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Hi Connie,

Sometimes, I experience sensations like that. Not just in my legs

though. I don't have an MS diagnosis.

This morning, I woke up and could barely stand up. My legs,

especially my thighs, were aching so badly as if I'd gone hiking in

the hills for 50 miles. I can't hike the way I used to, but I've

never been able to hike for 15 miles let alone 50. Yesterday, I

didn't go walking at all.

Two days in a row, when I went to the convenience store, my knees gave

out on me. I don't know what causes the weakness that I experience.

The neurologist that I saw...I don't remember when... said that my

symptoms are probably just random symptoms, even if they occur regularly.

Donna in WA

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Connie,

I have been diagnosed w/ RRMS for over 2 1/2 years and I have that

feeling in my right calf often and complained to my 1st neuro about

it and he told me that he had heard of similar complaints and offered

it up to the mysterious ways of MS. For me, it seems that every

month, or week I have a new weird symptom that will pop up, stay for

awhile and go away. Most of my troubles come at night when I'm

trying to sleep or if I overdo it during the day and that " cold-knot "

feeling " in my calf happens mostly at night or if I've been on my

feet alot. I'm extremely heat sensitive (I was just reading a post

about you all talking about that) and sometimes I want to use heat to

help w/ my aches and pains because I just think that it would feel so

good, but the min. I get heated up I'm down for the count. It's hard

for me to manage my symptoms because I'm so hard headed and forgetful

so I think I can go and go and I forget to take meds when I'm

supposed to, but I know that when I DO stop myself and MAKE myself

relax, my symptoms do get alittle better. I hope I helped some

Connie and I hope you are feeling better!

-Andi Jo

>

> I am having a deep cold feeling in my calf. It comes and goes but

it is a

> really strange feeling-it almost hurts but feels like someone is

holding ice

> inside my calf. There is some pain also but not to the touch.

>

> I talked to my neuro's nurse about it today when I called for a

prescription

> refill. She ran it by the Dr. The doc said it didn't sound like it

was a

> symptom of MS but I thought I would ask you guys instead.

>

>

>

> Thanks,

> Connie

>

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My opinion is that is NERVE related. So I think that it's MS related. Why do so many doctors say our symptoms are not MS related?!? LOLSharonhttp://health.groups.yahoo.com/group/MSersHEALTH/This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Subject: a sympton questionTo: MSersLife Date: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and

goes but it is a really strange feeling—it almost hurts but feels like

someone is holding ice inside my calf. There is some pain also but not to the

touch. I talked to my neuro’s nurse about it today when I

called for a prescription refill. She ran it by the Dr. The doc said it didn’t

sound like it was a symptom of MS but I thought I would ask you guys instead. Thanks,

Connie

__________________________________________________

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easy no brainer = they don't have it and they don't live with it

a sympton questionTo: MSersLife Date: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and goes but it is a really strange feeling�it almost hurts but feels like someone is holding ice inside my calf. There is some pain also but not to the touch.

I talked to my neuro�s nurse about it today when I called for a prescription refill. She ran it by the Dr. The doc said it didn�t sound like it was a symptom of MS but I thought I would ask you guys instead.

Thanks,Connie__________________________________________________

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That is an extremely great point. One of the most true statements i have heard in ages.They pretend that they have all the answers but the truthe is Anne and Sharon is that thehy don't have a clue Take Care

From: connie buran <chadma1scom (DOT) net>Subject: a sympton questionTo: MSersLife@yahoogrou ps.comDate: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and goes but it is a really strange feeling�it almost hurts but feels like someone is holding ice inside my calf. There is some pain also but not to the touch.

I talked to my neuro�s nurse about it today when I called for a prescription refill. She ran it by the Dr. The doc said it didn�t sound like it was a symptom of MS but I thought I would ask you guys instead.

Thanks,Connie____________ _________ _________ _________ _________ __

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Hi Andi JoI have been having a lot of the same problems where new things wi9ll keep popping up and go away just as quick. I have a question though. Where is the remission I am waiting patiently(tapping foot and twiddling thumbs) Hope things are getting better for you Keep up the

fight Subject: Re: a sympton questionTo: MSersLife Date: Tuesday, October 21, 2008, 10:23 AM

