Re: New Member Rev Larry Clements

[Guest guest]

Welcome to the crew Reverand......

I think you will find this crew to be informative, helpful....and all around

family!! Good days and bad days. I am from land. If you get a chance go back

through the archives, you will find lots of information there. Please don't

hesitate to ask any questions.

Cyber~hugs,

Carol

CarlaRLong@... wrote:

> Thank you for getting in touch with me. I am new to the computer world, but

> not to NF. I am 52 years old, my wife divorced me after I was diagnosed. I

> spent 3 years At the Georgia War Veterans Home, but now trying to live

[Guest guest]

Thanks for message, and please just call me Larry Looking forward to

becoming more involved with this new endeavor. Again , thanks,

Larry

Re: New Member Rev Larry Clements

> Welcome to the crew Reverand......

> I think you will find this crew to be informative, helpful....and all

around

> family!! Good days and bad days. I am from land. If you get a chance

go back

> through the archives, you will find lots of information there. Please

don't

> hesitate to ask any questions.

> Cyber~hugs,

> Carol

>

> CarlaRLong@... wrote:

>

> > Thank you for getting in touch with me. I am new to the computer world,

but

> > not to NF. I am 52 years old, my wife divorced me after I was diagnosed.

I

> > spent 3 years At the Georgia War Veterans Home, but now trying to live

>

>

>

>

>

[Guest guest]

Hi Reverend,

Welcome to the Crew, there is number of terrible NF2 people here who need

" straightening out " especially over Texas way.

Something we'll have to straighten out is - with NF2 we don't have Lisch

nodes - they belong to NF1 -

don't get me wrong as we could use someone like you on the " Crew " .

Please make sure that you have been diagnosed correctly....by what you are

saying it sounds more like NF1.

Anyone live in that state that can give him the name of a good NF2

doctor.....

Aussie .

New Member Rev Larry Clements

> Thank you for getting in touch with me. I am new to the computer world,

but

> not to NF. I am 52 years old, my wife divorced me after I was diagnosed. I

> spent 3 years At the Georgia War Veterans Home, but now trying to live

> independently.

> I had my first surgery for tumors in 1986. Since then, I have had 15,

> three on the spine. I now have to use electric wheelchair. Found out this

> week that I am facing more surgery in the next couple of weeks. (I am so

> tired of the surgeries. I have three grown children, and two grandsons.

> I have a BA from Mercer University, and an MDiv from New Orleans

> Baptist Theological Seminary. I am a former Georgia State Trooper, and a

> Baptist Minister for 19 years.

> I understand that there is no support group in the South Georgia

area,

> and I am so glad to hear about your org. Most of my tumors have been

located

> along the nerve roots and deeper nerves, although I have several

> cafe-au-lait spots, Lisch nodes, and several tumors that have been removed

> surgically.

> Although this has progressed and keeps on, I still feel that I have

> been blessed because it could have taken a totally different course. If

you

> will let me know what additional info your group needs, I will gladly

> respond. Agian, thank you for your response to my inquiry. God bless,

>

> Rev Larry Clements

> dlclements@...

>

>

>

>

[Guest guest]

Thanks for the note

I am sure that I have been diagnosed correctly w/ NF2. Although Lisch

nodes are not common in NF2 primarily, they can occur without the

manifistation and complication of found in NF1. I have 2 in my right eye,

but I assure you, from the 15 surgeries I have had since 1988, NF2 has been

correctly diagnosed at Houston, LSU, Ga Medical College, and my slides have

been sent and evaluated the NIH.

Looking forward to more conversation w/ you. Again, thanks for the

reply.

Larry

New Member Rev Larry Clements

>

>

> > Thank you for getting in touch with me. I am new to the computer world,

> but

> > not to NF. I am 52 years old, my wife divorced me after I was diagnosed.

I

> > spent 3 years At the Georgia War Veterans Home, but now trying to live

> > independently.

> > I had my first surgery for tumors in 1986. Since then, I have had

15,

> > three on the spine. I now have to use electric wheelchair. Found out

this

> > week that I am facing more surgery in the next couple of weeks. (I am so

> > tired of the surgeries. I have three grown children, and two

grandsons.

> > I have a BA from Mercer University, and an MDiv from New Orleans

> > Baptist Theological Seminary. I am a former Georgia State Trooper, and a

> > Baptist Minister for 19 years.

> > I understand that there is no support group in the South Georgia

> area,

> > and I am so glad to hear about your org. Most of my tumors have been

> located

> > along the nerve roots and deeper nerves, although I have several

> > cafe-au-lait spots, Lisch nodes, and several tumors that have been

removed

> > surgically.

> > Although this has progressed and keeps on, I still feel that I have

> > been blessed because it could have taken a totally different course. If

> you

> > will let me know what additional info your group needs, I will gladly

> > respond. Agian, thank you for your response to my inquiry. God bless,

> >

> > Rev Larry Clements

> > dlclements@...

> >

> >

> >

> >

[Guest guest]

.....you're not terrible, we love you!!!

Didn't we discuss the combination of NF's on here just a short while ago? I

can't remember what symptons showed up where....

Carol

Cross wrote:

> Hi Reverend,

> Welcome to the Crew, there is number of terrible NF2 people here who need

> " straightening out " especially over Texas way.

>

[Guest guest]

In a message dated 3/5/01 8:09:52 AM Pacific Standard Time,

larorr@... writes:

<< Hi Larry!

Welcome to the crew. >>

Welcome to Larry from Lori Jo in MI

[Guest guest]

Hi Larry!

Welcome to the crew. You have come to a great place for support and

information. I, too, am sick of surgeries (and I have only had three).

