Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 When my daughter takes her 20mg Zyrtec/150mg Zantac daily (1st dose when she wakes up, 2nd dose 8 hours later) she is completely hive free. There is not a blemish on her and you would never know she has CU but if she misses a dose or is late taking her medicine she breaks out all over and it can take a couple hours for the medicine to kick in. Donna (Richmond,IN) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 If I'm on pred (usually at least 40mg/day) the hives completely go away, otherwise they're pretty much always there. Anywhere from just a couple of hives to total coverage... Air hugs, Jackie ----Original Message Follows---- From: smaillou@... Reply-To: urticaria To: urticaria Subject: One big question Date: Fri, 23 Mar 2001 15:34:40 -0000 My question is: For all of you, when you are on treatment do your hives go away? Do you ever have skin unblemished by hives or are they just always there and the treatment makes them less itchy? ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2001 Report Share Posted March 23, 2001 Kristi's hives go away. Sharon >From: smaillou@... >Reply-To: urticaria >To: urticaria >Subject: One big question >Date: Fri, 23 Mar 2001 15:34:40 -0000 > >My question is: For all of you, when you are on treatment do your >hives go away? Do you ever have skin unblemished by hives or are >they just always there and the treatment makes them less itchy? > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 I am on Predisone now. Hate to go off. Almost done with the pills and I know the hives will come back but at least for a week and a half I have been hive free and not swollen. Guess you have to take advantage of the break from itching. Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 When I'm on Prednisone, my hives are completely gone and I don't have itchiness either. However, I don't take pred all the time. I try to burn the hives out with a staggard dose of Pred and then I am just on Allegra. So far, I've had to go back on pred after a couple weeks from when I've stopped taking it, so I don't even know if the Allegra is doing anything. I also take Prevacid for heartburn associated with my hives. in KS One big question > Date: Fri, 23 Mar 2001 15:34:40 -0000 > > My question is: For all of you, when you are on treatment do your > hives go away? Do you ever have skin unblemished by hives or are > they just always there and the treatment makes them less itchy? > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria > (hives). We strive to support and lift each other as a worldwide > cyber-family. > > We share whatever needs to be shared to help one another in our struggle > with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a > prefix of NCU -. This is done out of respect for those who do not wish to > read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2001 Report Share Posted March 24, 2001 my hives go away completely when I am on treatment.However they reappear rapidly if I am late taking medication. I started on 125mlgs off cyclosporine twice a day and have reduced the dosage over two years to 125mlgs per day I cannot get the dosage lower than this as the hives come back in large amounts. Abbott One big question My question is: For all of you, when you are on treatment do your hives go away? Do you ever have skin unblemished by hives or are they just always there and the treatment makes them less itchy?~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 Marie cylcsporin is a powerful drug i also took it and it did nothing ] good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 -I am 29 and started getting hives at 28 years of age just out of the blue. They cannot find any allergies or ANYTHING!!! I have tried about 10 medications. I have been so depressed about these. I have gained weight, can't wear certain clothes, can't sleep, etc. I am getting married in June 2002 and am already stressing about the hives. The medicine cyclosporine, does that have any side effects? Do you know what causes your hives? It feels so good to talk to someone who knows what it is like to deal with hives. Thanks for your time. Marie > >Reply-To: urticaria >To: <urticaria > >Subject: Re: One big question >Date: Sun, 25 Mar 2001 13:52:03 +0800 > >my hives go away completely when I am on treatment.However they reappear >rapidly if I am late taking medication. I started on 125mlgs off >cyclosporine twice a day and have reduced the dosage over two years to >125mlgs per day I cannot get the dosage lower than this as the hives come >back in large amounts. > Abbott > One big question > > > My question is: For all of you, when you are on treatment do your > hives go away? Do you ever have skin unblemished by hives or are > they just always there and the treatment makes them less itchy? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 My hives are mostly gone now. Itching is still present, but relatively low. My problem is and has been that I everytime I try to taper off the Prednisone the hives return. My dose of Tagemet and Proventil have remained constant though. Barbara <<< My question is: For all of you, when you are on treatment do your hives go away? Do you ever have skin unblemished by hives or are they just always there and the treatment makes them less itchy? >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 Hi Marie, Glad I could help. I see an immunologist, for my hives. He's based at a teaching hospital so the medication is subsidised, otherwise it is very expensive. I don't know where you are so I can't help with the doctor thing. Nice to see your sense of humour holding up and don't laugh but I have trimmed my moustache ( good job I'm blonde ) a couple of times. I can't wax my face, three guesses why not. One big question> >> >> > My question is: For all of you, when you are on treatment do your> > hives go away? Do you ever have skin unblemished by hives or are> > they just always there and the treatment makes them less itchy?> >> >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 -Thank you so much for getting back to me. Here is how I am looking at it...a beard I can shave...hives I can't. HA-HA! Gosh, it really isn't funny, but I have had to learn to laugh or all I will do is cry!!! I may talk to my doctor about this medication. What kind of doctor do you go to? I have been seeing a allergy specialist. No help. I have already done the Zyrtec things with no success. I may see what my doctor thinks about the cyclosporine. My hives seem to come out real bad after I exercise, get real hot, or am VERY stressed. Fortunately, I am blessed to have a few days where I hardly have any. I feel selfish in complaining anymore about these. I see people with no legs, etc. and I feel guilty about moaning about some hives. However, they have disrupted my life. I get so depressed sometimes. Also, the last place I get them if ever is on my face. I am reading this emails where people have them all over their face and their eyes swell up. There is a guy that I work with that gets them worse than me, but the