Re: Stuffy Ear

[Guest guest]

I DON'T want to scare you but that's one of my first symptoms was a stuffed up ear and the doctors put me off for over a year then I started passing out,but I was 28 but listen to your self not the doctors trust me and if you are concerned follow up on it.Remember the earlier it is found the better.Carolyn J.

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

,

I also have a 3-year old daughter. We are taking her

for annual MRIs/checkups. I strongly suggest you

either insist to your doctor that he check her out

NOW, or go to another doctor! I have read of cases

involving kids as young as 4, 6, or 7 years old.

Altough MOST do not show symptoms until they get a

little older, THIS IS NOT ALWAYS THE CASE.

Bottom line: it's YOUR child. Insist on following up

your concerns.

And I do pray that your doctor is right, though. But

don't take the chance that he's not.

In the meantime, we all pray and hope the best for you

and your daughter.

--- Todd & mary Sotir wrote:

> Hello everyone, I have a question to ask. Can anyone

> tell me (and I know everyone is different) what was

> the youngest age of a child that got a AN. My

> daughter is three and she told me that she has a

> stuff ear for the last two days. Now the DR's tell

> me that I should not worry until she is about 12, is

> that so? I would just feel really really bad if I

> were to ignore this issue.

>

> Thanks

>

__________________________________________________

[Guest guest]

Mine started out with a " stuffy ear " , I frst thought it

was swimmers ear " WRONG ! " , it was acoustic neuromas, I wished

I didn't listen to my doctor and had it checked out then. Find a good ENT

and have her checked.

Mikey A Pittsburgh

At 07:09 AM 3/18/01 -0500, you wrote:

Hello everyone, I have

a question to ask. Can anyone tell me (and I know everyone is different)

what was the youngest age of a child that got a AN. My daughter is three

and she told me that she has a stuff ear for the last two days. Now the

DR's tell me that I should not worry until she is about 12, is that so? I

would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

Shane's also started with a "stuffy ear" they kept telling us it was sinus problems, it was only the eye Dr that thought something was wrong and sent him for MRI but this was way too late his AN's had grown to 4cms by then.

But then again I constantly have a stuffy ear and I'm not NF2 so it doesn't always go hand in hand but I would check it out anyway if I was you.

>From: ashley

>Reply-To: NF2_Crew >To: NF2_Crew >Subject: Re: "Stuffy Ear" >Date: Sun, 18 Mar 2001 14:05:51 -0500 > >Mine started out with a "stuffy ear", I frst thought it was >swimmers ear >"WRONG !", it was acoustic neuromas, I wished I didn't listen to my >doctor >and had it checked out then. Find a good ENT and have her checked. >Mikey A Pittsburgh > >At 07:09 AM 3/18/01 -0500, you wrote: >>Hello everyone, I have a question to ask. Can anyone tell me (and I >>know >>everyone is different) what was the youngest age of a child that >>got a AN. >>My daughter is three and she told me that she has a stuff ear for >>the last >>two days. Now the DR's tell me that I should not worry until she is >>about >>12, is that so? I would just feel really really bad if I were to >>ignore >>this issue. >> >>Thanks >> >>

[Guest guest]

Dear ,

DO NOT LISTEN TO YOUR DOCTOR!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Our son Garrett had an MRI when he was 8 1/2 years old. This MRI was done as a follow-up for a Schwanomma on his neck which was surgically removed three years before.

Unfortunately neither the Neurologist nor the Radiologist saw the bilateral ANs on that MRI.

It wasn't until Garrett was 11 years old that the ANs were discovered, on another MRI, after they had grown.

I would suggest having an MRI, this is the only true way to determine if there are any ANs.

Hopefully it will be negative. It would also provide you with a "baseline" to use as a comparison in the future.

Good luck,

Craig

"Stuffy Ear"

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

...Get her checked out anyway.....Even though I was older...they told

me I had a broken window...WRONG....better safe than sorry. My 4yo Granddaughter

told her mom her ear was stuffy and it was an ear infection..can go either

way.....

