Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 i am so excitied, we had a fundraiser for to help with our next trip to the month long rehabiliation program we are going to in September. IT wsa a great night. SO many friends and family over the years always are asking what they can do to help (she has had 38 surgeries) (and we almost lost her 3 times). So we made a video showing her life from the NICU, and all the alternative therapies she has done, what we do with her etc. Complete with " Somewhere over the rainbow " music at the beginning. I ended with a poem. It is a 15mn video that was unbeleivable. We also added in the spot from 5 years ago on the Today Show with her Hippo Therapy, and Matt Lauer! THere were 240 people their and not a dry eye in the place. It really gave them a chance to see what and how far has come. She ends it walking in her walker! (this was before the recent hip surgery) anyway, we also were able to explain to alot of people more about CHARGE. For those that dont know, also arrested 2x after open heart surgery at age 1 year, and these insults also affected her fine and gross motor skills. Back then they told us she would never be able to do anything , let alone walk. Doctors tried convincing us to " pull the plug " . After watching the video you can see how hard works and it is amazing the progress she has made. Anyway, I am going to bring the video to Miami if anyone wants to see it! Cathie, 's mom Quote Link to comment Share on other sites More sharing options...
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