Re: ear wax & cholestiotomia

[Guest guest]

My daughter has to have ear wax removed from her ears almost weekly. She has

a profound hearing loss, and wears aids in both ears. She has had tubes in

for a year now. She does have other health issues, but as far as I know, her

heart is fine.(Thank God!) Should I ask the ENT about cholestiotomia??

Would he have seen that when he put the tubes in? I have been dumbfounded as

to how much wax she has in her ears.

Bobbie

[Guest guest]

In a message dated 2/19/01 3:36:57 PM Eastern Standard Time,

craddock@... writes:

> The ear detects the earmolds as foreign objects so that is why we have alot

> of problems with ear wax I guess..

> best of luck,

> Ruth

>

The small ear canals make it hard for the ear wax to come out naturally.

Especially if the ear canal is extremely small. 's ear canals were

so small that even at the age of 8 1/2 yrs tubes couldnt be inserted. The ENT

could get the instrument needed to insert the tube or the tube in the ear

canal but not both. Because Steph's ear canals are so small, any extra wax

decreases the hearing ability in that ear. I have read where parents are

aware of the degree of hearing loss in their child right to what db it is.

How do you figure that out? The ENT or audiologist have never said anything

beyond a severe hearing loss and a moderate one. they have never put it

anyother way. Is there a way to find out from reading the audiogram??

<<Cholestiotomias have nothing to do with increase in ear wax. It

is a cyst that can grow and be very destructive to the ear.>>

Ruth, thank you for explaining what a cholestiotomia is, the doctors never

explained what it was. I knew it was some kind of growth, but I always

thought that it was a growth of extra skin cells. At one of Steph's

surgeries with our hometown ENT (She has two) he mentioned something about

the fact that her chicken pox scars are raised having something to do with

the way her system reacted to the first two surgeries by filling in the ear

canal with excess skin cells. He called the scars " keloids " (SP?). In between

the first two surgeries she had surgery to clean out the ear canal. it wasn't

until we were sent to a specialist in Boston that the cholestiotomias were

found during that surgery., At one point I counted 8 surgeries in less than

two years! During this time I was going to college and was a single mom. And

yes i did graduate from college!!!

A developmental pediatrician recommended at one time that we have genetic

testing done on Steph because of the ears, the heart and the fact that she

had an extra bone removed from her right foot. The reg ped said it could wait

until she decides to get married and have kids. (I do not see that

happening!! And see her at home the rest of my life!!!!).

Suki

because the ear wax does not move out on its own, it decreases the hearing in

that ear until it is cleaned out by either the ENT or the pediatrician.

[Guest guest]

For the curious (as I was) the correct spelling is Cholesteatoma (don't ask me

how to pronounce it :-) and there is a page describing this condition at

WebMD.com

http://my.webmd.com/content/asset/adam_disease_cholesteatoma

As far as the keloids go, there is another WebMD page describing those at

http://my.webmd.com/content/asset/adam_disease_keloids

Patty also had a scar tissue problem after her canal surgery. There are

particular types of packing they can use post-surgery to try and reduce scar

tissue. There is also an enzyme (Bromelein) that is reported to reduce scar

tissue formation. Low dose steroids can help too. Didn't find out about any of

these until after the problem occurred

Sheri

[Guest guest]

In a message dated 2/19/01 4:49:55 PM Eastern Standard Time,

craddock@... writes:

> Suki, Is your little girl a red head?? My boys are all red heads, you are

> one of the first to talk to me about small ear canals!!

>

Hi! No she is not a redhead!! but has red highlights due to red hair being in

the family!!!! I also have never heard of anyone else having canal

stenosis!! Thanks for the thumbs up!!

