Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 There are many kids that have recovered without Dr. G. www.danasview.net is someone that I can think of off the top of my head. And she did DAN without a Dr.My son is about 95% recovered. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 I guess you could call my son recovered. The only hint of autism left is behavioral issues that resemble ADHD kinda stuff. Like having patience and transitioning. We used a DAN and diet to recover him. I didn't do HBOT, but we did do MB-12 shots, glutathione, dozens of supplements, probiotics, chelation, etc.... When treating our son, I always watched for results, and kept in mind that everything I gave him could have positive AND negative effects. Also I always told myself that I am working to put him back in balance, not medicate him for the rest of his life. (personal choice, and I don't judge anyone for their choices). But I think this helped me. If I tried something, I researched it. I also did not continue using it unless I saw real results. Some parents will use something and it doesn't really work, but they keep using it and piling more meds on top of it. I think when trying to get my son back in balance I took little breaks from supps and meds to give his body a chance to "do it on it's own" or show me he didn't need it anymore. I have always stuck to the diet religiously though. We just started ABA (first time we have tried any type of traditional behavioral therapy), to make sure he will go smoothly into kindergarten on time and in a typical class. My consultant thinks he wouldn't qualify for a diagnosis anymore, but I am not having the diagnosis removed until we are done with ABA because as of now, my insurance is covering it because of his old diagnosis. In the beginning, he was a big responder to diet, and MB-12 shots. Chelation was also a big factor in his recovery. At the end of the day, I think part of it was we just got lucky. Good luck, and keep researching. I hope this helps, and I wish you all the best in your journey. To: mb12 valtrex Sent: Mon, August 16, 2010 9:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 ,I have been working on the biomedical protocol for 4 years and my son is about 80% recovered. I am positive he will be recovered completely in 2 years. I guess the thing that surprises most people is that he is now 20 years old; too many think it is not possible for the older ones to recover. Wrong. He is going to be perfectly normal.Our life was once one of overwhelming depression, screaming, violent outbursts, (when they get bigger, the problems are bigger) SSRI's, OT, PT, and no hope in sight. We tried to go the exercise route at one time and DS and I got up at 6:30 am. and dragged him to the Y for exercise to help with the depression. We alternated with each other mornings. It was drudgery but we were able to do it only because he was still small enough to physically drag him into the car. Finally, after a couple months, we saw no results and gave up that. We literally had no hope at all. We had no idea what he would do some day. No one could live with him; he beat his younger sister whenever she pissed him off (you'd think she could learn to keep her mouth shut) but started attacking us, too, when he got bigger.One day, I went to the bathroom and wondered if other countries had the same number of autistic kids. I went to the computer and googled autism. Generation Rescue was number 1 and I clicked on it. What I saw make me practically fall off my chair. There was a poster that said, "If you caused a 10,000% increase in autism, wouldn't you try to cover it up?" I had missed this whole dialogue in the news. From there I went on to the ARI site and spent hours and hours reading, listening to videos, trying to figure out where to start. But I was so excited because I now had hope. Finally, some hope for his future and ours.Right now, he is laughing in the next room with a friend. It is nothing short of a miracle; he has a life and a future. What have I done to recover him this far? I read, researched, and watched videos like a mad woman. I was so OCD (and still am) on the subject of biomedical. We tried various diets but are on none at the moment. To me, the diets are so important to find out what their problems are. We did the SCD and I learned that yeast is not a big problem for him. We did GFCF and learned that he has a problem with dairy but not gluten. But because of his age, it was hard for him to give up dairy so we learned that the digestive enzymes worked for him. Through HBOT we learned that inflammation was a major component of his depression. We then found enzymes that help with inflammation (SerraGold) and Enhansa helps a lot, too. Through Yasko, we learned that he had a bacteria problem that we cleared out with OLE, OoO, Neem Plus, etc.I have read about 20 books and each one gave me invaluable information that helped me learn a little more about what his particular problems are. I keep a biomedical library and lend the books.I attend a conference each year. Chicago is about 2 hrs away so I go to Autism One every year now and have found ways to make it fairly low cost. I would not be so far without the conferences, for sure. I often go to them feeling like I am dead-ended and don't know what to do next. I come home rejuvenated and with several ideas to try and books to read. Giving up is not an option. I thank God everyday for the gift of hope he has given us.My secret, then has been: research, experiment, go to conferences, network with the TACA group in my city, etc.Keep the faith, sisters, and let's not fragment ourselves with division.With my love,sallyTo: mb12 valtrex Sent: Mon, August 16, 2010 11:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 My son is 16 yrs old. He is about 80% recovered. Had only bad reactions to SSRIs. Low dose and tried all kinds. Some worked for a while, like Risperdal, and then gains faded and side effects of weight gain were detrimental to his health. Paxil and Luvox almost drove him off the deep end - OCD thru the roof. We have been with DAN for 13 yrs wih great results. Did chelation and HBOT, transfer factor was a 'wow' also. There was not all this info when my son was young, viruses weren't really in the autism news. Hard to find other parents to network with who didn't think I was a freak for doing natural stuff, especially a dietary intervention! Couldn't but food unless in a health food store. Vaccine involvement hit the news in 1999- until then I was vaccinating my baby. My point is that parents today are lucky to have all this info available and share stories. I feel your pain in wanting to rush it. If your doc is not helping, then move on. I've been with three big DANs and they each did something for us but not a cure. It's frustrating and expensive - we have almost no retirement saved due to this. Hang in there - I hate the saying that it's a marathon not a race b/c I am a sprinter! But it's so worth it. Heidi J Heidi JSender: mb12 valtrex Date: Mon, 16 Aug 2010 12:11:29 -0700To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: The many doctors - Recovery Histories There are many kids that have recovered without Dr. G. www.danasview.net is someone that I can think of off the top of my head. And she did DAN without a Dr.My son is about 95% recovered.Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~On Aug 16, 2010, at 9:44 AM, Sacoto wrote: I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment?I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Sally, this is beautifully history. Thank you so much for share it. What bacteria did you son had? clostrudium?. My son has that but my DAN doctor say that HBOT will help but I am not sure about it. Thank you again. To: mb12 valtrex Sent: Mon, August 16, 2010 8:01:22 PMSubject: Re: The many doctors - Recovery Histories ,I have been working on the biomedical protocol for 4 years and my son is about 80% recovered. I am positive he will be recovered completely in 2 years. I guess the thing that surprises most people is that he is now 20 years old; too many think it is not possible for the older ones to recover. Wrong. He is going to be perfectly normal.Our life was once one of overwhelming depression, screaming, violent outbursts, (when they get bigger, the problems are bigger) SSRI's, OT, PT, and no hope in sight. We tried to go the exercise route at one time and DS and I got up at 6:30 am. and dragged him to the Y for exercise to help with the depression. We alternated with each other mornings. It was drudgery but we were able to do it only because he was still small enough to physically drag him into the car. Finally, after a couple months, we saw no results and gave up that. We literally had no hope at all. We had no idea what he would do some day. No one could live with him; he beat his younger sister whenever she pissed him off (you'd think she could learn to keep her mouth shut) but started attacking us, too, when he got bigger.One day, I went to the bathroom and wondered if other countries had the same number of autistic kids. I went to the computer and googled autism. Generation Rescue was number 1 and I clicked on it. What I saw make me practically fall off my chair. There was a poster that said, "If you caused a 10,000% increase in autism, wouldn't you try to cover it up?" I had missed this whole dialogue in the news. From there I went on to the ARI site and spent hours and hours reading, listening to videos, trying to figure out where to start. But I was so excited because I now had hope. Finally, some hope for his future and ours.Right now, he is laughing in the next room with a friend. It is nothing short of a miracle; he has a life and a future. What have I done to recover him this far? I read, researched, and watched videos like a mad woman. I was so OCD (and still am) on the subject of biomedical. We tried various diets but are on none at the moment. To me, the diets are so important to find out what their problems are. We did the SCD and I learned that yeast is not a big problem for him. We did GFCF and learned that he has a problem with dairy but not gluten. But because of his age, it was hard for him to give up dairy so we learned that the digestive enzymes worked for him. Through HBOT we learned that inflammation was a major component of his depression. We then found enzymes that help with inflammation (SerraGold) and Enhansa helps a lot, too. Through Yasko, we learned that he had a bacteria problem that we cleared out with OLE, OoO, Neem Plus, etc.I have read about 20 books and each one gave me invaluable information that helped me learn a little more about what his particular problems are. I keep a biomedical library and lend the books.I attend a conference each year. Chicago is about 2 hrs away so I go to Autism One every year now and have found ways to make it fairly low cost. I would not be so far without the conferences, for sure. I often go to them feeling like I am dead-ended and don't know what to do next. I come home rejuvenated and with several ideas to try and books to read. Giving up is not an option. I thank God everyday for the gift of hope he has given us.My secret, then has been: research, experiment, go to conferences, network with the TACA group in my city, etc.Keep the faith, sisters, and let's not fragment ourselves with division.With my love,sally To: mb12 valtrex Sent: Mon, August 16, 2010 11:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Yes, there are atleast two women who I can think of off the top of my head who have had tremendous success. I have seen neither around here lately - but it does happen. Both will tell you it takes time. I don't recall either women ever mentioning hbot but I could be wrong. It is so hard. Every child is so different. There are so many envionmental considerations and the "spectrum" part of the disorder is what makes it so frustrating. Think of it like caner: there is more than one cause and more than one treatment. I can point out a few more women on gfcfkids yahoo group that have also experienced success with recovery using diet and biomedical . You can find success stories on blogs and you tube. there are many many stories out there. Go to stopcallingitautism.com - you can find success stories there as well. To: mb12 valtrex Sent: Mon, August 16, 2010 12:44:28 PMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 , we are not pts of Dr. G's, his approach is interesting to me and I'm reading all of it, but it is not our approach at this time. My son is also not recovered, however, when I think about where we started and where we are now we have made major progress. I'm writing in hopes my words are encouraging to you to have the energy and hope to keep going at what you are doing and in exploring new stuff. My son is almost 6, we started biomed 3 yrs ago. The first year was too gentle and we switched to a DAN and have done two years of really aggressive bio med and I would say my son is somewhere between 45-60% recovered depending on my mood and the kind of day he's having. I think about his progress incrementally. My son was injured by his toxic overload from the top of his head to the bottom of his feet and everything in between. He was hit pretty hard so we had a lot of ground to cover. I get smarter as we go along too, more effective, a better consumer of bio med, that's helping. If this was even just hard there would be much more recovery, it isn't it is incredibly difficult and I think it's a testament to how loving and hardworking Autism parents are, that we have as many kids recovering as we do. This is damn complicated. my son's an onion, layer by layer we heal, find out more about what is damaged and needing attention. We've had some wow's -removing casein, mb12, the mito cocktail, chelation, hbot and prednisone are looking currently to be taking him much further forward. Carnisine has been huge for my son, vit A as well, liquid DMG from Foodscience from Vermont, Gaba. Getting scopes done and doing pentasa and ultrase (prescription digestive enzymes), doing the SPECT, finding absence seizures and doing lamictal, realizing how troublesome soy was, making water the only drink my son gets, Clo, oxcytocin, vinpotecine. We bombed on a few things-liver life. We had no reslut from some very popular stuff-enhansa was one. We found my son was hypothyroid-hoping synthroid will assist with that for now. Found out he was low iron, supplementing iron.TD glut creme also a small wowI think my one suggestion came from Baker and pangborn's book, although dated, was that on some supplements you need to