Re: Dylan's helmet adjustment - Margy

[Guest guest]

Margy, I think what they meant is that Dylan's head did not grow

much at all. It was measurable. If it grew, it was less that 1/8

of an inch because that's the smallest measurement mark on the

tape. The orthotist said that all growth would be concentrated in

the flat area. In Dylan's case, his head is flatter on the back

right side. My sister has an 8 month old boy and his head is in the

5th percentile for growth. They've done some reading on

microcephaly but he hasn't been formally diagnosed. Is microcephaly

diagnosed based on the size and/or rate of growth? My sister has

been very concerned about it but the doctors are worried about it.

Are there any long-term effects (developmentally, etc)? I would

love to share some info with her on that. She trusts her doctor,

but as we ALL know, they're not always right and they can often

overlook serious things. Thanks for the response!

Beth

> I am so sorry to hear that Beth. I am having trouble

understanding though,

> is it that his head has not grown in accordance with the flat

area, or has not

> grown at all? The reason I ask is my son has microcephaly..his

head is about

> 16 1/2 inches around, grows maybe half an inch a year. I

explained this to

> the man who banded him and he seemed very confident that even

though my son's

> head doesn't grow, that the band can still move the head formation

just as it

> would with any other head that is growing. Do you think he may

have

> misrepresented, or not understood what he was saying? Does the

head not improve in the

> flat area when the head is not growing?

> Thanks,

> Margy

> mom to Tony 12/8/02

>

> In a message dated 5/6/2004 8:20:38 PM Pacific Standard Time,

> ngubash@y... writes:

>

> > >Dylan went in for an adjustment yesterday. We found that,

> > >unfortunately, he hasn't grown much. His head is still

measuring

> > at

> > >18 and 1/8 inches which is the same as 3 weeks ago. I guess

that's

> > >why we haven't seen much improvement in the flat area. I have

to

> > >say, it was a little discouraging since we saw 1/8 inch of

growth

> > in

> > >the first 3 weeks. Our orthotist said that it's normal and

that by

> > >next time, he should be right on track. I know I can't get

> > >depressed about it and I have to accept that this is not going

to

> > >happen over night. It's still hard sometimes even though I

think

> > >I'm used to all this. Thanks for all of the replies to my

question

> > >recently about slowed growth, etc. I appreciate all the help

and

> > >support. I think it would be a lot harder if I couldn't talk

to

> > >people who understand.

> > >

> > >Beth

> > >Grand Rapids, MI

>

>

> Margy, 20

> -:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:-

> Mommy to my cloth-bottomed,

> peek-a-boo playing, teeth-cutting, mommy-loving

> Beautiful Baby Boy

>

> 16 months

> -:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:--:¦:-

>

> " Learn from the mistakes of others. You won't live long enough to

make all

> of them yourself. "