Suki

[Guest guest]

In a message dated 2/19/01 4:52:46 PM Eastern Standard Time,

sbyrne1281@... writes:

> There are particular types of packing they can use post-surgery to try and

> reduce scar tissue. There is also an enzyme (Bromelein) that is reported

> to reduce scar tissue formation. Low dose steroids can help too. Didn't

> find out about any of these until after the problem occurred

>

> Sheri

>

>

Hi Sheri,

Alll this was done for Steph and still didnt' help. we were traveling to

Boston everyweek for cortizone shots and they didn't even help keep the ear

canal open after surgery, That is when the doc decided to construct the ear

canal out of the mastiod bowl.

Thanks for the correct spelling and for the info on WEBMD !!!

Suki

[Guest guest]

Hi Bobbie , Cholestiotomias have nothing to do with increase in ear wax. It

is a cyst that can grow and be very destructive to the ear. Please

" everyone " do not miss understand me. Ear problems are not linked with heart

diease, just very small ear canals can be associated.

The ear detects the earmolds as foreign objects so that is why we have alot

of problems with ear wax I guess..

best of luck,

Ruth

Re: ear wax & cholestiotomia

> My daughter has to have ear wax removed from her ears almost weekly. She

has

> a profound hearing loss, and wears aids in both ears. She has had tubes in

> for a year now. She does have other health issues, but as far as I know,

her

> heart is fine.(Thank God!) Should I ask the ENT about cholestiotomia??

> Would he have seen that when he put the tubes in? I have been dumbfounded

as

> to how much wax she has in her ears.

>

> Bobbie

>

>

>

[Guest guest]

Suki, Is your little girl a red head?? My boys are all red heads, you are

one of the first to talk to me about small ear canals!!

My one son that doesnt have hearing aids has failed his hearing test at

school (1st grade) Due to wax!!! So we have a monthly appts for wax removal

too (poor kids) but even with his ears cleaned out he still has a mild loss!

(this is new, they say there is no nerve damage) that is all I know " a mild

loss " . God bless your little girl OMG eight surgeries!

Mom hang in there! you are doing a great job!!!

Ruth

Re: ear wax & cholestiotomia

> In a message dated 2/19/01 3:36:57 PM Eastern Standard Time,

> craddock@... writes:

>

>

> > The ear detects the earmolds as foreign objects so that is why we have

alot

> > of problems with ear wax I guess..

> > best of luck,

> > Ruth

> >

>

> The small ear canals make it hard for the ear wax to come out naturally.

> Especially if the ear canal is extremely small. 's ear canals

were

> so small that even at the age of 8 1/2 yrs tubes couldnt be inserted. The

ENT

> could get the instrument needed to insert the tube or the tube in the ear

> canal but not both. Because Steph's ear canals are so small, any extra

wax

> decreases the hearing ability in that ear. I have read where parents are

> aware of the degree of hearing loss in their child right to what db it

is.

> How do you figure that out? The ENT or audiologist have never said

anything

> beyond a severe hearing loss and a moderate one. they have never put it

> anyother way. Is there a way to find out from reading the audiogram??

>

>

> <<Cholestiotomias have nothing to do with increase in ear wax. It

> is a cyst that can grow and be very destructive to the ear.>>

>

>

> Ruth, thank you for explaining what a cholestiotomia is, the doctors never

> explained what it was. I knew it was some kind of growth, but I always

> thought that it was a growth of extra skin cells. At one of Steph's

> surgeries with our hometown ENT (She has two) he mentioned something about

> the fact that her chicken pox scars are raised having something to do with

> the way her system reacted to the first two surgeries by filling in the

ear

> canal with excess skin cells. He called the scars " keloids " (SP?). In

between

> the first two surgeries she had surgery to clean out the ear canal. it

wasn't

> until we were sent to a specialist in Boston that the cholestiotomias were

> found during that surgery., At one point I counted 8 surgeries in less

than

> two years! During this time I was going to college and was a single mom.

And

> yes i did graduate from college!!!

>

> A developmental pediatrician recommended at one time that we have genetic

> testing done on Steph because of the ears, the heart and the fact that she

> had an extra bone removed from her right foot. The reg ped said it could

wait

> until she decides to get married and have kids. (I do not see that

> happening!! And see her at home the rest of my life!!!!).

