Re: NEED YOUR OPINION on plagio progress pics/JADEN

[Guest guest]

Amy,

I think where Jaden's head shape is now, if you got him into an

active band you'd see excellent results. He is still young enough to

receive awesome correction from an active band. If he were my son I

wouldn't be happy with the shape of his head the way it is now. I

definitely see some correction, but he still has a ways to go. As

long as you have a script, it's not up to the ortho whether or not

you band Jaden with an active band. It's your call!

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> Jaden has an appt w/ Hanger on the 13th, and I really feel that he

> has much correction left, his ears are almost lined up (but not

> quite yet) and he has lots of facial asymmetry. I also feel that

he

> is getting a " square " head (I keep wanting to call him Sponge Jaden

> Square Head, lol) and is not getting any better w/ his CranioCap.

> Yes, there has been some rounding, I won't deny that. However, it

> seems only on the bottom back half, and now there are bumps in the

> middle portion of the back of his head, and from a side view you

can

> still see the plagio flatness on the top . My DH doesn't want him

> to have another band, and some family members think " the turkey is

> done " , but I don't. I have heard of stories from a lot of mommies

> on this board how they see great correction in the first few weeks

> w/ and active band, and as you might know, the CranioCap is

> passive. I don't feel we are getting as good as results as we

could

> w/ the Hanger. I'll be hoping the orthotist will think he's worth

> banding again, insurance will cover a 2nd one w/ a letter of

medical

> necessity from a Dr. Of course, his pede will refuse to write it

> (he doesn't think it's necessary but I got the script out of him,

> and I'm in pursuit of a new pede), but I have a couple other Dr's

> that might be able to write it. Anyway, I took pics tonite, and I

> really need your opinions on what to do. Jaden is 8 months old now

> and as you all know, time is crucial to correction.

>

> I posted pics under BEFORE AND AFTER/LOCAL HELMETS/JADEN, and I

will

> delete them all to make more room after I hear your comments.

> Please read the descriptions below each pic. Please keep in mind

> that the pics just aren't really representing what I see every day,

> but I did my best to load the best pics I thought would help give

> you an idea of what I see. Please Please be honest. You guys were

> wonderful in the beginning in April when you told me to band him,

> and I did not hesitate to do it. Our Hanger is now using the

> scanner btw so no messy casting! And a more accurate helmet would

> be made. If you all remember, I have had serious issues w/ the

> CranioCap since day 1, telling the Orthotist that it was not made

> right, that it was crooked, the ears were cut out wrong, etc. He

> kept battling me on this issue and a few weeks ago I walked away

> feeling ok about it, but I STILL am not seeing the best rounding

> out. And we were told that Jaden would be out of this in 16 weeks,

> and it's now 11 weeks. I really feel that if I got Jaden in the

> Hanger now, that those remaining 5 weeks would be well worth it as

> I'm hoping correction would be 100% better than what I'd see if he

> were to remain in the CranioCap.

>

> Thanks everyone for taking the time to look!!!!

>

> ~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04, started Chiro 6/29/04

[Guest guest]

Whoa. Band him.

There, you wanted honesty. I could have sugar coated it, but I have

to get to bed. You can do better. The Craniocap has certainly helped,

but an active band will pop him right into the normal range, in my

opinion. Good for you for being so on top of things. Your current ped

is a bit of a nincompoop. He and my ped must meet for drinks before

work.

As for your family, they don't have your finely tuned mommy

instincts. They may never understand, but you're the mommy. I have

talked to a few friends who say they couldn't see my son's asymmetry.

I can show them pictures of horrifically deformed babies, and they

can see it, but to them my son is so beautiful that they just can't

see a single flaw. I like that about them. They have also been very

supportive of my decision to band. Hopefully your family will, too,

even if they think you're crazy.

Keep us informed. Your Jaden is reeeeally cute, by the way! Babies in

bathtubs just slay me! Give him a squeeze for me!

