Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 Vickie...I don't post too much anymore myself but please know that my thoughts are with you and your family now. Much love to you, in Calif > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 I haven't posted in awhile, but have read many. Wanted to let everyone know we lost our precious Sat. 11/11/00. It was very unexpected and took us all by surprise. He was 4 1/2 yrs old. He had PETubes put in on Tues last wk and did great. He ran around the ICU/TCU unit making everyone laugh. I was even able to bring him home the same day. This did not happen very often as he was still vent dependent. Anyway, while I was at the Dr. on Wed. with his sick twin, developed fever and needed O2. This was not too unusual post-op. His fever was not going down with Tylenol every 4hrs, so at 11pm I notified the Dr. It was decided to give him his next dose of Tylenol and call the Dr. in 1 hr. We also had a new nurse that night. Alittle after midnight he started seizing. I had the nurse start bagging him and called 911. does not have seizures. Only one other time with fever. The paramedics could not get a line started to give Valium IV so they gave it rectal. The seizures continued. Once in the ER they gave 4 different anti seizure meds twice before any sign of relief was noted. By this time he had been seizing for over 1 1/2 hrs. A CT of his head was done and he was sent to ICU. He began seizing again and they had to give multiple meds to control them. The next day brought events I will never forget. His blood pressure dropped and he ended up on 4-5 IV drugs to maintain a blood pressure. This was not enough and he needed fluids and blood products to bring it up. He started bleeding everywhere from DIC because his blood stopped clotting. His liver enzymes were real elevated. He then went into ARDS and was on maximum vent support with nitric oxyde added for gas exchange. Still nothing was helping. They just kept giving more flluids and plasma and platelettes. Then he started having multi organ failure. By Fri. evening my husband and I decided that was enough and asked the Dr. to stop. They stopped all the drugs and fluids and blood prods and we bathed him and held him and most of our family was there. We had a circle of prayer. They put him in a big bed and put us in a large room. We took turns sleeping with him that night. He maintained a low blood pressure for 12 hrs. Once the rest of the family was in to say goodbye and we took his twin in to say goodbye then changes on the vent were made. Slowly he started slipping away. Then the pressure on the vent was lowered and that was the end. It was very peaceful and beautiful. The funeral was beautiful and I will tell more later. Time to say good night. Vicki- mom to and 2/8/96-11/11/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 Dear Vicki, Please know that you and your family will be in our prayers. God Bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I'm so sorry to hear of your loss. You and your family will be in my thoughts and prayers. Take care of yourself, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I'm so sorry to hear of your loss. My thoughts and prayers are with your family. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 I am so very sorry to hear of your loss. May God bless you and your family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I just wanted to tell you that your family is in our thoughts and prayers. My deepest sympathy. Amy Fessler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki: My deepest sympathy on the loss of your son. a Rosenthal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki, Thank you for sharing 's story with us. He'll be in our hearts and minds too. He was so lucky to have such a special family. My thoughts are with you-- I know I'll give my 4/12 year old some special hugs in honor of (and and you and your husband too). Daphne Potter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki, I have only just now read your email about . What a heart breaking ordeal for you and your family. My thoughts are with you and your family as you go thru this painful time. With all best wishes, Orla McCarthy Mom to Girl, 13, Son, Dylan, born and died July 25th, 1992, son, 7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki, Thanks for sharing your story of . I'm sitting here writing you with tears in my eyes. sure was a brave little guy. Rest asure that he is in a good place. He was very lucky to have such a wonderful family. God bless you and your family, my thoughts and prayers are with you all. Sincerely, Tina in Calif. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 In a message dated 11/20/2000 12:39:39 AM Eastern Standard Time, VNUMBER1SURVIVOR@... writes: > I'm so very sorry to learn of your loss and your entire family is in my prayers. Just remember that it is peaceful and beautiful where your precious is now and that will give you some peace. I can't begin to imagine the emptiness you feel when you lose a child. God bless, Elaine Cueing Mom to Jake/Auditory Neuropathy/Clarion S-Series 2-99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 > Please accept my sympathy and know that you and yours are in my prayers. was fortunate to have such a loving family during his time here. May God bless and keep you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki, I was so sorry to read of your loss of . I was heartbroken for you, your husband, and . No words can express our sympathy for your family as you go through this difficult time. You are all in our prayers, our thoughts, and our minds. Maybe knowing that there are people here, will help to provide a little scourage and strength as you go through the days that follow. There is a wonderful group called Compassionate Friends. It is a group made up of parents who have lost children. They understand what you are going through at this time. I just thought that might be a piece of information you could tuck away for a later time if you feel the need or interest. I am so sorry. