Re: Doing Something About It

[Guest guest]

Hello Cristi

I think it is great that you are doing this. I'm doing it in a

small way. Our playgroup is where I started and for some of the

Moms I'm just an obsessed Mom that doesn't know what else to do with

her time than to obsess. I hope you will have more luck. I do

think it's awsome that you will let the new Moms know this before

they ever go home. (sounds like a good idea for here and food for

thought) Thanks for sharing and for being so involved.

Sandy Willow's Mom Cranio Germany Grad 02/04

--- In Plagiocephaly , " Cristi " <naive_angel@h...>

wrote:

> I was really really angry that I wasn't even told about

plagiocephaly

> until it was too late, and that doctors kind of shrugged it off

right

> until the very end when I demanded a referral to a neurologist and

a

> new doctor. The nurses at the hospital never said anything about

it,

> and each well baby exam I brought up his mis-shapen head and they

> said just to reposition and it'd round out on it's own. I signed

the

> plagio petition last week, and read the comments, and it's like a

> broken record. Thousands of kids had to go through this because

> doctors and nurses didn't make the mothers informed. So I'm

trying

> to change that, at least in my area.

>

> Any one want to join up?

>

> I've been in contact with the Calgary Health Region in Canada (my

> city) and I'm working on getting plagiocephaly pamphlets handed

out

> right in the hospital before you leave with your baby. That part

> will be easy After that I'm writing a letter to each well-baby

> clinic and each doctor in my city along with some articles and

asking

> them to take plagio seriously and do a head check with each well-

baby

> exam.

>

> I think it's horrible that it's such a common thing now,

especially

> with the back-to-sleep campaign (which is beneficial, I admit) but

> you think the side effects of doing so would be discussed at all.

[Guest guest]

This is a GREAT GREAT idea!!! I wish I were in the same area as you

because I would be all for that. Where are you getting the pamphlets

from? I would love to be able to do that where I am located. Did you

contact someone for them? Please let me know!!

I think doing something for other new parents is kind of like your

own type of therapy and then you're helping out these parents that

would otherwise have NO CLUE what the word " plagio " is.

FANTASTIC job!!!

Kim

mom to Kaela and Jaxson

--- In Plagiocephaly , " Cristi " <naive_angel@h...>

wrote:

> I was really really angry that I wasn't even told about

plagiocephaly

> until it was too late, and that doctors kind of shrugged it off

right

> until the very end when I demanded a referral to a neurologist and

a

> new doctor. The nurses at the hospital never said anything about

it,

> and each well baby exam I brought up his mis-shapen head and they

> said just to reposition and it'd round out on it's own. I signed

the

> plagio petition last week, and read the comments, and it's like a

> broken record. Thousands of kids had to go through this because

> doctors and nurses didn't make the mothers informed. So I'm trying

> to change that, at least in my area.

>

> Any one want to join up?

>

> I've been in contact with the Calgary Health Region in Canada (my

> city) and I'm working on getting plagiocephaly pamphlets handed out

> right in the hospital before you leave with your baby. That part

> will be easy After that I'm writing a letter to each well-baby

> clinic and each doctor in my city along with some articles and

asking

> them to take plagio seriously and do a head check with each well-

baby

> exam.

>

> I think it's horrible that it's such a common thing now, especially

> with the back-to-sleep campaign (which is beneficial, I admit) but

> you think the side effects of doing so would be discussed at all.

[Guest guest]

COUNT ME IN! I live near Kim and her and we have been discussing

starting a support group in our area, but I almost like your idea

better, and that is to NIP IT IN THE BUD before it even starts!

Excellent idea! Please email me at johnson.amy@... and I

would LOVE to hear more because if we can get a group effort to

start doing this, the better!

BTW, when I found this group I shared the EXACT frustrations you

just wrote about!

~Amy, mommy to Jaden MN, plagio/mild tort, started CranioCap 4/23/04

> > I was really really angry that I wasn't even told about

> plagiocephaly

> > until it was too late, and that doctors kind of shrugged it off

> right

> > until the very end when I demanded a referral to a neurologist

and

> a

> > new doctor. The nurses at the hospital never said anything

about

> it,

> > and each well baby exam I brought up his mis-shapen head and

they

> > said just to reposition and it'd round out on it's own. I

signed

> the

> > plagio petition last week, and read the comments, and it's like

a

> > broken record. Thousands of kids had to go through this because

> > doctors and nurses didn't make the mothers informed. So I'm

trying

> > to change that, at least in my area.

> >

> > Any one want to join up?

> >

> > I've been in contact with the Calgary Health Region in Canada

(my

> > city) and I'm working on getting plagiocephaly pamphlets handed

out

> > right in the hospital before you leave with your baby. That

part

> > will be easy After that I'm writing a letter to each well-

baby

> > clinic and each doctor in my city along with some articles and

> asking

> > them to take plagio seriously and do a head check with each well-

> baby

> > exam.

> >

> > I think it's horrible that it's such a common thing now,

especially

> > with the back-to-sleep campaign (which is beneficial, I admit)

but

> > you think the side effects of doing so would be discussed at all.

[Guest guest]

Wow, thats great that you're being so proactive! My story is

identical to yours as far as not being educated at all (even though

my daughter's plagio was VERY evident at birth!). Good luck!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " Cristi " <naive_angel@h...>

wrote:

> I was really really angry that I wasn't even told about

plagiocephaly

> until it was too late, and that doctors kind of shrugged it off

right

> until the very end when I demanded a referral to a neurologist and

a

> new doctor. The nurses at the hospital never said anything about

it,

> and each well baby exam I brought up his mis-shapen head and they

> said just to reposition and it'd round out on it's own. I signed

the

> plagio petition last week, and read the comments, and it's like a

> broken record. Thousands of kids had to go through this because

> doctors and nurses didn't make the mothers informed. So I'm

trying

> to change that, at least in my area.

>

> Any one want to join up?

>

> I've been in contact with the Calgary Health Region in Canada (my

> city) and I'm working on getting plagiocephaly pamphlets handed

out

> right in the hospital before you leave with your baby. That part

> will be easy After that I'm writing a letter to each well-baby

> clinic and each doctor in my city along with some articles and

asking

> them to take plagio seriously and do a head check with each well-

baby

> exam.

>

> I think it's horrible that it's such a common thing now,

especially

> with the back-to-sleep campaign (which is beneficial, I admit) but

> you think the side effects of doing so would be discussed at all.