Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi , How old is Annie again? My son had very slow growth in his head circumference and he is always in the <3rd percentile too but I have never heard of a circumference shrinking. More likely just measurements being taken by a different person? How long of time between measurements? Natasha > Hi to all, Our health visitor measured Annie's head yesterday and it > has not got any biger. Her head is still at 41 cm. It has in fact > shrunk by half a cm. Now we are really confused because she is > showing all the signs of cranio even though her neurosurgeon said > definately not after looking at her xrays. Is it normal for the head > not to grow or grow very slowly with Plagio? Anyway the good thing > is both our hv and dr have said that we should push for a scan. My > mother in law also thought that her left cheek was starting ben > rounder than her right. > Still really unsure what to do. I have managed to get an appt for > the 11th with our local hospital. > Should we contact someone about her plagio without waiting for the > local hospital or get direction from them.I amnot sure how it works. > We are in the uk so does that make a difference? > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 , I would definitely push for a scan. X-Rays aren't always easy to read when it comes to craino. If there is a real possibility of cranio, a CT scan should be done. Keep us posted. > Hi to all, Our health visitor measured Annie's head yesterday and it > has not got any biger. Her head is still at 41 cm. It has in fact > shrunk by half a cm. Now we are really confused because she is > showing all the signs of cranio even though her neurosurgeon said > definately not after looking at her xrays. Is it normal for the head > not to grow or grow very slowly with Plagio? Anyway the good thing > is both our hv and dr have said that we should push for a scan. My > mother in law also thought that her left cheek was starting ben > rounder than her right. > Still really unsure what to do. I have managed to get an appt for > the 11th with our local hospital. > Should we contact someone about her plagio without waiting for the > local hospital or get direction from them.I amnot sure how it works. > We are in the uk so does that make a difference? > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Hi Natasha Anie is 6 months old this week. She was at the 75th percentile at 5 weeks, then 25th at 13 weeks and now below the 10th. I have taken out all of the measurers apart from my health visitor and the line takes the above dive. I think after reflection that you are right and the .5cm loss came because of different techniques in measuring. Annie was quite a big baby when born (at full term) 75th for all 3 percentiles. Her weight is now on the 9th percentile. This has increased from below the 2nd after months of falling. Phew! Thanks for everyones replies. I will keep you posted on what happens. Re: Annie-mae's head cm/ Hi ,How old is Annie again? My son had very slow growth in his head circumference and he is always in the <3rd percentile too but I have never heard of a circumference shrinking. More likely just measurements being taken by a different person? How long of time between measurements?Natasha> Hi to all, Our health visitor measured Annie's head yesterday and it > has not got any biger. Her head is still at 41 cm. It has in fact > shrunk by half a cm. Now we are really confused because she is > showing all the signs of cranio even though her neurosurgeon said > definately not after looking at her xrays. Is it normal for the head > not to grow or grow very slowly with Plagio? Anyway the good thing > is both our hv and dr have said that we should push for a scan. My > mother in law also thought that her left cheek was starting ben > rounder than her right. > Still really unsure what to do. I have managed to get an appt for > the 11th with our local hospital.> Should we contact someone about her plagio without waiting for the > local hospital or get direction from them.I amnot sure how it works. > We are in the uk so does that make a difference?> Thanks> > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2004 Report Share Posted May 9, 2004 Hi to all Sorry had to reply to an old mail as I cannot get on to the site in the normal way.This Tuesay we are seeing the local paed to discuss a scan for Annie-Mae. If her head is definately not fused we are going to have to decide on whether to get a starband done. A clinical specialist from a hospital over here has been in touch and said from the description we have given that they can definately help. The thing is we think that at the moment although we can see the changes in Annie-Mae's plagio?? they are mild, though I have to admit her hair is starting to follow the coronal and ear ridges which is making it more noticable. If the head continues to grow(which isn''t at all at the moment) will it carry on the way it is. My mother in law has noticed one of her cheeks is becoming slighlty fuller(very mild) and the ear on the same side is very slightly further forward and lower. I suppose we are not sure whether to go ahead and band or not. We know that after 12 months it is much harder to correct. Has anyone else had the child banded eventhough they think the plagio is mild for fear that the changes may grow to be more noticeable over time?I know I am rambling but I am at a cross roads at what to do. I have to try and sell the whole plagio thing to Annie's paed if the scans show it def is not cranio. Positioning is out of the window because I am back at work now. We have been through this before as has Sagittal and it has taken a few years for his head to not look so bossed.We do not want to do anything to Annie that is not needed but how do you know when to make the decision. This is so much harder than cranio as the choice is up to the parent!Thanks for listening and any replies PS Annie's pictures areon the plagio kids picture board under Anie-mae h Re: Annie-mae's head cm/ ,My son's head has consistantly stayed in the <3%. So is his sister's. I guess we just have small heads. His weight is always 50% but his length has dropped from 75% when he was <12 months old to 10% now. I don't know why. I hope that you can have some more testing done. We are thinking of you! Natasha> > Hi to all, Our health visitor measured Annie's head yesterday and > it > > has not got any biger. Her head is still at 41 cm. It has in fact > > shrunk by half a cm. Now we are really confused because she is > > showing all the signs of cranio even though her neurosurgeon said > > definately not after looking at her xrays. Is it normal for the > head > > not to grow or grow very slowly with Plagio? Anyway the good thing > > is both our hv and dr have said that we should push for a scan. My > > mother in law also thought that her left cheek was starting ben > > rounder than her right. > > Still really unsure what to do. I have managed to get an appt for > > the 11th with our local hospital.> > Should we contact someone about her plagio without waiting for the > > local hospital or get direction from them.I amnot sure how it > works. > > We are in the uk so does that make a difference?> > Thanks> > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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