NFAA Meeting (Sydney - Australia only)

[Guest guest]

The land of Oz is a wee-bit far from the land of the Sunshine State. Please,

somebody takes notes and bring 'um back.

Faith, Hope, & Love,

Anne

[Guest guest]

For any Aussies (living in/near Sydney) Crew Members, who may not have been advised,

I received a letter on Friday from Gissing - Member Support - Neuro-fibroma-tosis Association of Australia advising that at the next meeting of the Acoustic Neuroma Association, a Dr Chang of St s Hospital would be talking. He has just returned from training at the House Ear Institute in America and talking about new options for treatment of AN's to preserve hearing and some of the controversy around surgery vs radiation therapy. That should be interesting. He also has info on the latest developments in NF2, which he may not address until the next meeting. It's on Sat 24 March - speaker starting at 1.30.

Apparently there are a number of NF2 members attending. Should be interesting.

The information has probably all been discussed by the Crew, but as it's not far for me to go, I will be attending.

Just a thought, Rosemary have you joined the Association. It's worth joining, their phone number is:

(02) 9874 0844. Just in case you haven't.

Regards,

ine

[Guest guest]

Thanks ine, no I haven't joined, and I will try to attend, it is a 2

hour drive for me and I will have to organise all the kids sporting

commitments. Be great to meet you, and boy do I have some questions..

Great timing with some other stuff I have been trying to get Westmead to

follow up.

Is this the Dr Chang that Marie was talking about?

Rosemary.

on 18/3/01 9:37 AM, ine Stanton at pstanton@... wrote:

> For any Aussies (living in/near Sydney) Crew Members, who may not have been

> advised,

>

> I received a letter on Friday from Gissing - Member Support -

> Neuro-fibroma-tosis Association of Australia advising that at the next meeting

> of the Acoustic Neuroma Association, a Dr Chang of St s

> Hospital would be talking. He has just returned from training at the House

> Ear Institute in America and talking about new options for treatment of AN's

> to preserve hearing and some of the controversy around surgery vs radiation

> therapy. That should be interesting. He also has info on the latest

> developments in NF2, which he may not address until the next meeting. It's on

> Sat 24 March - speaker starting at 1.30.

> Apparently there are a number of NF2 members attending. Should be

> interesting.

> The information has probably all been discussed by the Crew, but as it's not

> far for me to go, I will be attending.

>

> Just a thought, Rosemary have you joined the Association. It's worth

> joining, their phone number is:

> (02) 9874 0844. Just in case you haven't.

> Regards,

> ine

>

>

>

[Guest guest]

OK ine I need a FULL report - ha ha ha

Wish I could go - make yourself known as a NF2er and see if we can get a few new names.....

NFAA Meeting (Sydney - Australia only)

For any Aussies (living in/near Sydney) Crew Members, who may not have been advised,

I received a letter on Friday from Gissing - Member Support - Neuro-fibroma-tosis Association of Australia advising that at the next meeting of the Acoustic Neuroma Association, a Dr Chang of St s Hospital would be talking. He has just returned from training at the House Ear Institute in America and talking about new options for treatment of AN's to preserve hearing and some of the controversy around surgery vs radiation therapy. That should be interesting. He also has info on the latest developments in NF2, which he may not address until the next meeting. It's on Sat 24 March - speaker starting at 1.30.

Apparently there are a number of NF2 members attending. Should be interesting.

The information has probably all been discussed by the Crew, but as it's not far for me to go, I will be attending.

Just a thought, Rosemary have you joined the Association. It's worth joining, their phone number is:

(02) 9874 0844. Just in case you haven't.

Regards,

ine

[Guest guest]

Listen here Anne,

I live in the Sunshine State - it's called QUEENSLAND in OZ and you can fit

TEXAS in it about 6 times emmmm maybe more.... our slogan is (beautiful one

day perfect the next) - only trouble is the weather won't comply with the

slogan...

......

Re: NFAA Meeting (Sydney - Australia only)

> The land of Oz is a wee-bit far from the land of the Sunshine State.

Please,

> somebody takes notes and bring 'um back.

>

> Faith, Hope, & Love,

> Anne

>

>

>

>

[Guest guest]

I'm not sure Rosemary. The reply for the Acoustic Neuroma Association is:

Barbara Wostik (02) 9708 2695

and the meetings being held at Strathfield Community Centre, 1B Bates St.,

Strathfield. Attendance from 12.30pm, Speaker at 1.30pm.

ine

Re: NFAA Meeting (Sydney - Australia only)

> Thanks ine, no I haven't joined, and I will try to attend, it is a 2

> hour drive for me and I will have to organise all the kids sporting

> commitments. Be great to meet you, and boy do I have some questions..

