Re: New and wanted to say hi...

[Guest guest]

Hi a & Welcome:

Thank you for your introduction.

I think it's a great idea for you to get a referral to a specialist

nearby to evaluate . Also, there are 2 Cranial Technologies

clinics in your state. Cranial Tech makes the DOCband which is used

to treat & correct positional plagiocephaly

(http://www.cranialtech.com). Their clinics offer FREE evaluations

of plagio.. They are truly the experts in their field and would give

you their honest, unbiased opinion about 's plagiocephaly and

if they'd think banding her would be beneficial or not. Bands

DOOOOOO work! So IF you would end up banding , rest assured

bands do correct plagiocephaly and do not bother the baby one bit!!!

Here are the addresses & phone #'s of the NC Cranial Tech clinics.

I'd encourage you to give them a call if you're nearby. They don't

need a prescription or anything at all for an evaluation.

Please keep us posted. Good luck!

Debbie

MI

North Carolina

DOCband*

Cranial Technologies, Inc., 309 E. Morehead St. Suite 280; Charlotte,

NC 28202

(704) 344-1290, (866) 344-1290 www.cranialtech.com

North Carolina

DOCband*

Cranial Technologies, Inc., 200 Meredith Dr. Suite 100; Hwy 55,

Durham, NC 27713

(919) 361-9216, (866) 304-9216

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi there. Your doctor sound great in that he printed out some stuff

from the web for you. That's more than a lot of docs will do.

However, he is wrong when he says a helmet won't do much good.

Helmets provide amazing correction. The earlier your child goes into

one, the better the correction. I think you are in luck, too--there

are two Cranial Technologies clinics in your state, one in Durham,

one in Charlotte. Not sure how far those are from you, but CT is the

leader in making helmets (they make the DOC Band) and you just can't

go wrong with them.

Call CT (or go to their website: www.cranialtech.com ) and schedule a

free evaluation. They will tell you if a band can help your daughter.

If you are this worried, you need to do something. Your mommy

instincts are always right! Could you post some pics to this site,

too? We love pics of babies and would be happy to give our two cents.

By the way, I didn't believe people at first when they told me my

baby's forehead had a huge bulge. He was perfect, of course--there

was nothing wrong with his head! His docs all told me it would go

away on its own... That's horse hockey, by the way. Anyway, he is

finally in a band and loves it, and his face no longer looks

deformed. Good luck with your decision.

, 19 mos, tort, plagio, DOC Band 5/7

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi a and welcome to the group! I will just second everything

Debbie has already told you.

Dustie

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at

Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi a,

Welcoem to the group. I know just what you are going through right

now. I was right where you are a couple of months ago and this board

helped me out alot. Read up as much as you can but dont freak

yourself out ok. This can be fixed!!!!!!

I think it is a good idea for you to call and get that referral.

The " no need to hurry " comment I wouldnt listen to him. it can be a

booger getting into a specialist. Sometimes the wait is awful. I had

a CT scan done on Kadie and it is really common for specialist to

want one to rule out craniocyntosis...fussing of the sutures and

soft spots. That condition is really rare, but they need to know for

sure before they will recommend banding.

Dont b worried about being consummed with this. I think all of us

were and still are. We want whats best for our babies and this is a

time conserned matter. So you fight to get that referral to a

specialist ok. Theyre is alot of info on these boards so do some

surfing ok and let me know if there is anything I can answer for

you. Im sure you will get alot of replys that will give you some

great info. Feel free to email me if you want to ok.

tbug95@...

Sheri mom to Kadie ( tort/resolved plagio/repoing )

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at

Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi a and welcome to the group!!

I agree with on the fact it was great your doctor gave you

information on it (most dont, including mine). However, just as

said, helmets DO work. Many many on here will tell you their stories,

or if you get a chance, read through posts from all of us. They work.

They dont always work to the perfection you want to see, but they

will help.

I know, just as most others here do, how you feel about being

consumed by this. I am still that way and my son will be a year old

next week and has been out of his helmet for 3 months. His shape is

still not right (though I just decided last week not to band again),

but putting him into another one was something I struggled with.

Still am and questioning my choice.

If you make the appointment you're at least getting more knowlege on

this. You can always choose not to band. I am very pro-band but

everyone has to make this decision on their own. Do what's in your

heart ... whatever you feel is best.

Let us know when your appointment is and keep us posted.. post

pictures if you can,too!

