RE: Doctors Visit

[Guest guest]

Cari... I'm so glad 's first day at school went well. Was he able

to get up this morning for school? Hope you had a great day.

Take care,

Vicki

[Guest guest]

Cari... It does bother me that my daughter is so far away. I know at

times it also bothers her... she would love to have someone she can

depend on to help with the kids. I really enjoy talking to the kids

when I get the chance. Of all the kids in the world, my grand kids are

probably the only ones that hate talking on the phone. Sophie talking

to me 4 times the other day was a complete shock. They even hate

talking to their own friends. Maybe one day all will come together and

I'll get my chance to get over there.

Take care,

Vicki

[Guest guest]

Teddi... I deleted the doctors name since you didn't need it... it's now

long gone. Sorry... I'll try to find it again.

Also, Call the MDA and ask them. I'm sure you'll be able to go to them.

Vicki

[Guest guest]

Vicki

Have already called the MDA clinic here in

OKC and they are sending me a registration

packet....I asked about my insr and they said

that even if it didn't medicare would pay and

MDA eats the rest......They were so nice and

helpful on the phone.....will keep you all

posted

Teddi

mailto:teddifromok@...

[Guest guest]

Teddi.... That is the greatest news.... I hope you find a doctor there

that you like. After all, the MDA is also doing research on Myositis so

this is right up there ally.... What great news...!!!!

Vicki

[Guest guest]

My parents visited Australia last winter. They had a wondeful time and said

it was a beautiful country. It had always been a dream of theirs to take a

vacation there. What brought your daughter to Australia?

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Fri, 10 Aug 2001 16:17:51 -0700 (PDT)

>

>

>

>Cari... It does bother me that my daughter is so far away. I know at

>times it also bothers her... she would love to have someone she can

>depend on to help with the kids. I really enjoy talking to the kids

>when I get the chance. Of all the kids in the world, my grand kids are

>probably the only ones that hate talking on the phone. Sophie talking

>to me 4 times the other day was a complete shock. They even hate

>talking to their own friends. Maybe one day all will come together and

>I'll get my chance to get over there.

>

>Take care,

>Vicki

>

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[Guest guest]

got up Friday morning for school just fine. He said he wasn't going

to go to school because it is just to long to be gone. I agree with him!!

Here in Georgia the Kindergarteners go all day! Crazy and too long for any

5 year old. I am sure every Kindergartener in GA. told their parents the

same thing on the 2nd day. I am sure I will hear it again on Monday

morning. Otherwise, he did fine. He slept again on Friday during rest

time. As you all know, he must of been exhausted to have fallen asleep. I

am glad he is getting some good down time there. So far so good.

Hugs,

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Fri, 10 Aug 2001 16:12:01 -0700 (PDT)

>

>

>

>Cari... I'm so glad 's first day at school went well. Was he able

>to get up this morning for school? Hope you had a great day.

>

>Take care,

>Vicki

>

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[Guest guest]

That's great news Teddi. Hope you are able to relax a little about the

situation.

Hugs,

Cari

>From: TeddiFromOK@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Fri, 10 Aug 2001 22:13:05 -0500 (CDT)

>

>Vicki

>Have already called the MDA clinic here in

>OKC and they are sending me a registration

>packet....I asked about my insr and they said

>that even if it didn't medicare would pay and

>MDA eats the rest......They were so nice and

>helpful on the phone.....will keep you all

>posted

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

_________________________________________________________________

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[Guest guest]

Sounds as though is handling things beautifully. I'm so glad for him

and for you. Annette

RE: Doctors Visit

>Date: Fri, 10 Aug 2001 16:12:01 -0700 (PDT)

>

>

>

>Cari... I'm so glad 's first day at school went well. Was he able

>to get up this morning for school? Hope you had a great day.

>

>Take care,

>Vicki

>

_________________________________________________________________

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[Guest guest]

Hi Cari.... Actually, when my daughter graduated from high school she

wanted to do some traveling. Mom said " Ok honey, that would be very

nice " .... how stupid I was.... That started at 18. Little did I know

what she had in mind. She's lived and worked all over the world. She

decided early on to see what the really people lived like and to

experience their way of life. After many years of traveling she was

suppose to spend three months in New Zealand and three months in

Australia then come home to settle down.

Once she arrived in Australia she said she felt like it was home. The

people were so nice, she found work right away and then found ,

whom she married. She's now been there for about 11 yrs. She's always

been a simple type of girl. So she took to the simple life style. It's

wonderful for her but I hate it... What's a mother to do....lol One

thing she did learn while exploring the world is that Americans are

very, very wasteful. I have to agree with that.

