Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Jackie, You have a heavy duty resume--please one I have been at this for three years and not done all you have--question, how does Dr G. get the hvy metals out of the body if he does not do chelation? Please I am very interested. To: mb12 valtrex Sent: Sun, August 15, 2010 7:50:58 PMSubject: Re: RE:Goldberg I too must chime in and speak personally for myself and our experience. We have done DAN (everything DAN had to offer we did it), Krisgman and Gupta for five years including Yasko, two stem cells treatments, oh yeah, and we even bought our own HARD Chamber and did countless hours of HBOT per our DAN's recommendation. None of this has come close to what we are seeing after three months with Dr. Goldberg. My seven year old, four weeks into Paxil began to speak in sentences and now converses with us all the time. He comments on everything he sees. He'll even put his hand on my chin and dad's and move our faces towards his if we are not looking at him when he is talking. He's been sleeping in our bed since he was a baby. My husband and I just couldn't let him go until he was able to tell us what color he wanted his room to be. Well to our surprise, he gets up one night and says "I want to sleep in my own bed now" and slept in our guest room all night and has been there ever since. We are now working on getting his own room ready. He says he wants blue walls with a red bed :-)I can honestly say in Mrs. Goldberg's defense that I have tried every single supplement known to man to increase blood flow and nothing has come close to low-dose Paxil.By the way we did do a NeuroSpect with Dr. Uszler in May and it came back showing moderate hypoperfusion of the temporal lobes. All of this HBOT and still moderate hypoperfusion??? I could have saved myself a lot of $$$$$ had I seen Dr. Goldberg years ago...Anyone looking for a hard chamber? I will be selling mine. jackie (seth's mom) Goldberg patient and sooo proud of it!!!> >> > Here is a question maybe someone has an answer to:> > > > Some have argued that HBOT is dangerous because while it increases the flow of > > oxygen to areas of the brain that need it, it also increases the flow of oxygen > > to areas that do NOT.> > > > SSRI's are used in this instance to increase bloodflow to certain areas of the > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > hbot)?????> > > > Is that correct?> > > > > > > > > > > > ________________________________> > From: "boothlindy@" <boothlindy@>> > To: mb12 valtrex > > Sent: Fri, August 13, 2010 2:16:17 PM> > Subject: RE:Goldberg> > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years with > > good results but hit a wall so to speak. > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a piece > > of paper with the info and said to us not much has been done in the virus area > > by the medical establishment and it does not work for most kids. Something felt > > wrong with her statement so I joined this site and was led to Dr Goldberg by a > > passionate mom (Marcia).> > > > That said when we first had our appt. I was somewhat taken aback by his take on > > DAN being the 'bad guys'. He went on about it for a little too long for my > > liking ... DAN was there for us when everybody else was saying go home and > > accept that is how your daughter is going to be. My 'bad guys' were the standard > > medical guys pushing the vaccines on my child with a severely and visible > > compromised immune system. I had to cut him short and say lets get back to what > > we came for, my fight is not with DAN but with healing my child. DAN bashing as > > I call it feels decidely uncomfortable for me, especially as they recovering a > > lot of of children, yes I do feel like because DAN are trying so many bases > > gut/metals/viral etc the doctors can throw a lot of things at us and for those > > of us struggling to study and grasp all the info out there we can tend to rely > > heavily on them for it all, hence over supplementing with the fear we are > > missing something or if we remove some they regress after all our hard won > > gains. I also think some of the DAN's are overloaded and good follow up > > proceedures are lacking in their offices. NIDS protocol does not spread itself > > so thin.> > > > That said Dr Goldberg is a doctor who takes healing your child seriously, very > > prepared and is not afraid to speak his mind and offend. I have accepted this as > > part of the deal working with him (who wants a wishy washy doctor healing your > > child anyway). He is always prepared for our telephone consults, knows my > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > saying I am here to try and heal your child lets not waste time (my words...his > > were stronger).> > > > I think for many passionate caring doctors who have had great success in their > > specific protocols they feel strongly they can take ALL our children to > > recovery. Having read many a post on many a site I now know this is not so. Our > > children are all so different and their issues so variable it indeed may take > > one to many more protocols to get there. > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay and > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing what > > to do when we are not doctors, just parents with a powerful love in our hearts > > to heal our kids and see them flourish in this world.> > > > Lindy> > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > short of amazing for my daughter. We are holding our breaths as we saw similar > > results with HBOT which did not hold. Right now I am glad Dr G kicked my butt.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 , For many kids if you start treating their immune system dysfunction and dealing with the viruses, the body will begin to function and rid itself of metals. I did IV chelation on my son. Started when he was 2.5 and I thought he would recover by 4 or 5 because all the metals would be out. In my case and I'd bet in many cases, it's so much more than that. My son didn't get any better, in fact he got even more stimmier. I can tell you that when he was on Valtrex for three months at three years old, he had gotten the biggest mercury pull (almost in the red). And when he started IVIG at 4 years old his French Urinary Porphyrins came back clean for the first time. So is treating the immune system and viruses key - I think so. Again, I've met kids who recovered from chelation but that was not the case for us. > > > > > > Here is a question maybe someone has an answer to: > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > >of > > > > > oxygen to areas of the brain that need it, it also increases the flow of > >oxygen > > > > > to areas that do NOT. > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > >the > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > hbot)????? > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > ________________________________ > > > From: " boothlindy@ " <boothlindy@> > > > To: mb12 valtrex > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > Subject: RE:Goldberg > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > >with > > > > > good results but hit a wall so to speak. > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > >piece > > > > > of paper with the info and said to us not much has been done in the virus > >area > > > > > by the medical establishment and it does not work for most kids. Something > >felt > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > >a > > > > > passionate mom (Marcia). > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > >on > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > liking ... DAN was there for us when everybody else was saying go home