Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 I am so glad we have each other, all of us I mean, but also me and you, Tammy! LOLIt is painful seeing the acting out. Right now my son is doing better, in the last two days here, after 2+ weeks of CRAP! :-OBut when they are doing good, like right now, I can look and see how far they have come. Even in only 6 months of bio-med. No huge miracles for my daughter, the official ASD kid (but glad for the gains just the same!), but my son...Feb thru May was so hard... he was acting out so badly, every supplement/vitamin I tried made him psycho, I felt like I was watching him go IN to autism, not get better. I have had the thought before but feel like it is being validated now... that whatever happened that caused his initial seizure in April 2009, stopped time and his development... he continued to absorb and gain knowledge, but wow, just thinking about him... he was "typical" because he had the right speech and amount of words for a typical 2 or 2.5 yr old. But he didn't interact with us. How did I miss that? He just liked to make us laugh. He would do crazy stuff and say crazy stuff, just to make us smile or laugh... and I guess that is a form of interaction... but really, all he was saying was nouns and "moah jew" (more juice) or "moah smoo-ee" (more smoothie) I remember I asked him to name his stuffed animal, and he said "Apple Pie." I laughed, and said, "ok that's a good name" and then for months (and still now) he will just blurt out "apple pie!" to get a laugh. And it seems since doing bio-med, he picked up somewhere in the 2.5 yr old development, and was behaving like a 2.5 yr old when he was Three-and-a-half... and maybe now, he is catching up.Now he does not constantly tote around a sippy cup and he goes into length to explain stuff. If you were to point to a refrigerator and ask him "what's this?" - instead of shrugging or saying something like "wader," he will go into this paragraph of words, some unintelligle, but an explanation of what the thing does, instead of just pronouncing the noun. It is just amazing... but last week I couldn't see this. Last week I was back where we were months ago with a little boy who was slipping back into aggression and such. I don't know why?? Missing vitamin, added vitamin, yeast die-off, oxalate dump, strep flare?? WTH!!! This is all so hard. There's a reason we are known as warriors. --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:43:55 PMSubject: Re: Re: The many doctors - Recovery Histories wow. that is a perfect way to describe it!To: mb12 valtrex Sent: Thu, August 19, 2010 10:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-TammyTo: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories : Have you posted your story somewhere on what you did and all, so we can learn? Love and prayers, Heidi N > > It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Well said Cheryl. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Yep - I bet if you asked, alot of people will tell you that they see huge dips from time to time. so we would have to consider some sort of flare (strep, viral, allergy...etc) If something cycles, it would make sense that we would see regression. Just feeling like crud from a virus or a bug going around can be enough to make us "NT"'s feel "out of it". So would be the same for our kids. I can think of two occasions where my sons allergies (to cats) were so bad, it sent his behavior over the edge. We weren't just dealing with sniffles and sneezes and watery eyes...the child's behavior was out of control. So, imagine what we are dealing with with unseen allergies, immune issues, and sensitivites. Not as easy as "Oh, let's get him away from their cat". rrrrrrrrrr those whole thing is so frustrating. You have never been able to figure out the cause of his seizure? That is just awesome that he's "explaining" now....I'd say he's well on his way. When Tom first started talking, he had his own language. We called it Tom-ese. Then he mixed the two...both english and his language. Eventually english took over. For awhile if he couldn't retrieve a word, he would fill it in with a word he'd make up. It was so cute, I kind of miss it. When he was angry he would yell the word "Criangle" (cry-angle) I knew he was cussing at us. lol. To: mb12 valtrex Sent: Thu, August 19, 2010 11:55:34 PMSubject: Re: Re: The many doctors - Recovery Histories I am so glad we have each other, all of us I mean, but also me and you, Tammy! LOLIt is painful seeing the acting out. Right now my son is doing better, in the last two days here, after 2+ weeks of CRAP! :-OBut when they are doing good, like right now, I can look and see how far they have come. Even in only 6 months of bio-med. No huge miracles for my daughter, the official ASD kid (but glad for the gains just the same!), but my son...Feb thru May was so hard... he was acting out so badly, every supplement/vitamin I tried made him psycho, I felt like I was watching him go IN to autism, not get better. I have had the thought before but feel like it