Hope you have a good weekend ....

Vicki

[Guest guest]

Thanks Annette. I actually slept all night last night. Had been waking up

around 3:00 am every morning for the past week and then had been unable to

go back to sleep. I am not one to worry about things before they happen but

I found going off to school weighed very heavy on my mind. Appreciate

everyone's support.

Hugs,

Cari

>

>Reply-To: OurMyositis

>To: <OurMyositis >

>Subject: RE: Doctors Visit

>Date: Sat, 11 Aug 2001 12:46:11 -0400

>

>Sounds as though is handling things beautifully. I'm so glad for him

>and for you. Annette

>

> RE: Doctors Visit

> >Date: Fri, 10 Aug 2001 16:12:01 -0700 (PDT)

> >

> >

> >

> >Cari... I'm so glad 's first day at school went well. Was he able

> >to get up this morning for school? Hope you had a great day.

> >

> >Take care,

> >Vicki

> >

>

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

>

[Guest guest]

Vicki,

Your daughter sounds like an amazing, brave woman...wonder where she got

that from?...LOL... We raise our children to be independent, strong,

individual thinkers and then it turns around and bites us in the butt.

I think your daughter is right. Americans are incredibly wasteful.

Hugs,

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Sat, 11 Aug 2001 09:57:29 -0700 (PDT)

>

>

>

>Hi Cari.... Actually, when my daughter graduated from high school she

>wanted to do some traveling. Mom said " Ok honey, that would be very

>nice " .... how stupid I was.... That started at 18. Little did I know

>what she had in mind. She's lived and worked all over the world. She

>decided early on to see what the really people lived like and to

>experience their way of life. After many years of traveling she was

>suppose to spend three months in New Zealand and three months in

>Australia then come home to settle down.

>Once she arrived in Australia she said she felt like it was home. The

>people were so nice, she found work right away and then found ,

>whom she married. She's now been there for about 11 yrs. She's always

>been a simple type of girl. So she took to the simple life style. It's

>wonderful for her but I hate it... What's a mother to do....lol One

>thing she did learn while exploring the world is that Americans are

>very, very wasteful. I have to agree with that.

>

>Hope you have a good weekend ....

>Vicki

>

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[Guest guest]

Vicki

Yes, I originally went to the MDA site to check

it out for Missy and was very surprised to find

that they dealt with DM, PM & (just went brain

dead) theone that starts with I........They have

clinics all over so some of you might want to

go there and see if there is a clinic near you

Oops! went to get the website addy an hit

something wrong (no kiddin, Teddi) and

got this on no RX Mexican medicine...needless

to say I haven't checked it out yet but here

it is

http://www.ironstonepub.com

Now I'll try again on te MDA

http://www.mdausa.org/

Teddi

mailto:teddifromok@...

[Guest guest]

Teddi... the insurance that Missy's mother has on her... will it cover

her at the MDA?

Vicki

[Guest guest]

<<<Teddi... the insurance that Missy's mother has on her... will it

cover

her at the MDA?

Vicki >>

No it won't but we are going to try to get her

on Medicaid......A friend of mine is good

friends with one of our state senators and

she is going to see if he can help in any way

Besides, that insr we had on her was a total

bust!!

Teddi

mailto:teddifromok@...

[Guest guest]

Hi Teddi.... Can you just go into the Medicaid office in your area and

get the forms to fill out? When will she be coming back to OK? I

haven't heard a word from her and she's got me worried. I'll be so

happy when she gets back there.

Vicki

[Guest guest]

Teddi,

is a Junior Goodwill Ambassador for the MDA. He sees a MDA

neurologist twice a year. Really just to keep him in the MDA files. Dr.

Sekul defers everything to 's Juvenile Rheumy. and I have made

appearances for fundraisers around Augusta. When they do their Shamrocks,

firefighters boot drives, lock-ups and such, and I will go over and

meet with the firefighters, convience store managers etc... We tell our

little story and thank all of the individuals for their time given to the

MDA. I think it helps when they see a healthy little boy that research has

really helped and that with their help all the MDA patients are that much

closer to the happy ending that we are having with . enjoys it

the attention. The myositis's aren't the big research projects of the MDA,

but I think that when they cure any of these diseases that makes them that

much closer to curing other diseases. 's school schedule will

certainly be putting a crimp in his appearance schedule! I meet with the

MDA mother's once a month for lunch. I have met a dear friend through them

and the MDA rep. for our area has become a close friend, although she still

can't pronounce Dermatomyositis. I hope your local MDA office will be a big

help to you. Keep me posted.