Connie,

I have been diagnosed w/ RRMS for over 2 1/2 years and I have that

feeling in my right calf often and complained to my 1st neuro about

it and he told me that he had heard of similar complaints and offered

it up to the mysterious ways of MS. For me, it seems that every

month, or week I have a new weird symptom that will pop up, stay for

awhile and go away. Most of my troubles come at night when I'm

trying to sleep or if I overdo it during the day and that "cold-knot"

feeling" in my calf happens mostly at night or if I've been on my

feet alot. I'm extremely heat sensitive (I was just reading a post

about you all talking about that) and sometimes I want to use heat to

help w/ my aches and pains because I just think that it would feel so

good, but the min. I get heated up I'm down for the count. It's hard

for me to manage my symptoms because I'm so hard headed and forgetful

so I think I can go and go and I forget to take meds when I'm

supposed to, but I know that when I DO stop myself and MAKE myself

relax, my symptoms do get alittle better. I hope I helped some

Connie and I hope you are feeling better!

-Andi Jo

>

> I am having a deep cold feeling in my calf. It comes and goes but

it is a

> really strange feeling-it almost hurts but feels like someone is

holding ice

> inside my calf. There is some pain also but not to the touch.

>

> I talked to my neuro's nurse about it today when I called for a

prescription

> refill. She ran it by the Dr. The doc said it didn't sound like it

was a

> symptom of MS but I thought I would ask you guys instead.

>

>

>

> Thanks,

> Connie

>

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at 60 I don't play games - if they try my patience I tell them off - they can get mad or not I don't care - I tell them I am the one living with it - if they stress me out = I suffer - they don't

a sympton questionTo: MSersLife@yahoogrou ps.comDate: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and goes but it is a really strange feeling�it almost hurts but feels like someone is holding ice inside my calf. There is some pain also but not to the touch.

I talked to my neuro�s nurse about it today when I called for a prescription refill. She ran it by the Dr. The doc said it didn�t sound like it was a symptom of MS but I thought I would ask you guys instead.

Thanks,Connie____________ _________ _________ _________ _________ __

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if I sit more than a few minutes I get stiff - the cold makes it worse -= getting started these cold morning is a trial - a hot shower in the morning and slowly straightening and lowering in the shower helps

RE: Re: a sympton question

I have lots of arthritiseseses and so on that stiffen up duringthe day orwhile I'm sleeping - the only way that seems to work for me to keep movingis a hot shower in the morning or a hot soak at night. If I stay in onesecond too long, or have the water one degree toohot......bleaaaaahhhhhhhh......... humph.I keep one room "cold" on purpose so I have a retreat when I getoverheated. Now that the weather's cold, it's here with the computer! in WY "You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies-----Original Message-----From: MSersLife [mailto:MSersLife ] On BehalfOf Sent: Tuesday, October 21, 2008 7:24 AMTo: MSersLife Subject: Re: a sympton questionConnie,I have been diagnosed w/ RRMS for over 2 1/2 years and I have that feeling in my right calf often and complained to my 1st neuro about it and he told me that he had heard of similar complaints and offered it up to the mysterious ways of MS. For me, it seems that every month, or week I have a new weird symptom that will pop up, stay for awhile and go away. Most of my troubles come at night when I'm trying to sleep or if I overdo it during the day and that "cold-knot" feeling" in my calf happens mostly at night or if I've been on my feet alot. I'm extremely heat sensitive (I was just reading a post about you all talking about that) and sometimes I want to use heat to help w/ my aches and pains because I just think that it would feel so good, but the min. I get heated up I'm down for the count. It's hard for me to manage my symptoms because I'm so hard headed and forgetful so I think I can go and go and I forget to take meds when I'm supposed to, but I know that when I DO stop myself and MAKE myself relax, my symptoms do get alittle better. I hope I helped some Connie and I hope you are feeling better!-Andi Jo>> I am having a deep cold feeling in my calf. It comes and goes but it is a> really strange feeling-it almost hurts but feels like someone is holding ice> inside my calf. There is some pain also but not to the touch. > > I talked to my neuro's nurse about it today when I called for a prescription> refill. She ran it by the Dr. The doc said it didn't sound like it was a> symptom of MS but I thought I would ask you guys instead.> > > > Thanks,> Connie>------------------------------------

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I got a couple of shites for docs - I got home and called back to the clinic and threatened to call the AMA and let fly - I won't put up with holier than thou shites

RE: a sympton question

You GO, girl! :-D

T

in WY"You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies

-----Original Message-----From: MSersLife [mailto:MSersLife ] On Behalf Of Anne WhitworthSent: Tuesday, October 21, 2008 9:42 AMTo: MSersLife Subject: Re: a sympton question

at 60 I don't play games - if they try my patience I tell them off - they can get mad or not I don't care - I tell them I am the one living with it - if they stress me out = I suffer - they don't