is being validated now... that whatever happened that caused his initial seizure in April 2009, stopped time and his development... he continued to absorb and gain knowledge, but wow, just thinking about him... he was "typical" because he had the right speech and amount of words for a typical 2 or 2.5 yr old. But he didn't interact with us. How did I miss that? He just liked to make us laugh. He would do crazy stuff and say crazy stuff, just to make us smile or laugh... and I guess that is a form of interaction... but really, all he was saying was nouns and "moah jew" (more juice) or "moah smoo-ee" (more smoothie) I remember I asked him to name his stuffed animal, and he said "Apple Pie." I laughed, and said, "ok that's a good name" and then for months (and still now) he will just blurt out "apple pie!" to get a laugh. And it seems since doing bio-med, he picked up somewhere in the 2.5 yr old development, and was behaving like a 2.5 yr old when he was Three-and-a-half... and maybe now, he is catching up.Now he does not constantly tote around a sippy cup and he goes into length to explain stuff. If you were to point to a refrigerator and ask him "what's this?" - instead of shrugging or saying something like "wader," he will go into this paragraph of words, some unintelligle, but an explanation of what the thing does, instead of just pronouncing the noun. It is just amazing... but last week I couldn't see this. Last week I was back where we were months ago with a little boy who was slipping back into aggression and such. I don't know why?? Missing vitamin, added vitamin, yeast die-off, oxalate dump, strep flare?? WTH!!! This is all so hard. There's a reason we are known as warriors. --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:43:55 PMSubject: Re: Re: The many doctors - Recovery Histories wow. that is a perfect way to describe it!To: mb12 valtrex Sent: Thu, August 19, 2010 10:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-TammyTo: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories : Have you posted your story somewhere on what you did and all, so we can learn? Love and prayers, Heidi N > > It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 My daughter has advanced vocab, but still a lot of jargon too... My son will just explain the thing he is talking about if he doesn't know the word. I like the jargon too, I do think it's cute. Hehe. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 12:23:12 AMSubject: Re: Re: The many doctors - Recovery Histories Yep - I bet if you asked, alot of people will tell you that they see huge dips from time to time. so we would have to consider some sort of flare (strep, viral, allergy...etc) If something cycles, it would make sense that we would see regression. Just feeling like crud from a virus or a bug going around can be enough to make us "NT"'s feel "out of it". So would be the same for our kids. I can think of two occasions where my sons allergies (to cats) were so bad, it sent his behavior over the edge. We weren't just dealing with sniffles and sneezes and watery eyes...the child's behavior was out of control. So, imagine what we are dealing with with unseen allergies, immune issues, and sensitivites. Not as easy as "Oh, let's get him away from their cat". rrrrrrrrrr those whole thing is so frustrating. You have never been able to figure out the cause of his seizure? That is just awesome that he's "explaining" now....I'd say he's well on his way. When Tom first started talking, he had his own language. We called it Tom-ese. Then he mixed the two...both english and his language. Eventually english took over. For awhile if he couldn't retrieve a word, he would fill it in with a word he'd make up. It was so cute, I kind of miss it. When he was angry he would yell the word "Criangle" (cry-angle) I knew he was cussing at us. lol. To: mb12 valtrex Sent: Thu, August 19, 2010 11:55:34 PMSubject: Re: Re: The many doctors - Recovery Histories I am so glad we have each other, all of us I mean, but also me and you, Tammy! LOLIt is painful seeing the acting out. Right now my son is doing better, in the last two days here, after 2+ weeks of CRAP! :-OBut when they are doing good, like right now, I can look and see how far they have come. Even in only 6 months of bio-med. No huge miracles for my daughter, the official ASD kid (but glad for the gains just the same!), but my son...Feb thru May was so hard... he was acting out so badly, every supplement/vitamin I tried made him psycho, I felt like I was watching him go IN to autism, not get better. I have had the thought before but feel like it is being validated now... that whatever happened that caused his initial seizure in April 2009, stopped time and his development... he continued to absorb and gain knowledge, but wow, just thinking about him... he was "typical" because he had the right speech and amount of words for a typical 2 or 2.5 yr old. But he didn't interact with us. How did I miss that? He just liked to make us laugh. He would do crazy stuff and say crazy stuff, just to make us