and > > > accept that is how your daughter is going to be. My 'bad guys' were the > >standard > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > compromised immune system. I had to cut him short and say lets get back to > >what > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > >as > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > >a > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > >those > > > > > of us struggling to study and grasp all the info out there we can tend to > >rely > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > missing something or if we remove some they regress after all our hard won > > > gains. I also think some of the DAN's are overloaded and good follow up > > > proceedures are lacking in their offices. NIDS protocol does not spread > >itself > > > > > so thin. > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > >very > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > >as > > > > > part of the deal working with him (who wants a wishy washy doctor healing > >your > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > saying I am here to try and heal your child lets not waste time (my > >words...his > > > > > were stronger). > > > > > > I think for many passionate caring doctors who have had great success in > >their > > > > > specific protocols they feel strongly they can take ALL our children to > > > recovery. Having read many a post on many a site I now know this is not so. > >Our > > > > > children are all so different and their issues so variable it indeed may take > > > > > one to many more protocols to get there. > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > >and > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > >what > > > > > to do when we are not doctors, just parents with a powerful love in our > >hearts > > > > > to heal our kids and see them flourish in this world. > > > > > > Lindy > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > short of amazing for my daughter. We are holding our breaths as we saw > >similar > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > >butt. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 If you fix the immune system and make it work more efficiently the body takes care of the heavy metal issue Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I am just wondering with all this talk about Dr. Goldberg and the sucess he has had with kids. Where is he located and how much does he charge? How long is his waiting list? I have done everything and maybe its time for a fresh pair of eyes and a new method. Dylan's Mom Subject: Re: Jackie::RE:GoldbergTo: mb12 valtrex Date: Monday, August 16, 2010, 7:49 AM ,For many kids if you start treating their immune system dysfunction and dealing with the viruses, the body will begin to function and rid itself of metals. I did IV chelation on my son. Started when he was 2.5 and I thought he would recover by 4 or 5 because all the metals would be out. In my case and I'd bet in many cases, it's so much more than that. My son didn't get any better, in fact he got even more stimmier. I can tell you that when he was on Valtrex for three months at three years old, he had gotten the biggest mercury pull (almost in the red). And when he started IVIG at 4 years old his French Urinary Porphyrins came back clean for the first time. So is treating the immune system and viruses key - I think so.Again, I've met kids who recovered from chelation but that was not the case for us. > > >> > > Here is a question maybe someone has an answer to:> > > > > > Some have argued that HBOT is dangerous because while it increases the flow > >of > >> > > oxygen to areas of the brain that need it, it also increases the flow of > >oxygen > >> > > to areas that do NOT.> > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > >the > >> > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > hbot)?????> > > > > > Is that correct?> > > > > > > > > > > > > > > > > > ________________________________> > > From: "boothlindy@" <boothlindy@>> > > To: mb12 valtrex > > > Sent: Fri, August 13, 2010 2:16:17 PM> > > Subject: RE:Goldberg> > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > >> > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > >with > >> > > good results but hit a wall so to speak. > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > >piece > >> > > of paper with the info and said to us not much has been done in the virus > >area > >> > > by the medical establishment and it does not work for most kids. Something > >felt > >> > > wrong with her statement so I joined this site and was led to Dr Goldberg by > >a > >> > > passionate mom (Marcia).> > > > > > That said when we first had our appt. I was somewhat taken aback by his take > >on > >> > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > liking ... DAN was there for us when everybody else was saying go home and > > > accept that is how your daughter is going to be. My 'bad guys' were the > >standard > >> > > medical guys pushing the vaccines on my child with a severely and visible > > > compromised immune system. I had to cut him short and say lets get back to > >what > >> > > we came for, my fight is not with DAN but with healing my child. DAN bashing > >as > >> > > I call it feels decidely uncomfortable for me, especially as they recovering > >a > >> > > lot of of children, yes I do feel like because DAN are trying so many bases > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > >those > >> > > of us struggling to study and grasp all the info out there we can tend to > >rely > >> > > heavily on them for it all, hence over supplementing with the fear we are > > > missing something or if we remove some they regress after all our hard won > > > gains. I also think some of the DAN's are overloaded and good follow up > > > proceedures are lacking in their offices. NIDS protocol does not spread > >itself > >> > > so thin.> > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > >very > >> > > prepared and is not afraid to speak his mind and offend. I have accepted this > >as > >> > > part of the deal working with him (who wants a wishy washy doctor healing > >your > >> > > child anyway). He is always prepared for our telephone consults, knows my > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > saying I am here to try and heal your child lets not waste time (my > >words...his > >> > > were stronger).> > > > > > I think for many passionate caring doctors who have had great success in > >their > >> > > specific protocols they feel strongly they can take ALL our children to > > > recovery. Having read many a post on many a site I now know this is not so. > >Our > >> > > children are all so different and their issues so variable it indeed may take > >> > > one to many more protocols to get there. > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > >and > >> > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > >what > >> > > to do when we are not doctors, just parents with a powerful love in our > >hearts > >> > > to heal our kids and see them flourish in this world.> > > > > > Lindy> > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > short of amazing for my daughter. We are holding our breaths as we saw > >similar > >> > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > >butt.