Re: Sydney's first day in band!

[Guest guest]

Howdy ,

Good for your little one adjusting so well so quickly. My Jaden did

also, and I let him wear it more during the break~in period since he

also did just fine.

As for the band slipping over the eyes, the same thing is happening

w/ Jaden's cap and I am very upset about this. He gets puffy eyes

from the friction of it being loose, despite the fact I lube it up

underneath his band. However, I am told he is still young enough to

grow more into it, which is probably true. He is 6 months and your

Sydney is 9 months, and I'm betting they will both go thru growth

spurts to kinda " fill in " the gaps and maybe this whole eye issue

won't be something we will be dealing w/ anymore in a month or so.

I'd definately address it w/ your OT, which I am going to do

myself.

As for the sweating, I just wrote in a post to someone else about

using a fan in the room, circulating the air and providing a " white

noise " background for sleeping. You can always do a onesie and then

have her wear a lightweight cotton sleep sack on top of that.

BabyCenter.com and JCPenney both have the SleepSacks, but get the

cotton one, not the fleece. Babies always need one more layer than

what we are wearing, so keep that in mind. And with the fan, if you

go that route, it'll provide a nice circulation and she'll want that

extra layer, despite the sweating, IMHO.

~Amy, mommy to Jaden MN, plagio/tort, started CranioCap 4/23/04

> Hello all - Sydney received her PPO band yesterday and all went

> well - we were given a 4 day schedule by which we should increase

> her wearing of the band until she is in it full-time by Fri. Our

> first overnight attempt will be Thur. night. She is doing

wonderful

> so far - wearing it much more than expected. We figure we'll let

> her as long as she tolerates it. I do have a couple of questions

> perhaps someone could help with:

> 1. The band is somewhat loose (will slip over eyes slightly when

she

> lays on her back)I am concerned because she is 9 months old and we

> are losing time - they said the loosness was to acommodate growth,

> but I am concerned that there is insufficient pressure on her

> temples which are already bulging (she is a brachycephalic babe.

Is

> this normal?

> 2. This question may be really stupid - we live in St. Louis and

it

> has been quite warm and humid lately - she is sweating profulsely

in

> the band even with the air conditioner set quite low. I am

> concerned about sleeping - what do you suggest we dress her in?

She

> usually wears a lightweight sleeper (long sleeved and enclosed

feet)

> with no blanket. I am afraid this may be too warm, but think that

a

> onesie or something else may be too cool. Any suggestions?

> Thats all for now - I'll probably have more after Thur night.

> Layton - St. Louis, MO

> Sydney - PPO band 5-10-04 (9 months old)

[Guest guest]

Hello

Wonderful to hear Sydney is tolerating the band more than she is

scheduled for. I think it's a good idea to just leave her if she is

ok with it. We were told just to strip a layer of clothing. Maybe

for the first few nights you could put her in a onsie and some long

light pants. Then for the first few nights just peak in and feel

her face / hands / feet if open. That is how we did it. I just

went for the feel. If Willow felt cold I dressed her and vise

versa. Also the band slipping the first 1 or 2wks is totally normal

(we were told as well) and after about a wk or so Willow had taken

up the space. She was younger than Sydney so it might take a few

more days for her. Good luck and keep us posted.

Sandy Willow's Mom Cranio Germany Grad 02/04

> Hello all - Sydney received her PPO band yesterday and all went

> well - we were given a 4 day schedule by which we should increase

> her wearing of the band until she is in it full-time by Fri. Our

> first overnight attempt will be Thur. night. She is doing

wonderful

> so far - wearing it much more than expected. We figure we'll let

> her as long as she tolerates it. I do have a couple of questions

> perhaps someone could help with:

> 1. The band is somewhat loose (will slip over eyes slightly when

she

> lays on her back)I am concerned because she is 9 months old and we

> are losing time - they said the loosness was to acommodate growth,

> but I am concerned that there is insufficient pressure on her

> temples which are already bulging (she is a brachycephalic babe.

Is

> this normal?

> 2. This question may be really stupid - we live in St. Louis and

it

> has been quite warm and humid lately - she is sweating profulsely

in

> the band even with the air conditioner set quite low. I am

> concerned about sleeping - what do you suggest we dress her in?

She

> usually wears a lightweight sleeper (long sleeved and enclosed

feet)

> with no blanket. I am afraid this may be too warm, but think that

a

> onesie or something else may be too cool. Any suggestions?

> Thats all for now - I'll probably have more after Thur night.

> Layton - St. Louis, MO

> Sydney - PPO band 5-10-04 (9 months old)

[Guest guest]

Hello ,

I was so glad to see this post because my son is 8 months and brachy,

he's getting casted today. I think it would be interesting to compare

notes, most babies here are plagio and I haven't seen a lot of

brachy. We're getting him the DOC band. I look forward to keeping up

with your daughter's progress as we go through treatment as well.

