RE: Re: ICDRC - questions

[Guest guest]

Helen2373,

May I ask you some questions:

When you go to the clinic, where do you stay? Is it possible to settle really close to it? My son is GFCFSF, so we need to rent an apartment. Is it possible over there?

I am not driving. Is it possible to live very close, does the location have supermarkets, and how is the public transport in the area?

What does the Dr. R do for antiviral treatment?

Thanks in advance,

To: "mb12 valtrex " <mb12 valtrex >Sent: Thu, August 12, 2010 4:15:45 PMSubject: Re: Re: Help finding a DAN near Atlanta that is familiar with Valtrex..

Where in Florida is he located? That really isn't too far for me. Sent from my iPhone

On Aug 12, 2010, at 8:28 AM, "Helen" <helen2373yahoo (DOT) com> wrote:

I live in Atlanta, but we to to Florida to see Rossignol.I think many people in Atlanta use son-Lippitt. I was on her wait list at on point but got in with Rossignol first.As I recall, the wait list was 6 months but they called every few weeks with openings, so it really was a few weeks if you had flexibility. That being said, I have never used her myself so I can't really recommend one way or the other. >> As my previous posts state, I am having trouble with getting the correct scripts from my current doctor. Can anyone help me with a Dan in Georgia that is knowlegable about this

therapy?> > Sent from my iPhone>

[Guest guest]

Wish I had knows, we were down there last week for an appt with him. Would have loved to have met you!! Does he have a hard chamber or just soft? I saw soft through the opened door and when I peeked in some lady ran over and shut the door.

Kerrie

Hi , we are staying in melbourne for the month of August, down here right now and we are pts of Rossignol's. We are here to do hbot. I'd be happy to talk with you about Melbourne. If you'd like I can give you my cell ph # and we can chat. Alison M

[Guest guest]

You still gave me some insights, so Thanks, Helen!

To: mb12 valtrex Sent: Thu, August 12, 2010 4:46:09 PMSubject: Re: ICDRC - questions

There are other people on this board that may be able to better help you...I believe there is someone staying down there this summer to do HBOT.We have stayed near Disney at tt Harbor Lake. They are 2 bedroom apts with full kitchens and they have an awesome waterpark and playground area. We did this mostly because we take our other kids and it gives them a fun reason to be good sitting through the dr visit. And once we stayed at a hotel on the beach bc my husband was randomly at a conference there. it was only a microwave and a fridge though, so the other would be better and that wasnt walking distance. The office is actually in a strip mall but there are not too many shops as I remember. There is an apartment complex-or homes, not certain, it is gated-right next to him. I know nothing about the public transportation, but I do know hat people go and stay there.Your best bet is to call the office. His staff his wonderful and very

helpful, and probably has a list of places to stay, and would be able to answer the questions around public transportation...I am sorry I am not more helpful!> >>> >> As my previous posts state, I am having trouble with getting the correct > >>scripts from my current doctor. Can anyone help me with a Dan in Georgia that is > >>knowlegable about this therapy?> >> > >> Sent from my iPhone> >>> >> >>

[Guest guest]

Hi , we are staying in melbourne for the month of August, down here right now and we are pts of Rossignol's. We are here to do hbot. I'd be happy to talk with you about Melbourne. If you'd like I can give you my cell ph # and we can chat. Alison M Re: Re: Help finding a DAN near Atlanta that is familiar with Valtrex.. Where in Florida is he located? That really isn't too far for me. Sent from my iPhoneOn Aug 12, 2010, at 8:28 AM, "Helen" <helen2373yahoo (DOT) com> wrote: I live in Atlanta, but we to to Florida to see Rossignol.I think many people in Atlanta use son-Lippitt. I was on her wait list at on point but got in with Rossignol first.As I recall, the wait list was 6 months but they called every few weeks with openings, so it really was a few weeks if you had flexibility. That being said, I have never used her myself so I can't really recommend one way or the other. >> As my previous posts state, I am having trouble with getting the correct scripts from my current doctor. Can anyone help me with a Dan in Georgia that is knowlegable about this therapy?> > Sent from my iPhone>

[Guest guest]

Kerrie, what a shame, I would have liked to have met you too! He has 3 hard chambers, which is what we are doing, at 1.5 ata. We dive twice a day. Also doing some IV's while we are here as they are next to impossible to do in Boston. We rented a great little apt on the beach, way out on A1A. It's really been lovely, a pod of dolphins swam in front of our house, there are sea turtles, we saw a manatee - lots to keep my nt daughter occupied if I can get her out of the ocean. My asd son is doing 'ok', not a fan of the beach, homesick for his routines at home, missing school and teachers and with a lot left for us to figure out about why he is so sad, so lethargic, so worried all the time. Heartbreaking to see in a 5 yr old. So we persevere...Alison M Re: Re: ICDRC - questions Wish I had knows, we were down there last week for an appt with him. Would have loved to have met you!! Does he have a hard chamber or just soft? I saw soft through the opened door and when I peeked in some lady ran over and shut the door. Kerrie Hi , we are staying in melbourne for the month of August, down here right now and we are pts of Rossignol's. We are here to do hbot. I'd be happy to talk with you about Melbourne. If you'd like I can give you my cell ph # and we can chat. Alison M