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Dr. Goldberg is located in Tarzana, CA (Los Angeles area). I started seeing him in May and I got in a month after I called for an appointment. Like you, I had done everything under the son and when I came accross Dr. Goldberg and listened to his presentation on YouTube and read his presentation off of his site, it just made sense. Even my pediatrician read up on him based on how my son acted w/him during our last visit and he told me that based on his reading Dr. Goldberg is very scientific. I believe that's a good way to describe him. This pediatrician was going to look into him for his own nephew who is on the spectrum. Trust me it's tiring and you feel like, oh god another doctor. Am I just wasting my time? But you have to keep trying and changing otherwise you just never know. Five years later and hundreds of thousands of dollars spent, I'm seeing results now with a new doctor and a totally new protocol. Never give up. jackie > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > >of > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > >oxygen > > > > > > > to areas that do NOT. > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > >the > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > hbot)????? > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > From: " boothlindy@ " <boothlindy@> > > > > To: mb12 valtrex > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > Subject: RE:Goldberg > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > >with > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > >piece > > > > > > > of paper with the info and said to us not much has been done in the virus > > >area > > > > > > > by the medical establishment and it does not work for most kids. Something > > >felt > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > >a > > > > > > > passionate mom (Marcia). > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > >on > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > >standard > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > compromised immune system. I had to cut him short and say lets get back to > > >what > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > >as > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > >a > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > >those > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > >rely > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > missing something or if we remove some they regress after all our hard won > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > >itself > > > > > > > so thin. > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > >very > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > >as > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > >your > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > saying I am here to try and heal your child lets not waste time (my > > >words...his > > > > > > > were stronger). > > > > > > > > I think for many passionate caring doctors who have had great success in > > >their > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > recovery. Having read many a post on many a site I now know this is not so. > > >Our > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > >and > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > >what > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > >hearts > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > Lindy > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > short of amazing for my daughter. We are holding our breaths as we saw > > >similar > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > >butt. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Does he do phone consults?Sent from my iPhone Dr. Goldberg is located in Tarzana, CA (Los Angeles area). I started seeing him in May and I got in a month after I called for an appointment. Like you, I had done everything under the son and when I came accross Dr. Goldberg and listened to his presentation on YouTube and read his presentation off of his site, it just made sense. Even my pediatrician read up on him based on how my son acted w/him during our last visit and he told me that based on his reading Dr. Goldberg is very scientific. I believe that's a good way to describe him. This pediatrician was going to look into him for his own nephew who is on the spectrum. Trust me it's tiring and you feel like, oh god another doctor. Am I just wasting my time? But you have to keep trying and changing otherwise you just never know. Five years later and hundreds of thousands of dollars spent, I'm seeing results now with a new doctor and a totally new protocol. Never give up. jackie > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > >of > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > >oxygen > > > > > > > to areas that do NOT. > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > >the > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > hbot)????? > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > From: "boothlindy@" <boothlindy@> > > > > To: mb12 valtrex > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > Subject: RE:Goldberg > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > >with > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > >piece > > > > > > > of paper with the info and said to us not much has been done in the virus > > >area > > > > > > > by the medical establishment and it does not work for most kids. Something > > >felt > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > >a > > > > > > > passionate mom (Marcia). > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > >on > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > >standard > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > compromised immune system. I had to cut him short and say lets get back to > > >what > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > >as > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > >a > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > >those > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > >rely > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > missing something or if we remove some they regress after all our hard won > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > >itself > > > > > > > so thin. > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > >very > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > >as > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > >your > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > saying I am here to try and heal your child lets not waste time (my > > >words...his > > > > > > > were stronger). > > > > > > > > I think for many passionate caring doctors who have had great success in > > >their > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > recovery. Having read many a post on many a site I now know this is not so. > > >Our > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > >and > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > >what > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > >hearts > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > Lindy > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > short of amazing for my daughter. We are holding our breaths as we saw > > >similar > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > >butt. