Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Randy- I can see this side of things too. It is very hard to know where people are coming from and what their true intentions are. But it is a real shame when our kids -- or any other group of people -- don't get access to all the opportunities of others. I don't think anyone will beat you up for illuminating the other side of the issue. There are always more than one way to think about things. Here's to diversity -- in abilities, opinions, and ideas -- Michele W Aubrie's mom > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 on my school diary on the front it says diversity and thats my school and that should be the world celebrating diversity lol charge is very diverse one of my teachers when we were hunting transition to wrok places looking she said charge is a unique sydrome and its right it is unique and the place acutaly said subject to government plans theyd have me next year which mean well unless the government makes changes i can go there which is cool ellen > > Randy- > I can see this side of things too. It is very hard to know where people > are coming from and what their true intentions are. But it is a real > shame when our kids -- or any other group of people -- don't get access > to all the opportunities of others. I don't think anyone will beat you > up for illuminating the other side of the issue. There are always more > than one way to think about things. > > Here's to diversity -- in abilities, opinions, and ideas -- > Michele W > Aubrie's mom > > > > > > > Membership of this email support groups does not constitute membership in > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter), > please contact marion@... or visit > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome Canada > information and membership, please visit http://www.chargesyndrome.ca, or > email info@.... > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at www.chargesyndrome.org<http://www.chargesyndrome.org>or by calling 1-. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 I hope your government does not change in the wrong direction! I hope you will be able to go there and wherever else you want in the future. Michele W ellen howe wrote: > on my school diary on the front it says diversity and thats my school and > that should be the world celebrating diversity lol charge is very diverse > one of my teachers when we were hunting transition to wrok places looking > she said charge is a unique sydrome and its right it is unique and the > place > acutaly said subject to government plans theyd have me next year which > mean > well unless the government makes changes i can go there which is cool > ellen > > > > > > Randy- > > I can see this side of things too. It is very hard to know where people > > are coming from and what their true intentions are. But it is a real > > shame when our kids -- or any other group of people -- don't get access > > to all the opportunities of others. I don't think anyone will beat you > > up for illuminating the other side of the issue. There are always more > > than one way to think about things. > > > > Here's to diversity -- in abilities, opinions, and ideas -- > > Michele W > > Aubrie's mom > > > > > > > > > > > > > Membership of this email support groups does not constitute > membership in > > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada. > > For information about the CHARGE Syndrome > > Foundation or to become a member (and get the newsletter), > > please contact marion@... or visit > > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome > Canada > > information and membership, please visit > http://www.chargesyndrome.ca, or > > email info@.... > > 7th International > > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > > Information will be available at > www.chargesyndrome.org<http://www.chargesyndrome.org>or by calling > 1-. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 Randy, Of course we won't beat you. It is always important to see both sides and really I think everyone is saying the same thing. Acknowledge the pain - ouch that hurts. Gently educate if possible, because humans are afraid of the unknown. Move on and find someone or something that will work for our children. Kim > --- > You fine folks are going to beat me up when you see me in Miami, but > here goes. Maybe the lady had a previous experience and knows that > she doesnt have the patience or was accused by another parent > of " taking their money " . It sounds like she was honest. You dont > even get that all of the time with the docs. I would rather have > someone who was/is comfortable with my son than someone who wasnt! > Positive results come from positive relationships. The horse back > riding could just be that it is a major part of their income and > they just could not take the risk. We were looking for regular ole > health insurance for our family in case I get layed off and NO ONE > will insure my son. So I kinda understand the liability issues > around the horse back riding. Yes it is a bit of mis communication > on the their part. Your gain in more ways than one. Your a parent > of child with CHARGE and if you have as much resilience as your > child you will work around this issue. You probably already have. > In my opinion for ever person who is afraid to work with our kids > there are 10 who would love to! Yes, when a school system or the > likes boycotts our kids needs, that is wrong. But when an > individual who is ignorant to the real deal says " NO " educate them > and move on. Send them CHARGE brochures or something. I hope by > showing the other half of the glass you folks arent to upset with > me. Maybe silence would be golden in this case on my part, but > htose folks are not the corporate America that is constantly trying > to himhaw their way out of helping us help our kids. They are just > trying to make a living like us to provide for their families as well > > Randy, Garlands Poppy > > > > > > In CHARGE , ellen howe <ellen.howe@g...> wrote: >> ur great to bonnnie xxxx ellen >> >> >>> >>> Ellen, >>> >>> How right you are. You're great! >>> >>> Bonnie >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Randy, I totally agree with your comments. I definately don't want MacKenzie to spend time with anyone that doesn't want her around and I'm glad the music teacher told me, rather than put up with us only to avoid offending me, that would have been an even worse situation.As for the horseback riding, the stable owners would have loved to have Mac and were mortified that their insurance wouldn't cover her. I've been down that road before, which is why I won't be bringing her to Miami, I can't get health insurance to take her out of the country. It's still frustrating though. I guess insurance is only for healthy people. Jeanie Colp Mom to MacKenzie 7 CHARGE, Tyler 13 & Zachary 10 Quote Link to comment Share on other sites More sharing options...
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