>

>

> Suki

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> because the ear wax does not move out on its own, it decreases the hearing

in

> that ear until it is cleaned out by either the ENT or the pediatrician.

>

>

>

[Guest guest]

Sheri, I knew the spelling did not look right... close enough though.Didnt

have time to look it up.

Ruth

Re: ear wax & cholestiotomia

> For the curious (as I was) the correct spelling is Cholesteatoma (don't

ask me how to pronounce it :-) and there is a page describing this condition

at WebMD.com

>

> http://my.webmd.com/content/asset/adam_disease_cholesteatoma

>

> As far as the keloids go, there is another WebMD page describing those at

http://my.webmd.com/content/asset/adam_disease_keloids

>

> Patty also had a scar tissue problem after her canal surgery. There are

particular types of packing they can use post-surgery to try and reduce scar

tissue. There is also an enzyme (Bromelein) that is reported to reduce scar

tissue formation. Low dose steroids can help too. Didn't find out about

any of these until after the problem occurred

>

> Sheri

>

>

> All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

>

[Guest guest]

Hey List mates, I am so thrilled ! My son said to me tonight, for the first

time " A- ouuu " He said Love You!!!! He is trying to be more verbal !

Ruth

Re: ear wax & cholestiotomia

> In a message dated 2/19/01 3:36:57 PM Eastern Standard Time,

> craddock@... writes:

>

>

> > The ear detects the earmolds as foreign objects so that is why we have

alot

> > of problems with ear wax I guess..

> > best of luck,

> > Ruth

> >

>

> The small ear canals make it hard for the ear wax to come out naturally.

> Especially if the ear canal is extremely small. 's ear canals

were

> so small that even at the age of 8 1/2 yrs tubes couldnt be inserted. The

ENT

> could get the instrument needed to insert the tube or the tube in the ear

> canal but not both. Because Steph's ear canals are so small, any extra

wax

> decreases the hearing ability in that ear. I have read where parents are

> aware of the degree of hearing loss in their child right to what db it

is.

> How do you figure that out? The ENT or audiologist have never said

anything

> beyond a severe hearing loss and a moderate one. they have never put it

> anyother way. Is there a way to find out from reading the audiogram??

>

>

> <<Cholestiotomias have nothing to do with increase in ear wax. It

> is a cyst that can grow and be very destructive to the ear.>>

>

>

> Ruth, thank you for explaining what a cholestiotomia is, the doctors never

> explained what it was. I knew it was some kind of growth, but I always

> thought that it was a growth of extra skin cells. At one of Steph's

> surgeries with our hometown ENT (She has two) he mentioned something about

> the fact that her chicken pox scars are raised having something to do with

> the way her system reacted to the first two surgeries by filling in the

ear

> canal with excess skin cells. He called the scars " keloids " (SP?). In

between

> the first two surgeries she had surgery to clean out the ear canal. it

wasn't

> until we were sent to a specialist in Boston that the cholestiotomias were

> found during that surgery., At one point I counted 8 surgeries in less

than

> two years! During this time I was going to college and was a single mom.

And

> yes i did graduate from college!!!

>

> A developmental pediatrician recommended at one time that we have genetic

> testing done on Steph because of the ears, the heart and the fact that she

> had an extra bone removed from her right foot. The reg ped said it could

wait

> until she decides to get married and have kids. (I do not see that

> happening!! And see her at home the rest of my life!!!!).

>

>

> Suki

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> because the ear wax does not move out on its own, it decreases the hearing

in

> that ear until it is cleaned out by either the ENT or the pediatrician.

>

>

>

[Guest guest]

In a message dated 2/19/01 11:50:07 PM Eastern Standard Time,

craddock@... writes:

> Hey List mates, I am so thrilled ! My son said to me tonight, for the first

> time " A- ouuu " He said Love You!!!! He is trying to be more verbal !

> Ruth

>

Hey, Way to go, MOM!!!!! That is good news!!!!! Give him a big hug for me!!

Sue