, 19 mos, DOC Band 5/7

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> Jaden has an appt w/ Hanger on the 13th, and I really feel that he

> has much correction left, his ears are almost lined up (but not

> quite yet) and he has lots of facial asymmetry. I also feel that

he

> is getting a " square " head (I keep wanting to call him Sponge Jaden

> Square Head, lol) and is not getting any better w/ his CranioCap.

> Yes, there has been some rounding, I won't deny that. However, it

> seems only on the bottom back half, and now there are bumps in the

> middle portion of the back of his head, and from a side view you

can

> still see the plagio flatness on the top . My DH doesn't want him

> to have another band, and some family members think " the turkey is

> done " , but I don't. I have heard of stories from a lot of mommies

> on this board how they see great correction in the first few weeks

> w/ and active band, and as you might know, the CranioCap is

> passive. I don't feel we are getting as good as results as we

could

> w/ the Hanger. I'll be hoping the orthotist will think he's worth

> banding again, insurance will cover a 2nd one w/ a letter of

medical

> necessity from a Dr. Of course, his pede will refuse to write it

> (he doesn't think it's necessary but I got the script out of him,

> and I'm in pursuit of a new pede), but I have a couple other Dr's

> that might be able to write it. Anyway, I took pics tonite, and I

> really need your opinions on what to do. Jaden is 8 months old now

> and as you all know, time is crucial to correction.

>

> I posted pics under BEFORE AND AFTER/LOCAL HELMETS/JADEN, and I

will

> delete them all to make more room after I hear your comments.

> Please read the descriptions below each pic. Please keep in mind

> that the pics just aren't really representing what I see every day,

> but I did my best to load the best pics I thought would help give

> you an idea of what I see. Please Please be honest. You guys were

> wonderful in the beginning in April when you told me to band him,

> and I did not hesitate to do it. Our Hanger is now using the

> scanner btw so no messy casting! And a more accurate helmet would

> be made. If you all remember, I have had serious issues w/ the

> CranioCap since day 1, telling the Orthotist that it was not made

> right, that it was crooked, the ears were cut out wrong, etc. He

> kept battling me on this issue and a few weeks ago I walked away

> feeling ok about it, but I STILL am not seeing the best rounding

> out. And we were told that Jaden would be out of this in 16 weeks,

> and it's now 11 weeks. I really feel that if I got Jaden in the

> Hanger now, that those remaining 5 weeks would be well worth it as

> I'm hoping correction would be 100% better than what I'd see if he

> were to remain in the CranioCap.

>

> Thanks everyone for taking the time to look!!!!

>

> ~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04, started Chiro 6/29/04

[Guest guest]

Hey Amy

Jaden is absolutely gorgeous.

I would def go for the active band. I think his correction in the

CranioCap is great, and if there was no other choice I think

I " could " make my peace with his head, BUT knowing that you have

another option that could give him more correction would be enough

for me. I did see the flatness you are talking about, and the

facial asymetry. Good luck with that letter of med nec.

By the way. We do have an awesome ped here, and he has done every

test for Willow that I have ever asked him to. We are in Germany?

lol Want the number.... )

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> Jaden has an appt w/ Hanger on the 13th, and I really feel that he

> has much correction left, his ears are almost lined up (but not

> quite yet) and he has lots of facial asymmetry. I also feel that

he

> is getting a " square " head (I keep wanting to call him Sponge

Jaden

> Square Head, lol) and is not getting any better w/ his CranioCap.

> Yes, there has been some rounding, I won't deny that. However, it

> seems only on the bottom back half, and now there are bumps in the

> middle portion of the back of his head, and from a side view you

can

> still see the plagio flatness on the top . My DH doesn't want him

> to have another band, and some family members think " the turkey is

> done " , but I don't. I have heard of stories from a lot of mommies

> on this board how they see great correction in the first few weeks

> w/ and active band, and as you might know, the CranioCap is

> passive. I don't feel we are getting as good as results as we

could

> w/ the Hanger. I'll be hoping the orthotist will think he's worth

> banding again, insurance will cover a 2nd one w/ a letter of

medical

> necessity from a Dr. Of course, his pede will refuse to write it

> (he doesn't think it's necessary but I got the script out of him,

> and I'm in pursuit of a new pede), but I have a couple other Dr's

> that might be able to write it. Anyway, I took pics tonite, and I

> really need your opinions on what to do. Jaden is 8 months old

now

> and as you all know, time is crucial to correction.

