Re: Dylan's helmet adjustment

[Guest guest]

Beth,

I know what you are going through all to well. My Aidan grew more in

the 3 weeks between scanning and the fitting than he did next 21

weeks. If you looked back at all of my posts about Aidan between the

end of August and Feb, you would see me complaining that he had not

grown at all!!!!

It is OK!!!

Vent away!!

> Dylan went in for an adjustment yesterday. We found that,

> unfortunately, he hasn't grown much. His head is still measuring

at

> 18 and 1/8 inches which is the same as 3 weeks ago. I guess that's

> why we haven't seen much improvement in the flat area. I have to

> say, it was a little discouraging since we saw 1/8 inch of growth

in

> the first 3 weeks. Our orthotist said that it's normal and that by

> next time, he should be right on track. I know I can't get

> depressed about it and I have to accept that this is not going to

> happen over night. It's still hard sometimes even though I think

> I'm used to all this. Thanks for all of the replies to my question

> recently about slowed growth, etc. I appreciate all the help and

> support. I think it would be a lot harder if I couldn't talk to

> people who understand.

>

> Beth

> Grand Rapids, MI

[Guest guest]

Thanks . Did everything come out OK? How is Aidan's head

shape now? When you look back, did the time go by fast when he was

in the helmet? It seems to be dragging!

Beth

> > Dylan went in for an adjustment yesterday. We found that,

> > unfortunately, he hasn't grown much. His head is still

measuring

> at

> > 18 and 1/8 inches which is the same as 3 weeks ago. I guess

that's

> > why we haven't seen much improvement in the flat area. I have

to

> > say, it was a little discouraging since we saw 1/8 inch of

growth

> in

> > the first 3 weeks. Our orthotist said that it's normal and that

by

> > next time, he should be right on track. I know I can't get

> > depressed about it and I have to accept that this is not going

to

> > happen over night. It's still hard sometimes even though I

think

> > I'm used to all this. Thanks for all of the replies to my

question

> > recently about slowed growth, etc. I appreciate all the help

and

> > support. I think it would be a lot harder if I couldn't talk to

> > people who understand.

> >

> > Beth

> > Grand Rapids, MI

[Guest guest]

Hi Beth,

I totally understand your frustration. We had almost no growth while

being banded. ~Sigh~ Keep your chin up though!

Natasha

> Dylan went in for an adjustment yesterday. We found that,

> unfortunately, he hasn't grown much. His head is still measuring

at

> 18 and 1/8 inches which is the same as 3 weeks ago. I guess that's

> why we haven't seen much improvement in the flat area. I have to

> say, it was a little discouraging since we saw 1/8 inch of growth

in

> the first 3 weeks. Our orthotist said that it's normal and that by

> next time, he should be right on track. I know I can't get

> depressed about it and I have to accept that this is not going to

> happen over night. It's still hard sometimes even though I think

> I'm used to all this. Thanks for all of the replies to my question

> recently about slowed growth, etc. I appreciate all the help and

> support. I think it would be a lot harder if I couldn't talk to

> people who understand.

>

> Beth

> Grand Rapids, MI

[Guest guest]

I am so sorry to hear that Beth. I am having trouble understanding though, is it that his head has not grown in accordance with the flat area, or has not grown at all? The reason I ask is my son has microcephaly..his head is about 16 1/2 inches around, grows maybe half an inch a year. I explained this to the man who banded him and he seemed very confident that even though my son's head doesn't grow, that the band can still move the head formation just as it would with any other head that is growing. Do you think he may have misrepresented, or not understood what he was saying? Does the head not improve in the flat area when the head is not growing?

Thanks,

Margy

mom to Tony 12/8/02

In a message dated 5/6/2004 8:20:38 PM Pacific Standard Time, ngubash@... writes:

>Dylan went in for an adjustment yesterday. We found that,

>unfortunately, he hasn't grown much. His head is still measuring

at

>18 and 1/8 inches which is the same as 3 weeks ago. I guess that's

>why we haven't seen much improvement in the flat area. I have to

>say, it was a little discouraging since we saw 1/8 inch of growth

in

>the first 3 weeks. Our orthotist said that it's normal and that by

>next time, he should be right on track. I know I can't get

>depressed about it and I have to accept that this is not going to

>happen over night. It's still hard sometimes even though I think

>I'm used to all this. Thanks for all of the replies to my question

>recently about slowed growth, etc. I appreciate all the help and

>support. I think it would be a lot harder if I couldn't talk to

>people who understand.

>

>Beth

>Grand Rapids, MI

Margy, 20

-:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:-

Mommy to my cloth-bottomed,

peek-a-boo playing, teeth-cutting, mommy-loving

Beautiful Baby Boy

16 months

-:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:-

"Learn from the mistakes of others. You won't live long enough to make all of them yourself."

[Guest guest]

Hello Beth

When Willow was banded at 6months of age she went from 12mm asym

down to 4mm within the first three wks, but then after 4wks was

still at 3mm. I think that overall it takes time and even though he

has not shown that much improvement for this adjustment next one

might be the charm. Keep the faith.

Sandy Willow's Mom torticollis resolved / Cranio Germany Grad

> Dylan went in for an adjustment yesterday. We found that,

> unfortunately, he hasn't grown much. His head is still measuring

at

> 18 and 1/8 inches which is the same as 3 weeks ago. I guess

that's

> why we haven't seen much improvement in the flat area. I have to

> say, it was a little discouraging since we saw 1/8 inch of growth

in

> the first 3 weeks. Our orthotist said that it's normal and that

by

> next time, he should be right on track. I know I can't get

> depressed about it and I have to accept that this is not going to

> happen over night. It's still hard sometimes even though I think

> I'm used to all this. Thanks for all of the replies to my

question

> recently about slowed growth, etc. I appreciate all the help and

> support. I think it would be a lot harder if I couldn't talk to

> people who understand.

>

> Beth

> Grand Rapids, MI