Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi, Jen. Welcome to our itchy little family! Glad you found us, but very sorry you had to. Sounds like you have a salicylate sensitivity. Some people with chronic urticaria do. You may already have found your cause. To quote one of our most knowledgable members: " Salicylate is in aspirin (and other NSAIDS) and all plant material to some degree. Some people who are reactive to aspirin are actually salicylate sensitive. This is the first thing on Dr. Harry Roth's short list of things to eliminate as a possible cause of Chronic Urticaria. WE have seen some people from this board remarkable become hive free because of gaining control of their salicylate load. " You may well be eating a lot of foods every day which contain salicylates, thus aggravating your hives. If you go the archives at yahoo groups - http://groups.yahoo.com/group/urticaria and search for message #7642, you'll find a diet for avoiding salicylates. I'm curious as to why you were taking the aspirin and ibuprofen. The reason I'm curious is because many of us started hiving after some sort of trauma to the body - infection, accident, surgery, that sort of thing. The hives usually showed up within 6 months. You mention viral as one of the causes, which also made me think of this. As for donating blood, I've been told it would be okay, in spite of how messed up my system is. Although they recommended I not do it when my symptoms are active, as it could cause problems for me, including putting me into shock. Hope this helps! Air hugs, Jackie ----Original Message Follows---- From: jenf21@... Reply-To: urticaria To: urticaria Subject: Another new user Date: Tue, 13 Mar 2001 15:46:17 -0000 Hi everybody! My name is Jen and I am 23 years old. I have had hives since 1996. I had an allergic reaction to apirin, and then a few months later an Ibuprofen reaction and I've had hives ever since. The doctors can't explain what the aspirin or ibu have anything to do with my current condition now finally labeled chronic idiopathic urticaria.. So I've done all the antihistamines. My GP bounced me around from one thing to the next with no idea what was really going on. He finally referred me to a specialist, who is an allergist in Easton, Pennsylvania. He is great. We did allergy tests with no results. He then used the ice cube test which was positive. I also have solar, pressure, hormonal and virus causes. I have tried Atarax, Claritin, Periactin, Sinequan, Zyrtec liquids and tabs, Zantac, Prednisone (which makes them worse, the doctor doesnt belive its possible)... the list goes on thats all I can remember right now. Currently I am on Zantac and Zyrtec, which work nicely. I still get hives at night, but not like the ones I get all day if I don't take it. So a few questions for my new found friends.. 1.) Has anyone ever heard of the chronic urticaria happening after a medication allergic reaction? 2.) I was wondering if I could give blood. My doctor wasn't sure, and I'm not sure if I could be a blood donor considering he says its a problem with protein in my blood. (cryofibrinogen??).. Thanks JEN ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Wow, that is excellent. I new I was allergic to salicylates, but I only thought they were in aspirin and certain medications (I see its in some skin cleansers, wart/corn removers etc etc) but I NEVER knew they were in food. I can't believe my doctor didn't even tell me. I took the aspirin in a AlkaSeltzer type cold symptom reliever liquid, and the ibuprofen for an earache a few months earlier than the aspirin... So I was taking them for anything major. My doctor has rattled off several types of hives that I get and I've noticed more of a flareup in those times... ex:when I have my period, when I have a cold etc.. I am going to go print out 7642 right now! THanks again. Like I said the Zantac/Zyrtec combo really keeps them to a minimum, so right now I am lucky.... however every medication that has ever worked, has stopped working at some point. Jen > Hi, Jen. Welcome to our itchy little family! Glad you found us, but very > sorry you had to. Sounds like you have a salicylate sensitivity. Some people > with chronic urticaria do. You may already have found your cause. To quote > one of our most knowledgable members: " Salicylate is in aspirin (and other > NSAIDS) and all plant material to some degree. Some people who are reactive > to aspirin are actually salicylate sensitive. This is the first thing on > Dr. Harry Roth's short list of things > to eliminate as a possible cause of Chronic Urticaria. WE have seen some > people from this board remarkable become hive free because of gaining > control of their salicylate load. " You may well be eating a lot of foods > every day which contain salicylates, thus aggravating your hives. If you go > the archives at yahoo groups - > > http://groups.yahoo.com/group/urticaria > > and