Hugs, Carol

At 07:09 AM 3/18/01 -0500, you wrote:

Hello everyone, I have

a question to ask. Can anyone tell me (and I know everyone is different)

what was the youngest age of a child that got a AN. My daughter is three

and she told me that she has a stuff ear for the last two days. Now the

DR's tell me that I should not worry until she is about 12, is that so?

I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

Unusual at that age but not impossible.

"Stuffy Ear"

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

Should also have at least one full spinal MRI. If negaive does not have to be redone for many years.

Re: " Stuffy Ear "

Ditto ,

Even if you have to go elsewhere to get a referral - when she does have an MRI ask for a full head and spinal - it can be used as a benchmark for later.. and it will also put your mind at rest.......

.

RE: " Stuffy Ear "

I DON'T want to scare you but that's one of my first symptoms was a stuffed up ear and the doctors put me off for over a year then I started passing out,but I was 28 but listen to your self not the doctors trust me and if you are concerned follow up on it.Remember the earlier it is found the better.Carolyn J.

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

In relation to the MRI's. For a child with Ear problems, it is very unlikely a doctor would recommend a spinal MRI.

Head may be warranted. As you know, it's a very traumatic experience and feel sure that symptoms would need to be present to warrant this.

My son, Brendon (29) who has NF2 and almost certainly spinal tumours, but with no symptoms yet. He will have a full Head/Spine with his next annual checkup. Brendon has a daughter, Nikita, 8. She will not even have her blood tested until she shows symptoms of NF2. That may not be everyones view, but that's how we are going to handle it.

Maybe I should clarify and say that as of now, that is how we are going to handle it. We may change our minds in the future.

ine

RE: "Stuffy Ear"

I DON'T want to scare you but that's one of my first symptoms was a stuffed up ear and the doctors put me off for over a year then I started passing out,but I was 28 but listen to your self not the doctors trust me and if you are concerned follow up on it.Remember the earlier it is found the better.Carolyn J.

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks

[Guest guest]

In a message dated 3/19/01 8:55:44 PM Eastern Standard Time,

bacross@... writes:

<< think most of us would agree that there are no hard and fast rules when

it come to NF2 - things can change very quickly..

.....the OZ that stayed at home Booo00000 Hooooo00000.

>>

You got that right!

Anne -- who's child is a grown man, my husband whom I ADORE.

Faith, Hope, & Love,

Anne

[Guest guest]

ine, - at that young age they give the child a very light anaesthetic - as they are little wrigglers and it is traumatic for them if they weren't.

The point I was making is that it is better for the parent to know the Childs stats re NF2 - than not knowing, because it is the parent who is responsible for the Childs medical well being (operations - blaa blaa blaa) until that child becomes an adult.

Rosemary, - yes a tumour CAN impact hearing in 7 months - please don't think that a tumour has to be large to impact on a persons hearing there have been some where hearing has been lost with relatively small tumours. Having said that - I would prefer to see audio tests done first before rushing off to have MRIs when there is any fluctuation of hearing.

If it were my child I would have Audio and Ophthalmology and neuro-motor function tests once a year - as soon as there was hearing -speech - or any other NF2 problem I would have a - "BASE-LINE" - MRI done, to see if there are any tumours and for my peace of mind. If there are tumours, then there should be plenty of time (2 months) to make a decision on what course of action is required.

I think most of us would agree that there are no hard and fast rules when it come to NF2 - things can change very quickly..

.....the OZ that stayed at home Booo00000 Hooooo00000.

RE: "Stuffy Ear"

I DON'T want to scare you but that's one of my first symptoms was a stuffed up ear and the doctors put me off for over a year then I started passing out,but I was 28 but listen to your self not the doctors trust me and if you are concerned follow up on it.Remember the earlier it is found the better.Carolyn J.

Hello everyone, I have a question to ask. Can anyone tell me (and I know everyone is different) what was the youngest age of a child that got a AN. My daughter is three and she told me that she has a stuff ear for the last two days. Now the DR's tell me that I should not worry until she is about 12, is that so? I would just feel really really bad if I were to ignore this issue.

Thanks