Re: OT: trying to find old posts-re: shivers?

[Guest guest]

Mish,

Your post jarred my memory about something similar that we saw in

Remy in her younger months. Although she was never in a band, she

had an exaggerated " startle " reflex, sort of an all-over body shake

every so often. It could be something that scared her, angered her,

as well as something she really loved, just any really strong

emotion. I observed this when I took away a toy she wanted to hold,

when we were at the zoo and she saw a giraffe up close, when she

would see the flying car scene in Harry Potter (her favorite, she

loved that scene!), or when a stranger leaned in too close to her

face. It was very strange looking, and used to upset my husband

since that body movement resembles a seizure or something like it.

I did notice that when this happened when she was really young, it

was more difficult to figure out what was triggering it. When we

went to a neighbor's house for Halloween last year, Remy did her all-

body shake when the other little girl showed her a Fisher Price

vanity set, with little lipsticks, etc. (she loves make-up), and it

looked weird enough that the neighbors commented on it. In Remy's

case, over time, her big startle reflex (which I think was more of

an emotional rush) episodes became shorter and much less frequent.

In fact, I think that the little shake at Halloween was the last

time I saw her do it. As she had matured and got so much more

verbal, she seems to express herself in words, shouts, squeals, and

jumps in those same situation. I never really worried about her

body shakes, because I instinctively felt she was just expressing a

huge range of enthusiastic emotion and would grow out of it.

How old is Colin? Was there anything going on at the time of

the " shivers " that you could determine could be stimulating some

sort of response? Did your friend notice anything around Colin that

could have helped him to " startle " himself?

I wish I could be of more help!

Christie (Mom to Repo'd Remy)

-- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> I recall not too long ago seeing some posts about babies with

> helmets/bands having " shivers " ? I glanced over it at the time,

but

> something strange happened with us a couple times this week. It

was

> a fleeting staring spell(few seconds) then a shiver or tremor and

> some irritability immediately after. I noted it, but it had not

> happened again. The whole thing was a few seconds, but weird.

Colin

> is easy going and relaxed most all the time, or just fusses or

cries

> quite normally if hungry or tired.

>

> Tonight, I left the baby with a friend and it happened again, or

so

> it sounds. I asked if he cried at all and they described that

> he " startled himself. " It happened twice. I have seen him freak

> with a stranger once or twice, and it could have been that with

them,

> esp. her dh. Just seems a strange man has done it to him is what

I

> mean.

>

> But I was wondering who was talking about these shivers and trying

to

> look it up. Colin was out of the helmet at the time as it is too

> tight and we are wearing it less waiting for an appt. I am a

little

> concerned this might have been some sort of small seizure. It was

> just strange. I had not thought of it again until they said

> something tonight that sounded not typical for his behavior.

Thanks,

> mish

[Guest guest]

Hi Mish,

This could have absolutely nothing to do w/anything, but this post

made me think of a recent post on the iparenting born in 12/02

board. I'll copy and paste:

*Connor used to have what looked like mini-seizures as a baby. They

were " pee shivers " his central nervous system was immature and he

was " shivering " when he peed. I NEVER would have heard of such a

thing if I hadn't mentioned it to my Dr.*

Many other people responded that their babies did this as well, and

interestingly enough they were all boys. Not sure how medically

accurate it is, but just figured I'd share considering a few moms of

boys on this board have brought this up now.

, mom to Hannah, DOCband #3 3/30

Cape COd, Ma

--- In Plagiocephaly , " cjwrcw " <michele_walsh@y...>

wrote:

> I recall not too long ago seeing some posts about babies with

> helmets/bands having " shivers " ? I glanced over it at the time,

but

> something strange happened with us a couple times this week. It

was

> a fleeting staring spell(few seconds) then a shiver or tremor and

> some irritability immediately after. I noted it, but it had not

> happened again. The whole thing was a few seconds, but weird.

Colin

> is easy going and relaxed most all the time, or just fusses or

cries

> quite normally if hungry or tired.

>

> Tonight, I left the baby with a friend and it happened again, or

so

> it sounds. I asked if he cried at all and they described that

> he " startled himself. " It happened twice. I have seen him freak

> with a stranger once or twice, and it could have been that with

them,

> esp. her dh. Just seems a strange man has done it to him is what

I

> mean.

>

> But I was wondering who was talking about these shivers and trying

to

> look it up. Colin was out of the helmet at the time as it is too

> tight and we are wearing it less waiting for an appt. I am a

little

> concerned this might have been some sort of small seizure. It was

> just strange. I had not thought of it again until they said

> something tonight that sounded not typical for his behavior.

Thanks,

> mish

[Guest guest]

Thanks, . Pee shivers?! How odd, huh? That could be it, LOL.

It passed briefly through my mind that it might be some sort of

pettit mal seizure, yet I recalled seeing some postings here about

some sort of shivers in some banded babies. At the time, I passed it

over, and thought it odd and likely unrelated. Now it happened to

us! Not sure I think it has anything to do with this situation, but

just hoped to find and review what was discussed here about them. If

fevers can trigger seizure, could redirectiong and changing head

shape maybe cause some little burst of odd activity? I mean, the

brain would definatley be shifting some with the changing skull

shape.

Whatever I read here, the person had mentioned to a doctor who said

it was certainly unrelated to banding(not that I would be convinced

of that). So, when I noticed this, I recalled that conversation.