> Great timing with some other stuff I have been trying to get Westmead to

> follow up.

> Is this the Dr Chang that Marie was talking about?

> Rosemary.

>

>

> on 18/3/01 9:37 AM, ine Stanton at pstanton@... wrote:

>

> > For any Aussies (living in/near Sydney) Crew Members, who may not have

been

> > advised,

> >

> > I received a letter on Friday from Gissing - Member Support -

> > Neuro-fibroma-tosis Association of Australia advising that at the next

meeting

> > of the Acoustic Neuroma Association, a Dr Chang of St s

> > Hospital would be talking. He has just returned from training at the

House

> > Ear Institute in America and talking about new options for treatment of

AN's

> > to preserve hearing and some of the controversy around surgery vs

radiation

> > therapy. That should be interesting. He also has info on the latest

> > developments in NF2, which he may not address until the next meeting.

It's on

> > Sat 24 March - speaker starting at 1.30.

> > Apparently there are a number of NF2 members attending. Should be

> > interesting.

> > The information has probably all been discussed by the Crew, but as it's

not

> > far for me to go, I will be attending.

> >

> > Just a thought, Rosemary have you joined the Association. It's worth

> > joining, their phone number is:

> > (02) 9874 0844. Just in case you haven't.

> > Regards,

> > ine

> >

> >

> >

>

>

>

>

>

[Guest guest]

Will do Anne,

ine

Re: NFAA Meeting (Sydney - Australia only)

> The land of Oz is a wee-bit far from the land of the Sunshine State.

Please,

> somebody takes notes and bring 'um back.

>

> Faith, Hope, & Love,

> Anne

>

>

>

>

[Guest guest]

Looks just like Tampa, FL, USA

Faith, Hope, & Love,

Anne

[Guest guest]

I know this man!! As a matter of fact, his signature is on my stomach!!

(the fat replacement) He is a very nice guy, should be a good contact.

Marie Drew

ine Stanton wrote:

For

any Aussies (living in/near Sydney) Crew Members, who may not have been

advised, I

received a letter on Friday from Gissing - Member Support - Neuro-fibroma-tosis

Association of Australia advising that at the next meeting of the Acoustic

Neuroma Association, a Dr Chang of St s Hospital would be

talking. He has just returned from training at the House Ear Institute

in America and talking about new options for treatment of AN's to preserve

hearing and some of the controversy around surgery vs radiation therapy.

That should be interesting. He also has info on the latest developments

in NF2, which he may not address until the next meeting. It's on

Sat 24 March - speaker starting at 1.30.Apparently

there are a number of NF2 members attending. Should be interesting.The

information has probably all been discussed by the Crew, but as it's not

far for me to go, I will be attending. Just

a thought, Rosemary have you joined the Association. It's worth

joining, their phone number is:(02)

9874 0844. Just in case you haven't.Regards,ine

[Guest guest]

Yes, this is him. Marie

Rosemary Lee wrote:

> Thanks ine, no I haven't joined, and I will try to attend, it is a 2

> hour drive for me and I will have to organise all the kids sporting

> commitments. Be great to meet you, and boy do I have some questions..

> Great timing with some other stuff I have been trying to get Westmead to

> follow up.

> Is this the Dr Chang that Marie was talking about?

> Rosemary.

>

> on 18/3/01 9:37 AM, ine Stanton at pstanton@... wrote:

>

> > For any Aussies (living in/near Sydney) Crew Members, who may not have been

> > advised,

> >

> > I received a letter on Friday from Gissing - Member Support -

> > Neuro-fibroma-tosis Association of Australia advising that at the next

meeting

> > of the Acoustic Neuroma Association, a Dr Chang of St s

> > Hospital would be talking. He has just returned from training at the House

> > Ear Institute in America and talking about new options for treatment of AN's

> > to preserve hearing and some of the controversy around surgery vs radiation

> > therapy. That should be interesting. He also has info on the latest

> > developments in NF2, which he may not address until the next meeting. It's

on

> > Sat 24 March - speaker starting at 1.30.

> > Apparently there are a number of NF2 members attending. Should be

> > interesting.

> > The information has probably all been discussed by the Crew, but as it's not

> > far for me to go, I will be attending.

> >

> > Just a thought, Rosemary have you joined the Association. It's worth

> > joining, their phone number is:

> > (02) 9874 0844. Just in case you haven't.

> > Regards,

> > ine

> >

> >

> >

>

>

>

>

[Guest guest]

I've gotten this exact message 5 times, what's up?

Faith, Hope, & Love,

Anne