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 May, I sent you an e-mail with more detailed information. jackie > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > >of > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > >oxygen > > > > > > > to areas that do NOT. > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > >the > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > hbot)????? > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > From: " boothlindy@ " <boothlindy@> > > > > To: mb12 valtrex > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > Subject: RE:Goldberg > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > >with > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > >piece > > > > > > > of paper with the info and said to us not much has been done in the virus > > >area > > > > > > > by the medical establishment and it does not work for most kids. Something > > >felt > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > >a > > > > > > > passionate mom (Marcia). > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > >on > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > >standard > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > compromised immune system. I had to cut him short and say lets get back to > > >what > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > >as > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > >a > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > >those > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > >rely > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > missing something or if we remove some they regress after all our hard won > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > >itself > > > > > > > so thin. > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > >very > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > >as > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > >your > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > saying I am here to try and heal your child lets not waste time (my > > >words...his > > > > > > > were stronger). > > > > > > > > I think for many passionate caring doctors who have had great success in > > >their > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > recovery. Having read many a post on many a site I now know this is not so. > > >Our > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > >and > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > >what > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > >hearts > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > Lindy > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > short of amazing for my daughter. We are holding our breaths as we saw > > >similar > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > >butt. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Yes, he does do phone consults. You just have to see him once a year. jackie > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > >of > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > >oxygen > > > > > > > > > to areas that do NOT. > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > >the > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > hbot)????? > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: " boothlindy@ " <boothlindy@> > > > > > To: mb12 valtrex > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > >with > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > >piece > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > >area > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > >felt > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > >a > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > >on > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > >standard > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > compromised immune system. I had to cut him short and say lets get back to > > > >what > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > >as > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > >a > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > >those > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > >rely > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > missing something or if we remove some they regress after all our hard won > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > >itself > > > > > > > > > so thin. > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > >very > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > >as > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > >your > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > >words...his > > > > > > > > > were stronger). > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > >their > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > >Our > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > >and > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > >what > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > >hearts > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > Lindy > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > >similar > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > >butt. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Hi Jackie I hope its ok I sent you a private email about my son and had questions. Thanks] Kathy > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > >of > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > >oxygen > > > > > > > > > to areas that do NOT. > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > >the > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > hbot)????? > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: " boothlindy@ " <boothlindy@> > > > > > To: mb12 valtrex > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > >with > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > >piece > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > >area > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > >felt > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > >a > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > >on > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > >standard > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > compromised immune system. I had to cut him short and say lets get back to > > > >what > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > >as > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > >a > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > >those > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > >rely > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > missing something or if we remove some they regress after all our hard won > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > >itself > > > > > > > > > so thin. > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > >very > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > >as > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > >your > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > >words...his > > > > > > > > > were stronger). > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > >their > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > >Our > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > >and > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > >what > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > >hearts > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > Lindy > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > >similar > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > >butt. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Thank you Jackie. Can you send me more info on Dr Goldberg as well? I starting with my 3rd Dan and I am already frustrated . My son is only 3.5 but I don't want to waste anymore time .Sent from my iPhone Yes, he does do phone consults. You just have to see him once a year. jackie > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > >of > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > >oxygen > > > > > > > > > to areas that do NOT. > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > >the > > > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > > hbot)????? > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: "boothlindy@" <boothlindy@> > > > > > To: mb12 valtrex > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > >with > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > >piece > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > >area > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > >felt > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > >a > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > >on > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > >standard > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > compromised immune system. I had to cut him short and say lets get back to > > > >what > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > >as > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > >a > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > >those > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > >rely > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > missing something or if we remove some they regress after all our hard won > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > >itself > > > > > > > > > so thin. > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > >very > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > >as > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > >your > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > >words...his > > > > > > > > > were stronger). > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > >their > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > >Our > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > >and > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > >what > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > >hearts > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > Lindy > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > >similar > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > >butt. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Of course. Feel free. jc > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: " boothlindy@ " <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I was just wondering how you decided to see Dr Goldberg? I mean I have looked at the NIDS web group. I had titers run for Epstein-Barr, HSV 1+2, HHV-6, and Cytomegalovirus. All showed nothing so I ruled out treating for viruses. Has anyone had there tests come back normal but still treated for viruses and saw results? Thanks! > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > >of > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > >oxygen > > > > > > > to areas that do NOT. > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > >the > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > hbot)????? > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > From: " boothlindy@ " <boothlindy@> > > > > To: mb12 valtrex > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > Subject: RE:Goldberg > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > >with > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > >piece > > > > > > > of paper with the info and said to us not much has been done in the virus > > >area > > > > > > > by the medical establishment and it does not work for most kids. Something > > >felt > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > >a > > > > > > > passionate mom (Marcia). > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > >on > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > >standard > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > compromised immune system. I had to cut him short and say lets get back to > > >what > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > >as > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > >a > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > >those > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > >rely > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > missing something or if we remove some they regress after all our hard won > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > >itself > > > > > > > so thin. > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > >very > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > >as > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > >your > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > saying I am here to try and heal your child lets not waste time (my > > >words...his > > > > > > > were stronger). > > > > > > > > I think for many passionate caring doctors who have had great success in > > >their > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > recovery. Having read many a post on many a site I now know this is not so. > > >Our > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > >and > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > >what > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > >hearts > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > Lindy > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > short of amazing for my daughter. We are holding our breaths as we saw > > >similar > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > >butt. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Jackie, Can you please forward me the information as well? Sorry to bother you! Thanks Shiri > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: " boothlindy@ " <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I liked his approach as soon as I heard it. It made sense. I knew my son's temporal lobes were not working and after going through the bag of DAN treatments for five years, his neurospect showed that they were still not working. I was way overdo to make a change. Only regret that I waited this long to do it. As far as your virus question - were the IGG numbers in range too or only the IGM numbers? Please double check this and yes, viruses can remain hidden and kick up during anti-viral treatment. jackie - mom to Seth 7 yrs. old and on his way to recovery ;-) > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > >of > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > >oxygen > > > > > > > > > to areas that do NOT. > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > >the > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > hbot)????? > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > From: " boothlindy@ " <boothlindy@> > > > > > To: mb12 valtrex > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > >with > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > >piece > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > >area > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > >felt > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > >a > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > >on > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > >standard > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > compromised immune system. I had to cut him short and say lets get back to > > > >what > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > >as > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > >a > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > >those > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > >rely > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > missing something or if we remove some they regress after all our hard won > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > >itself > > > > > > > > > so thin. > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > >very > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > >as > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > >your > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > >words...his > > > > > > > > > were stronger). > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > >their > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > >Our > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > >and > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > >what > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > >hearts > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > Lindy > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > >similar > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > >butt. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to " weed out " exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: " boothlindy@ " <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: "boothlindy@" <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 So it wasn't something specific to the pineapple (ie salicylates?) but that it was something he is allergic/sensitive to?Congrats on recovering him. --- ToniTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: "boothlindy@" <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I was not just pineapple we had IDed dozens of foods and spices that set off an immune reactionTo: mb12 valtrex Sent: Tue, August 17, 2010 10:48:47 AMSubject: Re: Re: Jackie::RE:Goldberg So it wasn't something specific to the pineapple (ie salicylates?) but that it was something he is allergic/sensitive to?Congrats on recovering him. --- ToniTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: "boothlindy@" <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Were these IgE allergies or IgG sensitivies? > > I was not just pineapple we had IDed dozens of foods and spices that set off an > immune reaction > > > > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I wrote the opening page of the SCIA group description, I was a founding board member. I believe that immune issues need to be very closely monitored by proactive board certified immunologists in order to not risk harm to children. The SCIA's position to support parents playing internet doctors without the needed back round has forced me to step away. Immune issues require an understanding beyond a wikipedia education and desperation drives parents (especially new bees) to taking risks that far outweigh benefits of parent developed protocols based on an internet salesmanship offer! Poor medicine and greed made my kid sick. I will not turn to the same mentality to cure him. Don't get me wrong, knowledge is the solution but it is very important to consider the source. Unfortunately the SCIA promotes self diagnosis and often discusses treatment without any basis. If you truly believe this is an immune issue you can understand every kids issues and solutions are different. One size dose not fit all and qualified and informed doctors are the solution, parents need to advocate to change the system so the CCD and the few schooled, certified and informed docs can help direct the evolution of a safe and throughly researched protocol to address this issue. DAN is a mishmash of good docs sharing the same shingle with a bunch of poorly informed and greed driven scoundrels. I know of only a dozen or so that have the understanding and compassion to not risk these kids health in order placate their desperate parents. I can not EVER recommend a parent go find a DAN doctor as a blanket recommendation, Too much damage done. So sad but so true!To: mb12 valtrex Sent: Tue, August 17, 2010 3:14:58 PMSubject: Re: Re: Jackie::RE:Goldberg Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > > > Here is a question maybe someone has an answer to: > > > > > > > > > > > > Some have argued that HBOT is dangerous because while it increases the flow > > > > >of > > > > > > > > > > > oxygen to areas of the brain that need it, it also increases the flow of > > > > >oxygen > > > > > > > > > > > to areas that do NOT. > > > > > > > > > > > > SSRI's are used in this instance to increase bloodflow to certain areas of > > > > >the > > > > > > > > > > > brain. It is able to "weed out" exactly which areas to avoid? (unlike > > > > > > hbot)????? > > > > > > > > > > > > Is that correct? > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > > > From: "boothlindy@" <boothlindy@> > > > > > > To: mb12 valtrex > > > > > > Sent: Fri, August 13, 2010 2:16:17 PM > > > > > > Subject: RE:Goldberg > > > > > > > > > > > > > > > > > > I am a mother of a 5 year old daughter who has just started (3 months in) the > > > > > > > > > > > NIDS protocol with Dr Goldberg. We worked with 2 DAN doctors for 1.5 years > > > > >with > > > > > > > > > > > good results but hit a wall so to speak. > > > > > > > > > > > > > > > > > > When I wanted to try the virus protocol our DAN said OK gave us the meds a > > > > >piece > > > > > > > > > > > of paper with the info and said to us not much has been done in the virus > > > > >area > > > > > > > > > > > by the medical establishment and it does not work for most kids. Something > > > > >felt > > > > > > > > > > > wrong with her statement so I joined this site and was led to Dr Goldberg by > > > > >a > > > > > > > > > > > passionate mom (Marcia). > > > > > > > > > > > > That said when we first had our appt. I was somewhat taken aback by his take > > > > >on > > > > > > > > > > > DAN being the 'bad guys'. He went on about it for a little too long for my > > > > > > liking ... DAN was there for us when everybody else was saying go home and > > > > > > accept that is how your daughter is going to be. My 'bad guys' were the > > > > >standard > > > > > > > > > > > medical guys pushing the vaccines on my child with a severely and visible > > > > > > compromised immune system. I had to cut him short and say lets get back to > > > > >what > > > > > > > > > > > we came for, my fight is not with DAN but with healing my child. DAN bashing > > > > >as > > > > > > > > > > > I call it feels decidely uncomfortable for me, especially as they recovering > > > > >a > > > > > > > > > > > lot of of children, yes I do feel like because DAN are trying so many bases > > > > > > gut/metals/viral etc the doctors can throw a lot of things at us and for > > > > >those > > > > > > > > > > > of us struggling to study and grasp all the info out there we can tend to > > > > >rely > > > > > > > > > > > heavily on them for it all, hence over supplementing with the fear we are > > > > > > missing something or if we remove some they regress after all our hard won > > > > > > gains. I also think some of the DAN's are overloaded and good follow up > > > > > > proceedures are lacking in their offices. NIDS protocol does not spread > > > > >itself > > > > > > > > > > > so thin. > > > > > > > > > > > > That said Dr Goldberg is a doctor who takes healing your child seriously, > > > > >very > > > > > > > > > > > prepared and is not afraid to speak his mind and offend. I have accepted this > > > > >as > > > > > > > > > > > part of the deal working with him (who wants a wishy washy doctor healing > > > > >your > > > > > > > > > > > child anyway). He is always prepared for our telephone consults, knows my > > > > > > daughter history, and kicks my butt when I was too scared to start the SSRI' > > > > > > > > > > saying I am here to try and heal your child lets not waste time (my > > > > >words...his > > > > > > > > > > > were stronger). > > > > > > > > > > > > I think for many passionate caring doctors who have had great success in > > > > >their > > > > > > > > > > > specific protocols they feel strongly they can take ALL our children to > > > > > > recovery. Having read many a post on many a site I now know this is not so. > > > > >Our > > > > > > > > > > > children are all so different and their issues so variable it indeed may take > > > > > > > > > > > one to many more protocols to get there. > > > > > > > > > > > > > > > > > > Suffice to say we as parents have to stay on our toes and know when to stay > > > > >and > > > > > > > > > > > when to move on (Cheryl's advice to me...thks)....the hard part is knowing > > > > >what > > > > > > > > > > > to do when we are not doctors, just parents with a powerful love in our > > > > >hearts > > > > > > > > > > > to heal our kids and see them flourish in this world. > > > > > > > > > > > > Lindy > > > > > > > > > > > > PS. We have been on the SSRI's for 9 days and the results have been nothing > > > > > > short of amazing for my daughter. We are holding our breaths as we saw > > > > >similar > > > > > > > > > > > results with HBOT which did not hold. Right now I am glad Dr G kicked my > > > > >butt. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I find this very interesting b/c my son responded to valtrex in 08 very well but our new Dan took them off b/c he didn't know enough about the protocol. Both boys slid backwards, BAD! I put my son back on it recently and see nothing so far but his allergies are worse now than back then. I wonder if he is not responding due to severity of allergies? Hummmm. He is also on an immune suppressor for his gut right now. I guess that wouldn't help him get his immune system better? What do you think?Rhonda Masengale Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > The key is SSRI's block the reuptake of the serotonin the temporal lobes are > > > > >producing naturally. No supplement can come close to doing this for the brain to > > > > >date. Please show me any evidence of any supplement comming close. > > > > > > > > > > Elyse > > > > > > > > > > J Neurosci Res. 2009 Mar;87(4):1037-45. > > > > > Fluoxetine affords robust neuroprotection in the postischemic brain via its > > > > >anti-inflammatory effect. > > > > > Lim CM, Kim SW, Park JY, Kim C, Yoon SH, Lee JK. > > > > > Department of Anatomy, Inha University School of Medicine, Inchon, Korea. > > > > > Abstract > > > > > Fluoxetine is a selective serotonin reuptake inhibitor that is widely used in > > > > >the treatment of major depression including after stroke. In this study, we > > > > >tested whether fluoxetine protects neuronal death in a rat cerebral ischemia > > > > >model of middle cerebral artery occlusion (MCAO). The administration of > > > > >fluoxetine intravenously (10 mg/kg) at 30 min, 3 hr, or 6 hr after MCAO reduced > > > > >infarct volumes to 21.2+/-6.7%, 14.5+/-3.0%, and 22.8+/-2.9%, respectively, of > > > > >that of the untreated control. Moreover, the neuroprotective effect of > > > > >fluoxetine was evident when it was administered as late as 9 hr after > > > > >MCAO/reperfusion. These neuroprotective effects were accompanied by improvement > > > > >of motor impairment and neurological deficits. The fluoxetine-treated brain was > > > > >found to show marked repressions of microglia activation, neutrophil > > > > >infiltration, and proinflammatory marker expressions. Moreover, fluoxetine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 my son also was a good responder to valtrex and does really bad on immune suppresors... Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > The key is SSRI's block the reuptake of the serotonin the temporal lobes are > > > > >producing naturally. No supplement can come close to doing this for the brain to > > > > >date. Please show me any evidence of any supplement comming close. > > > > > > > > > > Elyse > > > > > > > > > > J Neurosci Res. 2009 Mar;87(4):1037-45. > > > > > Fluoxetine affords robust neuroprotection in the postischemic brain via its > > > > >anti-inflammatory effect. > > > > > Lim CM, Kim SW, Park JY, Kim C, Yoon SH, Lee JK. > > > > > Department of Anatomy, Inha University School of Medicine, Inchon, Korea. > > > > > Abstract > > > > > Fluoxetine is a selective serotonin reuptake inhibitor that is widely used in > > > > >the treatment of major depression including after stroke. In this study, we > > > > >tested whether fluoxetine protects neuronal death in a rat cerebral ischemia > > > > >model of middle cerebral artery occlusion (MCAO). The administration of > > > > >fluoxetine intravenously (10 mg/kg) at 30 min, 3 hr, or 6 hr after MCAO reduced > > > > >infarct volumes to 21.2+/-6.7%, 14.5+/-3.0%, and 22.8+/-2.9%, respectively, of > > > > >that of the untreated control. Moreover, the neuroprotective effect of > > > > >fluoxetine was evident when it was administered as late as 9 hr after > > > > >MCAO/reperfusion. These neuroprotective effects were accompanied by improvement > > > > >of motor impairment and neurological deficits. The fluoxetine-treated brain was > > > > >found to show marked repressions of microglia activation, neutrophil > > > > >infiltration, and proinflammatory marker expressions. Moreover, fluoxetine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Did you go off of the immune suppressors? Did it help if you did?Rhonda Masengale my son also was a good responder to valtrex and does really bad on immune suppresors... Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > Jackie, You have a heavy duty resume--please one I have been at this for three > > > > years and not done all you have--question, how does Dr G. get the hvy metals > > > > out of the body if he does not do chelation? Please I am very interested. > > > > > > > > > > > > > > > > > > > > ________________________________ > > > > From: jcatalahana <jcataly@> > > > > To: mb12 valtrex > > > > Sent: Sun, August 15, 2010 7:50:58 PM > > > > Subject: Re: RE:Goldberg > > > > > > > >  > > > > I too must chime in and speak personally for myself and our experience. We have > > > > done DAN (everything DAN had to offer we did it), Krisgman and Gupta for five > > > > years including Yasko, two stem cells treatments, oh yeah, and we even bought > > > > our own HARD Chamber and did countless hours of HBOT per our DAN's > > > > recommendation. None of this has come close to what we are seeing after three > > > > months with Dr. Goldberg. My seven year old, four weeks into Paxil began to > > > > speak in sentences and now converses with us all the time. He comments on > > > > everything he sees. He'll even put his hand on my chin and dad's and move our > > > > faces towards his if we are not looking at him when he is talking. > > > > > > > > > > > > He's been sleeping in our bed since he was a baby. My husband and I just > > > > couldn't let him go until he was able to tell us what color he wanted his room > > > > to be. Well to our surprise, he gets up on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Yes it did it took me several weeks to get my child what he was prior to the supressants...Sent from my BlackBerry® wireless deviceSender: mb12 valtrex Date: Tue, 17 Aug 2010 15:03:49 -0700 (PDT)To: mb12 valtrex <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: Re: Jackie::RE:Goldberg Did you go off of the immune suppressors? Did it help if you did?Rhonda Masengale my son also was a good responder to valtrex and does really bad on immune suppresors... Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases ofAutism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identifyand destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiencymany simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys.best, sloan> > > >> > > > Jackie, You have a heavy duty resume--please one I have been at this for three > > > > years and not done all you have--question, how does Dr G. get the hvy metals > > > > out of the body if he does not do chelation? Please I am very interested.