Guest guest Posted January 3, 2001 Report Share Posted January 3, 2001 Hi Again , So Alena (beautiful name) had a couple of hive biopsies which said that she had an elevated mast cell load? Did they biospy 3 different hives and all three of them came up elevated? How elevated? I believe a child with an elevated load is not going to be in the same range as an adult with an elevated load because of the immaturity of the immune system. Is the Dr who said it was a possible case of masto a Dr that is still available to you? The thing here is that finding a Dr who will work with a possible masto patient is difficult and especially if the patient is a child. So, I would return to this Dr, if possible and see how much he is willing to work with you to discover if this is masto or not. One of things that could be tried is getting her on pediatric zyrtec and pediatric gastrocrom. These are far less invasive than prednisone and with far less complications. The stress fractures you mention are common in masto adults and children and could either be a symptom of masto or could be caused by the prednisone. Also, you mention something else interesting, you stated that she seems to hive when she is angry and also when she is tired........... there can be an emotional component to masto hives which is very uncommon with chronic urticaria. We like to say around here that hives causes stress, stress does not cause hives, because so many Drs want to blame it on stress, though there is no evidence for that. Does she seem to urinate a lot when she is hiving severely? Does she have diarrhea when she is hiving severely? Does she get urinary tract infections? All of these can be symptoms of mast cell profileration. When she gets a cold does she seem to get better or worse? What blood tests has she had and were any out of range? If you write to me privately, I can put you in touch with a group of e-friends who all have children with systemic masto. Also I know the lady who is president of the Mastocytosis Society and she can send you an informational packet. If you write me, I can pass you e-mail address on to her. She has a special heart for masto kids. Many hugs, Myra titus@... Quote Link to comment Share on other sites More sharing options...
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