Kim

mom to Kaela (9) and Jaxson almost 1 (sniff sniff) tort, plagio,

hypotonia

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Welcome a,

Glad you could find our friendly group here. Now that you've entered

the " plagio zone " it's perfectly normal to feel scared, unsure, and

especially obsessive about your infants head. We all went through

pretty much the same scary thoughts you are having now. Do I band? Do

I leave it alone? Will they hate me for not doing something years

from now? The list goes on. Don't hesitate to ask as many questions

as you need to. That's what we are here for.

It's good to hear you are seeking an opinion from a specialist. If

they don't seem too concerned and you need second opinions I'm sure

somebody from the NC area can give you some advice about where to go

if what we have listed in the database isn't close to you.

Good luck,

Crista

Mom to -9 mo old-DOCbanded 5/13 brachy

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi a,

Welcome to the group. I would definitely suggest getting a second

opinion from a specialist experienced with Plagiocephaly. To find a

specialist w/this experience you can call one of the Cranial Tech

locations Debbie gave you. It also wouldn't hurt to get the opinion

of Cranial Tech at a free evaluation. Many peds simply don't know

enough about plagio to be qualified to give a proper diagnosis.

Bands do work and the younger the baby is when she gets it the

faster and better results she'll get. Feel free to look in our

photo section at my Hannah's pics to see what fabulous correction

she has had from her DOCbands.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at

Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi there

I just wanted to say that I sympathise with you so much. Lucia was 5

1/2 months when I took her to the doctor and like you I was not

overly concerned about the shape of her head (although my husband

was)but felt it might be because she was ventouse. When I found out

that she had plagiocephaly, and that it (perhaps) could have been

prevented, and was told it will probably grow out or that you

wouldn't notice it so much when she was older, I did some

investigating, and like you felt completely scared. All of a sudden

she 'had something'- and from what I read on the websites and so on,

it appeared that it might not go away all by itself and that time

was of the essence- I felt gutted that she was probably too old to

try repositioning (at this stage I didn't even consider banding as

it seemed too drastic.) I took her to see a specialist in this

country (UK) and when I saw the other banded babies in his clinic I

just wanted to cry, I really didn't want that for my daughter.

However, he measured her head, assessed the plagio as severe and was

absolutely lovely in just letting us have a think about things for a

while. We did and eventually decided that it was the right thing for

us. I still think if she hadn't been banded then it wouldn't have

ruined her life, but given there was an option, it would be nice for

her to start life with a normal shaped head.

Anyway, all I wanted so say is that I think it can be a bit shocking

when you first hear about this and you really do go through a lot of

emotions. But in some ways it is good that you found out about this

now, whilst there is plenty of time to make decisions, rather than

stumbling across this later perhaps when she was 2 or 3 and

thinking 'what if?' Although there is a time constraint in that you

can't leave it for years, you don't have to decide in just a few

days or even next week what to do. As you find out more and talk

with friends and family (and the shock wears off) I think you'll

feel better and calmer and more in a position to make a decision,

whether it be to enjoy just the way he is now, or to put him

in a little hat (which doesn't hurt by the way, to them it is just

like wearing a pair of shoes) to help his head along the way.

Getting information, as the other emailers have suggested is

definitely the best thing to do, by seeing a specialist or two you

can get an idea of your options and then think about things at your

own pace.

The peace of mind will return- and this problem will recede a bit

into the background, I promise (now I've made a decision I no longer

spend ages studying Lucia's head in the bath every night!)

Good luck

Hannah (Lucia's mummy)

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at

Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Hi,

Welcome to the group. I see you've received some excellent replies so

I won't repeat what you've already been told. Please keep us posted.

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

a,

I just wanted to post to welcome you to the group. Thank you for

sharing your story about 's plagio diagnosis. You have

already received wonderful, sensitive replies to your post, so I

won't repeat any of the good advice.

Would you keep us posted on your daughter's situation?

Take care,

Christie (Mom to Repo' Remy)

--- In Plagiocephaly , " mama2kynaddy " <dskjud@m...>

wrote:

> Hi,

>

> I joined the group a couple days ago, after finding out from our

ped

> that has plagio. My parent's had been bugging me about

> asking the doc about her head.So when I took her in this week I

> ased him and he rattled of this long name and went and printed me

> out so info of the web. He showed me a diagram and sayed he

thought

> hers was positional, by the flattness on one side and the bulge on

> that same side of her head. He said that there was a doc at

Chapel

> Hill that made these helments but he really did not think it did

> much improvement. But we would keep an eye out and if I wanted to

> do a ct to find out for sure I could. But that we could wait and

> there was really no hurry.