> > > > > > > > > > > > > > > > > > > >________________________________> > > > From: jcatalahana <jcataly@>> > > > To: mb12 valtrex > > > > Sent: Sun, August 15, 2010 7:50:58 PM> > > > Subject: Re: RE:Goldberg> > > > > > > >  > > > > I too must chime in and speak personally for myself and our experience. We have > > > > done DAN (everything DAN had to offer we did it), Krisgman and Gupta for five > > > > years including Yasko, two stem cells treatments, oh yeah, and we even bought > > > > our own HARD Chamber and did countless hours of HBOT per our DAN's > > > > recommendation. None of this has come close to what we are seeing after three > > > > months with Dr. Goldberg. My seven year old, four weeks into Paxil began to > > > > speak in sentences and now converses with us all the time. He comments on > > > > everything he sees. He'll even put his hand on my chin and dad's and move our > > > > faces towards his if we are not looking at him when he is talking. > > > > > > > > > > > > He's been sleeping in our bed since he was a baby. My husband and I just > > > > couldn't let him go until he was able to tell us what color he wanted his room > > > > to be. Well to our surprise, he gets up on Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 The problem with Valtrex for Herpes in the brain vs else were is the blood brain barrier. The recommended dosage for herpes from Glaxo is a theraputic dosage that dose not take in consideration that only a very small percentage actually reaches the infection if it is truly in the frontal lob. We took it once daily before Dr G with no effect then at three times the recommended dosage with temporary success but in reality we were not truly successful until we went to acyclovir at 800 mg 5 time daily. The blood brain barrier prevents Valtrex from being effective under CDC guide lines and most DAN doc's depend on this for liability reasons. If you have tried Valtex once daily you probably did not see results! Meds designed for HIV are dosed at a much higher dosage and are designed to reach the nervous system.To: "mb12 valtrex " <mb12 valtrex >Sent: Tue, August 17, 2010 5:07:24 PMSubject: Re: Re: Jackie::RE:Goldberg I find this very interesting b/c my son responded to valtrex in 08 very well but our new Dan took them off b/c he didn't know enough about the protocol. Both boys slid backwards, BAD! I put my son back on it recently and see nothing so far but his allergies are worse now than back then. I wonder if he is not responding due to severity of allergies? Hummmm. He is also on an immune suppressor for his gut right now. I guess that wouldn't help him get his immune system better? What do you think?Rhonda Masengale Great post. Have heard heard of stopcallingitautism.com? Your experience could greatly help their cause. Check it out when you have a few : ) Best wishes to you and your family! So happy to hear you're having success!-TammyTo: mb12 valtrex Sent: Tue, August 17, 2010 10:43:38 AMSubject: Re: Re: Jackie::RE:Goldberg Allow me to introduce myself, I am Bill Klimas, the father of a son that was classically Autistic and is now a twelve year old on his way to recovery. We are on the NIDS protocol but I did not find it on any list. My son Connors aunt is Dr Klimas, chairman of the immunology department at U of Miami school of medicine and a highly recognized researcher in CSF and related immune based illnesses. After several years of GF/CF diet and tens of thousands of dollars spent on behavioral therapy co-payments, supplements and such to NO progress, she convinced me to work on his immune system and we went the NIDS route. Three years ago on his initial work up his ASO were 450+, his viral tiers were 875+ and so on. It has been an up and down but what I found most convincing that the bases of Autism is an immune dysfunction happened last summer. We had managed to slowly drive down the HHV6 (to 1/40) and ASO (Normal range) numbers using antivirals and antibiotics and saw amazing results, last June my wife started a diet that allowed fresh pineapple and Connor loved it. within a week we saw regression to the worst he has ever been. We had scheduled blood draws the following week and Connors HHV6 had jumped to 1-240 among other off the scale makers. No change in meds just he introduction of an very strong allergin. It was wild but by triggering an immune reaction the antivirals were rendered useless. It took nearly a month t calm his system and him back down and nearly two months to drive the HHV6 back to 1-80.During the XMRV debate I found this quote from a noted immunologist and it just makes sense."There are two broad aspects to the immune system, TH1 and TH2. TH1 involves Natural Killer (NK) cells whose job it is to identify and destroy viruses. The TH2 side of the immune system involves, amongst other things, antibodies which respond to threats. There is evidence in the literature that patients with ME/CFS are “TH2†biased, i.e. the TH2 aspect of the immune system is over-activated, causing suppression of the TH1 side and high levels of inflammatory cytokines; patients have lower Natural Killer (NK) cell immunity. This bias may mean that opportunistic viruses and bacterial infections can no longer be kept at bay effectively by the TH1 side of the system.RNase L conducts a function of holding the virus at bay until NK cells are available to eradicate the pathogen, however even the RNase L’s ability to perform this function can be compromised over time if TH2 dominates for too long. RNase L dysfunction was also reported in the prostate cancer cases of XMRV, although later research has not found a genetic link. In ME/CFS, any suspected Rnase L deficiency many simply be due to chronic TH2 dominance. If TH2 dominates for too long, it can be hypothesised that viruses such as HHV-6, Epstein Barr Virus (EBV), CMV and Parvovirus B19 can flourish, as well as bacterial infections such as mycoplasma and chlamydia pneumonia. It has been established that the majority of neurodegenerative disease, fatiguing illnesses and neurobehavioral disease patients have chronic bacterial and viral infections. (3). In fact the WPI research claimed to have found higher levels of XMRA in “atypical†MS and Autism. "I am not a medical doctor but Connor was always low iron low potassium and so on. As his immune system normalized all of these returned to normal including B12.To: mb12 valtrex Sent: Tue, August 17, 2010 9:26:18 AMSubject: Re: Jackie::RE:Goldberg Jackie, Thrilled to hear about your son's progress! SO happy for you guys. best, sloan > > > > > > > > > > The key is SSRI's block the reuptake of the serotonin the temporal lobes are > > > > >producing naturally. No supplement can come close to doing this for the brain to > > > > >date. Please show me any evidence of any supplement comming close. > > > > > > > > > > Elyse > > > > > > > > > > J Neurosci Res. 2009 Mar;87(4):1037-45. > > > > > Fluoxetine affords robust neuroprotection in the postischemic brain via its > > > > >anti-inflammatory effect. > > > > > Lim CM, Kim SW, Park JY, Kim C, Yoon SH, Lee JK. > > > > > Department of Anatomy, Inha University School of Medicine, Inchon, Korea. > > > > > Abstract > > > > > Fluoxetine is a selective serotonin reuptake inhibitor that is widely used in > > > > >the treatment of major depression including after stroke. In this study, we > > > > >tested whether fluoxetine protects neuronal death in a rat cerebral ischemia > > > > >model of middle cerebral artery occlusion (MCAO). The administration of > > > > >fluoxetine intravenously (10 mg/kg) at 30 min, 3 hr, or 6 hr after MCAO reduced > > > > >infarct volumes to 21.2+/-6.7%, 14.5+/-3.0%, and 22.8+/-2.9%, respectively, of > > > > >that of the untreated control. Moreover, the neuroprotective effect of > > > > >fluoxetine was evident when it was administered as late as 9 hr after > > > > >MCAO/reperfusion. These neuroprotective effects were accompanied by improvement > > > > >of motor impairment and neurological deficits. The fluoxetine-treated brain was > > > > >found to show marked repressions of microglia activation, neutrophil > > > > >infiltration, and proinflammatory marker expressions. Moreover, fluoxetine Quote Link to comment Share on other sites More sharing options...
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