>

> I posted pics under BEFORE AND AFTER/LOCAL HELMETS/JADEN, and I

will

> delete them all to make more room after I hear your comments.

> Please read the descriptions below each pic. Please keep in mind

> that the pics just aren't really representing what I see every

day,

> but I did my best to load the best pics I thought would help give

> you an idea of what I see. Please Please be honest. You guys

were

> wonderful in the beginning in April when you told me to band him,

> and I did not hesitate to do it. Our Hanger is now using the

> scanner btw so no messy casting! And a more accurate helmet would

> be made. If you all remember, I have had serious issues w/ the

> CranioCap since day 1, telling the Orthotist that it was not made

> right, that it was crooked, the ears were cut out wrong, etc. He

> kept battling me on this issue and a few weeks ago I walked away

> feeling ok about it, but I STILL am not seeing the best rounding

> out. And we were told that Jaden would be out of this in 16

weeks,

> and it's now 11 weeks. I really feel that if I got Jaden in the

> Hanger now, that those remaining 5 weeks would be well worth it as

> I'm hoping correction would be 100% better than what I'd see if he

> were to remain in the CranioCap.

>

> Thanks everyone for taking the time to look!!!!

>

> ~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04, started Chiro 6/29/04

[Guest guest]

You certainly cannot make a wrong decision either way. If you had

just shown me " Jaden side view 11 weeks craniocap " I would say not to

have him banded again because in my opinion he looks extroadinarily

good. Obviously you and your dh have the best real-life views and

will make the best deicision for you all. That's great that you have

another option so close to home.

Best wishes,

Sue

Colin F., 9 mos., brachy STARband 6/29

Buffalo, NY

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> Jaden has an appt w/ Hanger on the 13th, and I really feel that he

> has much correction left, his ears are almost lined up (but not

> quite yet) and he has lots of facial asymmetry. I also feel that

he

> is getting a " square " head (I keep wanting to call him Sponge Jaden

> Square Head, lol) and is not getting any better w/ his CranioCap.

> Yes, there has been some rounding, I won't deny that. However, it

> seems only on the bottom back half, and now there are bumps in the

> middle portion of the back of his head, and from a side view you

can

> still see the plagio flatness on the top . My DH doesn't want him

> to have another band, and some family members think " the turkey is

> done " , but I don't. I have heard of stories from a lot of mommies

> on this board how they see great correction in the first few weeks

> w/ and active band, and as you might know, the CranioCap is

> passive. I don't feel we are getting as good as results as we

could

> w/ the Hanger. I'll be hoping the orthotist will think he's worth

> banding again, insurance will cover a 2nd one w/ a letter of

medical

> necessity from a Dr. Of course, his pede will refuse to write it

> (he doesn't think it's necessary but I got the script out of him,

> and I'm in pursuit of a new pede), but I have a couple other Dr's

> that might be able to write it. Anyway, I took pics tonite, and I

> really need your opinions on what to do. Jaden is 8 months old now

> and as you all know, time is crucial to correction.

>

> I posted pics under BEFORE AND AFTER/LOCAL HELMETS/JADEN, and I

will

> delete them all to make more room after I hear your comments.

