Re: Re: Interesting Information

[Guest guest]

Looking back on when 's symptoms first appeared, he was about 2 years

and 10 months. He has never been much of a meat eater and certainly wasn't

at that age. He very rarely would eat the meat that was being served for

dinner.

That's all I have on the subject. Does that help?

Here's another one for everyone. Some mother's that I know through the MDA

and I were all out to lunch last week. We started comparing Prednisone side

effects we had seen in our children and it seems that one thing all the kids

had in common was an incredible craving for pancakes once they started

taking the medicine. ate them all day, every day when he was getting

his infusions. I was often making flap jacks at 10:00 at night when he was

too hungry to sleep and that was all he wanted. He still eats them almost

daily. These were kids who never asked for a pancake until they started on

Pred. Just seemed like an odd trait to all have in common. That and

chocolate milk. All the kids seemed to also have a greater increase in

chocolate milk cravings. Anyone else?

Hugs, Cari

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Interesting Information

>Date: Fri, 29 Jun 2001 19:25:31 -0000

>

>I still want to know if there are any vegetarians with myositis?

>Anyone know of any? Just curious!?!?!

>Cheri

>

>

>

> > Hi Cheri :-)

> >

> > Yes, it's true that most commercially grown meat-producing animals

>are given large doses of antibiotics. It is felt by more than a few

>that this contributes in a major way to the growing problem with

>antibiotic resistance. In fact, from what I've read, the animal

>antibiotics are one of the leading causes of resistance as compared

>to human overusage.

> >

> > I don't know of any myositis/antibiotic connection......you might

>want to look at what Dr. ph Mercola has to say about the

>subject......maybe try searching for " antibiotic " or some such thing

>in his search engine at www.mercola.com Although it is felt that

>humans use too many abx, Dr. Mercola is a proponent of using

>antibiotics to treat myositis and other rheumatic diseases. I've

>followed his basic protocol for the last three and a half years and

>pretty much have all symptoms eliminated with my strength and stamina

>at a nearly normal level.

> >

> > So.........to answer your question.......who knows!? It seems that

>each time we turn around, scientists are discovering more and

>more " bugs " are causing these diseases.....in addition to heart

>disease, and cancer, and others.

> >

> > Take care,

> >

> > Connie

> > Interesting Information

> >

> >

> > I heard on TV this morning about how many Antibiotics animals are

> > given whether they are sick or not...such as Beef, Chicken, and

>Pork.

> > This could be something we need to check up on...Anyone know any

> > vegetarians who have Myositis? Just a thought?

> > I will look forward to your feedback on this!

> > Cheri

> >

> >

> >

[Guest guest]

Hi Cari.... While I was on the higher dose of Prednisone I also had a

craving for pancakes. I really had to try hard to NOT make them. Now

that I'm on the really low dose, I haven't had any pancakes. I didn't

have any cravings for chocolate milk. I never gave it any thought

until you mentioned it. My next big craving was for cheese. I can

understand the cheese because it's protein. But, whats in pancakes?

Hmmmm..... Now that is strange.

Vicki

[Guest guest]

ate a cheese sandwich everyday the first year he was dx. Cheese on

bread. No mayo, meat or anything. Just cheese on bread. Still has it a

couple times a week. That is so odd. Also, carrots. I was afraid he was

going to turn orange he ate so many baby carrots dipped in ranch dressing.

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Re: Interesting Information

>Date: Fri, 29 Jun 2001 18:26:33 -0700 (PDT)

>

>

>

>Hi Cari.... While I was on the higher dose of Prednisone I also had a

>craving for pancakes. I really had to try hard to NOT make them. Now

>that I'm on the really low dose, I haven't had any pancakes. I didn't

>have any cravings for chocolate milk. I never gave it any thought

>until you mentioned it. My next big craving was for cheese. I can

>understand the cheese because it's protein. But, whats in pancakes?

>Hmmmm..... Now that is strange.

>

>Vicki

>

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[Guest guest]

Oh my gosh, is my kind of guy. I also eat carrots with ranch

dressing. I can't say I had a craving for them ... they just taste

good. My doctor at the time told me that my body was requiring more

protein because I was using it up as fast as it was going in. I would

think it would be for repair work. Don't you?

Vicki

[Guest guest]

Vicki,

That makes sense. I once read an article on people who live to be over 100

years of age. One of the things they had in common was that carrots was

their favorite vegatable. still eats them but not daily and not by

the bag.

Hugs,

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Re: Interesting Information

>Date: Fri, 29 Jun 2001 19:22:37 -0700 (PDT)

>

>

>

>Oh my gosh, is my kind of guy. I also eat carrots with ranch

>dressing. I can't say I had a craving for them ... they just taste

>good. My doctor at the time told me that my body was requiring more

>protein because I was using it up as fast as it was going in. I would

>think it would be for repair work. Don't you?

>

>Vicki

>

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[Guest guest]

I agree with Vicki that he was craving protein his body needed to repair his

damaged muscles. His cheese cravings have definitely decreased since he has

been doing so well.

Cari

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Interesting Information

>Date: Sat, 30 Jun 2001 03:56:05 -0000

>

>Cari,

> My next thing is....cheese comes from milk...which comes from cows..

>for some reason I think im on to something here..anyone agree?

>Sometimes I think that I am too deep of a thinker...but there could

>be something to it!

>Cheri

>

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[Guest guest]

Hi Cari.... I still love carrots but like I've cut back on them.

If I'm not mistaken, don't carrots turn to sugar? I think I heard that

somewhere. Maybe that's why we ate them so much...for that extra surge

of energy.

Hope you're having a good weekend...

Take care,

Vicki

[Guest guest]

Yes! You are right again! Carrots are high in natural sugar. I guess your

bodies needed it for something.

Hugs,

Cari

>From: anzavic@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Re: Interesting Information

>Date: Sun, 1 Jul 2001 10:08:58 -0700 (PDT)

>

>

>Hi Cari.... I still love carrots but like I've cut back on them.

>If I'm not mistaken, don't carrots turn to sugar? I think I heard that

>somewhere. Maybe that's why we ate them so much...for that extra surge

>of energy.

>

>Hope you're having a good weekend...

>Take care,

>Vicki

>

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