smile or laugh... and I guess that is a form of interaction... but really, all he was saying was nouns and "moah jew" (more juice) or "moah smoo-ee" (more smoothie) I remember I asked him to name his stuffed animal, and he said "Apple Pie." I laughed, and said, "ok that's a good name" and then for months (and still now) he will just blurt out "apple pie!" to get a laugh. And it seems since doing bio-med, he picked up somewhere in the 2.5 yr old development, and was behaving like a 2.5 yr old when he was Three-and-a-half... and maybe now, he is catching up.Now he does not constantly tote around a sippy cup and he goes into length to explain stuff. If you were to point to a refrigerator and ask him "what's this?" - instead of shrugging or saying something like "wader," he will go into this paragraph of words, some unintelligle, but an explanation of what the thing does, instead of just pronouncing the noun. It is just amazing... but last week I couldn't see this. Last week I was back where we were months ago with a little boy who was slipping back into aggression and such. I don't know why?? Missing vitamin, added vitamin, yeast die-off, oxalate dump, strep flare?? WTH!!! This is all so hard. There's a reason we are known as warriors. --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:43:55 PMSubject: Re: Re: The many doctors - Recovery Histories wow. that is a perfect way to describe it!To: mb12 valtrex Sent: Thu, August 19, 2010 10:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-TammyTo: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories : Have you posted your story somewhere on what you did and all, so we can learn? Love and prayers, Heidi N > > It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 re seizure... I am guessing a glutamate overload? first febrile seizure was ~ 12 days from DT shot. He had a sinus infection (he always has some allergy going on - or did back then - so stuffy nose was the norm and we would miss the infections) At about that time we had gotten the clear to go back on the foods he was allergic too previously... the previous allergenic foods were soy, wheat, rice and egg. So here is the scenario:lots of wheat (finally off restriction), vaccination, dosed with tylenol, probably doses with benedryl due to the chronic itchy/runny nose... I have no idea what we were eating that week... for all I know, it could have been canned beets (oxalate from hell! lol) --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 12:23:12 AMSubject: Re: Re: The many doctors - Recovery Histories Yep - I bet if you asked, alot of people will tell you that they see huge dips from time to time. so we would have to consider some sort of flare (strep, viral, allergy...etc) If something cycles, it would make sense that we would see regression. Just feeling like crud from a virus or a bug going around can be enough to make us "NT"'s feel "out of it". So would be the same for our kids. I can think of two occasions where my sons allergies (to cats) were so bad, it sent his behavior over the edge. We weren't just dealing with sniffles and sneezes and watery eyes...the child's behavior was out of control. So, imagine what we are dealing with with unseen allergies, immune issues, and sensitivites. Not as easy as "Oh, let's get him away from their cat". rrrrrrrrrr those whole thing is so frustrating. You have never been able to figure out the cause of his seizure? That is just awesome that he's "explaining" now....I'd say he's well on his way. When Tom first started talking, he had his own language. We called it Tom-ese. Then he mixed the two...both english and his language. Eventually english took over. For awhile if he couldn't retrieve a word, he would fill it in with a word he'd make up. It was so cute, I kind of miss it. When he was angry he would yell the word "Criangle" (cry-angle) I knew he was cussing at us. lol. To: mb12 valtrex Sent: Thu, August 19, 2010 11:55:34 PMSubject: Re: Re: The many doctors - Recovery Histories I am so glad we have each other, all of us I mean, but also me and you, Tammy! LOLIt is painful seeing the acting out. Right now my son is doing better, in the last two days here, after 2+ weeks of CRAP! :-OBut when they are doing good, like right now, I can look and see how far they have come. Even in only 6 months of bio-med. No huge miracles for my daughter, the official ASD kid (but glad for the gains just the same!), but my son...Feb thru May was so hard... he was acting out so badly, every supplement/vitamin I tried made him psycho, I felt like I was watching him go IN to autism, not get better. I have had the thought before but feel like it is being validated now... that whatever happened that caused his initial seizure in April 2009, stopped time and his development... he continued to absorb and gain knowledge, but wow, just thinking about him... he was "typical" because he had the right speech and amount of words for a typical 2 or 2.5 yr old. But he didn't interact with us. How did I miss that? He just liked to make us laugh. He would do crazy stuff