New Mom of Baby with Torticollis

[Guest guest]

I'm a new mom of 4 month old twin girls (they are my first & only

children). One of my twins was diagnosed with Torticollis. I'm in

the process of scheduling an appointment with a phsyical

therapist. I would just like some advice. I start to get scared at

times and I don't want to be scared. Torticollis can be cured,

right?

Thanks so much for your support and advice!!

[Guest guest]

-Hi and welcome to the group. My daughter wasn't diagnosed with

tort but she did have a noticable tilt. Torticollis can definitely

be cured. You are taking the right steps but scheduling an

appointment with a physical therapist. I have heard others mention

EI(early intervention). From what i have heard they will actually

come to your house if your child qualifies. There is also a

group for tort that you may want to join also. I am sure others

will chime in.

Angie and Jenna(STARband grad)-- In

Plagiocephaly , " mame122603 " <mame122603@y...> wrote:

> I'm a new mom of 4 month old twin girls (they are my first & only

> children). One of my twins was diagnosed with Torticollis. I'm in

> the process of scheduling an appointment with a phsyical

> therapist. I would just like some advice. I start to get scared at

> times and I don't want to be scared. Torticollis can be cured,

> right?

>

> Thanks so much for your support and advice!!

[Guest guest]

Howdy new mom!

I believe there is also a Support Group for Torticollis, you

may want to check it out. But you will recieve lots of advice here

from all these wonderful members, because plagiocephaly and

torticollis seem to go hand in hand.

My son Jaden has mild tort and we are currently doing physical

therapy every day at home, and he is seen once a week for therapy

and evaluation. He has improved so much w/in the past few weeks.

So YES, it IS treatable, and you should definately be seeing some

improvement once you start PT w/ your baby. Keep in mild it may

take some time, depending on the severity. But things DO get

better! You made the right step by scheduling that appt. The

sooner the better.

~Amy, mommy to Jaden MN, plagio/mild tort, started CranioCap 4/23/04

--- In Plagiocephaly , " mame122603 " <mame122603@y...>

wrote:

> I'm a new mom of 4 month old twin girls (they are my first & only

> children). One of my twins was diagnosed with Torticollis. I'm in

> the process of scheduling an appointment with a phsyical

> therapist. I would just like some advice. I start to get scared at

> times and I don't want to be scared. Torticollis can be cured,

> right?

>

> Thanks so much for your support and advice!!

[Guest guest]

Hello- my daughter is 10 months and told she had a slight tilt and

plagiocephaly. She is delayed (not crawling, pulling up) in physical

development, is this all related? I have an appt. with physical

therapy and cranial specialist, should I be doing anything else?

Lana (scared to death)

> > I'm a new mom of 4 month old twin girls (they are my first & only

> > children). One of my twins was diagnosed with Torticollis. I'm in

> > the process of scheduling an appointment with a phsyical

> > therapist. I would just like some advice. I start to get scared

at

> > times and I don't want to be scared. Torticollis can be cured,

> > right?

> >

> > Thanks so much for your support and advice!!

[Guest guest]

-It can all be related. Jenna had a tilt. She didn't walk until 14

months but she has definitley caught up with other kids her age. I

think having those 2 appointments is a great start. Jenna wasn't

referred to physical therapy but we did things at home. We

encouraged her to look the other direction. My other 2 kids would

get her to look the other way.

I know it seems scarey now but it does get better. Hang in there and

please keep us posted on your daughter.

Angie and Jenna(STARband grad)-- In

Plagiocephaly , " lanamuoio " <LanaMuoio@a...> wrote:

>

> Hello- my daughter is 10 months and told she had a slight tilt and

> plagiocephaly. She is delayed (not crawling, pulling up) in

physical

> development, is this all related? I have an appt. with physical

> therapy and cranial specialist, should I be doing anything else?

>

> Lana (scared to death)

>

>

> > -Hi and welcome to the group. My daughter wasn't diagnosed with

> > tort but she did have a noticable tilt. Torticollis can

definitely

> > be cured. You are taking the right steps but scheduling an

> > appointment with a physical therapist. I have heard others

mention

> > EI(early intervention). From what i have heard they will

actually

> > come to your house if your child qualifies. There is also a

> > group for tort that you may want to join also. I am sure others

> > will chime in.

> >

> > Angie and Jenna(STARband grad)-- In

> > Plagiocephaly , " mame122603 " <mame122603@y...>

wrote:

> > > I'm a new mom of 4 month old twin girls (they are my first &

only

> > > children). One of my twins was diagnosed with Torticollis. I'm

in

> > > the process of scheduling an appointment with a phsyical

> > > therapist. I would just like some advice. I start to get

scared

> at

> > > times and I don't want to be scared. Torticollis can be cured,

> > > right?

