Re: Looking for a kind soul's opinion and or advice

[Guest guest]

Hello

Welcome to the group. I think that if you are happy with Lucy's

headshape, and you do not believe that she would benefit from a

helmet than there would be no reason to go forward with the

banding. Did the ortho take measurements?

Sandy WIllow's Mom

Germany

--- In Plagiocephaly , " waleyewil " <waleyewil@y...>

wrote:

> Our daughter Lucy is 13.5 months and her " developmental " doctor

told

> us that she thought we should try a helmet. This Doctor has never

> prescribed a helmet before and although I trust her on everything

> else I'm not sure about this. My daughter has little to probably

no

> facial assymetry. The only thing noticeable is that one ear

sticks

> out differently than the other. She has no delays and her

> tortocollis is working itself out through stretching.

> When the Doc prescribed this I was all for it (even though I

didn't

> know much about it--she's a doc and I trust her) but after seeing

the

> Orthotist, I'm not sure. He said he did not recommend the helmet

as

> she hardly has anything noticable, is over a year, and would

> probably improve some but would also improve on her own. I've seen

> two physical therapists who say the same thing. I know this is

all

> sketchy and you're probably very busy, but any advice???? Thanks

in

> advance, I just butted into this group and am thankful for

anything.

> God Bless You and your children. shawn

[Guest guest]

Hello ,

Welcome to the group! You are not butting in with your post

whatsoever, please post with any questions and concerns - we are

here to help! The decision to band or not to band can be a

difficult one, especially since there are no clear-cut guidelines or

asymmetry standards broadly accepted across various specialties in

the medical community in regards to plagio treatment; this decision

can be compounded if the case of plagio isn't severe.

The only feedback I have about your post is in regard to your

ortho's assessment that being over a year old is one of the factors

why he wouldn't recommend a helmet. I am wondering what type of

helmet or band that ortho uses, since older babies certainly have

success in active bands. There are actually over 20 unique FDA

approved helmets and bands, and many more that exist, but aren't FDA

approved. They don't all have the exact same design, treatment

protocol, or adjustment schedule. We have many group members with

marked success in a baby over 12 months old with active bands, which

can be used up to a max age of 24 nmonths old in the case of the

DOCband. Not all bands are recommended for starting use in a baby

Lucy's age, because she is considered too old for effective use in

those types of helmets.

We ended up not helmeting or banding our daughter, Remy. We made

our decision on how her head looked like at that time (we were happy

with it), as if it wouldn't improve in the future. Since you really

can't tell which babies would round out or which ones won't, it's

best to make the band/helmet decision on the current headshape your

baby has. It's best to ask yourself are you completely comfortable

with Lucy's headshape if you were to see NO further improvement?

Where are you located? We have such a large group, perhaps someone

would be able to share specialist or ortho info in your area to help

you with your decision.

Take care,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " waleyewil " <waleyewil@y...>

wrote:

> Our daughter Lucy is 13.5 months and her " developmental " doctor

told

> us that she thought we should try a helmet. This Doctor has never

> prescribed a helmet before and although I trust her on everything

> else I'm not sure about this. My daughter has little to probably

no

> facial assymetry. The only thing noticeable is that one ear

sticks

> out differently than the other. She has no delays and her

> tortocollis is working itself out through stretching.

> When the Doc prescribed this I was all for it (even though I

didn't

> know much about it--she's a doc and I trust her) but after seeing

the

> Orthotist, I'm not sure. He said he did not recommend the helmet

as

> she hardly has anything noticable, is over a year, and would

> probably improve some but would also improve on her own. I've seen

> two physical therapists who say the same thing. I know this is

all

> sketchy and you're probably very busy, but any advice???? Thanks

in

> advance, I just butted into this group and am thankful for

anything.

> God Bless You and your children. shawn

[Guest guest]

Thank you all so much for your generous time and help. We are seeing

different ortho. on Thursday and then we just got an appointment with

a neurosurgeon next Monday, who has worked more with the helmets and

can give a second opinion. I will post measurements and pictures

when I figure out how. I would like to know if I am just " not seeing

it " because I 'm her mom. I really can't thank you enough in advance

for your help.

> > Our daughter Lucy is 13.5 months and her " developmental " doctor

> told

> > us that she thought we should try a helmet. This Doctor has

never

> > prescribed a helmet before and although I trust her on everything

> > else I'm not sure about this. My daughter has little to probably

> no

> > facial assymetry. The only thing noticeable is that one ear

> sticks

> > out differently than the other. She has no delays and her

> > tortocollis is working itself out through stretching.

> > When the Doc prescribed this I was all for it (even though I

> didn't

> > know much about it--she's a doc and I trust her) but after seeing

> the

> > Orthotist, I'm not sure. He said he did not recommend the helmet

> as

> > she hardly has anything noticable, is over a year, and would

> > probably improve some but would also improve on her own. I've

seen

> > two physical therapists who say the same thing. I know this is

> all

> > sketchy and you're probably very busy, but any advice???? Thanks

> in

> > advance, I just butted into this group and am thankful for

> anything.

> > God Bless You and your children. shawn

[Guest guest]

Also we are located in central ohio

> > > Our daughter Lucy is 13.5 months and her " developmental " doctor

> > told

> > > us that she thought we should try a helmet. This Doctor has

> never

> > > prescribed a helmet before and although I trust her on

everything

> > > else I'm not sure about this. My daughter has little to

probably

> > no

> > > facial assymetry. The only thing noticeable is that one ear

> > sticks

> > > out differently than the other. She has no delays and her

> > > tortocollis is working itself out through stretching.

> > > When the Doc prescribed this I was all for it (even though I

> > didn't

> > > know much about it--she's a doc and I trust her) but after

seeing

> > the

> > > Orthotist, I'm not sure. He said he did not recommend the

helmet

> > as

> > > she hardly has anything noticable, is over a year, and would

> > > probably improve some but would also improve on her own. I've

> seen

> > > two physical therapists who say the same thing. I know this is

> > all

> > > sketchy and you're probably very busy, but any advice????

Thanks

> > in

> > > advance, I just butted into this group and am thankful for

> > anything.

> > > God Bless You and your children. shawn