go pretty high before you will see benefit. I worry that people quit on stuff without taking it high enough or staying with it long enough. Some of our wow's have been behavioral-listening therapy has helped quite a bit with auditory processing, a developmental optometrist gave my son glasses with prisms that have made a huge difference. We found a very terrific, home-based speech therapist and we do heavy duty pieces of work with her and then break for a few months. A gentle force chiropractor made a huge difference. An OT with tons of sensory experience and a floortime approach helped design a sensory diet for my son at home and school which was terrific.All that said,my son's ATEC hasn't budged out of the 30's for 6 months. He's changed quite a bit during that time but the ATEC's not revealing it.This August we are doing 40 hard chamber hbot dives at 1.5, did a prednisone IV and will most likely do oral and then pulsed dose oral pred for a while. Four IV chelations, will try aricept in Sept. And have taken his mito supps up to the top doses. Also rearraged when we were giving supps and dumped a bunch that were useless for us with our DANs help.We are definately still treating sx and not the root issue-the immune system and viral mess and although it's backwards I am gaining the confidence to start working on a deeper level to see if we can heal at the root so that all the symptom relieving meds and supps can be dropped.Sorry to go on and on....I just want you to hang in there. I am, on some days with more hope than others. There are lots of ways to do this work. And even in kids that are 'nonresponders' I would like to think that certain symptoms were improved and that there are avenues yet to be explored. Wishing healing for all of our children no matter how we get there. Alison M Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 ,I am not sure what was the problem; all I know was that whenever I gave him any of anti-bacterials, he became extremely depressed and violent again. So, to keep things going well, I avoided them and any blends that contained those as components. Then at Autism One, I asked Dr. Yasko at a Q & A session, what I should do about it, she replied, "Go back and started again, slowly." I "got it" that this was a herxeimer effect; we actually had an opportunity to clear out another problem. So I did use the anti-bacterials and he made good gains from that, too, this spring.Something that a TACA mom said to me about Enhansa triggered a memory. I mentioned to her that I had on a dose of about 900 mg when only 600 was recommended for Enhansa. She said they had her son on 3,000 (!) mg when he finished. (I knew he had made great gains and they were able to entirely take him off his meds.) That brings home the important concept that these kids need "therapeutic doses" of supplements or the supplements don't do much. So if isn't getting a therapeutic dose of a supplement, I am taking him off of it. It will save us time, money, and sanity. So we are ramping up on the Enhansa soon.Another interesting thing a Mom at AO said to me once was that her son was on Yasko's protocol and had plateaued so they took him off his supplements entirely for awhile and he jumped ahead in development. Meanwhile, the tests were being submitted and Yasko (who did not know) made notes on his tests that all was great. So sometimes, I think it works to take them off the supplements, at least for a while. If they do indeed need them, we'll know soon enough, and can go back to them.sallyTo: mb12 valtrex Sent: Mon, August 16, 2010 8:29:23 PMSubject: Re: The many doctors - Recovery Histories Sally, this is beautifully history. Thank you so much for share it. What bacteria did you son had? clostrudium?. My son has that but my DAN doctor say that HBOT will help but I am not sure about it. Thank you again. To: mb12 valtrex Sent: Mon, August 16, 2010 8:01:22 PMSubject: Re: The many doctors - Recovery Histories ,I have been working on the biomedical protocol for 4 years and my son is about 80% recovered. I am positive he will be recovered completely in 2 years. I guess the thing that surprises most people is that he is now 20 years old; too many think it is not possible for the older ones to recover. Wrong. He is going to be perfectly normal.Our life was once one of overwhelming depression, screaming, violent outbursts, (when they get bigger, the problems are bigger) SSRI's, OT, PT, and no hope in sight. We tried to go the exercise route at one time and DS and I got up at 6:30 am. and dragged him to the Y for exercise to help with the depression. We alternated with each other mornings. It was drudgery but we were able to do it only because he was still small enough to physically drag him into the car. Finally, after a couple months, we saw no results and gave up that. We literally had no hope at all. We had no idea what he would do some day. No one could live with him; he beat his younger sister whenever she pissed him off (you'd think she could learn to keep her mouth shut) but started attacking us, too, when he got bigger.One day, I went to the bathroom and wondered if other countries had the same number of autistic kids. I went to the computer and googled autism. Generation Rescue was number 1 and I clicked on it. What I saw make me practically fall off my chair. There was a poster that said, "If you caused a 10,000% increase in autism, wouldn't you try to cover it up?" I had missed this whole dialogue in the news. From there I went on to the ARI site and spent hours and hours reading, listening to videos, trying to figure out where to start. But I was so excited because I now had hope. Finally, some hope for his future and ours.Right now, he is laughing in the next room with a friend. It is nothing short of a miracle; he has a life and a future. What have I done to recover him this far? I read, researched, and watched videos like a mad woman. I was so OCD (and still am) on the subject of biomedical. We tried various diets but are on none at the moment. To me, the diets are so important to find out what their problems are. We did the SCD and I learned that yeast is not a big problem for him. We did GFCF and learned that he has a problem with dairy but not gluten. But because of his age, it was hard for him to give up dairy so we learned that the digestive enzymes worked for him. Through HBOT we learned that inflammation was a major component of his depression. We then found enzymes that help with inflammation (SerraGold) and Enhansa helps a lot, too. Through Yasko, we learned that he had a bacteria problem that we cleared out with OLE, OoO, Neem Plus, etc.I have read about 20 books and each one gave me invaluable information that helped me learn a little more about what his particular problems are. I keep a biomedical library and lend the books.I attend a conference each year. Chicago is about 2 hrs away so I go to Autism One every year now and have found ways to make it fairly low cost. I would not be so far without the conferences, for sure. I often go to them feeling like I am dead-ended and don't know what to do next. I come home rejuvenated and with several ideas to try and books to read. Giving up is not an option. I thank God everyday for the gift of hope he has given us.My secret, then has been: research, experiment, go to conferences, network with the TACA group in my city, etc.Keep the faith, sisters, and let's not fragment ourselves with division.With my love,sally To: mb12 valtrex Sent: Mon, August 16, 2010 11:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 That is amazing and awesome! Yours is a wonderful testimony for those parents who see little hope in their older children. Thank you so much for sharing your story!