Re: I am new here, and very sick!

[Guest guest]

Hi ,

Let me be the first to say Hello,

Are you still in Sweden? Or where do you live now?

If you are in the United States or Canada or Australia, or where

ever you are, I would recommend that you get a new set of Doctors.

Dump the ones that are not treating you correctly. In fact, with

what you described, I'd feel better if you were to go to the

hospital emergancy room and get treatment starting today! Now this

is my humble opinion. I just know that if this was me, I'd be at the

hospital demanding help!!!

I wish you the best luck!

If you can't get help at the hospital, Keep talking to us...Keep

giving us more information about your current medical treatment. We

can't help with the tumors and such but we sure may be able to

suggest a few ways to help you with your thyroid situation. Please

keep in mind, WE ARE NOT DOCTORS. What we are able to give you is

our personal experiences and humble opinions...

Other than getting medical attention right now, the best thing that

I can recommend is to read as much as you can, Learn as much as you

can about your multiple medical problems...

Bye for now,

Gossimer

> Hi,

>

> Let me introduce myself, my namne is , and I have had

problems

> for almost ten years.

>

> My problems started when I was diagnosed as hyper thyroid, being

from

> Sweden and not knowing medical language and having 100% trust in

> doctors, I asked nothing just took PTU and Inderal.

>

> It is such a nightmare, what happened to me, I felt so different,

not

> normal, I lost my hair, my periods, and lots of weird things

happened

> to me, slowly but surely.

> I ahd such muscle pain that I would cry at night, and thinking I

came

> down with MS? I suffered form temporary paralyzes, where i could

not

> move. I was panicky and restless, my hair turned gray and I felt

like

> I aged 1 year every month. My pictures says it all.

>

> I asked about the drug and it was clear to me, that all this

started

> with the drug. When I could not function at all and thought I lost

my

> mind, he gave me Lorazepam for my symptoms?

>

> Well, this went on for two years, years of pure hell, when my

> personal life could not have been better.

>

> I was to drugged and sick to be able to use my brain, to call to

> learn. I was robbed of my mind, so I was helpless. I did not want

to

> tell anyone, because it was to strange to explain, but I did tell

my

> doctors.

>

> After two years I went to a social worker who tol me to have a

second

> opiion and an uptake and scan, a test I had asked for, but the

doctor

> convinced me, that all is fine, and it is all in my head.

>

> The test shoed I did not have hyperthyroidism, and when I got my

> Medical records, after two month's, my TSH went down to 0.05 and

my

> T4 to 5.4 below range.

>

> No wonder I felt they way I did, I had become hypo, and now had

signs

> of pituitary failure, but still being treated for hyper.

>

> I never got treated with my second opinion, and to this day I have

> not been treated for hypo and my low pituitary hormones.

>

> Four years later, in 1998, it is descovered that I have tumors in

my

> body, thyroid, breasts, lung and brain. I also have an enlarged

> heart, osteoporosis and scoliosis.

>

> That's wnough for now, what can I do? I am 5'9 and weigh 89 punds,

> and I feel and look like I am dying.

> Nobody is talking, and I had to learn the computer and get my

medical

> records to learn, and this very complicated stuff,

> Any advice, and tips. I found this page on Bevrelys site.

>

> Thanks for listening,

>

[Guest guest]

Hi . I am sorry to hear about your very frustrating symptoms!!

, something confuses me about what you have written. You

stated that " after two month's, my TSH went down to 0.05 and my

T4 to 5.4 below range. " If your TSH went down, that is a symptom of

HYPER, not hypo. And you didn't give the ranges for the lab that

produced the 5.4 for your T4, but that also sounds hyper, not hypo.

And what were the signs of pituitary failure? Are you referring to

the TSH not doing the job?

Also, a doc who only tests your TSH and T4 and not your free T3 is

not a good doc. And one that says things are in your head is also

extremely lousy.

I also can't tell if you are in Sweden or are from Sweden and living

in the US. Let us know where you are.

Janie aka ThyroDiva

> Let me introduce myself, my namne is , and I have had

problems

> for almost ten years.

>

> My problems started when I was diagnosed as hyper thyroid, being

from

> Sweden and not knowing medical language and having 100% trust in

> doctors, I asked nothing just took PTU and Inderal.

[Guest guest]

Dear ,

Hello there! My name is & I'm from Australia. I'm relatively

new to this group myself & I find the people here are very

supportive & helpful. God led me to this forum to find the answers I

needed & I'm sure God has led you here to get answers as

well. I am so sorry to hear of the horrible suffering you have been

going through, but from now on that's all going to change. Do as

much research as you possibly can about your condition, find a

doctor who cares, don't stop till you find him or her. One thing I

also did was go to a herbalist, just to get a different perspective

& see if he could help, which he has got me taking a natural herbal

tonic to support my immune system as well as a women's multi-

vitamin. I also changed my specialist & am waiting till my

appointment is due in May. I've also switched my sythetic thyroid

medication & have started on a natural thyroid medication. I've yet

to see how I'll feel with the new changes, but I am confident I will

feel well again! The most important thing is prayer. Pray ,

that's where you'll get your answers, your guidance, your direction.

