Re: Creating Awareness - Grassroots-Cristie.

[Guest guest]

Way to go Cristie and Krissie, you are a brave people. I applaud you for all you are doing. I didn't know that you were in Alberta Cristie! I would have loved to go there for the doc band but way too hard to manage. I have been on line with a couple of people from the Calgary office, I sent them many emails of my daughter Angelina. Who did you see? I have spoken to who has lots of knowledge about plagio, she is the clinical resourse nurse and Judy Mair the OT.

and Angelina in , B.C.

-----Original Message-----From: Cristi [mailto:naive_angel@...]Sent: Friday, June 25, 2004 6:26 AMPlagiocephaly Subject: Re: Creating Awareness - Grassroots.That's great that you're doing that Krissy, and I have good related news in my area. I was called by human resources in charge of the Calgary Health Region. They said that nurses are actually supposed to be giving out information about plagiocephaly at the first home visit (mine never did) and are supposed to sit and talk to the parents about repositioning and tummy time, as well as limiting car and swing use to avoid a flattened head (once again, mine never did). She said she would be talking to every home nurse in the clinics as well as the post-partum department of the hospitals in Calgary and lecturing them about how important it is to stress prevention of plagiocephaly, as well as ordering new flyers to be handed out with the postpartum package and in the clinics.She asked if there was anything else I could think of that could help spread the awareness, and I couldn't really think of anything else (if you guys have any ideas on what else would be helpful that hospitals can do?) but I do have her phone number and can contact her whenever I think of something else.I think I'll start carrying around pamphlets more often, but on top of that (I'm super super shy, and can't think of a proper way to say "Beautiful baby! Flat head.." *grins* and I have anxiety over talking to people I don't know) I'll print out a general letter for whoever I'm giving the pamphlets too, saying that the reason I gave them this pamphlet is because I was starting to notice it slightly in their child, and I wished someone would have came up and did the same to me when Trey was young enough so I could have caught it earlier, just a nicely written letter that will let them know I'm not just being a dolt, that I'm trying to help.> > > I've been on busses and whatnot and have seen mothers come on with> > young babies and I start to notice their head shapes a lot more since> > starting to go through this with Treyton. Before it was something I> > didn't pay much attention to at all. For example, 2 days ago I was> > riding the bus and a young woman came on with a baby who must have> > only been about 2 months old. The baby had a really bad flat spot> > and coning of the head upwards. I thought, that if this was my baby,> > wouldn't I want someone to have said something earlier so I wouldn't> > be dealing with it so late like I am now? So often doctors and> > nurses don't even point things out - the awareness is just not out> > there.> >> > I wanted to say something nicely about it, because I am working on> > trying to expand awareness in my city.. but I didn't say anything> > because I didn't want to come off rude or like I was stepping in> > something that wasn't my business. It just kind of makes me sad now> > to see and to not have said anything, because I can picture that> > woman being told about it when her daughters getting to be too old to> > do anything, or being told about it later when it gets really bad> > because she never knew to start positioning, know what I mean?> >> > For those who caught it late and didn't have doctors or nurses tell> > you about it.. do you wish someone would have said something earlier> > just to get the ball rolling on it? Would you be offended if a> > stranger had given you a pamphlet on plagiocephaly? (I have tons,> > thanks to the kind folks at Cranial Tech)> >> > I know my little campaign with hospitals and doctors won't advance> > too quickly, so until they can help get it out to the masses, is it> > wrong of me to want to start a little grassroots movement with just> > the mothers for now?> >> > What I want to do is just carry some pamphlets around with me and> > hand them out to new moms who look like their children are already> > being affected by it, but how do you do that without them being> > offended by it?> >> >> >> >> > For more plagio info

[Guest guest]

Judy is who I'm seeing She's great, very friendly and good with my

son, and she actually sat and listened to and addressed all my

concerns that the initial pediatrician never bothered about. I'm

super glad I live in this city, not only do we have a clinic nearby

but the people from the clinic are just fabulous.

> >

> > > I've been on busses and whatnot and have seen mothers come on

with

> > > young babies and I start to notice their head shapes a lot

more

> since

> > > starting to go through this with Treyton. Before it was

> something I

> > > didn't pay much attention to at all. For example, 2 days ago

I

> was

> > > riding the bus and a young woman came on with a baby who must

have

> > > only been about 2 months old. The baby had a really bad flat

spot

> > > and coning of the head upwards. I thought, that if this was

my

> baby,

> > > wouldn't I want someone to have said something earlier so I

> wouldn't

> > > be dealing with it so late like I am now? So often doctors

and

> > > nurses don't even point things out - the awareness is just

not out

> > > there.