and say crazy stuff, just to make us smile or laugh... and I guess that is a form of interaction... but really, all he was saying was nouns and "moah jew" (more juice) or "moah smoo-ee" (more smoothie) I remember I asked him to name his stuffed animal, and he said "Apple Pie." I laughed, and said, "ok that's a good name" and then for months (and still now) he will just blurt out "apple pie!" to get a laugh. And it seems since doing bio-med, he picked up somewhere in the 2.5 yr old development, and was behaving like a 2.5 yr old when he was Three-and-a-half... and maybe now, he is catching up.Now he does not constantly tote around a sippy cup and he goes into length to explain stuff. If you were to point to a refrigerator and ask him "what's this?" - instead of shrugging or saying something like "wader," he will go into this paragraph of words, some unintelligle, but an explanation of what the thing does, instead of just pronouncing the noun. It is just amazing... but last week I couldn't see this. Last week I was back where we were months ago with a little boy who was slipping back into aggression and such. I don't know why?? Missing vitamin, added vitamin, yeast die-off, oxalate dump, strep flare?? WTH!!! This is all so hard. There's a reason we are known as warriors. --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:43:55 PMSubject: Re: Re: The many doctors - Recovery Histories wow. that is a perfect way to describe it!To: mb12 valtrex Sent: Thu, August 19, 2010 10:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- ToniTo: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-TammyTo: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories : Have you posted your story somewhere on what you did and all, so we can learn? Love and prayers, Heidi N > > It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I just spent two hours (WTH?) responding to some blog post re: bio-diversity, and people like us wanting to "change" our children. Grrr. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 2:43:46 AMSubject: Re: Re: The many doctors - Recovery Histories What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 People are disgusting.To: mb12 valtrex Sent: Fri, August 20, 2010 2:58:07 AMSubject: Re: Re: The many doctors - Recovery Histories I just spent two hours (WTH?) responding to some blog post re: bio-diversity, and people like us wanting to "change" our children. Grrr. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 2:43:46 AMSubject: Re: Re: The many doctors - Recovery Histories What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 It seems it is usually well functioning socially parents and / or same type young adults who don't want us to give the kids all these supps to change what the genome has encoded for them. It pisses me off because that is sort of where we are (meaning, socially we are almost NT) but *I* certainly understand that this is not where a lot of kids are, why can't they understand this!? (Oh, theory of mind problem for them!). Don't they KNOW that a lot of kids are hurting themselves, in pain, hurting other people, not able to speak or communicate... this was not encoded in their genes!!! It is an illness! STUPID stupid people!!!! --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 7:32:06 AMSubject: Re: Re: The many doctors - Recovery Histories People are disgusting.To: mb12 valtrex Sent: Fri, August 20, 2010 2:58:07 AMSubject: Re: Re: The many doctors - Recovery Histories I just spent two hours (WTH?) responding to some blog post re: bio-diversity, and people like us wanting to "change" our children. Grrr. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 2:43:46 AMSubject: Re: Re: The many doctors - Recovery Histories What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Don't bother. It doesn't do any good. Focus on your child and let the NDers (neurodiverse) have their "uniqueness" while they have their state support, shared housing and augmentive communicative devices that they may not have needed if they bothered to do something about their health. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ I just spent two hours (WTH?) responding to some blog post re: bio-diversity, and people like us wanting to "change" our children. Grrr. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 2:43:46 AMSubject: Re: Re: The many doctors - Recovery Histories What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I know... usually I don't bother. I was even more ready to scream when I hit "post" and it says *your comments will be posted as soon as they are approved by moderation.* Uh, like that will happen. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 1:19:36 PMSubject: Re: Re: The many doctors - Recovery Histories Don't bother. It doesn't do any good. Focus on your child and let the NDers (neurodiverse) have their "uniqueness" while they have their state support, shared housing and augmentive communicative devices that they may not have needed if they bothered to do something about their health. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ I just spent two hours (WTH?) responding to some blog post re: bio-diversity, and people like us wanting to "change" our children. Grrr. --- ToniTo: mb12 valtrex Sent: Fri, August 20, 2010 2:43:46 AMSubject: Re: Re: The many doctors - Recovery Histories What else better do we have to do with our lives but help our children--there is no limit on this and some do not comprehend this. God Bless us and our children. To: mb12 valtrex Sent: Thu, August 19, 2010 6:11:03 PMSubject: Re: Re: The many doctors - Recovery Histories I know what you mean... it is painful when they are half-way in and half-way out and realize they are different... when they are in that fog, they are oblivious to all and happy. So hard :-( --- Toni To: mb12 valtrex Sent: Thu, August 19, 2010 10:05:21 PMSubject: Re: Re: The many doctors - Recovery Histories My son, too. I once heard someone describe their son's descent into autism as if he were on "a dimmer switch". That was the case with my son, too. I'd say it probably started around 18 months or so and it was so gradual and so subtle that you could barely notice, til one day BAM! something's wrong. It was hard to to put a finger on and he was warm and engaged with (very specific) people. Autism was overlooked. This continued until he was three and a half-4. Then slowly the dimmer switch started to come back on. We've never experienced any wows to speak of, his gains are just slow and steady. In much the same way he got worse, he is getting better. He has never had terribly severe issues and when his symptoms were at their worst, it really didn't last all that long. He just turned 8 a few weeks ago. Over the winter, we hit a wall and things were at their absolute worst. He was spinning out of control. I saw behaviors in my son that we had never seen before. This is when I started searching deeper than my doctor and his school and therapies and discovered biomed. Maybe he would continue to get better on his own, I don't know. But it's a chance I am not willing to take. Especially after seeing what he went through this winter. Imagine this beautiful little boy who had always always been so content in his own little world crying to me that he wishes he was dead. That was just heartbreaking. So up until 5 months ago, there was no biomed, rx, or ABA for my son. Just speech and ot for an hour a week and a special education classroom. I've have heard parents report much worse conditions for their children who were still able to recover. I have every hope for my son and every other child here, as well. Tonight he was upset to learn that some kids on his team had been invited to a birthday party for someone else on his team. He was not : ( Four years ago, he barely would have acknowledged these people let alone cared about whether or not they were having a birthday party. He hated parties! lol. So you see we've come so far. But sometimes, it just seemed like he was a happier person back then.....I cried tonight at his scrimmage game. You have never seen anyone love the game of football the way my boy does. Sometimes it hurts to watch him have to work twice as hard to be half as good, but it has been so good for him and he's realizing how strong he is physically and mentally. I was watching some of the boys out on the field having a great time - only caring so much and just having fun. It comes so easy for some of them. And there's my son, who cares about this damn game so much, and it's so extremely difficult for him to keep up. I'm so proud of him. I bet the majority of us would have quit by now if we were in his shoes. How can I not atleast TRY to help him???-Tammy To: mb12 valtrex Sent: Thu, August 19, 2010 3:53:36 PMSubject: Re: The many doctors - Recovery Histories :Have you posted your story somewhere on what you did and all, so we can learn?Love and prayers,Heidi N>> It certainly is possible. My son is almost 6. NO diet, no supplements, no therapy, nothing â€" and no autism.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I started with Pierre on June. My son is not recovered yet... but I have see A LOT OF GAINS!!! Like: Potty trained Learned how to use a straw. He can watch a movie in a movie theater (2 hours no problems, no tamtrum). He uses toys apropiattely 100% of the time He is starting to play with his sister and showing some empathy when she is crying. He wants to walk alone (not very happy with this one ) He can play on these crowded places with tons of kids and bouncers.... with no problem at all. He learned how to swim (I have a video on you tube :D ) He is only on 7 supplements now. (vit C, E, clo, probiotics, calcium, minerall and armour thyroid) Before was like 20. He is 3 years old. He is still non verbal and his eye contact it's still pretty bad... So I highly recomend Pierre... If somebody has a bad experience with him... I see that strange but of course everything can happen because not all the cases are the same.. but he is a very reasonable a sweet person, and he try to help me ALL the time.... I just love him. M, Sterling > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I'll throw my hat in the ring... We also started with Pierre in the end of June and it has been wonderful. He has been wonderful. Whenever I've had a question he's emailed or called almost immediately. One Friday evening I sent him an email at about 930pm because I'd tried to taper an antifungal and things were beginning to go south. I figured I probably wouldn't hear back until Monday. He emailed me back 25 minutes later. My daughter was back on track in an hour. The only time I didn't hear from him was when he didn't get my email because I'd typed in his email address wrong (I figured that out eventually ;-) ) We've seen quite a bit since the end of June: increased vocabulary, better pronunciation, started using 2-3 word sentences (up from one word used here and there), increased gross motor skills (alternating feet on the stairs, started kicking a ball around, jumping backwards, more solid/steady), better eye contact, seems much happier over all, decreased aggression, began initiating play with other children in school (she has always loved kids, but never initiated--arguably some of this is also from oxytocin spray), learned to spell her name, is counting and saying the alphabet, potty trained (schedule). It's not perfect, but for us, Pierre has been great to work with. We are also doing biomed and it's not been a problem. > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Well out of the many things we have tried I have ONLY seen gains from two things..... AC chelation and Pierre Fontaine! Pierre gets my vote. Charlotte > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 My son started with Pierre in mid july and he is improving slowly and gradually. My son is also doing some biomed stuff but we have not had much success with biomeds because he cannot tolerate most of the supplements and we have major yeast problems here. Nevertheless he is on some biomeds supplements as well as diflucan to control his yeast whilst he is on Pierre's remedy; though the ultimate goal is to be able to remove these gradually and when his body is able to cope on its own. Pierre is very responsible and has a lot of heart in his practice. He is prompt to respond to emails and I cannot say enough good things about him when it comes to client managementand care. I do not live in the US and I have a 12 hour time difference and he is understanding and accomodating to find the best mutually convenient time to fit me in for consults. > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 my son was VERY severaly effected and is recovered. he lost his dx in 2007 and born in 2001 Re: The many doctors - Recovery Histories Yes it is possible but of the kids I know who recovered, it was before age 6 and the children were not severe. Also the kids I've seen who improve usually respond to the gfcf diet and MB12. Many of my friends have been doing biomed and therapy for many years and at 7 and 8 we are still hoping our children will one day speak in complete sentences (or just speak in many cases) or function socially. >> I think the best, most realistic approach to take it to know that recovery is a > real possibility but just like any other chronic condition it will have to be > monitored and there will be times throughout life when extra care will have to > be given and of course, a healthy lifestyle style that includes excercise and > healthful eating and sleeping habits. During times of low immunity and high > stree, supplementation and dietary intervention may be required until the system > is able to stablize itself. I think that's something we could definitely live > with!!!!> > > > > > ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Was he regressive? > > my son was VERY severaly effected and is recovered. he lost his dx in 2007 and born in 2001... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Thanks for still being here to support the rest of us. We need to hear from parents like you. My son was born in 2002 and still has no functional language. We started treating him biomedically in 2004. > > > > I think the best, most realistic approach to take it to know that recovery is a > > real possibility but just like any other chronic condition it will have to be > > monitored and there will be times throughout life when extra care will have to > > be given and of course, a healthy lifestyle style that includes excercise and > > healthful eating and sleeping habits. During times of low immunity and high > > stree, supplementation and dietary intervention may be required until the system > > is able to stablize itself. I think that's something we could definitely live > > with!!!! > > > > > > > > > > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 I was just wondering how everyone is seeing Pierre. Is everyone doing phone consultations? Its just that we are so far away. Thanks, Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2010 Report Share Posted August 21, 2010 Sandy, You can use skype to “see†Pierre. You do not need to travel to see him. http://www.recoveringnicholas.com