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after all we have MS - dxed or not = one of the symptoms is going 0 to 60 and bitching at the drop of the hat - even my attorney at legal aid knows that - another client let fly in front of a judge and he sat there and smiled

RE: a sympton question

You GO, girl! :-D

T

in WY"You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies

-----Original Message-----From: MSersLife [mailto:MSersLife ] On Behalf Of Anne WhitworthSent: Tuesday, October 21, 2008 9:42 AMTo: MSersLife Subject: Re: a sympton question

at 60 I don't play games - if they try my patience I tell them off - they can get mad or not I don't care - I tell them I am the one living with it - if they stress me out = I suffer - they don't

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It’s not on The

Official List in the “Big Book Of Secret Doctor Stuff”. ;-P

T

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

a sympton question

To: MSersLife

Date: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and

goes but it is a really strange feeling—it almost hurts but feels like

someone is holding ice inside my calf. There is some pain also but not to the

touch.

I talked to my neuro’s nurse about it today when I called

for a prescription refill. She ran it by the Dr. The doc said it didn’t

sound like it was a symptom of MS but I thought I would ask you guys instead.

Thanks,

Connie

__________________________________________________

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the view of military docs is that they have to be there to pay back their med school tuition so you are guinea pigs - I was a military brat and an army wife - twice

RE: a sympton question

?

Military doctors seemed to mostly be that way, and then you HAD to take it – they were OFFICERS, after all. (humph). Plus the interesting fact that if a military doc cuts off your wrong leg or puts you in a wheelchair for life, too bad, there’s nothing you can do about it….

I had male OBs in the military tell me, when I was going through “natural†childbirth (not very natural, since you were tied down flat on your back on a table) that I WAS NOT HAVING PAIN, SO BE QUIET.

I bit one of them.

T

in WY"You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies

-----Original Message-----From: MSersLife [mailto:MSersLife ] On Behalf Of Anne WhitworthSent: Tuesday, October 21, 2008 11:55 AMTo: MSersLife Subject: Re: a sympton question

I got a couple of shites for docs - I got home and called back to the clinic and threatened to call the AMA and let fly - I won't put up with holier than thou shites

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I have lots of arthritiseseses and so on that stiffen up duringthe day or

while I'm sleeping - the only way that seems to work for me to keep moving

is a hot shower in the morning or a hot soak at night. If I stay in one

second too long, or have the water one degree too

hot......bleaaaaahhhhhhhh......... humph.

I keep one room " cold " on purpose so I have a retreat when I get

overheated. Now that the weather's cold, it's here with the computer!

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton question

Connie,

I have been diagnosed w/ RRMS for over 2 1/2 years and I have that

feeling in my right calf often and complained to my 1st neuro about

it and he told me that he had heard of similar complaints and offered

it up to the mysterious ways of MS. For me, it seems that every

month, or week I have a new weird symptom that will pop up, stay for

awhile and go away. Most of my troubles come at night when I'm

trying to sleep or if I overdo it during the day and that " cold-knot "

feeling " in my calf happens mostly at night or if I've been on my

feet alot. I'm extremely heat sensitive (I was just reading a post

about you all talking about that) and sometimes I want to use heat to

help w/ my aches and pains because I just think that it would feel so

good, but the min. I get heated up I'm down for the count. It's hard

for me to manage my symptoms because I'm so hard headed and forgetful

so I think I can go and go and I forget to take meds when I'm

supposed to, but I know that when I DO stop myself and MAKE myself

relax, my symptoms do get alittle better. I hope I helped some

Connie and I hope you are feeling better!

-Andi Jo

>

> I am having a deep cold feeling in my calf. It comes and goes but

it is a

> really strange feeling-it almost hurts but feels like someone is

holding ice

> inside my calf. There is some pain also but not to the touch.

>

> I talked to my neuro's nurse about it today when I called for a

prescription

> refill. She ran it by the Dr. The doc said it didn't sound like it

was a

> symptom of MS but I thought I would ask you guys instead.

>

>

>

> Thanks,

> Connie

>

------------------------------------

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You GO, girl! :-D

T

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton

question

at 60 I don't play games - if they

try my patience I tell them off - they can get mad or not I don't care - I tell

them I am the one living with it - if they stress me out = I suffer - they

don't

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Himself says I can

go from zero to bitch in .5 seconds. ;-) I tell him he’d better always keep

that in mind!