-TammyTo: mb12 valtrex Sent: Mon, August 16, 2010 8:01:22 PMSubject: Re: The many doctors - Recovery Histories ,I have been working on the biomedical protocol for 4 years and my son is about 80% recovered. I am positive he will be recovered completely in 2 years. I guess the thing that surprises most people is that he is now 20 years old; too many think it is not possible for the older ones to recover. Wrong. He is going to be perfectly normal.Our life was once one of overwhelming depression, screaming, violent outbursts, (when they get bigger, the problems are bigger) SSRI's, OT, PT, and no hope in sight. We tried to go the exercise route at one time and DS and I got up at 6:30 am. and dragged him to the Y for exercise to help with the depression. We alternated with each other mornings. It was drudgery but we were able to do it only because he was still small enough to physically drag him into the car. Finally, after a couple months, we saw no results and gave up that. We literally had no hope at all. We had no idea what he would do some day. No one could live with him; he beat his younger sister whenever she pissed him off (you'd think she could learn to keep her mouth shut) but started attacking us, too, when he got bigger.One day, I went to the bathroom and wondered if other countries had the same number of autistic kids. I went to the computer and googled autism. Generation Rescue was number 1 and I clicked on it. What I saw make me practically fall off my chair. There was a poster that said, "If you caused a 10,000% increase in autism, wouldn't you try to cover it up?" I had missed this whole dialogue in the news. From there I went on to the ARI site and spent hours and hours reading, listening to videos, trying to figure out where to start. But I was so excited because I now had hope. Finally, some hope for his future and ours.Right now, he is laughing in the next room with a friend. It is nothing short of a miracle; he has a life and a future. What have I done to recover him this far? I read, researched, and watched videos like a mad woman. I was so OCD (and still am) on the subject of biomedical. We tried various diets but are on none at the moment. To me, the diets are so important to find out what their problems are. We did the SCD and I learned that yeast is not a big problem for him. We did GFCF and learned that he has a problem with dairy but not gluten. But because of his age, it was hard for him to give up dairy so we learned that the digestive enzymes worked for him. Through HBOT we learned that inflammation was a major component of his depression. We then found enzymes that help with inflammation (SerraGold) and Enhansa helps a lot, too. Through Yasko, we learned that he had a bacteria problem that we cleared out with OLE, OoO, Neem Plus, etc.I have read about 20 books and each one gave me invaluable information that helped me learn a little more about what his particular problems are. I keep a biomedical library and lend the books.I attend a conference each year. Chicago is about 2 hrs away so I go to Autism One every year now and have found ways to make it fairly low cost. I would not be so far without the conferences, for sure. I often go to them feeling like I am dead-ended and don't know what to do next. I come home rejuvenated and with several ideas to try and books to read. Giving up is not an option. I thank God everyday for the gift of hope he has given us.My secret, then has been: research, experiment, go to conferences, network with the TACA group in my city, etc.Keep the faith, sisters, and let's not fragment ourselves with division.With my love,sallyTo: mb12 valtrex Sent: Mon, August 16, 2010 11:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 You better believe it! "Dr. Google" has been a God-send. I don't know how people did this 20 years ago before there was so much instant information to share. I'd have never ever guessed in a million years that ASD was a physical condition. It blows my mind at how people were able to draw a conclusion and start treatment without the internet. I log on every night and I am completely blown away at how much information my son's pedi, teachers, therapists, and pathologists failed to give me. I thank God everyday for the people who share their experiences so I can learn. I would like to add that most often I take the advice from people who have had or are experiencing success with their children and have nothing to gain (financially speaking) by giving their time. Those are the people I tend to listen to the most. Someday I hope to pay it forward.-TammyTo: Mb12valtrex <mb12 valtrex >Sent: Mon, August 16, 2010 8:05:50 PMSubject: Re: The many doctors - Recovery Histories My son is 16 yrs old. He is about 80% recovered. Had only bad reactions to SSRIs. Low dose and tried all kinds. Some worked for a while, like Risperdal, and then gains faded and side effects of weight gain were detrimental to his health. Paxil and Luvox almost drove him off the deep end - OCD thru the roof. We have been with DAN for 13 yrs wih great results. Did chelation and HBOT, transfer factor was a 'wow' also. There was not all this info when my son was young, viruses weren't really in the autism news. Hard to find other parents to network with who didn't think I was a freak for doing natural stuff, especially a dietary intervention! Couldn't but food unless in a health food store. Vaccine involvement hit the news in 1999- until then I was vaccinating my baby. My point is that parents today are lucky to have all this info available and share stories. I feel your pain in wanting to rush it. If your doc is not helping, then move on. I've been with three big DANs and they each did something for us but not a cure. It's frustrating and expensive - we have almost no retirement saved due to this. Hang in there - I hate the saying that it's a marathon not a race b/c I am a sprinter! But it's so worth it. Heidi J Heidi J Sender: mb12 valtrex Date: Mon, 16 Aug 2010 12:11:29 -0700To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: The many doctors - Recovery Histories There are many kids that have recovered without Dr. G. www.danasview.net is someone that I can think of off the top of my head. And she did DAN without a Dr.My son is about 95% recovered. Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~ I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Alison, How much do you know about iron levels? I was moderately to severely low in iron during my pregnancy and had to supplement until it began to make a mess of my stomach. I've always wondered how that might have affected my son. To: mb12 valtrex Sent: Mon, August 16, 2010 10:05:00 PMSubject: Re: The many doctors - Recovery Histories , we are not pts of Dr. G's, his approach is interesting to me and I'm reading all of it, but it is not our approach at this time. My son is also not recovered, however, when I think about where we started and where we are now we have made major progress. I'm writing in hopes my words are encouraging to you to have the energy and hope to keep going at what you are doing and in exploring new stuff. My son is almost 6, we started biomed 3 yrs ago. The first year was too gentle and we switched to a DAN and have done two years of really aggressive bio med and I would say my son is somewhere between 45-60% recovered depending on my mood and the kind of day he's having. I think about his progress incrementally. My son was injured by his toxic overload from the top of his head to the bottom of his feet and everything in between. He was hit pretty hard so we had a lot of ground to cover. I get smarter as we go along too, more effective, a better consumer of bio med, that's helping. If this was even just hard there would be much more recovery, it isn't it is incredibly difficult and I think it's a testament to how loving and hardworking Autism parents are, that we have as many kids recovering as we do. This is damn complicated. my son's an onion, layer by layer we heal, find out more about what is damaged and needing attention. We've had some wow's -removing casein, mb12, the mito cocktail, chelation, hbot and prednisone are looking currently to be taking him much further forward. Carnisine has been huge for my son, vit A as well, liquid DMG from Foodscience from Vermont, Gaba. Getting scopes done and doing pentasa and ultrase (prescription digestive enzymes), doing the SPECT, finding absence seizures and doing lamictal, realizing how troublesome soy was, making water the only drink my son gets, Clo, oxcytocin, vinpotecine. We bombed on a few things-liver life. We had no reslut from some very popular stuff-enhansa was one. We found my son was hypothyroid-hoping synthroid will assist with that for now. Found out he was low iron, supplementing iron.TD glut creme also a small wowI think my one suggestion came from Baker and pangborn's book, although dated, was that on some supplements you need to go pretty high before you will see benefit. I worry that people quit on stuff without taking it high enough or staying with it long enough. Some of our wow's have been behavioral-listening therapy has helped quite a bit with auditory processing, a developmental optometrist gave my son glasses with prisms that have made a huge difference. We found a very terrific, home-based speech therapist and we do heavy duty pieces of work with her and then break for a few months. A gentle force chiropractor made a huge difference. An OT with tons of sensory experience and a floortime approach helped design a sensory diet for my son at home and school which was terrific.All that said,my son's ATEC hasn't budged out of the 30's for 6 months. He's changed quite a bit during that time but the ATEC's not revealing it.This August we are doing 40 hard chamber hbot dives at 1.5, did a prednisone IV and will most likely do oral and then pulsed dose oral pred for a while. Four IV chelations, will try aricept in Sept. And have taken his mito supps up to the top doses. Also rearraged when we were giving supps and dumped a bunch that were useless for us with our DANs help.We are definately still treating sx and not the root issue-the immune system and viral mess and although it's backwards I am gaining the confidence to start working on a deeper level to see if we can heal at the root so that all the symptom relieving meds and supps can be dropped.Sorry to go on and on....I just want you to hang in there. I am, on some days with more hope than others. There are lots of ways to do this work. And even in kids that are 'nonresponders' I would like to think that certain symptoms were improved and that there are avenues yet to be explored. Wishing healing for all of our children no matter how we get there. Alison M Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 My son is recovered. We did biomed, hbot; chelation and classical homeopathy. It was the homeopathy that sent him over the finish line. My son is not on a diet or any supplements. Join the autism-mercury group and read through the archives as there are many stories of recovered kids there too. Re: The many doctors - Recovery Histories There are many kids that have recovered without Dr. G. www.danasview.net is someone that I can think of off the top of my head. And she did DAN without a Dr. My son is about 95% recovered. Cheryl ~http://www.gryffins-tail.blogspot.com ~@midian42~ > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > Thank you for sharing. > [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I don't know much about how iron levels work when pregnant. My son first was diagnosed as anemic at 8 months, we did a little iron then...this is pre- vax injury and really falling into Autism. Starting last August my son's ferritin level was starting to show up a little low again. We supplemented a smidge of iron all year (have to be careful becuase it can cause oxidative stress to supplement iron). His level has normalized but our DAN wants us to keep supplementing. Iron is impt for attention, focus and IQ. After a ton of experimentation I've found that the Solgar gentle iron does not bother his gut, and he's a gut kid. He takes around 5-15mgs daily. Alison Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Since we are talking about iron levels, I thought I would chime in and ask a question. Everyone seems to be talking about low iron levels. My daughters have always been high. Anyone know why some kids levels of iron are always high? Thanks, Sandy > > We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of > course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I have been thinking about this lately. And I am thinking it would be best to rid pathogens and toxins with biomed and then finish with homeopathy. Because at this point in time, I am seeing homeopathy good at retraining the immune system, but not the best at ridding gobs of infections and toxins or rather takes too long of time. And, ridding the pathogens and toxins via biomed doesn't appear to be retraining the immune system to keep the pathogens from regrowing. So, I am thinking that biomed then homeopathy would be the best plan, and your story is a good example that this is true. Love and prayers, Heidi N My son is recovered. We did biomed, hbot; chelation and classical homeopathy. It was the homeopathy that sent him over the finish line. My son is not on a diet or any supplements. Join the autism-mercury group and read through the archives as there are many stories of recovered kids there too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Hi , Thank you for your sharing. I have wondered if you done biomed at the same time with classical hoemaopathy ? Also whos is your homepathy ? we just started with Pierre Fonatine last week we have done first consultancy now ý am waiting for his remedies but ý wonder if ý start with DAN doctor at the same time with homeopathy or shall wait for the homeopathy result first than decide to go to DAN doctor Did you applied any diet ? how old is child now and how long it took homeoapthy to help him. sorry ý asked so much ýn advance thank you foro your message. love from Turkey... Sema To: mb12 valtrex From: michelle@...Date: Tue, 17 Aug 2010 10:44:50 -0400Subject: RE: The many doctors - Recovery Histories My son is recovered. We did biomed, hbot; chelation and classical homeopathy. It was the homeopathy that sent him over the finish line.My son is not on a diet or any supplements.Join the autism-mercury group and read through the archives as there are many stories of recovered kids there too.