All of the message boards are slow, and have been lately.

They have always been somewhat 'spurty' My 'Getting Better' forum is a ghost

town lately. My opinion is people are getting sick of tired of being sick and

tired. I cant think of any supplement, diet, anything that has worked, other

than maybe helping a person feel somewhat better, above and beyond

the MS. It seems like we've tried everything, from the normal to the

bizarre, and still nothing works for everybody, or even MOST of everybody. LDN

probably works for more people than anything else I've seen. But when you

want to say something, I dont think you should have to go to another site to

say it just because someone feels it's not professional. This is an open forum,

for discussion and communication. I'm doing ok, you're doing ok, maybe

everybody isnt doing ok, maybe posting some stupid comment here is a

way for some people to communicate with other people. What's wrong

with that? Sure this site is about LDN, but it's also about the people who

use it. The rules say no 'blatant' off topic discussions, I would think those

type of discussions would include types of things like sex, religion, politics,

etc. Not about something stupid like the thread that people are getting so

upset about. The thread was destined to die anyway, the only thing all of

this created was stress, and I thought that's what we're trying to avoid.

[low dose naltrexone] Re: Off Topic Posts

lol, whatsamatter Larry, feeling a little lonely?

>

> yep yep yep... there are other places around for that..