T

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton

question

after all we have MS - dxed or not

= one of the symptoms is going 0 to 60 and bitching at the drop of the hat -

even my attorney at legal aid knows that - another client let fly in front of a

judge and he sat there and smiled

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?

Military

doctors seemed to mostly be that way, and then you HAD to take it – they were

OFFICERS, after all. (humph). Plus the interesting fact that if a

military doc cuts off your wrong leg or puts you in a wheelchair for life, too

bad, there’s nothing you can do about it….

I

had male OBs in the military tell me, when I was going through “natural”

childbirth (not very natural, since you were tied down flat on your back on a

table) that I WAS NOT HAVING PAIN, SO BE QUIET.

I bit one

of them.

T

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton

question

I got a couple of shites for docs -

I got home and called back to the clinic and threatened to call the AMA and let

fly - I won't put up with holier than thou shites

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Mmm-hmm, that’s what

I have to do. I’ve been told “oh, put ice on this-or-that – heck NO. Ice

HURTS. Even cool water hurts.

Sigh. My whole

sensory system seems to be cattywampus.

It’s snowing!

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: Re: a sympton

question

if I sit more than a few minutes I

get stiff - the cold makes it worse -= getting started these cold morning is a

trial - a hot shower in the morning and slowly straightening and lowering in

the shower helps

Re: a sympton question

Connie,

I have been diagnosed w/ RRMS for over 2 1/2 years and I have that

feeling in my right calf often and complained to my 1st neuro about

it and he told me that he had heard of similar complaints and offered

it up to the mysterious ways of MS. For me, it seems that every

month, or week I have a new weird symptom that will pop up, stay for

awhile and go away. Most of my troubles come at night when I'm

trying to sleep or if I overdo it during the day and that " cold-knot "

feeling " in my calf happens mostly at night or if I've been on my

feet alot. I'm extremely heat sensitive (I was just reading a post

about you all talking about that) and sometimes I want to use heat to

help w/ my aches and pains because I just think that it would feel so

good, but the min. I get heated up I'm down for the count. It's hard

for me to manage my symptoms because I'm so hard headed and forgetful

so I think I can go and go and I forget to take meds when I'm

supposed to, but I know that when I DO stop myself and MAKE myself

relax, my symptoms do get alittle better. I hope I helped some

Connie and I hope you are feeling better!

-Andi Jo

>

> I am having a deep cold feeling in my calf. It comes and goes but

it is a

> really strange feeling-it almost hurts but feels like someone is

holding ice

> inside my calf. There is some pain also but not to the touch.

>

> I talked to my neuro's nurse about it today when I called for a

prescription

> refill. She ran it by the Dr. The doc said it didn't sound like it

was a

> symptom of MS but I thought I would ask you guys instead.

>

>

>

> Thanks,

> Connie

>

------------------------------------

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Or to get a green card

– I ran into several who spoke such bad English that a translator had to come

into the room.

Much MUCH better

care, generally speaking, from nurse-practitioners…

T

Military brat/military

wife 3 times/active duty/retiree wife now!

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton

question

the view of military docs is that

they have to be there to pay back their med school tuition so you are guinea

pigs - I was a military brat and an army wife - twice

Re: a sympton question

I got a couple of shites for docs -

I got home and called back to the clinic and threatened to call the AMA and let

fly - I won't put up with holier than thou shites

Link to comment
Share on other sites



that is debatable - my sisters son and daughter in law are in VA - the nurse practitioner and the doc have scared the crap out of them with the baby on the way - with all the upset a tricky pregnancy could be over due to their lack of experience and education

RE: a sympton question

?

Military doctors seemed to mostly be that way, and then you HAD to take it – they were OFFICERS, after all. (humph). Plus the interesting fact that if a military doc cuts off your wrong leg or puts you in a wheelchair for life, too bad, there’s nothing you can do about it….

I had male OBs in the military tell me, when I was going through “natural†childbirth (not very natural, since you were tied down flat on your back on a table) that I WAS NOT HAVING PAIN, SO BE QUIET.

I bit one of them.

T

in WY"You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies

-----Original Message-----From: MSersLife [mailto:MSersLife ] On Behalf Of Anne WhitworthSent: Tuesday, October 21, 2008 11:55 AMTo: MSersLife Subject: Re: a sympton question

I got a couple of shites for docs - I got home and called back to the clinic and threatened to call the AMA and let fly - I won't put up with holier than thou shites

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Share on other sites



back in 1967 I ended up with a urinary doc in OB at least he had a sense of humor

RE: a sympton question

?

