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,

I think you maybe had a low blood sugar (hypoglycemic) episode. Are

you on any medications for diabetes?

I was on Prednisone and it caused diabetes so I was taking pills for

that. However, we could never get the pills in balance and I would

have episodes mostly in the middle of the night where I'd feel ready

to pass out and clammy, just a you described. I'd have to get some

sugar into me quick and it would reverse. Something like a piece of

hard candy or a glass of orange juice. I soon stopped taking the

medication and control my blood sugar with diet.

The prednisone and any other drug you are taking can be messing with

your insulin production. You might want to see what your blood

glucose level is when you feel that way. It might just be a good idea

to not go hungry and keep your glucose at a good normal level. Your

doctor can prescribe a glucose monitoring kit.

BillG

Camarillo, CA

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Hi .... Well I've catnapped all day long. Then I had to get hay

and I can tell you that it took all of my energy, what little I have

left. I've been sick to my stomach all day, that is when I'm awake.

Since I've had this disease I've had plenty of dental problems. I've

talked to a lot of people with the same story. My teeth are forming

fractures in the root. Oh Joy! Hey, you talked about your jaw not

opening all the way. When I entered the hospital I was just like

that... Had been that way for about 7 months. It felt like it was

locked in place. Once I got out of the hospital I could open my mouth

again. They told me the inflammation had affected the muscles in my

jaws. Makes sense to me...

I'm so sorry to hear about your mom's wallet.... My gosh, you must know

the saying... when it rains it pours.

If you're still having strange feelings, especially on one side, you

need to be seen. Try to get in to the ER tomorrow or as soon as you

can. Look up Stroke and see if the symptoms fit. Don't worry about

running to the ER if nothing is wrong. You are having very unusual

symptoms and I think you need to be seen.

Hope you're having a good day.

Take care,

Vicki

 

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Oh Vicki.....I so hope today is a better day for you!!!!

The dental stuff is VERY interesting....cannot for the life of me figure

out the connection and yet there seems to be something there. I have

always had "weak" teeth and woud always have one or two that needed fillings

every 6 months when I would go in, but in the last three years they have

taken a dramatic turn for the worse and are basically all trying to crumble

out of my head at the moment (and accomplishing it too!!). All the

teeth I have left are gonna have to be crowned, but even with us working

diligently to try and get ahead of the problem, I have now lost all but

one molar on top on one side, and two are left on the other. We never

can tell which one is gonna be the next to go, so like in the hospital,

one that seemed atleast reasonably stable broke off at the gum line while

I was eating a piece of bread!! It was a bummer too because it was

one of the few upper molars I have left to chew with!!! There seems

to be a link with mito over here with it too, and my son (8) has already

had major problems with his teeth too, so it must have something to do

with having a systemic disease maybe. Who knows.

I am SO hopeful that I am gonna be able to open my mouth again!!!

Thanks for giving me some (had kinda decided maybe this was just the way

it is from now on). I can open mine minimally, but have to "fit"

things like sandwiches in there because its not open enough to get even

a normal sized one in. No pain or anything, just stops there and

won't open any more!! Mine started when all of my joints started

to be affected by the arthritis, and I have two fingers too that only bend

so far now. Maybe, just maybe, this is gonna improve!!! I'll

keep hoping so atleast. Thanks so much for the feedback and for sharing

this with me.

Thanks a ton for the encouragment to get into the ER......its always

such a pain to go!!! But I know there is something odd happening

here and I don't want to just ignore it. As much as I hate it, I

do think there is a good chance that I have had a stroke, or stroke-like

episode, which is something common with the type of mito I think we are

dealing with over here. I am a bit scared to even find out for sure,

but know I need to know. I promise I'll keep you posted!!!

Feel better today friend!!!

BIG hugs,

anzavic@... wrote:

Hi .... Well I've catnapped all day long. Then I had

to get hay

and I can tell you that it took all of my energy, what little I

have

left. I've been sick to my stomach all day, that is when

I'm awake.

Since I've had this disease I've had plenty of dental problems.