[Guest guest]

Many ICDRC families stay at the Residence Inn in

Melbourne. All the rooms have a complete kitchen.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of Orange Apple

Sent: Thursday, August 12, 2010 10:36 AM

To: mb12 valtrex

Subject: Re: Re: ICDRC - questions

Helen2373,

May I ask you some questions:

When you go to the clinic, where do you stay? Is it possible

to settle really close to it? My son is GFCFSF, so we need to rent an apartment.

Is it possible over there?

I am not driving. Is it possible to live very close,

does the location have supermarkets, and how is the public transport in the

area?

What does the Dr. R do for antiviral treatment?

Thanks in advance,

From: Margo Towner

To: " mb12 valtrex " <mb12 valtrex >

Sent: Thu, August 12, 2010 4:15:45 PM

Subject: Re: Re: Help finding a DAN near Atlanta that is

familiar with Valtrex..

Where in Florida is he located? That really isn't too far

for me.

Sent from my iPhone

On Aug 12, 2010, at 8:28 AM, " Helen " <helen2373yahoo (DOT) com>

wrote:

I live in Atlanta, but we to to Florida to see

Rossignol.

I think many people in Atlanta use son-Lippitt. I was on her wait

list at on point but got in with Rossignol first.

As I recall, the wait list was 6 months but they called every few weeks with

openings, so it really was a few weeks if you had flexibility.

That being said, I have never used her myself so I can't really recommend one

way or the other.

>

> As my previous posts state, I am having trouble with getting the correct

scripts from my current doctor. Can anyone help me with a Dan in Georgia that

is knowlegable about this therapy?

>

> Sent from my iPhone

>

[Guest guest]

They do both hard and soft chamber.

Pamela

From: mb12 valtrex

[mailto:mb12 valtrex ] On Behalf Of ratlenhum@...

Sent: Thursday, August 12, 2010 2:36 PM

To: mb12 valtrex

Subject: Re: Re: ICDRC - questions

Wish I had knows, we were down there last week for an appt with

him. Would have loved to have met you!! Does he have a hard chamber or

just soft? I saw soft through the opened door and when I peeked in some lady

ran over and shut the door.

Kerrie

In a message dated 8/12/2010 1:37:44 P.M. Eastern Daylight Time,

DavAliNee@... writes:

Hi , we are staying in melbourne for the month of August, down here right

now and we are pts of Rossignol's. We are here to do hbot. I'd be happy to talk

with you about Melbourne. If you'd like I can give you my cell ph # and we can

chat. Alison M

[Guest guest]

Thanks, Pamela.

What is the distance between the place and the ICDRCA clinic? What transportation do people use?

Am I going to survive there without a car?

To: mb12 valtrex Sent: Fri, August 13, 2010 12:14:49 AMSubject: RE: Re: ICDRC - questions

Many ICDRC families stay at the Residence Inn in Melbourne. All the rooms have a complete kitchen.

Pamela

From: mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On Behalf Of Orange AppleSent: Thursday, August 12, 2010 10:36 AMTo: mb12 valtrex@ yahoogroups. comSubject: Re: Re: ICDRC - questions

Helen2373,

May I ask you some questions:

When you go to the clinic, where do you stay? Is it possible to settle really close to it? My son is GFCFSF, so we need to rent an apartment. Is it possible over there?

I am not driving. Is it possible to live very close, does the location have supermarkets, and how is the public transport in the area?

What does the Dr. R do for antiviral treatment?

Thanks in advance,

From: Margo Towner <dmtadtmhtyahoo (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Thu, August 12, 2010 4:15:45 PMSubject: Re: Re: Help finding a DAN near Atlanta that is familiar with Valtrex..

Where in Florida is he located? That really isn't too far for me. Sent from my iPhone

On Aug 12, 2010, at 8:28 AM, "Helen" <helen2373yahoo (DOT) com> wrote:

I live in Atlanta, but we to to Florida to see Rossignol.I think many people in Atlanta use son-Lippitt. I was on her wait list at on point but got in with Rossignol first.As I recall, the wait list was 6 months but they called every few weeks with openings, so it really was a few weeks if you had flexibility. That being said, I have never used her myself so I can't really recommend one way or the other. >> As my previous posts state, I am having trouble with getting the correct scripts from my current doctor. Can anyone help me with a Dan in Georgia that is knowlegable about this therapy?> > Sent from my iPhone>

[Guest guest]

