Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 I do take Prilosec, 20 mgs twice a day. But, for the last 6 months I've had to take an extra pill to stop the burning. Dr. Bone suggested I take 80mgs a day for the next two weeks and see if that helps. Dr. Foroozan, Gastro Doc, will let me know if I should do that when I see him on Wed. You know I got to thinking... which can be dangerous, isn't the doomy that runs all the way down just another muscle? I'm sure it's weak from the disease. Don't you think? I already sleep on two pillows to keep everything down where it's suppose to be. Dr. Foroozan might have another thought as to why my glands feel like this. I was just surprised to hear that others are complaining of somewhat the same thing. My glands aren't swollen, they just feel like it and I really notice them when I turn my neck. If I lay my face down on the pillow it bothers my glands, makes them burn. The CTscan showed no swelling at all. It's so strange. Of course nothing I have ever done is easy..... I usually have a sore throat and tongue and sometimes I get the white spots on the insides of my mouth. I use Peroxide to control that. Why thank you ... I consider this our little family... I enjoy so much to hear from all of you and what is going on with you. I do think the clinic should put a sign in the lobby with my name on it for the most visits.....lol Cari... Your should win an award for the best little guy. I'm telling you he's been through a lot. I also remember last year the same thing happened.... that one really burned after you put it on him. My gosh, what can you try next? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Vicki...what's GERD? Annette Mike... I tried to send you a " Congrats " card, but I guess it didn't go out. I'm really lame when it comes to managing the computer. I know there are fun things to do with it, but it's all trial and error (mostly error) for me! Anyway, congratulations on your first anniversary! Annette Re: GERD I do take Prilosec, 20 mgs twice a day. But, for the last 6 months I've had to take an extra pill to stop the burning. Dr. Bone suggested I take 80mgs a day for the next two weeks and see if that helps. Dr. Foroozan, Gastro Doc, will let me know if I should do that when I see him on Wed. You know I got to thinking... which can be dangerous, isn't the doomy that runs all the way down just another muscle? I'm sure it's weak from the disease. Don't you think? I already sleep on two pillows to keep everything down where it's suppose to be. Dr. Foroozan might have another thought as to why my glands feel like this. I was just surprised to hear that others are complaining of somewhat the same thing. My glands aren't swollen, they just feel like it and I really notice them when I turn my neck. If I lay my face down on the pillow it bothers my glands, makes them burn. The CTscan showed no swelling at all. It's so strange. Of course nothing I have ever done is easy..... I usually have a sore throat and tongue and sometimes I get the white spots on the insides of my mouth. I use Peroxide to control that. Why thank you ... I consider this our little family... I enjoy so much to hear from all of you and what is going on with you. I do think the clinic should put a sign in the lobby with my name on it for the most visits.....lol Cari... Your should win an award for the best little guy. I'm telling you he's been through a lot. I also remember last year the same thing happened.... that one really burned after you put it on him. My gosh, what can you try next? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Good Morning Annette.... This sight will explain how gerd works. This is a very common disease. http://www.gicare.com/pated/edtgs03.htm Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Thanks, Vicki...I have that, but never heard it referred to as gerd. Nasty thing, especially when my symptoms were at their worst! The " audible belching " as I called it was so embarrassing. My problem is much better now, but I do get heartburn often and sometimes food and pills won't go down comfortably. Thanks again! Annette RE: GERD Good Morning Annette.... This sight will explain how gerd works. This is a very common disease. http://www.gicare.com/pated/edtgs03.htm Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Annette.... what do you take for it? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I've tried paba free and everything else. I had forgotten about the Oil of Olay moisturizer. Shame on me. SPF 15 is better then nothing and maybe a moisturizer will do the trick. I will try again as soon as this go around calms down. His skin was worse today and I know the benadryl makes him feel a little loopy but the itching was driving him crazy. I kept him home from Preschool again. Thanks for reminding me about the Oil of Olay. If that doesn't work I guess it's onto the Clinique counter for $20/tube stuff. Hugs, Cari >From: gide672@... >Reply-To: OurMyositis >To: OurMyositis >Subject: GERD >Date: Tue, 24 Apr 2001 04:00:39 -0000 > >Zowie, Vicki- this is peculiar! What's the regimen for this, besides >Prilosec ( is that what you take, or is it something else?) Is the >GERD doc going to tell you to sleep sitting up, now?? I always >assumed the swollen glands signaled an infection, but if they are >really irritated.....You mentioned your sore palate, too- mine ( and >my tongue, too) gets sore/sensitive a fair amount, but for me I >assume it's somehow related to allergies/hormones- mostly becuase it >happens at a certain point in the cycle(even though THAT's been all >whacky). Does the Doc have any way in particular to be sure that's >the cause? How interesting, and unfortunate! >While Mike gets his first anniversary with DM pin, I want to take the >time to thank YOU for all you've done for us in starting the group, >and pray that one day you'll be breathing easier, walking farther, >and not giving your doctors so much " business. " Truly. >Cari, here's hoping for an uneventful clinic visit for Wed. and >that he will soon enough forget that resident. You're the one >that " rights " things for him, and he has you to hang on to. About >sunscreen- gosh- I remember this conversation from last year. I can't >remember all the ones you've tried. I can only use certain ones too >as my skin is so sensitive. I do remember telling you I use Oil of >Olay daily moisturzer but it's only SPF 15. At least it's one I've >never had trouble with. I do use stronger ones in the summer- still >trial and error. You've tried Shade? Are all the ones you've tried >without fragrance, PABA, lanolin( I don't know if any sunscreens have >lanolin in them, but I'm very allergic to it), etc? I'll keep you >posted if I come up with a new sunscreen. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I was on something for it years ago, but I take nothing for it now because the prednisone seems to help it. I don't consider it much of a problem for me any more because it's not as frequent as it used to be. What do you take? Annette RE: GERD Annette.... what do you take for it? Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Cari... Have you ever tried a product from the Kay line? I know my sister, her daughter and even her husband use those products and really like them. I don't know how expensive it is, but maybe you could send for a catalogue or brochure. (My brother-in-law has rosacea, that's why he uses the Kay stuff.) Annette GERD >Date: Tue, 24 Apr 2001 04:00:39 -0000 > >Zowie, Vicki- this is peculiar! What's the regimen for this, besides >Prilosec ( is that what you take, or is it something else?) Is the >GERD doc going to tell you to sleep sitting up, now?? I always >assumed the swollen glands signaled an infection, but if they are >really irritated.....You mentioned your sore palate, too- mine ( and >my tongue, too) gets sore/sensitive a fair amount, but for me I >assume it's somehow related to allergies/hormones- mostly becuase it >happens at a certain point in the cycle(even though THAT's been all >whacky). Does the Doc have any way in particular to be sure that's >the cause? How interesting, and unfortunate! >While Mike gets his first anniversary with DM pin, I want to take the >time to thank YOU for all you've done for us in starting the group, >and pray that one day you'll be breathing easier, walking farther, >and not giving your doctors so much " business. " Truly. >Cari, here's hoping for an uneventful clinic visit for Wed. and >that he will soon enough forget that resident. You're the one >that " rights " things for him, and he has you to hang on to. About >sunscreen- gosh- I remember this conversation from last year. I can't >remember all the ones you've tried. I can only use certain ones too >as my skin is so sensitive. I do remember telling you I use Oil of >Olay daily moisturzer but it's only SPF 15. At least it's one I've >never had trouble with. I do use stronger ones in the summer- still >trial and error. You've tried Shade? Are all the ones you've tried >without fragrance, PABA, lanolin( I don't know if any sunscreens have >lanolin in them, but I'm very allergic to it), etc? I'll keep you >posted if I come up with a new sunscreen. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 I take Prilosec for it and it's been progressing eventhough I take the Prednisone. I don't want to keep increasing the amount of Prilosec that I take. Tomorrow will tell what the doctor will do with me... Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2001 Report Share Posted April 24, 2001 Good luck tomorrow, then! Annette RE: GERD I take Prilosec for it and it's been progressing eventhough I take the Prednisone. I don't want to keep increasing the amount of Prilosec that I take. Tomorrow will tell what the doctor will do with me... Vicki Quote Link to comment Share on other sites More sharing options...
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