Holly, daughter aged 13months - a UK experience

[Guest guest]

Just a little update to let you all know how Holly got on. We saw Dr

Blecher on Sunday and he measured her at 3mm (an improvement of 4mm

from six weeks ago and 14mm since we first started the helmet three

months ago). We agreed with Dr B that we would stop the helmet as

appearance wise the head looks completely rounded now at the back

which is more that we could have hoped for. Just as a comparison we

got him to measure (aged 3 1/2 years) and he was measured at

1mm - not that you can tell!

Holly is now 13months old and is now having to get used to life

without the hat – she has fallen over a few times now and is getting

a sharp shock now that she can't rely on the helmet to save her from

falls! A few times she has put her hand up to her head to see where

the helmet is!

We have been very pleased with how she has done and are happy to

disappear back to obscurity without the constant stares (and

glares!). For anyone else thinking about this course of treatment,

looking back it was the hardest decision we have ever had to take,

but are glad that we did. Had we listened to out GP and health

visitor, we would still be none the wiser and having to listen to the

same `it'll round out' mantra with no confidence.

We'd like to thank everyone on this site that has replied and offered

their help and understanding. It has been a great source of comfort

that we would not have otherwise had, and would like to send our best

wishes to everyone who is still undergoing or considering treatment.

[Guest guest]

Congratulations Holly!!!!!!

Thank you for sharing your experience about your banding journey. If

you have time please post before and after pictures of Holly. Would

love to see some.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

--- In Plagiocephaly , " spboneuk " <simonpbaldock@f...>

wrote:

> Just a little update to let you all know how Holly got on. We saw

Dr

> Blecher on Sunday and he measured her at 3mm (an improvement of 4mm

> from six weeks ago and 14mm since we first started the helmet three

> months ago). We agreed with Dr B that we would stop the helmet as

> appearance wise the head looks completely rounded now at the back

> which is more that we could have hoped for. Just as a comparison we

> got him to measure (aged 3 1/2 years) and he was measured at

> 1mm - not that you can tell!

>

> Holly is now 13months old and is now having to get used to life

> without the hat – she has fallen over a few times now and is

getting

> a sharp shock now that she can't rely on the helmet to save her

from

> falls! A few times she has put her hand up to her head to see where

> the helmet is!

>

> We have been very pleased with how she has done and are happy to

> disappear back to obscurity without the constant stares (and

> glares!). For anyone else thinking about this course of treatment,

> looking back it was the hardest decision we have ever had to take,

> but are glad that we did. Had we listened to out GP and health

> visitor, we would still be none the wiser and having to listen to

the

> same `it'll round out' mantra with no confidence.

>

> We'd like to thank everyone on this site that has replied and

offered

> their help and understanding. It has been a great source of comfort

> that we would not have otherwise had, and would like to send our

best

> wishes to everyone who is still undergoing or considering treatment.

[Guest guest]

Hi,

WOW, what great correction Holly received! I am so glad you posted

with her success story with Dr. Blecher's helmet. Your post will be

very encouraging to parents who are still struggling with a

helmet/band decision, in the face of doctors and specialists telling

them not to worry and that there is no need for action.

I, too, would love to see before and after pictures if you decide to

post them. Does Dr. Blecher take exit photos are anything like that?

Regards,

Christie (Mom to Repo'd Remy)

> Just a little update to let you all know how Holly got on. We saw

Dr

> Blecher on Sunday and he measured her at 3mm (an improvement of

4mm

> from six weeks ago and 14mm since we first started the helmet

three

> months ago). We agreed with Dr B that we would stop the helmet as

> appearance wise the head looks completely rounded now at the back

> which is more that we could have hoped for. Just as a comparison

we

> got him to measure (aged 3 1/2 years) and he was measured

at

> 1mm - not that you can tell!

>

> Holly is now 13months old and is now having to get used to life

> without the hat – she has fallen over a few times now and is

getting

> a sharp shock now that she can't rely on the helmet to save her

from

> falls! A few times she has put her hand up to her head to see

where

> the helmet is!

>

> We have been very pleased with how she has done and are happy to

> disappear back to obscurity without the constant stares (and

> glares!). For anyone else thinking about this course of treatment,

> looking back it was the hardest decision we have ever had to take,

> but are glad that we did. Had we listened to out GP and health

> visitor, we would still be none the wiser and having to listen to

the

> same `it'll round out' mantra with no confidence.

>

> We'd like to thank everyone on this site that has replied and

offered

> their help and understanding. It has been a great source of

comfort

> that we would not have otherwise had, and would like to send our

best

> wishes to everyone who is still undergoing or considering

treatment.

[Guest guest]

Congratualtions!

Thank you for sharing your experience and for being part of this

group.

Sue

Colin F. 11 mos, brachy

STARband 6/29 (10 wks)

Buffalo, NY

--- In Plagiocephaly , " spboneuk " <simonpbaldock@f...>

wrote:

> Just a little update to let you all know how Holly got on. We saw

Dr

> Blecher on Sunday and he measured her at 3mm (an improvement of 4mm

> from six weeks ago and 14mm since we first started the helmet three

> months ago). We agreed with Dr B that we would stop the helmet as

> appearance wise the head looks completely rounded now at the back

> which is more that we could have hoped for. Just as a comparison we

> got him to measure (aged 3 1/2 years) and he was measured at

> 1mm - not that you can tell!

>

> Holly is now 13months old and is now having to get used to life

> without the hat – she has fallen over a few times now and is

getting

> a sharp shock now that she can't rely on the helmet to save her

from

> falls! A few times she has put her hand up to her head to see where

> the helmet is!