Hugs,

Cari

>From: TeddiFromOK@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Sat, 11 Aug 2001 18:19:01 -0500 (CDT)

>

>Vicki

>

>Yes, I originally went to the MDA site to check

>it out for Missy and was very surprised to find

>that they dealt with DM, PM & (just went brain

>dead) theone that starts with I........They have

>clinics all over so some of you might want to

>go there and see if there is a clinic near you

>

>Oops! went to get the website addy an hit

>something wrong (no kiddin, Teddi) and

>got this on no RX Mexican medicine...needless

>to say I haven't checked it out yet but here

>it is

>http://www.ironstonepub.com

>

>Now I'll try again on te MDA

>http://www.mdausa.org/

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

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[Guest guest]

Vicki......Re.Missy We aren't too happy either

Not sure when she is coming....s parents

want her to hide in the house 24/7...can you

believe that?

Teddi

mailto:teddifromok@...

[Guest guest]

Good Morning Everyone...

Teddi... Missy does need to go home. doesn't have the backbone he

needs to take care of her. I'm afraid the longer her condition goes on

the more permanent it might become and she's far to young for a wheel

chair.

Vicki

[Guest guest]

Vicki

Now all we have to do is convince Missy

Teddi

mailto:teddifromok@...

[Guest guest]

OK everyone. I missed the entire story about Missy. I am so confused. Must

of been a Yahoo mix up with a post I never received. Can someone fill me

in? Thanks, Cari

>From: TeddiFromOK@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Sun, 12 Aug 2001 23:34:30 -0500 (CDT)

>

>Vicki

>Now all we have to do is convince Missy

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

_________________________________________________________________

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[Guest guest]

Ditto...Me too. Didn't get any of the story except the last two exchanges.

Annette

RE: Doctors Visit

>Date: Sun, 12 Aug 2001 23:34:30 -0500 (CDT)

>

>Vicki

>Now all we have to do is convince Missy

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

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[Guest guest]

Ok. Glad I'm not the only one confused.

Cari

>

>Reply-To: OurMyositis

>To: <OurMyositis >

>Subject: RE: Doctors Visit

>Date: Mon, 13 Aug 2001 11:22:26 -0400

>

>Ditto...Me too. Didn't get any of the story except the last two exchanges.

>Annette

>

> RE: Doctors Visit

> >Date: Sun, 12 Aug 2001 23:34:30 -0500 (CDT)

> >

> >Vicki

> >Now all we have to do is convince Missy

> >

> >

> >Teddi

> >mailto:teddifromok@...

> >

> >

> >

> >

> >

> >

> >

> >

> >

>

>

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

>

>

>

>

>

[Guest guest]

Cari

No you didn't....Missy is my 20 yr old g dau who

lives in San Diego....She is in severe pain

and shakes so bad she uses a wheelchair

and we don't know what it is....she was here

for a visit and her Mom and I took her to a

neurologist....Since she has been living under

a lot of stress for the last yr dr decided it was

all in her head....did not do a full MRI or a

complete blood workup...Her husband &

his family (they have lived with them since

they were married a yr ago) haven't bothered

to` get her to a dr......She is more or less

confined to their bedroom all day ..no trans

or friends there.....GRRRRRR don't get me

started on that!...lol

Teddi

mailto:teddifromok@...

[Guest guest]

Teddi,

So very sorry. Dr's are unbelieveable. It must be frustrating for you to

be so far away. Forgive me for being nosy. Keep us posted and she will be

my prayers.

Hugs,

Cari

>From: TeddiFromOK@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: RE: Doctors Visit

>Date: Mon, 13 Aug 2001 14:37:52 -0500 (CDT)

>

>Cari

>

>No you didn't....Missy is my 20 yr old g dau who

>lives in San Diego....She is in severe pain

>and shakes so bad she uses a wheelchair

>and we don't know what it is....she was here

>for a visit and her Mom and I took her to a

>neurologist....Since she has been living under

>a lot of stress for the last yr dr decided it was

>all in her head....did not do a full MRI or a

>complete blood workup...Her husband &

>his family (they have lived with them since

>they were married a yr ago) haven't bothered

>to` get her to a dr......She is more or less

>confined to their bedroom all day ..no trans

>or friends there.....GRRRRRR don't get me

>started on that!...lol

>

>

>Teddi

>mailto:teddifromok@...

>

>

>

>

>

>

>

>

>

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