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 God bless you and your family. At 12:31 AM 11/20/2000 EST, you wrote: >I haven't posted in awhile, but have read many. Wanted to let everyone know >we lost our precious Sat. 11/11/00. It was very unexpected and took >us all by surprise. He was 4 1/2 yrs old. He had PETubes put in on Tues last >wk and did great. He ran around the ICU/TCU unit making everyone laugh. I was >even able to bring him home the same day. This did not happen very often as >he was still vent dependent. Anyway, while I was at the Dr. on Wed. with his >sick twin, developed fever and needed O2. This was not too unusual >post-op. His fever was not going down with Tylenol every 4hrs, so at 11pm I >notified the Dr. It was decided to give him his next dose of Tylenol and call >the Dr. in 1 hr. We also had a new nurse that night. Alittle after midnight >he started seizing. I had the nurse start bagging him and called 911. >does not have seizures. Only one other time with fever. The paramedics could >not get a line started to give Valium IV so they gave it rectal. The seizures >continued. Once in the ER they gave 4 different anti seizure meds twice >before any sign of relief was noted. By this time he had been seizing for >over 1 1/2 hrs. A CT of his head was done and he was sent to ICU. He began >seizing again and they had to give multiple meds to control them. The next >day brought events I will never forget. His blood pressure dropped and he >ended up on 4-5 IV drugs to maintain a blood pressure. This was not enough >and he needed fluids and blood products to bring it up. He started bleeding >everywhere from DIC because his blood stopped clotting. His liver enzymes >were real elevated. He then went into ARDS and was on maximum vent support >with nitric oxyde added for gas exchange. Still nothing was helping. They >just kept giving more flluids and plasma and platelettes. Then he started >having multi organ failure. By Fri. evening my husband and I decided that was >enough and asked the Dr. to stop. They stopped all the drugs and fluids and >blood prods and we bathed him and held him and most of our family was there. >We had a circle of prayer. They put him in a big bed and put us in a large >room. We took turns sleeping with him that night. He maintained a low blood >pressure for 12 hrs. Once the rest of the family was in to say goodbye and we >took his twin in to say goodbye then changes on the vent were made. Slowly he >started slipping away. Then the pressure on the vent was lowered and that was >the end. It was very peaceful and beautiful. The funeral was beautiful and I >will tell more later. Time to say good night. >Vicki- mom to and 2/8/96-11/11/00 > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > > Freda White Administrative Assistant USC Associates Kaprielian Hall Room 116 213/740-8722 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki and Family, I am so sorry to hear of your loss. Loosing a child must be the worst feeling in the world. Please know that your family will be in my thoughts and prayers. I hope the words from those on this list help to ease your pain in some small way. Thank you for sharing with us all. RoseAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Dear Vicki, I can't imagine what your family must be going through right now. I don't know if it's any help, but they say God picks the best and the brightest so he can keep them close to his heart. Sounds as if God has special plans for . Our thoughts and prayers are with you and your family. Shabana Re: is in heaven I haven't posted in awhile, but have read many. Wanted to let everyone know we lost our precious Sat. 11/11/00. It was very unexpected and took us all by surprise. He was 4 1/2 yrs old. He had PETubes put in on Tues last wk and did great. He ran around the ICU/TCU unit making everyone laugh. I was even able to bring him home the same day. This did not happen very often as he was still vent dependent. Anyway, while I was at the Dr. on Wed. with his sick twin, developed fever and needed O2. This was not too unusual post-op. His fever was not going down with Tylenol every 4hrs, so at 11pm I notified the Dr. It was decided to give him his next dose of Tylenol and call the Dr. in 1 hr. We also had a new nurse that night. Alittle after midnight he started seizing. I had the nurse start bagging him and called 911. does not have seizures. Only one other time with fever. The paramedics could not get a line started to give Valium IV so they gave it rectal. The seizures continued. Once in the ER they gave 4 different anti seizure meds twice before any sign of relief was noted. By this time he had been seizing for over 1 1/2 hrs. A CT of his head was done and he was sent to ICU. He began seizing again and they had to give multiple meds to control them. The next day brought events I will never forget. His blood pressure dropped and he ended up on 4-5 IV drugs to maintain a blood pressure. This was not enough and he needed fluids and blood products to bring it up. He started bleeding everywhere from DIC because his blood stopped clotting. His liver enzymes were real elevated. He then went into ARDS and was on maximum vent support with nitric oxyde added for gas exchange. Still nothing was helping. They just kept giving more flluids and plasma and platelettes. Then