I've

talked to a lot of people with the same story. My teeth

are forming

fractures in the root. Oh Joy! Hey, you talked about

your jaw not

opening all the way. When I entered the hospital I was just

like

that... Had been that way for about 7 months. It felt

like it was

locked in place. Once I got out of the hospital I could open

my mouth

again. They told me the inflammation had affected the muscles

in my

jaws. Makes sense to me...

I'm so sorry to hear about your mom's wallet.... My gosh, you must

know

the saying... when it rains it pours.

If you're still having strange feelings, especially on one side,

you

need to be seen. Try to get in to the ER tomorrow or as soon

as you

can. Look up Stroke and see if the symptoms fit.

Don't worry about

running to the ER if nothing is wrong. You are having very

unusual

symptoms and I think you need to be seen.

Hope you're having a good day.

Take care,

Vicki

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Dear ,

I agree with Vicki that you should get your symptoms checked thoroughly. Several years ago my dad had a TIA (transitory ischemia attack)--which has something to do with circulation and the brain--somehow it is related to a stroke or is a "pre-stroke" or something. I hope you find answers soon.

Ann-Marie

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.... here's something..... Now you may not have even had one of

these but it does need to be checked out.

What is Transient Ischemic Attack?

A transient ischemic attack (TIA) is just like a stroke, except that it

lasts only a few minutes. It occurs when the blood supply to part of the

brain is briefly interrupted. TIA symptoms, which usually occur

suddenly, are similar to those of stroke but do not last as long. Most

symptoms of a TIA disappear within an hour, although they may persist

for up to 24 hours. Symptoms can include: numbness or weakness in the

face, arm, or leg, especially on one side of the body; confusion or

difficulty in talking or understanding speech; trouble seeing in one or

both eyes; and difficulty with walking, dizziness, or loss of balance

and coordination.

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Vicki and ,

I, too, have a big problem with fractured teeth. Last year, I made three

emergency trips to the dentist for that reason...REALLY adds to the feeling

that we are literally falling apart a piece at a time, doesn't it? I don't

know if it's the disease or the meds. Annette

THANK YOU and more

Hi .... Well I've catnapped all day long. Then I had to get hay

and I can tell you that it took all of my energy, what little I have

left. I've been sick to my stomach all day, that is when I'm awake.

Since I've had this disease I've had plenty of dental problems. I've

talked to a lot of people with the same story. My teeth are forming

fractures in the root. Oh Joy! Hey, you talked about your jaw not

opening all the way. When I entered the hospital I was just like

that... Had been that way for about 7 months. It felt like it was

locked in place. Once I got out of the hospital I could open my mouth

again. They told me the inflammation had affected the muscles in my

jaws. Makes sense to me...

I'm so sorry to hear about your mom's wallet.... My gosh, you must know

the saying... when it rains it pours.

If you're still having strange feelings, especially on one side, you

need to be seen. Try to get in to the ER tomorrow or as soon as you

can. Look up Stroke and see if the symptoms fit. Don't worry about

running to the ER if nothing is wrong. You are having very unusual

symptoms and I think you need to be seen.

Hope you're having a good day.

Take care,

Vicki

 

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Kass,

My name is Fern. I am a nurse. I have been out of site for a few weeks due

to a business trip we took with my husband.

The spell you describe with fainting, sweating, chills, and pain down your

arm are all symptoms of heart problems and with your history, I would NOT

ignore it if it happens again. My advice would be to go to the ER

immediately. Who cares if you get told it is okay, it is better to be safe

than sorry. I cannot believe that your doctor brushed this off as a

prednisone reaction. I have never heard of such an acute reaction to

prednisone!!!

Gentle hugs,

Fern

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Hi Fern... so glad to have you back. How are you doing? Recouping from

vacation I suppose.... Thanks for jumping in and urging . I'm

very worried about her. I agree with you about the doctor. Seems to

me that to many of them blame Prednisone right off the bat without even

examining the individual. Well, I do hope you're resting and recouping.

Take care,

Vicki

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