search for message #7642, you'll find a diet for avoiding salicylates. > > I'm curious as to why you were taking the aspirin and ibuprofen. The reason > I'm curious is because many of us started hiving after some sort of trauma > to the body - infection, accident, surgery, that sort of thing. The hives > usually showed up within 6 months. You mention viral as one of the causes, > which also made me think of this. > > As for donating blood, I've been told it would be okay, in spite of how > messed up my system is. Although they recommended I not do it when my > symptoms are active, as it could cause problems for me, including putting me > into shock. > > Hope this helps! > Air hugs, > Jackie > > > ----Original Message Follows---- > From: jenf21@y... > Reply-To: urticaria@y... > To: urticaria@y... > Subject: Another new user > Date: Tue, 13 Mar 2001 15:46:17 -0000 > > Hi everybody! > My name is Jen and I am 23 years old. I have had hives since 1996. I > had an allergic reaction to apirin, and then a few months later an > Ibuprofen reaction and I've had hives ever since. The doctors can't > explain what the aspirin or ibu have anything to do with my current > condition now finally labeled chronic idiopathic urticaria.. So I've > done all the antihistamines. My GP bounced me around from one thing to > the next with no idea what was really going on. He finally referred me > to a specialist, who is an allergist in Easton, Pennsylvania. He is > great. We did allergy tests with no results. He then used the ice cube > test which was positive. I also have solar, pressure, hormonal and > virus causes. > I have tried Atarax, Claritin, Periactin, Sinequan, Zyrtec liquids and > tabs, Zantac, Prednisone (which makes them worse, the doctor doesnt > belive its possible)... the list goes on thats all I can remember > right now. Currently I am on Zantac and Zyrtec, which work nicely. I > still get hives at night, but not like the ones I get all day if I > don't take it. > > So a few questions for my new found friends.. > > 1.) Has anyone ever heard of the chronic urticaria happening after a > medication allergic reaction? > > 2.) I was wondering if I could give blood. My doctor wasn't sure, and > I'm not sure if I could be a blood donor considering he says its a > problem with protein in my blood. (cryofibrinogen??).. > > Thanks > JEN > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria > (hives). We strive to support and lift each other as a worldwide > cyber-family. > > We share whatever needs to be shared to help one another in our struggle > with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a > prefix of NCU -. This is done out of respect for those who do not wish to > read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Hi Jen, Welcome to the group. I hope you find some answers here. My daughter has had CU for 2 years and she is now 2 1/2. I wish the best in your search for a cause. ~~Alena's Mom Another new user > Hi everybody! > My name is Jen and I am 23 years old. I have had hives since 1996. I > had an allergic reaction to apirin, and then a few months later an > Ibuprofen reaction and I've had hives ever since. The doctors can't > explain what the aspirin or ibu have anything to do with my current > condition now finally labeled chronic idiopathic urticaria.. So I've > done all the antihistamines. My GP bounced me around from one thing to > the next with no idea what was really going on. He finally referred me > to a specialist, who is an allergist in Easton, Pennsylvania. He is > great. We did allergy tests with no results. He then used the ice cube > test which was positive. I also have solar, pressure, hormonal and > virus causes. > I have tried Atarax, Claritin, Periactin, Sinequan, Zyrtec liquids and > tabs, Zantac, Prednisone (which makes them worse, the doctor doesnt > belive its possible)... the list goes on thats all I can remember > right now. Currently I am on Zantac and Zyrtec, which work nicely. I > still get hives at night, but not like the ones I get all day if I > don't take it. > > So a few questions for my new found friends.. > > 1.) Has anyone ever heard of the chronic urticaria happening after a > medication allergic reaction? > > 2.) I was wondering if I could give blood. My doctor wasn't sure, and > I'm not sure if I could be a blood donor considering he says its a > problem with protein in my blood. (cryofibrinogen??).. > > Thanks > JEN > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Jen, http://www.feingold.org/ Also try this site for information on the diet. It is more concise. I actually ordered their book and am a member. If you are serious about the diet, I think the $77 is well worth it to find out what types of processed foods you are allowed to have. They say the foods are researched, etc. Quote Link to comment Share on other sites More sharing options...
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