Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi Jodi and everyone, Because BTVC brought such fast and tremendous benefits to my Celiac/ASD son, I assumed dairy (and all other legal food he was eating) was not problematic. Know what I mean? All of his acute issues were quickly resolved so I felt delighted by the degree of change and basically viewed any residual stuff as inconsequential compared to what we had been going through pre-BTVC. I figured any 'tenacious' issues were just part of being human, or not resolvable, or would heal in time, or would be resolved upon more research. ie. Like with most diets or medications, when we see a dramatic result, we tend to assume this is "as good as it gets". That's where I was at.So yes, six months in I chose to remove dairy, when we needed to restart anyway, primarily because GAPS recommends this tweak for ASD, depression, OCD, etc. Upon making the change (actually a multi-faceted approach), I've been blown away by the further successes in both his physical and cognitive being and delighted by the changes in mine.Cheers,Baden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Hi Baden, What do you mean by multi-faceted approach? Can you describe it to me? What is your son's symptoms/diagnosis again? What are your symptoms/diagnosis? Thanks, Jodi SCD 9 months Crohn's/Colitis > Upon > making the change (actually a multi-faceted approach), I've been blown away by the further successes in both his physical and cognitive being and delighted by the changes in mine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hi Jodi,Son's original symptoms: waking completely every 2-4 hours from birth to SCD; could not eat any food (just breastmilk) until after his second birthday; zero language for first 2-3 years; stunted growth (started out above the top percentile and dropped to 5th in under two years); behavioural things like bashing head on floor when people would sing together, or screaming while snaking backward across the floor in strange fits; OCD; teeth disintegrating (lack of tooth enamel); paleness; iron-deficiency anemia; and finally chronic diarrhea. I'm probably forgetting stuff, too. So, a lot of that is Celiac (dx'd) but some is more specific to ASD (not dx'd but assumed by his early workers).My original symptoms: severe anxiety and depression from early childhood, then the additions of OCD, etc. Fatigue. Severe muscle weakness. For three years, complete physical debilitation. Funny little seizures (complete loss of vision, blacking out, etc). Hallucinations (auditory, visual, tactile). Enormous sense of stress (even before my child was bashing his head, etc). Etc. In the first run of SCD, I basically did (for my son only) everything as outlined in BTVC --we did the intro, including dairy, for a couple of days then just went ahead with everything else. My son had excellent results: normal poop, then normal sleep, on the first day. Cheeks went rosy. Day 3 spoke his first sentence. Whacky behaviour all but disappeared. Teeth healed. Etc.Four months in, after my poor organization on a trip led me to give him advanced foods and illegals, we had to start over. I figured I might as well do it thoroughly, carefully, methodically to gain maximum awareness and results. About that time, I happened to read GAPS.Its multi-faceted approach --again, specifically for people with mental/cognitive issues-- involved:removal of dairyas there is no yogurt for most people, addition of capsule probioticprogressive intro starting from meat/bone broths with well-cooked veggies and boiled meats and working our way up in a specified approachanimal fats stomach acid and digestive enhancers such as ginger tea, juice of homemade sauerkraut, etcthen, one at a time: egg, then current items stewed, then ghee, then avocado, then nut butter, etc (always with the meat/bone broths to help digestion)I enjoyed this approach becauseit was deliciousit was satiatingI felt unbelievably nourishedit didn't feed the yeast overgrowth (which I believe is a big issue for my son and I)it was simpleit was effectiveIt was pretty bizarre to experience an abundance of digestive juices! My son got all happy and calm again. My most severe OCD symptoms simply disappeared at some point and I have felt clearer all round. No depression, no anxiety. Quite the opposite: happy, calm, positive, relaxed. I've even been able to add a 3/4-time course to my load this month!We have recently had our first setback. I believe (but am not yet sure) that it is because, while visiting my vegan brother for 36 hours, my son had several (legal, stage-appropriate) meals with no animal broths involved. My brother is so beautiful in making my son SCD foods, but the vegan versions seem to hurt my son. As GAPS asserts, my son does indeed seem to require ghee or animal broths with virtually every meal. Yesterday, upon our return home, I went nuts on the broths all day and the evening's poop was much improved.That's actually a good example of what I meant by 'multi-faceted'. ie. It's not just removal of the untolerated and enjoying the rest, but rather eating tolerated legals while ensuring sufficient amounts of the helping foods --the anti-inflammatory properties of a properly prepared broth; the digestive aids of sauerkraut juice, ginger tea, black pepper, etc.Cheers,Baden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2008 Report Share Posted July 8, 2008 Hi Baden, I am so happy this approach is helping you and your son. That is truly wonderful! I purchased a couple of books on Amazon including this one and I am waiting to get it. I am thinking of incorporating -some- of these ideas into my regimine. I have to be careful though since fats can make my RUQ extremely uncomfortable. I do feel malnourished lately and for the 4-5 days I have had nothing but watery D (not too much pain, just bouts of pain but a tremendous amount of gas. I am going to the loo over 10+ a day. I felt this coming on a week ago) I am unsure as to what I am doing wrong??? I