Hoping whomever it happened to notices this as well. mish

> > I recall not too long ago seeing some posts about babies with

> > helmets/bands having " shivers " ? I glanced over it at the time,

> but

> > something strange happened with us a couple times this week. It

> was

> > a fleeting staring spell(few seconds) then a shiver or tremor and

> > some irritability immediately after. I noted it, but it had not

> > happened again. The whole thing was a few seconds, but weird.

> Colin

> > is easy going and relaxed most all the time, or just fusses or

> cries

> > quite normally if hungry or tired.

> >

> > Tonight, I left the baby with a friend and it happened again, or

> so

> > it sounds. I asked if he cried at all and they described that

> > he " startled himself. " It happened twice. I have seen him freak

> > with a stranger once or twice, and it could have been that with

> them,

> > esp. her dh. Just seems a strange man has done it to him is what

> I

> > mean.

> >

> > But I was wondering who was talking about these shivers and

trying

> to

> > look it up. Colin was out of the helmet at the time as it is too

> > tight and we are wearing it less waiting for an appt. I am a

> little

> > concerned this might have been some sort of small seizure. It

was

> > just strange. I had not thought of it again until they said

> > something tonight that sounded not typical for his behavior.

> Thanks,

> > mish

[Guest guest]

Thanks ! That is really interesting.

A

> > I recall not too long ago seeing some posts about babies with

> > helmets/bands having " shivers " ? I glanced over it at the time,

> but

> > something strange happened with us a couple times this week. It

> was

> > a fleeting staring spell(few seconds) then a shiver or tremor and

> > some irritability immediately after. I noted it, but it had not

> > happened again. The whole thing was a few seconds, but weird.

> Colin

> > is easy going and relaxed most all the time, or just fusses or

> cries

> > quite normally if hungry or tired.

> >

> > Tonight, I left the baby with a friend and it happened again, or

> so

> > it sounds. I asked if he cried at all and they described that

> > he " startled himself. " It happened twice. I have seen him freak

> > with a stranger once or twice, and it could have been that with

> them,

> > esp. her dh. Just seems a strange man has done it to him is what

> I

> > mean.

> >

> > But I was wondering who was talking about these shivers and

trying

> to

> > look it up. Colin was out of the helmet at the time as it is too

> > tight and we are wearing it less waiting for an appt. I am a

> little

> > concerned this might have been some sort of small seizure. It

was

> > just strange. I had not thought of it again until they said

> > something tonight that sounded not typical for his behavior.

> Thanks,

> > mish

[Guest guest]

Here are the posts I think you're talking about:

From: Krissy Cook <krissycook@...>

Date: Sun Jun 13, 2004 5:33 pm

Subject: Re: Too Scared to Band!!!

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Hi Tracey-

I am so sorry about your experience. It is very concerning. To answer

some of your questions:

My son started to shiver when he 1st got his helmet. It would come

and

go for just a second. It would stop him from playing though and I got

very concerned. Well, to make a long story short. We ended up getting

an EEG and everything came out okay. My husband an I met up with a

Neurologist and he said he would have to catch the shiver in action

to

see if he has been having seizures. He recommend us to video tape

him.

I also asked, " well, what if it is a seizure- what do you do for

them?

He said, " we medicate " . I said is there any reaction to medication?

He

said, " yes, in all medication there is reactions " . I asked, " what if

he

is having seizures and we don't medicate and leave them alone. It is

not like he is convulsing on the floor or anything? " He said, " there

has never been a study if it is better to medicate or leave alone. "

So,

he couldn't answer the question. I couldn't believe they don't know

this.... Well, anyways we opted to let nature take its course and

just

see if these shivers go away. They did! didn't shiver for over

2

weeks. He has done a little shiver here and there lately because he

had

his helmet off for a few days because he had a fever. When he has had

it back on, he has had a few shivers. I think they will go away. My

husband and mine's theory is that it is temp. related. The body is

hot

on the head and cool on the body. It is like a little chill. The

doctors all say it is not helmet related, but keeping it off for a

few

days and having him wear it for a while they disappeared. My husband

would predict the shivers. It seemed when the A/C would come on in

the

house would shiver just after the breeze would hit him. So, I

think Gracie will stop in a few weeks, If they get bad, I would get

an

EEG done. That is only if they are more frequent and longer!

***********************

From: " Amy in MN " <skisum88@...>

Date: Tue Jun 8, 2004 10:39 am

Subject: KRISSY - regarding shivers

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BUMP

>

>

> > > I recall not too long ago seeing some posts about babies with

> > > helmets/bands having " shivers " ? I glanced over it at the

time,

> > but

> > > something strange happened with us a couple times this week.

It

> > was

> > > a fleeting staring spell(few seconds) then a shiver or tremor

and

> > > some irritability immediately after. I noted it, but it had

not

> > > happened again. The whole thing was a few seconds, but

weird.

> > Colin

> > > is easy going and relaxed most all the time, or just fusses or

> > cries

> > > quite normally if hungry or tired.

> > >

> > > Tonight, I left the baby with a friend and it happened again,

or

> > so

> > > it sounds. I asked if he cried at all and they described that

> > > he " startled himself. " It happened twice. I have seen him

freak

> > > with a stranger once or twice, and it could have been that

with

> > them,

> > > esp. her dh. Just seems a strange man has done it to him is

what

> > I

> > > mean.

> > >

> > > But I was wondering who was talking about these shivers and

> trying

> > to

> > > look it up. Colin was out of the helmet at the time as it is

too

> > > tight and we are wearing it less waiting for an appt. I am a

> > little

> > > concerned this might have been some sort of small seizure. It

> was

> > > just strange. I had not thought of it again until they said

> > > something tonight that sounded not typical for his behavior.

> > Thanks,

> > > mish