> > >

> > > Thanks so much for your support and advice!!

[Guest guest]

Hey there and welcome to the group! As Amy stated, there is a group

here in for torticollis and you may want to join us there as

well.

And, as also stated by others, it is definately able to be cured. It

can be a long road with a few bumps in it, but eventually it will

smooth out.

Though many babies w/tort hate tummy time, it's definately a good

idea to get her on her belly as much as possible. Repo'ing is a good

idea as well, to help ward off plagio.

Great that you're getting her into pt, just make sure this PT has

worked with other little ones with tort. Trust your instinct, if you

don't like him/her, switch.

You'll be fine and your daughter will recover great. Keep your chin

up and post with any questions!!

Kim

mom to Kaela (9) and Jaxson 9 mo tort/CranioCap grad 04/09/04

-- In Plagiocephaly , " mame122603 " <mame122603@y...>

wrote:

> I'm a new mom of 4 month old twin girls (they are my first & only

> children). One of my twins was diagnosed with Torticollis. I'm in

> the process of scheduling an appointment with a phsyical

> therapist. I would just like some advice. I start to get scared at

> times and I don't want to be scared. Torticollis can be cured,

> right?

>

> Thanks so much for your support and advice!!

[Guest guest]

Welcome to the group and congrats on your girls! We have many

babies here who had torticollis, though my daughter did not, so I

can't be too much of a help in that area! I do know there is a

torticollis group as well though. That's great that you have

the physical therapist appt scheduled. The link between the tort

and plagio is that many babies w/tort also have/develop

plagiocephaly. If your daughter is always looking to the right for

instance, she risks getting head flatening on that side. How do you

think her head shape is now? Sometimes it is easier to see in a

mirror. We have severity assessments in our links section. It will

be difficult w/the tort, but you want to try to keep her off that

side if she does have any flattening. Please tell us more when you

get a chance and I'm srue we can help you out more.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " mame122603 " <mame122603@y...>

wrote:

> I'm a new mom of 4 month old twin girls (they are my first & only

> children). One of my twins was diagnosed with Torticollis. I'm in

> the process of scheduling an appointment with a phsyical

> therapist. I would just like some advice. I start to get scared at

> times and I don't want to be scared. Torticollis can be cured,

> right?

>

> Thanks so much for your support and advice!!

[Guest guest]

Hi. My 5-month old was diagnosed with torticollis last month and he's already shown so much improvement with our weekly physical therapy appointments (cranial sacral massage) and at-home stretching exercises. There's a website called www.torticolliskids.org that you should checkout to find more information to put your mind at ease. But, yes, from what little I know, it's very curable with treatment.

New Mom of Baby with Torticollis

I'm a new mom of 4 month old twin girls (they are my first & only children). One of my twins was diagnosed with Torticollis. I'm in the process of scheduling an appointment with a phsyical therapist. I would just like some advice. I start to get scared at times and I don't want to be scared. Torticollis can be cured, right?Thanks so much for your support and advice!!For more plagio info

[Guest guest]

Hello and welcome to the group.

My name is Sandy and my daughter's name is Willow. She was dx'd at

her 8wk visit. We were referred out for pt / ot, but they just told

us to rotate her in the crib, and place the toys on the other side.

Oh and lots of tummytime. I can tell you that it was not that easy,

but that Willow's torticollis is completely resolved now at

11months. We are still in pt and ot though. Tort kids should be

monitored till they walk well. With looots of home stretching /

PT / OT and a great support group we got through it. It is a loooong

trip, but you will get there. Have you contacted Early Intervention

yet? Your daughter might qualify for this. That would mean that

they come out to your house and do the therapy with her. Depending

on which state you are in the eligebility standards are different.

Please feel free to ask any questions. Also you might want to peak

your head into the torticollis group on here.. They are great and I

don't know where my daughter would be without them.

Sandy Willow's Mom torticollis resolved / Cranio Germany Grad

--- In Plagiocephaly , " mame122603 " <mame122603@y...>

wrote:

> I'm a new mom of 4 month old twin girls (they are my first & only

> children). One of my twins was diagnosed with Torticollis. I'm in

> the process of scheduling an appointment with a phsyical

> therapist. I would just like some advice. I start to get scared at

> times and I don't want to be scared. Torticollis can be cured,

> right?

>

> Thanks so much for your support and advice!!