-----Original Message-----Sent: Monday, August 16, 2010 3:11 PMTo: mb12 valtrex Subject: Re: The many doctors - Recovery HistoriesThere are many kids that have recovered without Dr. G. www.danasview.net is someone that I can think of off the top of my head. And she did DAN without a Dr.My son is about 95% recovered.Cheryl~http://www.gryffins-tail.blogspot.com~@midian42~On Aug 16, 2010, at 9:44 AM, Sacoto wrote:> > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment?> I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc.> > Thank you for sharing.> [The entire original message is not included] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Hi ladies, we also have completely lifted my sons autism using classical homeopathy with Pierre Fontaine. We went from swallowing 70 capsules a day to 5 now, and are still on the diet but not nearly as strictly. He has made major strides in his cfs and mito dysfunction, where no biomed could even touch it, and his social/emotional skills. He has play dates, a best buddy and plays appropriately with toys 100% of the time. Classical Homeopathy saved my son and myself. We started in March of this year. Much love and healing, Beth > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > Thank you for sharing. > > > > [The entire original message is not included] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Hi Beth,In such a short period you heal your son ? Your son must be very mild.May i know what supplements you have given your sons .Regards,To: mb12 valtrex Sent: Wednesday, August 18, 2010 11:52:45Subject: Re: The many doctors - Recovery Histories Hi ladies, we also have completely lifted my sons autism using classical homeopathy with Pierre Fontaine. We went from swallowing 70 capsules a day to 5 now, and are still on the diet but not nearly as strictly. He has made major strides in his cfs and mito dysfunction, where no biomed could even touch it, and his social/emotional skills. He has play dates, a best buddy and plays appropriately with toys 100% of the time. Classical Homeopathy saved my son and myself. We started in March of this year. Much love and healing, Beth > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > Thank you for sharing. > > > > [The entire original message is not included] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Alison-You're a champion,keep up the fight. Your son will keep getting better with you on his side. Tammy-What type of iron did you take?Floradix is a great supplement because it contains iron and B vitamins.I heard someone else mention that iron deficiency anemia led to their child's celiac disease-dont know much about that connection so you may be on to something there. Do you know your or sons blood type? Type As have problems with iron absorption because we are lacking intinsic factor which helps absorb iron and B vitamins-many of us on this list have had these problems which lead to many more.We also have sluggish immune systems.Dr D'Adamo who wrote the blood type diet/lifestyle books to my knowledge has not connected Autism to blood type but 90% of those with ASD are blood type A so i think there is a connection somehow.when you read his books it makes sense how GFCF works so well for most but not all. Anyhow,my 2 cents. And to the other moms-I know this is all confusing for us,I get overwhelmed alot just by reading this board and all the things others are doing for their kids. BUT what I would say to you is-not what every doctor thinks but what do YOU think your child needs. You spend the most time with them you are the best detective here to figure out what is causing the problems you see manifesting as Autism. I have done things I found on my own and my DAN is okay with that but I also follow his recommendations for the most part.For example, I did not feel safe with the dose/form of chelation he recommended so I tried another and so far so good. My son is not recovered but in one years time he is about 90% better. He was a regressor with gut issues,heavy metal overload and very yeasty so thats what I focus on. In 10 months he no longer needed OT,in a regular kindergarten class per school's recommendation although I requested more accomodations be made for him.I dont do everything the "experts" say because they dont know my son like I do.All this is to say, you above anyone else know what your child needs,dont get overwhelmed by all the info out there. our kids are all different,let your child be your guide when choosing treatments. Hope that helps,Melinda To: mb12 valtrex Sent: Mon, August 16, 2010 10:20:53 PMSubject: Re: The many doctors - Recovery Histories Alison, How much do you know about iron levels? I was moderately to severely low in iron during my pregnancy and had to supplement until it began to make a mess of my stomach. I've always wondered how that might have affected my son. To: mb12 valtrex Sent: Mon, August 16, 2010 10:05:00 PMSubject: Re: The many doctors - Recovery Histories , we are not pts of Dr. G's, his approach is interesting to me and I'm reading all of it, but it is not our approach at this time. My son is also not recovered, however, when I think about where we started and where we are now we have made major progress. I'm writing in hopes my words are encouraging to you to have the energy and hope to keep going at what you are doing and in exploring new stuff. My son is almost 6, we started biomed 3 yrs ago. The first year was too gentle and we switched to a DAN and have done two years of really aggressive bio med and I would say my son is somewhere between 45-60% recovered depending on my mood and the kind of day he's having. I think about his progress incrementally. My son was injured by his toxic overload from the top of his head to the bottom of his feet and everything in between. He was hit pretty hard so we had a lot of ground to cover. I get smarter as we go along too, more effective, a better consumer of bio med, that's helping. If this was even just hard there would be much more recovery, it isn't it is incredibly difficult and I think it's a testament to how loving and hardworking Autism parents are, that we have as many kids recovering as we do. This is damn complicated. my son's an onion, layer by layer we heal, find out more about what is damaged and needing attention. We've had some wow's -removing casein, mb12, the mito cocktail, chelation, hbot and prednisone are looking currently to be taking him much further forward. Carnisine has been huge for my son, vit A as well, liquid DMG from Foodscience from Vermont, Gaba. Getting scopes done and doing pentasa and ultrase (prescription digestive enzymes), doing the SPECT, finding absence seizures and doing lamictal, realizing how troublesome soy was, making water the only drink my son gets, Clo, oxcytocin, vinpotecine. We bombed on a few things-liver life. We had no reslut from some very popular stuff-enhansa was one. We found my son was hypothyroid-hoping synthroid will assist with