> > >

> > > I wanted to say something nicely about it, because I am

working on

> > > trying to expand awareness in my city.. but I didn't say

anything

> > > because I didn't want to come off rude or like I was stepping

in

> > > something that wasn't my business. It just kind of makes me

sad

> now

> > > to see and to not have said anything, because I can picture

that

> > > woman being told about it when her daughters getting to be too

> old to

> > > do anything, or being told about it later when it gets really

bad

> > > because she never knew to start positioning, know what I mean?

> > >

> > > For those who caught it late and didn't have doctors or nurses

> tell

> > > you about it.. do you wish someone would have said something

> earlier

> > > just to get the ball rolling on it? Would you be offended if

a

> > > stranger had given you a pamphlet on plagiocephaly? (I have

tons,

> > > thanks to the kind folks at Cranial Tech)

> > >

> > > I know my little campaign with hospitals and doctors won't

advance

> > > too quickly, so until they can help get it out to the masses,

is

> it

> > > wrong of me to want to start a little grassroots movement with

> just

> > > the mothers for now?

> > >

> > > What I want to do is just carry some pamphlets around with me

and

> > > hand them out to new moms who look like their children are

already

> > > being affected by it, but how do you do that without them

being

> > > offended by it?

> > >

> > >

> > >

> > >

> > > For more plagio info

[Guest guest]

I really like Judy as well. Although I have never met her, we have been emailing back and forth for a couple of months now. I have yet to reply to her last email and tell her that we have decided to go ahead with the helmet. I am sure that she will be happy to hear that she will not be getting loads of photos weekly of my daughter's head!!LOL. How did Trey measure? Was he mild or moderate? Yes, you are extremely fortunate to live there and have the facility so close by - lets just hope this local helmet does the trick. When do you get yours?

and Angelina in , B.C.

P.S. Say hi to Judy from and Angelina Blacklaws.

-----Original Message-----From: Cristi [mailto:naive_angel@...]Sent: Friday, June 25, 2004 3:01 PMPlagiocephaly Subject: Re: Creating Awareness - Grassroots-Cristie.Judy is who I'm seeing She's great, very friendly and good with my son, and she actually sat and listened to and addressed all my concerns that the initial pediatrician never bothered about. I'm super glad I live in this city, not only do we have a clinic nearby but the people from the clinic are just fabulous.> >> > > I've been on busses and whatnot and have seen mothers come on with> > > young babies and I start to notice their head shapes a lot more> since> > > starting to go through this with Treyton. Before it was> something I> > > didn't pay much attention to at all. For example, 2 days ago I> was> > > riding the bus and a young woman came on with a baby who must have> > > only been about 2 months old. The baby had a really bad flat spot> > > and coning of the head upwards. I thought, that if this was my> baby,> > > wouldn't I want someone to have said something earlier so I> wouldn't> > > be dealing with it so late like I am now? So often doctors and> > > nurses don't even point things out - the awareness is just not out> > > there.> > >> > > I wanted to say something nicely about it, because I am working on> > > trying to expand awareness in my city.. but I didn't say anything> > > because I didn't want to come off rude or like I was stepping in> > > something that wasn't my business. It just kind of makes me sad> now> > > to see and to not have said anything, because I can picture that> > > woman being told about it when her daughters getting to be too> old to> > > do anything, or being told about it later when it gets really bad> > > because she never knew to start positioning, know what I mean?> > >> > > For those who caught it late and didn't have doctors or nurses> tell> > > you about it.. do you wish someone would have said something> earlier> > > just to get the ball rolling on it? Would you be offended if a> > > stranger had given you a pamphlet on plagiocephaly? (I have tons,> > > thanks to the kind folks at Cranial Tech)> > >> > > I know my little campaign with hospitals and doctors won't advance> > > too quickly, so until they can help get it out to the masses, is> it> > > wrong of me to want to start a little grassroots movement with> just> > > the mothers for now?> > >> > > What I want to do is just carry some pamphlets around with me and> > > hand them out to new moms who look like their children are already> > > being affected by it, but how do you do that without them being> > > offended by it?> > >> > >> > >> > >> > > For more plagio info