That's what I did & Jesus led me here. You are in my prayers & I

look forward to hearing from you & how your progress goes. Take care

& Godbless....love

> Hi,

>

> Let me introduce myself, my namne is , and I have had

problems

> for almost ten years.

>

> My problems started when I was diagnosed as hyper thyroid, being

from

> Sweden and not knowing medical language and having 100% trust in

> doctors, I asked nothing just took PTU and Inderal.

>

> It is such a nightmare, what happened to me, I felt so different,

not

> normal, I lost my hair, my periods, and lots of weird things

happened

> to me, slowly but surely.

> I ahd such muscle pain that I would cry at night, and thinking I

came

> down with MS? I suffered form temporary paralyzes, where i could

not

> move. I was panicky and restless, my hair turned gray and I felt

like

> I aged 1 year every month. My pictures says it all.

>

> I asked about the drug and it was clear to me, that all this

started

> with the drug. When I could not function at all and thought I lost

my

> mind, he gave me Lorazepam for my symptoms?

>

> Well, this went on for two years, years of pure hell, when my

> personal life could not have been better.

>

> I was to drugged and sick to be able to use my brain, to call to

> learn. I was robbed of my mind, so I was helpless. I did not want

to

> tell anyone, because it was to strange to explain, but I did tell

my

> doctors.

>

> After two years I went to a social worker who tol me to have a

second

> opiion and an uptake and scan, a test I had asked for, but the

doctor

> convinced me, that all is fine, and it is all in my head.

>

> The test shoed I did not have hyperthyroidism, and when I got my

> Medical records, after two month's, my TSH went down to 0.05 and

my

> T4 to 5.4 below range.

>

> No wonder I felt they way I did, I had become hypo, and now had

signs

> of pituitary failure, but still being treated for hyper.

>

> I never got treated with my second opinion, and to this day I have

> not been treated for hypo and my low pituitary hormones.

>

> Four years later, in 1998, it is descovered that I have tumors in

my

> body, thyroid, breasts, lung and brain. I also have an enlarged

> heart, osteoporosis and scoliosis.

>

> That's wnough for now, what can I do? I am 5'9 and weigh 89 punds,

> and I feel and look like I am dying.

> Nobody is talking, and I had to learn the computer and get my

medical

> records to learn, and this very complicated stuff,

> Any advice, and tips. I found this page on Bevrelys site.

>

> Thanks for listening,

>

[Guest guest]

In a message dated 2004-04-02 20:06:30 US Mountain Standard Time,

usns@... writes:

> You

> stated that " after two month's, my TSH went down to 0.05 and my

> T4 to 5.4 below range. " If your TSH went down, that is a symptom of

> HYPER, not hypo.

Hi,

I live in Arizona, and was born in Sweden. I get too confused. I was fine

until PTU, I had no problems.

I have been told that your tests should be in range and not get worse, wish I

did form the drugs. A low TSH and low T4 is an idication of pituitary

failure.

My test were never good after PTU, and I was a mess.

[Guest guest]

In a message dated 2004-04-02 20:16:51 US Mountain Standard Time,

sabrina95124@... writes:

> I'll keep you in my prayers,.

> God Bless,

>

Hi ,

Did you get the name after Angel's, pretty name? The problem is that

I am to tired to read and understand all this right now. It is too

overwhelming for me, with all these letters.

I send my Medical records to my new Naturopathic doctor, and heard nothing,

and he said nothing about it when I met him?

Most doctors do not want to look at my records or take copies, too much has

gone wrong, so they say nothing?

I have to hope, but I can't think thyroid around the clock and not get

anywhere, it's a mess,

Thanks sweetie,

[Guest guest]

In a message dated 2004-04-02 20:59:33 US Mountain Standard Time,

hannah_1962@... writes:

> You are in my prayers & I

> look forward to hearing from you & how your progress goes. Take care

> & Godbless....love

>

Hi ,

Thanks for your heart warming words, I wish I hate the faith you do, but my

trust is what got me in this mess in the first place, and now I have lost

trust, and so much else that has been taken away from me.

I have never been to your country, but always wanted to go. Here greed is

taking over, and 120,000 die from prescription drugs in USA every year. That is

5

times more then street drugs, it is terrible.

I have always believed in natural things, and never ever gone to the doctor

for a cold and stuff. I have live in USA for twenty years when this happened to

me, and has spend 350 dollars on doctors, had maybe 10-12 pages of medical

records, and now it is thousands and all has gone wrong.

All, I can say it, Don't mess with Mother Nature, I just believed the doctors

all those years, it is hard, and completely unnecessary .

Thanks,