From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of sandy Sent: Saturday, August 21, 2010 10:00 PM To: mb12 valtrex Subject: Re: The many doctors - Recovery Histories I was just wondering how everyone is seeing Pierre. Is everyone doing phone consultations? Its just that we are so far away. Thanks, Sandy > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > > > > > > > After six weeks of homeopathy I am elated with my twin boys improvement. Pierre has been fantastic about getting back to me whenever I email him....and yes even while on holiday! I feel in order for him to get the correct remedy, you need to be open. If he does not have all of the information he needs, of course it's going to be difficult. Nothing has worked as quickly as homeopathy, as far as treatments and diets that we've tried in the past. I'm so sorry that your experience turned out the way that it did, and I hope the best for you and your son. Phyllis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > > > > > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > > > > > > > > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > > > > > > > > > > > > > > > > [The entire original message is not included] > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi! Just wondering how long it took for you to get an apt. with Pierre Fontaine? I called a few weeks ago. I got his answering machine and it said he would not be making new apts till Sept 15. I was disapointed. Wondering what to expect when I finally get to speak to him. Kerri To: mb12 valtrex Sent: Fri, August 20, 2010 11:08:39 PMSubject: Re: The many doctors - Recovery Histories I started with Pierre on June. My son is not recovered yet... but I have see A LOT OF GAINS!!!Like:Potty trainedLearned how to use a straw.He can watch a movie in a movie theater (2 hours no problems, no tamtrum).He uses toys apropiattely 100% of the timeHe is starting to play with his sister and showing some empathy when she is crying. He wants to walk alone (not very happy with this one )He can play on these crowded places with tons of kids and bouncers.... with no problem at all.He learned how to swim (I have a video on you tube :D )He is only on 7 supplements now. (vit C, E, clo, probiotics, calcium, minerall and armour thyroid) Before was like 20.He is 3 years old.He is still non verbal and his eye contact it's still pretty bad...So I highly recomend Pierre... If somebody has a bad experience with him... I see that strange but of course everything can happen because not all the cases are the same.. but he is a very reasonable a sweet person, and he try to help me ALL the time.... I just love him.M, Sterling> > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment?> > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc.> > > > > > > > > > > > Thank you for sharing.> > > > > > > > > > > > > > > > [The entire original message is not included]> > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Hi Kerri, could you give me the phone number to his office, thank you very much, Alison M Re: The many doctors - Recovery Histories I started with Pierre on June. My son is not recovered yet... but I have see A LOT OF GAINS!!!Like:Potty trainedLearned how to use a straw.He can watch a movie in a movie theater (2 hours no problems, no tamtrum).He uses toys apropiattely 100% of the timeHe is starting to play with his sister and showing some empathy when she is crying. He wants to walk alone (not very happy with this one )He can play on these crowded places with tons of kids and bouncers.... with no problem at all.He learned how to swim (I have a video on you tube :D )He is only on 7 supplements now. (vit C, E, clo, probiotics, calcium, minerall and armour thyroid) Before was like 20.He is 3 years old.He is still non verbal and his eye contact it's still pretty bad...So I highly recomend Pierre... If somebody has a bad experience with him... I see that strange but of course everything can happen because not all the cases are the same.. but he is a very reasonable a sweet person, and he try to help me ALL the time.... I just love him.M, Sterling> > > > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment?> > > > > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc.> > > > > > > > > > > > Thank you for sharing.> > > > > > > > > > > > > > > > [The entire original message is not included]> > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 yes he was, he was born normal and meeting all mile stones and speaking early. we got our MMR and he lost everything and went form 18 months delelopment down to 2-4 months development with the same person testing before and after his shots, and that happened with in 2 weeks....they keep telling us his fever would go away and he would be fine,,,,,he wasn't Re: The many doctors - Recovery Histories Was he regressive?>> my son was VERY severaly effected and is recovered. he lost his dx in 2007 and born in 2001... Quote Link to comment Share on other sites More sharing options...
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