Military doctors seemed to mostly be that way, and then you HAD to take it – they were OFFICERS, after all. (humph). Plus the interesting fact that if a military doc cuts off your wrong leg or puts you in a wheelchair for life, too bad, there’s nothing you can do about it….

I had male OBs in the military tell me, when I was going through “natural†childbirth (not very natural, since you were tied down flat on your back on a table) that I WAS NOT HAVING PAIN, SO BE QUIET.

I bit one of them.

T

in WY"You get a wonderful view from the point of no return..."http://practical-blackwork.blogspot.comhttp://www.flickr.com/photos/liadains_fancies

-----Original Message-----From: MSersLife [mailto:MSersLife ] On Behalf Of Anne WhitworthSent: Tuesday, October 21, 2008 11:55 AMTo: MSersLife Subject: Re: a sympton question

I got a couple of shites for docs - I got home and called back to the clinic and threatened to call the AMA and let fly - I won't put up with holier than thou shites

Link to comment
Share on other sites

There’s always some –

and why do the worst people always seem to end up in OB?!?

I hope the

pregnancy goes well, and everyone will be healthy and happy.

T

in WY

" You get a wonderful view from the point of no return... "

http://practical-blackwork.blogspot.com

http://www.flickr.com/photos/liadains_fancies

Re: a sympton

question

that is debatable - my sisters son

and daughter in law are in VA - the nurse practitioner and the doc have scared

the crap out of them with the baby on the way - with all the upset a tricky

pregnancy could be over due to their lack of experience and education

Re: a sympton

question

I got a couple of shites for docs -

I got home and called back to the clinic and threatened to call the AMA and let

fly - I won't put up with holier than thou shites

Link to comment
Share on other sites

Thanks for all the replies. The cold pain in

my calf is still there but now I am not as freaked out about it. When you know

other MSers have similar symptoms, it takes some of the worry away.

I am having a few twinges and symptoms here

and there after many months of nothing. I have had a mountain of stress lately

with my mom sick, a new job, my son’s wedding, another son graduating college,

moving home and interviewing for a job overseas, a third son jobless at home

and a teenager. Wow as I write this I am feeling more stressed than before J Hopefully the stress

and symptoms will ease up soon.

Have a great day,

Connie

From: MSersLife [mailto:MSersLife ] On Behalf Of Sharon

Sent: Tuesday, October 21, 2008

9:55 AM

To: MSersLife

Subject: Re: a sympton

question

My opinion is that is

NERVE related. So I think that it's MS related. Why do so many

doctors say our symptoms are not MS related?!? LOL

Sharon

http://health.groups.yahoo.com/group/MSersHEALTH/

This email is a

natural hand made product. The slight variations in spelling and grammar

enhance its individual character and beauty and in no way are to be

considered flaws or defects.

From: connie buran

<chadma1scom (DOT) net>

Subject: a sympton question

To: MSersLife

Date: Monday, October 20, 2008, 7:28 PM

I am

having a deep cold feeling in my calf. It comes and goes but it is a really

strange feeling—it almost hurts but feels like someone is holding ice inside

my calf. There is some pain also but not to the touch.

I talked

to my neuro’s nurse about it today when I called for a prescription refill.

She ran it by the Dr. The doc said it didn’t sound like it was a

symptom of MS but I thought I would ask you guys instead.

Thanks,

Connie

__________________________________________________

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we aren't cookie cutter in symptoms - we do have similar ones -

we just understand and "feel" what is going on with you

a sympton questionTo: MSersLife Date: Monday, October 20, 2008, 7:28 PM

I am having a deep cold feeling in my calf. It comes and goes but it is a really strange feeling—it almost hurts but feels like someone is holding ice inside my calf. There is some pain also but not to the touch.

I talked to my neuro’s nurse about it today when I called for a prescription refill. She ran it by the Dr. The doc said it didn’t sound like it was a symptom of MS but I thought I would ask you guys instead.

Thanks,Connie

__________________________________________________

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That is so true Stress causes so many things to go wrong within us (especially to us msers but try to do things each day to make things better for yoursel Even if you have to take it a minute at a time It may help to ease the stresses that you and we all face. But it's very true Jolie Stress is almost imopossible to avoid. Just do the bestt you can to have fun any time you can.

Subject: Re: a sympton questionTo: MSersLife Date: Wednesday, October 22, 2008, 12:40 PM

Stress does weird things to us...but it is almost impossible to alwaysbe stress free too. Just do your best to not worry. Lol...not thateasy, I know.Jolie

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