Hi , Alison here staying in melbourne. I think that Residence Inn is on Babcock st and to my mind that would be at least a two mile walk. Public transportation is not something I would rely on here. I have not seen one taxi since we've been here and they do have a sporadic bus system but the nurses at ICDRC said it really wasn't functional. We drove our car down from Boston because we looked extensively into renting a car and could not after a ton of research find a rate lower than $700 for a month (I'm talking every kind of coupon, discount, economy car). My asd son flew with his dad. he could not do 3 days in a car. We were also able to bring our 12 yr old blind, farty mutt with us in the car. Perhaps you could ask at ICDRC if they know of housing that is accessible to the clinic either by some kind of shuttle bus from a hotel or within walking distance. They are pretty terrific and they get asked all sorts of questions. I've given them some crazy ones since I've been here and they always come through. We chose to rent through VRBO or HomeAway (can't remember which one we went with) so we could take a small place on the beach on A1A. Rental prices are pretty cheap here, particularly off season as the housing market is in really bad shape. The plus side, we are in a heavenly spot, the only down side-we have a good 35 minute trip to the clinic which we are doing 2x per day for 2 hbot dives. By being here for one month in August we are trying to accomplish a bunch of stuff at the same time; vaca for family (first in 4 yrs), yearly in person visit with Rossignol (doing 2 in persons), 40 hard chamber hbot dives, 4 IV chelations, a trial of IV prednisone, husband got to meet and participate in treatment with DAN as mom has been running the bio med show for a while, would have had to do 1 more month of day camp or activities for nt 9 yr old (ca-ching) and structured play/therapy/learning for asd son. Hope that's not way more info than you want. We love it here, everyone is so nice!Alison M Re: Re: Help finding a DAN near Atlanta that is familiar with Valtrex.. Where in Florida is he located? That really isn't too far for me. Sent from my iPhoneOn Aug 12, 2010, at 8:28 AM, "Helen" <helen2373yahoo (DOT) com> wrote: I live in Atlanta, but we to to Florida to see Rossignol.I think many people in Atlanta use son-Lippitt. I was on her wait list at on point but got in with Rossignol first.As I recall, the wait list was 6 months but they called every few weeks with openings, so it really was a few weeks if you had flexibility. That being said, I have never used her myself so I can't really recommend one way or the other. >> As my previous posts state, I am having trouble with getting the correct scripts from my current doctor. Can anyone help me with a Dan in Georgia that is knowlegable about this therapy?> > Sent from my iPhone>

[Guest guest]

It's about 15 minutes via car. I'm not sure about public

transportation down there. I think most families have a car while

visiting.

Pamela

From:

mb12 valtrex [mailto:mb12 valtrex ] On Behalf

Of Orange Apple

Sent: Friday, August 13, 2010 5:24 AM

To: mb12 valtrex

Subject: Re: Re: ICDRC - questions

Thanks, Pamela.

What is the distance between the place and the ICDRCA

clinic? What transportation do people use?

Am I going to survive there without a car?

From: Pamela P

To: mb12 valtrex

Sent: Fri, August 13, 2010 12:14:49 AM

Subject: RE: Re: ICDRC - questions

Many ICDRC families stay at the

Residence Inn in Melbourne. All the rooms have a complete kitchen.

Pamela

From:

mb12 valtrex@ yahoogroups. com [mailto:mb12 valtrex @yahoogroups. com] On

Behalf Of Orange Apple

Sent: Thursday, August 12, 2010 10:36 AM

To: mb12 valtrex@ yahoogroups. com

Subject: Re: Re: ICDRC - questions

Helen2373,

May

I ask you some questions:

When

you go to the clinic, where do you stay? Is it possible to settle really close

to it? My son is GFCFSF, so we need to rent an apartment. Is it possible

over there?

I

am not driving. Is it possible to live very close, does the location have

supermarkets, and how is the public transport in the area?

What

does the Dr. R do for antiviral treatment?

Thanks

in advance,

From: Margo

Towner <dmtadtmhtyahoo (DOT) com>

To: " mb12 valtrex@ yahoogroups. com " <mb12 valtrex@

yahoogroups. com>

Sent: Thu, August 12, 2010 4:15:45 PM

Subject: Re: Re: Help finding a DAN near Atlanta that is

familiar with Valtrex..

Where

in Florida is he located? That really isn't too far for me.

Sent from my iPhone

On Aug 12, 2010, at 8:28 AM, " Helen " <helen2373yahoo (DOT) com>

wrote:

I live in Atlanta, but we to to Florida to see Rossignol.

I think many people in Atlanta use son-Lippitt. I was on her wait

list at on point but got in with Rossignol first.

As I recall, the wait list was 6 months but they called every few weeks with

openings, so it really was a few weeks if you had flexibility.

That being said, I have never used her myself so I can't really recommend one

way or the other.

>

> As my previous posts state, I am having trouble with getting the correct

scripts from my current doctor. Can anyone help me with a Dan in Georgia that

is knowlegable about this therapy?

>

> Sent from my iPhone

>