Zyrtec works for him. Lucky! I already feel more at ease knowing that their are people out there that understand what I am feeling. Again, I appreciate you getting back with me! Marie > >Reply-To: urticaria >To: <urticaria > >Subject: Re: One big question >Date: Mon, 26 Mar 2001 10:41:03 +0800 > >Hi Marie, >I've had cu for four years. It also came out of the blue. Initially I >thought I was being bitten by mosquitos until I woke up one morning covered >in hives the size of dinner plates from head to foot with swollen eyes, >ears, lips, limbs, even my scalp and the inside of my mouth. I was tested >extensively and came up with a big fat nothing. My doctor puts it down to >an overworking immune system. >Cyclosporine is an immune suppressant. It reduces your immune system and >yes I guess it has side effects but I'm told by my immunologist that the >side effects from this are a lot less severe than the effects of >prednisone. I was told I would become a very hairy woman after prolonged >use as it increases the growth of facial hair. After two years I haven't >grown a beard but I would say that definitely there is a little increase >but nothing really significant and I think I could probably also attribute >that to my age I'm 43. Strangely enough the hair on my head is in wonderful >condition and grows like wildfire. I believe that the use of cyclosporine >does leave you a little more vulnerable to other ailments. I have noticed >gastric problems, terrible indigestion and very bad reflux. I take Losec >for that. I also notice that I am more prone to coughs and colds and they >take a little longer to go away. Weight gain is another but once again I >haven't really noticed anything significant. I've had fluctuating weight >all of my life and am within a few pounds of my regular weight. > I took prednisone over a period of eighteen months and the weight gain >from that was much worse, the stomach problems also. >My doctor put me onto cyclosporine with the intention of my weaning off it >over a period of time. I have managed to reduce the dosage by half but am >having no success in getting it any lower than this. I've been taking >100mlgs per day for the past couple of weeks and the hives are popping up >all over the place. On the correct dosage I was completely hive free, no >itching or anything. I started off on 125mlgs morning and evening and was >given zyrtec also at night. I found that I didn't need to take the zyrtec >because once the cyclosporine kicked in I was free of itching and >everything. My sleeping patterns are a little irregular and occasionally I >take something for that when I feel that I'm just too tired and need a long >sleep. Over the years I have had the odd infection that I've needed to >take antibiotics for and they seem to accelerate the hives I've put this >down to the fact that my immune system goes into overdrive to fight the >infection and prevents the cyclosporine from doing it's job. >I do have my doubts about taking the cyclosporine but anti histamines do >nothing for me and the pred is more scary. Before hives I was the type of >person who would put up with the headache rather than take the pills and I >fought taking medication for a long time until I was regularly finding >myself in the hospital hooked up to an iv. drip. I really don't believe >that any of the stuff any of us is using is good for us but I've tried just >about everything and there seems to be little or no alternative. I can't >live with the hives and the cyclosporine works for me. I have six weekly >blood tests monitoring kidney and liver function necessary when you take >this drug. >I hope this answers some of your questions. Good luck and congrats on your >forthcoming wedding. > > > One big question > > > > > > My question is: For all of you, when you are on treatment do your > > hives go away? Do you ever have skin unblemished by hives or are > > they just always there and the treatment makes them less itchy? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2001 Report Share Posted March 26, 2001 -I just made an appointment with my regular doctor to talk to them about the medication. Yes, it gets VERY expensive. I live in Colorado and go to the National Jewish Allergy and Asthma Hospital at $2500.00 a pop. I am blessed and only had to pay $5.00 for each visit. However, the medication did cost me. My fiance said if I grow a beard that I could dress up like a man this Halloween. He thinks he is a comedian! I am thankful to have him. Thanks again for the info! Marie > >Reply-To: urticaria >To: <urticaria > >Subject: Re: One big question >Date: Mon, 26 Mar 2001 21:07:39 +0800 > >Hi Marie, >Glad I could help. I see an immunologist, for my hives. He's based at a >teaching hospital so the medication is subsidised, otherwise it is very >expensive. I don't know where you are so I can't help with the doctor >thing. Nice to see your sense of humour holding up and don't laugh but I >have trimmed my moustache ( good job I'm blonde ) a couple of times. I >can't wax my face, three guesses why not. > > One big question > > > > > > > > > My question is: For all of you, when you are on treatment do >your > > > hives go away? Do you ever have skin unblemished by hives or >are > > > they just always there and the treatment makes them less itchy? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 I was on prednisone for 20 months 60mg per day while doctor tried to diagnose problem. excessive use has caused my teeth to break 5 so far, kidneys to weaken, i have maintained a bladder infection successfully for 4 months now, unknown autoimmune disease etc...and I have been steroid FREE for 9 months. BEWARE of the prednisone, it is a wonderful fix but not for long term. God Bless Re: One big questionMy hives are mostly gone now. Itching is still present, but relatively low. My problem is and has been that I everytime I try to taper off the Prednisone the hives return. My dose of Tagemet and Proventil have remained constant though. Barbara <<< My question is: For all of you, when you are on treatment do your hives go away? Do you ever have skin unblemished by hives or are they just always there and the treatment makes them less itchy? >>> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~If you do wish to unsubscribe then you can click on the following link: <mailto:urticaria-unsubscribeegroups>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi! I take a combination of antihistamines but always have some hives. I understand antihistamines suppress about 70% of the symptoms, or something like that. Sometimes they are just there and don't itch but usually they do, especially if I have rubbed or scratched absentmindedly. My skin never looks " right " anymore - it's always blotchy! best wishes, Carol One big question > My question is: For all of you, when you are on treatment do your > hives go away? Do you ever have skin unblemished by hives or are > they just always there and the treatment makes them less itchy? > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
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