> Please read the descriptions below each pic. Please keep in mind

> that the pics just aren't really representing what I see every day,

> but I did my best to load the best pics I thought would help give

> you an idea of what I see. Please Please be honest. You guys were

> wonderful in the beginning in April when you told me to band him,

> and I did not hesitate to do it. Our Hanger is now using the

> scanner btw so no messy casting! And a more accurate helmet would

> be made. If you all remember, I have had serious issues w/ the

> CranioCap since day 1, telling the Orthotist that it was not made

> right, that it was crooked, the ears were cut out wrong, etc. He

> kept battling me on this issue and a few weeks ago I walked away

> feeling ok about it, but I STILL am not seeing the best rounding

> out. And we were told that Jaden would be out of this in 16 weeks,

> and it's now 11 weeks. I really feel that if I got Jaden in the

> Hanger now, that those remaining 5 weeks would be well worth it as

> I'm hoping correction would be 100% better than what I'd see if he

> were to remain in the CranioCap.

>

> Thanks everyone for taking the time to look!!!!

>

> ~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04, started Chiro 6/29/04

[Guest guest]

Amy,

Everyone else has said what I was going to say, but I just wanted to

post to say that the side view looks great, but the top view of

Jaden's headshape does expose some shape concerns. If it were me, I

would make a go of an active band, since you have nothing to lose,

and he's still young enough to get great results from an active band!

I'm very interested in how the Hanger appt. goes on the 13th, and

how the ortho assesses Jaden's remaining opportunity for

correction. Plus, it would be helpful to the group to hear a first-

hand experience about the Hanger option in your area to pass along

to future members.

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " Amy in MN " <skisum88@h...>

wrote:

> Howdy everyone,

> Jaden has an appt w/ Hanger on the 13th, and I really feel that he

> has much correction left, his ears are almost lined up (but not

> quite yet) and he has lots of facial asymmetry. I also feel that

he

> is getting a " square " head (I keep wanting to call him Sponge

Jaden

> Square Head, lol) and is not getting any better w/ his CranioCap.

> Yes, there has been some rounding, I won't deny that. However, it

> seems only on the bottom back half, and now there are bumps in the

> middle portion of the back of his head, and from a side view you

can

> still see the plagio flatness on the top . My DH doesn't want him

> to have another band, and some family members think " the turkey is

> done " , but I don't. I have heard of stories from a lot of mommies

> on this board how they see great correction in the first few weeks

> w/ and active band, and as you might know, the CranioCap is

> passive. I don't feel we are getting as good as results as we

could

> w/ the Hanger. I'll be hoping the orthotist will think he's worth

> banding again, insurance will cover a 2nd one w/ a letter of

medical

> necessity from a Dr. Of course, his pede will refuse to write it

> (he doesn't think it's necessary but I got the script out of him,

> and I'm in pursuit of a new pede), but I have a couple other Dr's

> that might be able to write it. Anyway, I took pics tonite, and I

> really need your opinions on what to do. Jaden is 8 months old

now

> and as you all know, time is crucial to correction.

>

> I posted pics under BEFORE AND AFTER/LOCAL HELMETS/JADEN, and I

will

> delete them all to make more room after I hear your comments.

> Please read the descriptions below each pic. Please keep in mind

> that the pics just aren't really representing what I see every

day,

> but I did my best to load the best pics I thought would help give

> you an idea of what I see. Please Please be honest. You guys

were

> wonderful in the beginning in April when you told me to band him,

> and I did not hesitate to do it. Our Hanger is now using the

> scanner btw so no messy casting! And a more accurate helmet would

> be made. If you all remember, I have had serious issues w/ the

> CranioCap since day 1, telling the Orthotist that it was not made

> right, that it was crooked, the ears were cut out wrong, etc. He

> kept battling me on this issue and a few weeks ago I walked away

> feeling ok about it, but I STILL am not seeing the best rounding

> out. And we were told that Jaden would be out of this in 16

weeks,

> and it's now 11 weeks. I really feel that if I got Jaden in the

> Hanger now, that those remaining 5 weeks would be well worth it as

> I'm hoping correction would be 100% better than what I'd see if he

> were to remain in the CranioCap.

>

> Thanks everyone for taking the time to look!!!!

>

> ~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

> started CranioCap 4/23/04, started Chiro 6/29/04