Well, I think it's not so much the surgery as it is the slow recovery and

healing afterwards.

Hang in there my friend.

Blessings,

~<><~~

[Guest guest]

Welcome to the crew Larry, you will like it here very much. sixto(nyc)

[Guest guest]

Welcome to the Crew Reverend-

We are happy to have you here! You'll find much support and info...

I will look forward to your posts,

TTYS Jayne ston (JJ) in Boston

-------------------------------------------------

> Thank you for getting in touch with me. I am new to the computer world,but> not to NF. I am 52 years old, my wife divorced me after I was diagnosed. I> spent 3 years At the Georgia War Veterans Home, but now trying to live> independently.> I had my first surgery for tumors in 1986. Since then, I have had 15,> three on the spine. I now have to use electric wheelchair. Found out this> week that I am facing more surgery in the next couple of weeks. (I am so> tired of the surgeries. I have three grown children, and two grandsons.> I have a BA from Mercer University, and an MDiv from New Orleans> Baptist Theological Seminary. I am a former Georgia State Trooper, and a> Baptist Minister for 19 years.> I understand that there is no support group in the South Georgiaarea,> and I am so glad to hear about your org. Most of my tumors have beenlocated> along the nerve roots and deeper nerves, although I have several> cafe-au-lait spots, Lisch nodes, and several tumors that have been removed> surgically.> Although this has progressed and keeps on, I still feel that I have> been blessed because it could have taken a totally different course. Ifyou> will let me know what additional info your group needs, I will gladly> respond. Agian, thank you for your response to my inquiry. God bless,>> Rev Larry Clements> dlclements@...>

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[Guest guest]

,

Are you saying all of us NF2 people in Texas are terrible and need

" straightening out " ? It does sound like the Rev. Clements has NF1 not NF2,

but I didn't want to step out of line and say anything when I don't know all

of the facts regarding his NF. I believe Rev. Clements said he was in South

Georgia not Texas so he would need a recommendation for a doctor in Georgia

not Texas. Also Rev. Clements may want to go to the www.nfinc.org website

or www.nf.org website. They have bulletin boards and chat rooms he may be

interested in to communicate with others who have NF whichever form it may

be. Good luck Reverend and I hope everything goes well for you.

God Bless,

Houston, Texas

New Member Rev Larry Clements

>

>

> > Thank you for getting in touch with me. I am new to the computer world,

> but

> > not to NF. I am 52 years old, my wife divorced me after I was diagnosed.

I

> > spent 3 years At the Georgia War Veterans Home, but now trying to live

> > independently.

> > I had my first surgery for tumors in 1986. Since then, I have had

15,

> > three on the spine. I now have to use electric wheelchair. Found out

this

> > week that I am facing more surgery in the next couple of weeks. (I am so

> > tired of the surgeries. I have three grown children, and two

grandsons.

> > I have a BA from Mercer University, and an MDiv from New Orleans

> > Baptist Theological Seminary. I am a former Georgia State Trooper, and a

> > Baptist Minister for 19 years.

> > I understand that there is no support group in the South Georgia

> area,

> > and I am so glad to hear about your org. Most of my tumors have been

> located

> > along the nerve roots and deeper nerves, although I have several

> > cafe-au-lait spots, Lisch nodes, and several tumors that have been

removed

> > surgically.

> > Although this has progressed and keeps on, I still feel that I have

> > been blessed because it could have taken a totally different course. If

> you

> > will let me know what additional info your group needs, I will gladly

> > respond. Agian, thank you for your response to my inquiry. God bless,

> >

> > Rev Larry Clements

> > dlclements@...

> >

> >

> >

> >

[Guest guest]

Hi Rev Larry

Welcome to the Crew. You will enjoy the knowledge and friendship of all the

Crew members.

ine from Australia

> New Member Rev Larry Clements

>

>

> > Thank you for getting in touch with me. I am new to the computer world,

> but

> > not to NF. I am 52 years old, my wife divorced me after I was diagnosed.

I

> > spent 3 years At the Georgia War Veterans Home, but now trying to live

> > independently.

> > I had my first surgery for tumors in 1986. Since then, I have had

15,

> > three on the spine. I now have to use electric wheelchair. Found out

this

> > week that I am facing more surgery in the next couple of weeks. (I am so

> > tired of the surgeries. I have three grown children, and two

grandsons.

> > I have a BA from Mercer University, and an MDiv from New Orleans

> > Baptist Theological Seminary. I am a former Georgia State Trooper, and a

> > Baptist Minister for 19 years.

> > I understand that there is no support group in the South Georgia

> area,

> > and I am so glad to hear about your org. Most of my tumors have been

> located

> > along the nerve roots and deeper nerves, although I have several

> > cafe-au-lait spots, Lisch nodes, and several tumors that have been

removed

> > surgically.

> > Although this has progressed and keeps on, I still feel that I have

> > been blessed because it could have taken a totally different course. If

> you

> > will let me know what additional info your group needs, I will gladly

> > respond. Agian, thank you for your response to my inquiry. God bless,

> >

> > Rev Larry Clements

> > dlclements@...

> >

> >

> >

> >

[Guest guest]

Hi Larry !

I'm Marcus from Down under, down here in OZ where we all walk upside down.

I'm glad you settled on LARRY, but I was thinking maybe we call you

' THE REV ', sort of has a nice ring to it don't you agree ? Anyhow so glad

you joined us, this is a world wide group and the NF2 'LIFEBOAT'

Oh, I have two sons with NF also, and a daughter that's in the clear.

Again Welcome aboard .

Marcus