that for now. Found out he was low iron, supplementing iron.TD glut creme also a small wowI think my one suggestion came from Baker and pangborn's book, although dated, was that on some supplements you need to go pretty high before you will see benefit. I worry that people quit on stuff without taking it high enough or staying with it long enough. Some of our wow's have been behavioral-listening therapy has helped quite a bit with auditory processing, a developmental optometrist gave my son glasses with prisms that have made a huge difference. We found a very terrific, home-based speech therapist and we do heavy duty pieces of work with her and then break for a few months. A gentle force chiropractor made a huge difference. An OT with tons of sensory experience and a floortime approach helped design a sensory diet for my son at home and school which was terrific.All that said,my son's ATEC hasn't budged out of the 30's for 6 months. He's changed quite a bit during that time but the ATEC's not revealing it.This August we are doing 40 hard chamber hbot dives at 1.5, did a prednisone IV and will most likely do oral and then pulsed dose oral pred for a while. Four IV chelations, will try aricept in Sept. And have taken his mito supps up to the top doses. Also rearraged when we were giving supps and dumped a bunch that were useless for us with our DANs help.We are definately still treating sx and not the root issue-the immune system and viral mess and although it's backwards I am gaining the confidence to start working on a deeper level to see if we can heal at the root so that all the symptom relieving meds and supps can be dropped.Sorry to go on and on....I just want you to hang in there. I am, on some days with more hope than others. There are lots of ways to do this work. And even in kids that are 'nonresponders' I would like to think that certain symptoms were improved and that there are avenues yet to be explored. Wishing healing for all of our children no matter how we get there. Alison M Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Sally- Thanks so much for sharing your story,so encouraging to read! Melinda To: mb12 valtrex Sent: Mon, August 16, 2010 9:58:08 PMSubject: Re: The many doctors - Recovery Histories That is amazing and awesome! Yours is a wonderful testimony for those parents who see little hope in their older children. Thank you so much for sharing your story!-Tammy To: mb12 valtrex Sent: Mon, August 16, 2010 8:01:22 PMSubject: Re: The many doctors - Recovery Histories ,I have been working on the biomedical protocol for 4 years and my son is about 80% recovered. I am positive he will be recovered completely in 2 years. I guess the thing that surprises most people is that he is now 20 years old; too many think it is not possible for the older ones to recover. Wrong. He is going to be perfectly normal.Our life was once one of overwhelming depression, screaming, violent outbursts, (when they get bigger, the problems are bigger) SSRI's, OT, PT, and no hope in sight. We tried to go the exercise route at one time and DS and I got up at 6:30 am. and dragged him to the Y for exercise to help with the depression. We alternated with each other mornings. It was drudgery but we were able to do it only because he was still small enough to physically drag him into the car. Finally, after a couple months, we saw no results and gave up that. We literally had no hope at all. We had no idea what he would do some day. No one could live with him; he beat his younger sister whenever she pissed him off (you'd think she could learn to keep her mouth shut) but started attacking us, too, when he got bigger.One day, I went to the bathroom and wondered if other countries had the same number of autistic kids. I went to the computer and googled autism. Generation Rescue was number 1 and I clicked on it. What I saw make me practically fall off my chair. There was a poster that said, "If you caused a 10,000% increase in autism, wouldn't you try to cover it up?" I had missed this whole dialogue in the news. From there I went on to the ARI site and spent hours and hours reading, listening to videos, trying to figure out where to start. But I was so excited because I now had hope. Finally, some hope for his future and ours.Right now, he is laughing in the next room with a friend. It is nothing short of a miracle; he has a life and a future. What have I done to recover him this far? I read, researched, and watched videos like a mad woman. I was so OCD (and still am) on the subject of biomedical. We tried various diets but are on none at the moment. To me, the diets are so important to find out what their problems are. We did the SCD and I learned that yeast is not a big problem for him. We did GFCF and learned that he has a problem with dairy but not gluten. But because of his age, it was hard for him to give up dairy so we learned that the digestive enzymes worked for him. Through HBOT we learned that inflammation was a major component of his depression. We then found enzymes that help with inflammation (SerraGold) and Enhansa helps a lot, too. Through Yasko, we learned that he had a bacteria problem that we cleared out with OLE, OoO, Neem Plus, etc.I have read about 20 books and each one gave me invaluable information that helped me learn a little more about what his particular problems are. I keep a biomedical library and lend the books.I attend a conference each year. Chicago is about 2 hrs away so I go to Autism One every year now and have found ways to make it fairly low cost. I would not be so far without the conferences, for sure. I often go to them feeling like I am dead-ended and don't know what to do next. I come home rejuvenated and with several ideas to try and books to read. Giving up is not an option. I thank God everyday for the gift of hope he has given us.My secret, then has been: research, experiment, go to conferences, network with the TACA group in my city, etc.Keep the faith, sisters, and let's not fragment ourselves with division.With my love,sally To: mb12 valtrex Sent: Mon, August 16, 2010 11:44:28 AMSubject: The many doctors - Recovery Histories I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. Thank you for sharing. To: "mb12 valtrex " <mb12 valtrex >Sent: Mon, August 16, 2010 12:02:02 PMSubject: Re: The many doctors Welcome to my current nightmare... Appointment with 3rd Dan! this Thursday... I even considered stopping all of this and just concentrating on behavioral therapy.. But I am looking for a miracle.. And I intend to get it... Sent from my iPhone We have some doctors telling us we need MB12 and then add HBOT, that will help our kids. Then another saying if your child is an overmethylator then MB12 will cause more problems, your child needs hydroxy B12 and 100 other supplements per day. Another doctor saying many need AEDs, HBOT and IVIG. Another saying chelation will solve all the problems. Yet another doctor tells us low doses of DNA and RNA anti-virals will do the trick. And another says only high dose anti-virals and SSRIs will work. Of course another will say you must pierce the biofilm and clear the body of yeast and strep to get well. Others says lyme and its co-infections are the real problem and still others believe allergies or chemical sensitivies are the main culprit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 is it possible to do classical homeopathy with Pierre Fontaine while also using some meds and supps? My son has seizures and is hypothyroid, at least in the beginning we would have to stay on these meds, does that compromise the homeopathic remedies? I'm interested in doing homeopathy and bio med at the same time, can you do that? Alison M Re: The many doctors - Recovery Histories Hi ladies, we also have completely lifted my sons autism using classical homeopathy with Pierre Fontaine. We went from swallowing 70 capsules a day to 5 now, and are still on the diet but not nearly as strictly. He has made major strides in his cfs and mito dysfunction, where no biomed could even touch it, and his social/emotional skills. He has play dates, a best buddy and plays appropriately with toys 100% of the time. Classical Homeopathy saved my son and myself. We started in March of this year. Much love and healing, Beth> > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment?> > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc.> > > > Thank you for sharing.> > > > [The entire original message is not included]> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Alison, Yes, you can do both. (at least with pierre – others require you to stop) As far as them compromising the remedies, I do not think so – but you can ask him to be sure. My son was on armour when we first started (he no longer is). From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of DavAliNee@... Sent: Wednesday, August 18, 2010 8:20 AM To: mb12 valtrex Subject: Re: Re: The many doctors - Recovery Histories is it possible to do classical homeopathy with Pierre Fontaine while also using some meds and supps? My son has seizures and is hypothyroid, at least in the beginning we would have to stay on these meds, does that compromise the homeopathic remedies? I'm interested in doing homeopathy and bio med at the same time, can you do that? Alison M Re: The many doctors - Recovery Histories Hi ladies, we also have completely lifted my sons autism using classical homeopathy with Pierre Fontaine. We went from swallowing 70 capsules a day to 5 now, and are still on the diet but not nearly as strictly. He has made major strides in his cfs and mito dysfunction, where no biomed could even touch it, and his social/emotional skills. He has play dates, a best buddy and plays appropriately with toys 100% of the time. Classical Homeopathy saved my son and myself. We started in March of this year. Much love and healing, Beth > > > > > I am getting crazy with all the different opinions... There is any one in this group beside the Dr. G's patients that recovery his/her child with biomedical treatment? > > I need to hear good experience in order to keep going with chelation, HBOT, B12, supplements, etc. > > > > Thank you for sharing. > > > > [The entire original message is not included] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 thank you! Re: The many doctors - Recovery Histories Hi ladies, we also have completely lifted my sons autism using classicalhomeopathy with Pierre Fontaine. We went from swallowing 70 capsulesa day to 5 now, and are still on the diet but not nearly asstrictly. He has made major strides in his cfs and mito dysfunction,where no biomed could even touch it, and his social/emotionalskills. He has play dates, a best buddy and plays appropriately withtoys 100% of the time. Classical Homeopathy saved my son and myself. We started in March ofthis year. Much love and healing, Beth> > > > > I am getting crazy with all the different opinions... There is anyone in this group beside the Dr. G's patients that recovery his/her child withbiomedical treatment?> > I need to hear good experience in order to keep going with chelation,HBOT, B12, supplements, etc.> > > > Thank you for sharing.> > > > [The entire original message is not included]> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 absolutely you can do both until you are ready to make a smooth transition! for us when it was time to remove supplements I did it in incriments (spelling, lol!) the same way I had added them initially. Our first supplements to go were antifungals (rx) at about 6 weeks in. The two major issues that were resolved were mito dysfunction and social emotional skills. The same way a body is shocked if too many things are added at once, the same holds true for removal. We are down to basics, a multi, fish oil, 1 capsule of c, and thats it (probiotics once in awhile). We have been able to add back all formerly intolerant fruits and vegtables (phenols, etc..). I saw on another thread I believe someone post that homeopathy will work only if biomed is done first, that is simply not true, it uses a different mechanism for healing. It strengthens the vital force and promotes the body to heal itself. I have never done any biomedical intervention on myself, and I feel better than I ever have. My son no longer shows any signs of autism or adhd (inattentive), met all goals for st, pt and ot within the six month time frame. Not everyone may respond as quickly but most of the people I have met are showing gains. the best book to read is impossible cure by amy lansky. Her son from what I understand is still autism free, living a typical life and headed to college away from home right now. much love, and healing, Beth > > > > > > > > > > > > > > I am getting crazy with all the different opinions... There is any > one in this group beside the Dr. G's patients that recovery his/her child with > biomedical treatment? > > > > > I need to hear good experience in order to keep going with chelation, > HBOT, B12, supplements, etc. > > > > > > > > > > Thank you for sharing. > > > > > > > > > > > > > [The entire original message is not included] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 I didn't mean it this way. I have seen a lot of posts of people who went from biomed to homeopathy and homeopathy to biomed, and it appears that the most success was going from biomed to homeopathy. But, surely, there are some who only did homeopathy and got recoveries and surely there are those who only did biomed. I have seen the most recoveries from biomed because that is what we have the most people doing. But, I personally feel homeopathy should produce better results. I think that the practitioners in general need to learn more to be more proficient in it. In other words, as homeopathy progresses, I think we will see it being the better treatment. It's easy to get on this forum and see turmeric and go down to Walmart to buy it. But, with homeopathy, finding out how to do it is not as easy. I am making efforts to learn more though. I feel that doing the treatment correctly is important to being successful. I support homeopathy and feel that people should learn about it. There is a trend going on of people getting more and more ill, and I think we all need to learn about health maintenance and restoration in case this trend continues. Love and prayers, Heidi N " I saw on another thread I believe someone post that homeopathy will work only if biomed is done first, that is simply not true, it uses a different mechanism for healing. " Quote Link to comment Share on other sites More sharing options...
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