>

> When I got home and started reading the rest of the info I got

> scared to say the least. Because it said that most DR misdiganose

> the other for positional. So I don't know what to do. I feel

right

> now I could not put her in a band. But I don't want to make the

> wrong decision! So today I am goning to call and see if I can get

a

> refferral to a specialist in town. I just seem to be consumed of

> this. I find myself looking and feeling her head all the time.

But

> yet before this I never cared I always said to my parents she is

> fine, it is just the way she was in my belly.

>

> Thank you for letting me share my story. I'm hoping that I will

get

> some peace of mind soon.

>

> a

> Mommy to r 3 and 5 1/2 months

> Wilmington NC

[Guest guest]

Thank you so much Hannah and all the others in the for all you info and help. I have to say that I have been a little less obsessed lately. Which is a good thing! I am going to her ped this week to get a referral to Duke or Chapel Hill to meet with a specialist to find out exactly how bad it is.

Thanks Again... a Mommy to r 3 and 5 1/2 months

Re: New and wanted to say hi...

Hi thereI just wanted to say that I sympathise with you so much. Lucia was 5 1/2 months when I took her to the doctor and like you I was not overly concerned about the shape of her head (although my husband was)but felt it might be because she was ventouse. When I found out that she had plagiocephaly, and that it (perhaps) could have been prevented, and was told it will probably grow out or that you wouldn't notice it so much when she was older, I did some investigating, and like you felt completely scared. All of a sudden she 'had something'- and from what I read on the websites and so on, it appeared that it might not go away all by itself and that time was of the essence- I felt gutted that she was probably too old to try repositioning (at this stage I didn't even consider banding as it seemed too drastic.) I took her to see a specialist in this country (UK) and when I saw the other banded babies in his clinic I just wanted to cry, I really didn't want that for my daughter. However, he measured her head, assessed the plagio as severe and was absolutely lovely in just letting us have a think about things for a while. We did and eventually decided that it was the right thing for us. I still think if she hadn't been banded then it wouldn't have ruined her life, but given there was an option, it would be nice for her to start life with a normal shaped head. Anyway, all I wanted so say is that I think it can be a bit shocking when you first hear about this and you really do go through a lot of emotions. But in some ways it is good that you found out about this now, whilst there is plenty of time to make decisions, rather than stumbling across this later perhaps when she was 2 or 3 and thinking 'what if?' Although there is a time constraint in that you can't leave it for years, you don't have to decide in just a few days or even next week what to do. As you find out more and talk with friends and family (and the shock wears off) I think you'll feel better and calmer and more in a position to make a decision, whether it be to enjoy just the way he is now, or to put him in a little hat (which doesn't hurt by the way, to them it is just like wearing a pair of shoes) to help his head along the way. Getting information, as the other emailers have suggested is definitely the best thing to do, by seeing a specialist or two you can get an idea of your options and then think about things at your own pace.The peace of mind will return- and this problem will recede a bit into the background, I promise (now I've made a decision I no longer spend ages studying Lucia's head in the bath every night!)Good luckHannah (Lucia's mummy)> Hi,> > I joined the group a couple days ago, after finding out from our ped > that has plagio. My parent's had been bugging me about > asking the doc about her head.So when I took her in this week I > ased him and he rattled of this long name and went and printed me > out so info of the web. He showed me a diagram and sayed he thought > hers was positional, by the flattness on one side and the bulge on > that same side of her head. He said that there was a doc at Chapel > Hill that made these helments but he really did not think it did > much improvement. But we would keep an eye out and if I wanted to > do a ct to find out for sure I could. But that we could wait and > there was really no hurry. > > When I got home and started reading the rest of the info I got > scared to say the least. Because it said that most DR misdiganose > the other for positional. So I don't know what to do. I feel right > now I could not put her in a band. But I don't want to make the > wrong decision! So today I am goning to call and see if I can get a > refferral to a specialist in town. I just seem to be consumed of > this. I find myself looking and feeling her head all the time. But > yet before this I never cared I always said to my parents she is > fine, it is just the way she was in my belly. > > Thank you for letting me share my story. I'm hoping that I will get > some peace of mind soon.> > a> Mommy to r 3 and 5 1/2 months> Wilmington NCFor more plagio info