Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 I started the intro with my daughter yesterday and feel terrible as well. I don't think I can do it another day, and I am not the one with UC! I feel very weak. How do you know when you can go from intro to phase 1? She had one very runny BM with quite a bit of blood yesterday. Normally she had 2 to 3, which is improvement, however, I am thinking maybe she didn't have 2 to 3 because we had so little to eat yesteday. I don't think this is going to work for us. (too hungry, too weak...just doesn't seem healthy) She is REALLY sick of eggs for breakfast. We seemed to do better when we were just experimenting with the various SCD recipes and not trying to phase foods in. Any advice? Our next option is Remicade and we desperately don't want to go that route. Kathy Subject: Re: doing introTo: BTVC-SCD Date: Monday, July 14, 2008, 5:38 PM I am not making myself too clear. Maybe I didn't feel this first timearound because I was in so much pain. It is not nearly as bad now,just the feeling like fainting isn't pleasant!JodiSCD 9 monthsCrohn's/Colitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 At 06:29 AM 7/15/2008, you wrote: I started the intro with my daughter yesterday and feel terrible as well. I don't think I can do it another day, and I am not the one with UC! I feel very weak. First of all, what did you have to eat? And how much? You move on to more food after a couple of days on intro -- the objective is NOT to stay with chicken soup until there are no symptoms! >> I don't think this is going to work for us. (too hungry, too weak...just doesn't seem healthy) She is REALLY sick of eggs for breakfast. We seemed to do better when we were just experimenting with the various SCD recipes and not trying to phase foods in. Any advice? Our next option is Remicade and we desperately don't want to go that route. << Sick of eggs for breakfast? Why? What did she usually eat? Was it the same thing every day? Or a variation of the same thing? For instance, if she had cereal and milk one day, and then toast and jelly the next and pancakes the third, she was eating the same thing every day. Just different forms of grains. Therefore, you find different ways of presenting the eggs, or go to " non-breakfast foods " like a piece of chicken or fish. It's not uncommon to be very hungry at the start of the diet -- the bad bacteria in BOTH your guts (and yes, you have them, too) are screaming for their accustomed food. As for it being healthy, I've been on SCD, unbroken, for seven years. I know a lady who has been on it for 15. I can legitimately say that SCD has saved my life three times over. First, because it gave me hope that some day I would be able to live a life free of gut pain and diarrhea and urgency. Second because the healthy food which was absorbed allowed me to begin normalizing my weight. Third, because without the healthy food, the cancer I was operated on for in April probably would have been out of control before it was discovered because I never would have noticed the symptoms in amidst my former gut problems, And fourth (yes, I know I said three, but I thought of another) I probably would not have survived the surgery for the cancer without the continuing normalization of weight. SCD works -- but it took time to get sick. It will also take time to heal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Jody, I don't blame you for being tired of chicken soup. <g> So what about beef or bison or turkey soup? What about skipping soup altogether and going with -- as you did -- a bit of meat? Are there any vegetables you can tolerate? You can get carbs that way. Kim just posted Juicemaking 101 <g> so maybe some homemade juices would work better for you than cider or grape juice. Dang... I have to get going. My first day back at work since February. <g> Plus I have water therapy this afternoon. Perhaps someone else will have some good suggestions. Take care today! I will be thinking of you! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Also, Chevre goat cheese, while expensive, appears to be a goat dry curd cottage cheese and is well toleated. Chevre is a fresh cheese and is not legal see, http://www.breakingtheviciouscycle.info/knowledge_base/kb/chevre.htm Elaine did say you should stay on the Intro diet until the symptom stop, but she meant the whole Intro diet and for not over a week. You are correct that one should include all the foods from the intro diet if possible but she did not say to stay on it until symptoms were gone. Take care, Kim H. husband, , CD 1999 SCD 2002 Recent Activity 12 New Members 1 New FilesVisit Your Group Yahoo! Health Early Detection Know the symptoms of breast cancer. Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Groups Everyday Wellness Zone Check out featured healthy living groups. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Jodi It does sound like you have several things going on. One thing that will surely help is to boost your electrolytes. Try diluted apple juice instead of cider; that will give you a good boost of potassium. If you can find a commercial electrolyte drink that doesn't contain illegals, like the one I use called E-Lyte (but I get it from the online mail-order source), that will help. You might seriously consider going to the ER or seeing your primary care physician. You might need some IV fluids and electrolytes. And they can make sure nothing else is going on, like a bile duct blockage. When I had a blocked common bile duct, my stools drastically changed in texture, color and odor. Eventually blood work showed abnormal liver enzymes, and I found a good gastroenterologist, so something was done (ERCP). In my opinion you need more carbs. Is there a cooked vegetable that your digestion can handle successfully? Mine is cooked Italian green beans; I can eat them even when I'm just coming off clear liquids. I'm better able to control my blood sugar levels (and the symptoms associated with low blood sugar) when I can eat some cooked veggies along with lots of protein. Sometimes I don't have fruit juices at all for a few days, and just have water, electrolyte drink, meat and a few cooked veggies. You're also eating a lot of high-fat meats. If you're like me in having bile duct issues, that may be causing more problems then helping. Of course I do get a lot of upper GI pain and nausea when I eat dark or ground meats. You don't mention nausea and RUQ pain, but I'd still try eating more white meats. I used to get episodes of fainting, followed by dizziness, severe nausea, chills. The episodes would last for several hours; happened every day for two weeks. This was going on at the same time as I was being tested for my upper GI symptoms but turned out to be from a different cause. It was pressure on my vagus nerve due to a very large ovarian cyst. Have you had a pelvic ultrasound lately? Might be something going on there too. I've had plenty of bad experiences with doctors and nurses. But I've learned to pay attention to symptoms that persist and are severe, and head for one of my doctors or my nearest hospital if things are really bad... I wouldn't wait too long, feeling as you do. Hope things start improving for you soon. Kim M. SCD 5 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 What is DCCC? Thanks, Gwen Re: doing intro > Someone emailed me and said it sounded like my blood sugar levels were> out of wack so I have been eating some DCCC with honey and that really> helped the dizzy/faint feeling.> > Problem is that honey is giving me more D > What about eating bananas instead with the DCCC? They convert easily into blood sugar. Or pea puree or avocado? Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 At 02:43 PM 7/16/2008, you wrote: What is DCCC? Dry Curd Cottage Cheese. Drove me CRAZY the first time I read BTVC (that's Breaking the Vicious Cycle) because I'd never heard of the stuff. Also couldn't find it for the first four years I was on the diet, and so used well-dripped SCD yogurt! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Thanks Where did you finally get it? What do you use it for? Gwen Re: Re: doing intro At 02:43 PM 7/16/2008, you wrote: What is DCCC?Dry Curd Cottage Cheese. Drove me CRAZY the first time I read BTVC (that's Breaking the Vicious Cycle) because I'd never heard of the stuff. Also couldn't find it for the first four years I was on the diet, and so used well-dripped SCD yogurt! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 At 03:17 PM 7/16/2008, you wrote: Thanks Where did you finally get it? What do you use it for? You can see what it is here: http://health.groups.yahoo.com/group/BTVC-SCD/files/Getting%20Started%20with%20SCD/ As for what it's used for, you use it in lieu of cream cheese, or cottage cheese, or any number of things. It's an ingredient in many recipes, as, among other things, it's lactose free. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
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