Good luck! :-)

Mia Seifert - Glendale, AZ

- DOC Band (soon)

> > Hello all - Sydney received her PPO band yesterday and all went

> > well - we were given a 4 day schedule by which we should increase

> > her wearing of the band until she is in it full-time by Fri. Our

> > first overnight attempt will be Thur. night. She is doing

> wonderful

> > so far - wearing it much more than expected. We figure we'll let

> > her as long as she tolerates it. I do have a couple of questions

> > perhaps someone could help with:

> > 1. The band is somewhat loose (will slip over eyes slightly when

> she

> > lays on her back)I am concerned because she is 9 months old and

we

> > are losing time - they said the loosness was to acommodate

growth,

> > but I am concerned that there is insufficient pressure on her

> > temples which are already bulging (she is a brachycephalic babe.

> Is

> > this normal?

> > 2. This question may be really stupid - we live in St. Louis and

> it

> > has been quite warm and humid lately - she is sweating profulsely

> in

> > the band even with the air conditioner set quite low. I am

> > concerned about sleeping - what do you suggest we dress her in?

> She

> > usually wears a lightweight sleeper (long sleeved and enclosed

> feet)

> > with no blanket. I am afraid this may be too warm, but think

that

> a

> > onesie or something else may be too cool. Any suggestions?

> > Thats all for now - I'll probably have more after Thur night.

> > Layton - St. Louis, MO

> > Sydney - PPO band 5-10-04 (9 months old)

[Guest guest]

Connor's PPO helmet is somewhat loose too, but Connor doesn't have

brachy, so I'm not sure if they fit them any differently. As for the

sweating, I have been dressing Connor in cooler clothing at night,

such as a long sleeved onesie and socks, or even a short-sleeved

onesie. Sometimes his legs feel cool when I dress him like that, but

he doesn't seem to mind it. I tried putting a light blanket over his

legs but he usually kicks it off. Dressed like that, he doesn't sweat

much at night. Also, it takes a little while for them to adjust to the

helmet.

Connor (PPO helmet 5/4/04)

St. Louis, Mo.

> Hello all - Sydney received her PPO band yesterday and all went

> well - we were given a 4 day schedule by which we should increase

> her wearing of the band until she is in it full-time by Fri. Our

> first overnight attempt will be Thur. night. She is doing wonderful

> so far - wearing it much more than expected. We figure we'll let

> her as long as she tolerates it. I do have a couple of questions

> perhaps someone could help with:

> 1. The band is somewhat loose (will slip over eyes slightly when she

> lays on her back)I am concerned because she is 9 months old and we

> are losing time - they said the loosness was to acommodate growth,

> but I am concerned that there is insufficient pressure on her

> temples which are already bulging (she is a brachycephalic babe. Is

> this normal?

> 2. This question may be really stupid - we live in St. Louis and it

> has been quite warm and humid lately - she is sweating profulsely in

> the band even with the air conditioner set quite low. I am

> concerned about sleeping - what do you suggest we dress her in? She

> usually wears a lightweight sleeper (long sleeved and enclosed feet)

> with no blanket. I am afraid this may be too warm, but think that a

> onesie or something else may be too cool. Any suggestions?

> Thats all for now - I'll probably have more after Thur night.

> Layton - St. Louis, MO

> Sydney - PPO band 5-10-04 (9 months old)

[Guest guest]

Hi ,

Thats great she is tolerating it well. As far as the looseness

goes, the band is most loose at first. It should basically be

making contact on her bulging areas, which would be the pressure

points if this is an active band. Hannah had the plagio shape and

her band literally teetered between these points at first. It

shouldn't be so loose that it goes over her eyes though. Do you

have a picture you could post? With the sleeping, I used to dress

Hannah in just a onesie last summer. If she really is sweating alot

I'd definitely dress her in less than a sleeper. Let us know how it

goes!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Hello all - Sydney received her PPO band yesterday and all went

> well - we were given a 4 day schedule by which we should increase

> her wearing of the band until she is in it full-time by Fri. Our

> first overnight attempt will be Thur. night. She is doing

wonderful

> so far - wearing it much more than expected. We figure we'll let

> her as long as she tolerates it. I do have a couple of questions

> perhaps someone could help with:

> 1. The band is somewhat loose (will slip over eyes slightly when

she

> lays on her back)I am concerned because she is 9 months old and we

> are losing time - they said the loosness was to acommodate growth,

> but I am concerned that there is insufficient pressure on her

> temples which are already bulging (she is a brachycephalic babe.

Is

> this normal?

> 2. This question may be really stupid - we live in St. Louis and

it

> has been quite warm and humid lately - she is sweating profulsely

in

> the band even with the air conditioner set quite low. I am

> concerned about sleeping - what do you suggest we dress her in?

She

> usually wears a lightweight sleeper (long sleeved and enclosed

feet)

> with no blanket. I am afraid this may be too warm, but think that

a

> onesie or something else may be too cool. Any suggestions?

> Thats all for now - I'll probably have more after Thur night.

> Layton - St. Louis, MO

> Sydney - PPO band 5-10-04 (9 months old)