>

> We have been very pleased with how she has done and are happy to

> disappear back to obscurity without the constant stares (and

> glares!). For anyone else thinking about this course of treatment,

> looking back it was the hardest decision we have ever had to take,

> but are glad that we did. Had we listened to out GP and health

> visitor, we would still be none the wiser and having to listen to

the

> same `it'll round out' mantra with no confidence.

>

> We'd like to thank everyone on this site that has replied and

offered

> their help and understanding. It has been a great source of comfort

> that we would not have otherwise had, and would like to send our

best

> wishes to everyone who is still undergoing or considering treatment.

[Guest guest]

Congratulations Holly!! THat is terrific news.

Angie and Jenna

Holly, daughter aged 13months - a UK experience

Just a little update to let you all know how Holly got on. We saw Dr

Blecher on Sunday and he measured her at 3mm (an improvement of 4mm

from six weeks ago and 14mm since we first started the helmet three

months ago). We agreed with Dr B that we would stop the helmet as

appearance wise the head looks completely rounded now at the back

which is more that we could have hoped for. Just as a comparison we

got him to measure (aged 3 1/2 years) and he was measured at

1mm - not that you can tell!

Holly is now 13months old and is now having to get used to life

without the hat - she has fallen over a few times now and is getting

a sharp shock now that she can't rely on the helmet to save her from

falls! A few times she has put her hand up to her head to see where

the helmet is!

We have been very pleased with how she has done and are happy to

disappear back to obscurity without the constant stares (and

glares!). For anyone else thinking about this course of treatment,

looking back it was the hardest decision we have ever had to take,

but are glad that we did. Had we listened to out GP and health

visitor, we would still be none the wiser and having to listen to the

same `it'll round out' mantra with no confidence.

We'd like to thank everyone on this site that has replied and offered

their help and understanding. It has been a great source of comfort

that we would not have otherwise had, and would like to send our best

wishes to everyone who is still undergoing or considering treatment.

For more plagio info

[Guest guest]

Your story has given me great encouragement. Our son Max was

STARbanded three weeks ago and although I have seen a slight

improvement it seems an eternity until our last scheduled

appointment on 22 Dec when it will hopefully be removed. Your

daughter Holly was only 1 month younger than Max when she was fitted

and that gives me great hope that he too will have good results.

However, I am also worrying whether we made the right decision to

have the STARband as opposed to Dr Blecher's helmet, a decision

taken on the basis that Active helmets are thought to be more

effective on older babaies. Holly's case has demonstrated that the

passive helmet can also have great results.

We are thrilled for you and hope that in 3 months time we can also

post a similarly inspiring and joyful message.

All the very best to you and your baby who have come through and got

to the other end with fabulous results.

Jan

Shropshire

> Just a little update to let you all know how Holly got on. We saw

Dr

> Blecher on Sunday and he measured her at 3mm (an improvement of

4mm

> from six weeks ago and 14mm since we first started the helmet

three

> months ago). We agreed with Dr B that we would stop the helmet as

> appearance wise the head looks completely rounded now at the back

> which is more that we could have hoped for. Just as a comparison

we

> got him to measure (aged 3 1/2 years) and he was measured

at

> 1mm - not that you can tell!

>

> Holly is now 13months old and is now having to get used to life

> without the hat – she has fallen over a few times now and is

getting

> a sharp shock now that she can't rely on the helmet to save her

from

> falls! A few times she has put her hand up to her head to see

where

> the helmet is!

>

> We have been very pleased with how she has done and are happy to

> disappear back to obscurity without the constant stares (and

> glares!). For anyone else thinking about this course of treatment,

> looking back it was the hardest decision we have ever had to take,

> but are glad that we did. Had we listened to out GP and health

> visitor, we would still be none the wiser and having to listen to

the

> same `it'll round out' mantra with no confidence.

>

> We'd like to thank everyone on this site that has replied and

offered

> their help and understanding. It has been a great source of

comfort

> that we would not have otherwise had, and would like to send our

best

> wishes to everyone who is still undergoing or considering

treatment.

[Guest guest]

Hi

I'm delighted for you- I've been watching out for Holly's progress

over the past couple of months and am really happy that you have got

such a good result. It helps having people go first with things- it

inspires the rest of us trailing behind!

Good luck in the future

Hannah (mum to Lucia, London, UK)

Plagio, passive helmet, 4/7/04

> Just a little update to let you all know how Holly got on. We saw

Dr

> Blecher on Sunday and he measured her at 3mm (an improvement of

4mm

> from six weeks ago and 14mm since we first started the helmet

three

> months ago). We agreed with Dr B that we would stop the helmet as

> appearance wise the head looks completely rounded now at the back

> which is more that we could have hoped for. Just as a comparison

we

> got him to measure (aged 3 1/2 years) and he was measured

at

> 1mm - not that you can tell!

>

> Holly is now 13months old and is now having to get used to life

> without the hat – she has fallen over a few times now and is

getting

> a sharp shock now that she can't rely on the helmet to save her

from

> falls! A few times she has put her hand up to her head to see

where

> the helmet is!

>

> We have been very pleased with how she has done and are happy to

> disappear back to obscurity without the constant stares (and

> glares!). For anyone else thinking about this course of treatment,

> looking back it was the hardest decision we have ever had to take,

> but are glad that we did. Had we listened to out GP and health

> visitor, we would still be none the wiser and having to listen to

the

> same `it'll round out' mantra with no confidence.

>

> We'd like to thank everyone on this site that has replied and

offered

> their help and understanding. It has been a great source of

comfort

> that we would not have otherwise had, and would like to send our

best

> wishes to everyone who is still undergoing or considering

treatment.