associate this to abnormally long PMS and allergies acting up. A couple of questions; How do you make the bone broth? Does it come out very fatty? Also, do you make your own ghee? the few times I have tried I messed the batch up and all of this wonderful butter went down the drain. My brother showed me how to make it and I also saw a demo online but there is something I am missing. The probiotic that is used is that sourced from a non-dairy source kind of like what GI Prohealth has- made from chicory root? This sounds so interesting and I would love to feel more satiated. Thanks, Jodi SCD 9 months Crohn's/Colitis > That's actually a good example of what I meant by 'multi-faceted'. ie. It's not just removal of the untolerated and enjoying the rest, but rather eating tolerated legals while ensuring sufficient amounts of the helping foods --the anti-inflammatory properties of a properly prepared broth; the digestive aids of sauerkraut juice, ginger tea, black pepper, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Jodi,Sorry to hear you're having a lot of symptoms right now :(Re: bone broth. It has a bit of natural oil in it, but not much, ie. far less than a broth made with a whole chicken, for example. To make it, I first save (freeze) the bones from several chickens. When I have a bunch, I put them in a pot of water, add a splash of apple cider vinegar and simmer for 8-48 hours. For detailed info and instructions, I like this link: http://www.townsendletter.com/FebMarch2005/broth0205.htm (scroll down quite a ways to the simple instructions).Re: ghee. Yes, I make my own. I put one pound of butter into a loaf pan and heat at 250 degrees F for 60 minutes. Then I gently ladle out the white stuff that has floated to the top, ladle the golden stuff into a jar, dump the white stuff at the bottom.Re: probiotic. GAPS protocol is that a person can use any brand she prefers (without FOS or other illegal fillers/binders). -McBride simply suggests we use a high quality one containing a variety of strains (differs here from Gottschall) and in high concentrations.Does any of that help?Hope you're feeling better soon, Jodi!!Baden Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Baden reply below! http://www.townsendletter.com/FebMarch2005/broth0205.htm > (scroll down quite a ways to the simple instructions). > Thanks, this is very useful! > Re: ghee. Yes, I make my own. I put one pound of butter into a loaf pan and heat at 250 degrees F for 60 minutes. Then I gently ladle out the white stuff that has floated to the top, ladle the golden stuff into a jar, dump the white stuff at the bottom. Have you ever tried making it on the stove-top? My oven doesn't work properly and all I have is a small toaster oven. > Does any of that help? Yes, thanks! Jodi SCD 9 months Crohn's/Colitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Hi Jodi,I haven't tried making ghee on the stovetop, but that's how Lass and Bager do it. (Interestingly, -McBride recommends it to eliminate casein; Lass and Bager recommend it for those extremely sensitive to lactose.)From Everyday Grain-Free Gourmet p. 32:Clarified Butter (aka ghee)Heat 1/2 lb butter in a small pot until it melts and light-coloured milk solids float to top.Scoop out solids with a spoon.Pour the rest of the butter through a sieve into a heat-resistant jar.Store in fridge.BadenHave you ever tried making it on the stove-top? My oven doesn't work properly and all I have is a small toaster oven._ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Baden, YAY! *clapping hands* It worked! Thanks! Jodi SCD 9 months Crohn's/Colitis > Clarified Butter (aka ghee) > Heat 1/2 lb butter in a small pot until it melts and light-coloured milk solids float to top. > Scoop out solids with a spoon. > Pour the rest of the butter through a sieve into a heat-resistant jar. > Store in fridge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Is storebought ghee legal? I saw it at whole foods today and it didn't show any illegal ingredients on the label. I think I read somewhere it was illegal. Thanks, Misty Kimble - 31yo Louisiana CD - 2/07 - no meds SCD - 6 months From Everyday Grain-Free Gourmet p. 32:Clarified Butter (aka ghee)Heat 1/2 lb butter in a small pot until it melts and light-coloured milk solids float to top.Scoop out solids with a spoon.Pour the rest of the butter through a sieve into a heat-resistant jar.Store in fridge.Baden Recent Activity 16 New Members 1 New FilesVisit Your Group Yahoo! Health Healthy Aging Improve your quality of life. Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Groups Familyographer Zone Learn how to capture family moments. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Gut & Psychology Syndrome says homemade only: "Unfortunately, commercially available ghee often contains preservatives and other additives."Baden Is storebought ghee legal? I saw it at whole foods today and it didn't show any illegal ingredients on the label. I think I read somewhere it was illegal._ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Thanks. Kind of silly since it never spoils. Misty Kimble Subject: Re: Re: Dairy- for BadenTo: BTVC-SCD Date: Tuesday, July 15, 2008, 4:15 PM Gut & Psychology Syndrome says homemade only: "Unfortunately, commercially available ghee often contains preservatives and other additives."Baden Recent Activity 13 New Members 1 New FilesVisit Your Group Meditation and Lovingkindness A Yahoo! Group to share and learn. Yahoo! Health Heartburn or Worse What symptoms are most serious? Real Food Group on Yahoo! Groups What does real food mean to you? .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Misty, Making your own ghee is so much more cost effective. It's quite easy as well. Following directions I guess isn't in my nature or maybe NOT one of my strong points Jodi SCD 9 months Crohn's/Colitis > > Thanks. Kind of silly since it never spoils. Quote Link to comment Share on other sites More sharing options...
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