he started having multi organ failure. By Fri. evening my husband and I decided that was enough and asked the Dr. to stop. They stopped all the drugs and fluids and blood prods and we bathed him and held him and most of our family was there. We had a circle of prayer. They put him in a big bed and put us in a large room. We took turns sleeping with him that night. He maintained a low blood pressure for 12 hrs. Once the rest of the family was in to say goodbye and we took his twin in to say goodbye then changes on the vent were made. Slowly he started slipping away. Then the pressure on the vent was lowered and that was the end. It was very peaceful and beautiful. The funeral was beautiful and I will tell more later. Time to say good night. Vicki- mom to and 2/8/96-11/11/00 All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I am so sorry on the loss of your son. My prayers are with you and your family. Elaine D. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, You, , and the rest of your family are in our thoughts and prayers. God bless you. -- - jules@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I am so sorry to hear about your loss. As a nurse I know how frantic situations such as you experienced with can get. It's wonderful that you could take some control of the situation and stay focused on your son and give him such a peaceful and loving passing on. Sharon VNUMBER1SURVIVOR@... wrote: > I haven't posted in awhile, but have read many. Wanted to let everyone know > we lost our precious Sat. 11/11/00. It was very unexpected and took > us all by surprise. He was 4 1/2 yrs old. He had PETubes put in on Tues last > wk and did great. He ran around the ICU/TCU unit making everyone laugh. I was > even able to bring him home the same day. This did not happen very often as > he was still vent dependent. Anyway, while I was at the Dr. on Wed. with his > sick twin, developed fever and needed O2. This was not too unusual > post-op. His fever was not going down with Tylenol every 4hrs, so at 11pm I > notified the Dr. It was decided to give him his next dose of Tylenol and call > the Dr. in 1 hr. We also had a new nurse that night. Alittle after midnight > he started seizing. I had the nurse start bagging him and called 911. > does not have seizures. Only one other time with fever. The paramedics could > not get a line started to give Valium IV so they gave it rectal. The seizures > continued. Once in the ER they gave 4 different anti seizure meds twice > before any sign of relief was noted. By this time he had been seizing for > over 1 1/2 hrs. A CT of his head was done and he was sent to ICU. He began > seizing again and they had to give multiple meds to control them. The next > day brought events I will never forget. His blood pressure dropped and he > ended up on 4-5 IV drugs to maintain a blood pressure. This was not enough > and he needed fluids and blood products to bring it up. He started bleeding > everywhere from DIC because his blood stopped clotting. His liver enzymes > were real elevated. He then went into ARDS and was on maximum vent support > with nitric oxyde added for gas exchange. Still nothing was helping. They > just kept giving more flluids and plasma and platelettes. Then he started > having multi organ failure. By Fri. evening my husband and I decided that was > enough and asked the Dr. to stop. They stopped all the drugs and fluids and > blood prods and we bathed him and held him and most of our family was there. > We had a circle of prayer. They put him in a big bed and put us in a large > room. We took turns sleeping with him that night. He maintained a low blood > pressure for 12 hrs. Once the rest of the family was in to say goodbye and we > took his twin in to say goodbye then changes on the vent were made. Slowly he > started slipping away. Then the pressure on the vent was lowered and that was > the end. It was very peaceful and beautiful. The funeral was beautiful and I > will tell more later. Time to say good night. > Vicki- mom to and 2/8/96-11/11/00 > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I just picked up my emails, and am devastated for you. I am amazed you had the strength to share this so soon. Please know that you and your family will be in my thoughts and prayers this Thanksgiving... Stefanie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 Vicki, I am so sorry to hear of your loss. Three years ago our son Gunnar died during delivery, and I know how difficult this must be for you. You are all in our thoughts and prayers. The Compassionate Friends of Atlanta has a wonderful website for grieving families who have lost a child at any age. Their website is http://www.tcfatlanta.org Just remember you're not alone. (((((HUGS))))) Deb bartnick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2000 Report Share Posted November 21, 2000 I am so sorry to hear of your loss. My thoughts and prayers will be with you. Rita ________________________________________________________________________________\ _____ Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2000 Report Share Posted November 25, 2000 Our heartfelt condolences are with you and your family. May the support of your cyber friends help at least a little Tammy Norman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2000 Report Share Posted December 2, 2000 Thank you to everyone for your condolences and prayers. I cannot express what I am feeling right now except an emptiness and fulfillment all at one time. I am sure I will be able to speak more of it later, but now it is difficult. Vicki Quote Link to comment Share on other sites More sharing options...
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