Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Welcome to the group! I'm glad Abbey is taking well to her band, aside from the sweating issue. What type of band is it and where did you get it? If that red doesn't go away w/in the hour or looks bumpy it could be a heat rash and need some cream. Her head should adjust to the helmet and the sweating will decrease, but in the meantime I'd dress her very light, like in a onesie or something similar. It is very common for babies to go itch crazy when you take the band off too. The whispers and stares do get easier too. I try to remember that it's human nature to do a double take when you see something out of the ordinary, and kids staring don't bother me b/c they don't know any better (young kids). You can explain it to kids easily by comparing it to braces for teeth. Some people are downright rude though. I don't even notice most of them time or will see someone staring and will wonder why, having completely forgotten Hannah wears a helmet. It does help to decorate the band, and I found having her name on it is a good icebreaker for people to talk to us. Hannah has always enjoyed the extra attention. We love pics here, so feel free to post pics of Abbey! , mom to Hannah, DOCband #3 3/30 Cape Cod, Ma > Hi everyone, I am new to the group and my daughter Abbey was banded > on Tues,6-22. She has done amazing! We couldn't be happier, it > hasn't disrupted her sleep or anything, however the sweating is > terrible! But we live in VA so I am sure the humidity does not help. > Well this morning when I took her band off to give her her hour > break, I noticed her forhead was all red and as soon as I took it > off she started scratching, them it got more red. I am only cleaning > with alcohol, I don't understand it, of course her orthotist went on > vacation yesterday for a week, anyone had a similiar experience? Or > any suggestions? Thanks I can't wait to start talking to everyone > here on the board, this is great! > > Also....it's really hard to deal with the stares and whispers > from kids, adults, some people even point!!!! I get so angry, but I > know my place is to maybe inform people about this disorder not get > angry at them for being so rude, but I can't help it sometimes. I > feel bad for Abbey but I know that she doesn't know they are staring > but I do, any suggestions with this? > OK, thanks everyone! We'll talk to you soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 Hi there, Welcome to the group! I want to second what mentioned regarding the redness/heat rash. I know all about the heat and humidity living in Atlanta. Is the band white or decorated? If it is white, decorate it cute. You'll be surprised at all the positive comments you'll get and Abbey will LOVE all the attention. Natasha > Hi everyone, I am new to the group and my daughter Abbey was banded > on Tues,6-22. She has done amazing! We couldn't be happier, it > hasn't disrupted her sleep or anything, however the sweating is > terrible! But we live in VA so I am sure the humidity does not help. > Well this morning when I took her band off to give her her hour > break, I noticed her forhead was all red and as soon as I took it > off she started scratching, them it got more red. I am only cleaning > with alcohol, I don't understand it, of course her orthotist went on > vacation yesterday for a week, anyone had a similiar experience? Or > any suggestions? Thanks I can't wait to start talking to everyone > here on the board, this is great! > > Also....it's really hard to deal with the stares and whispers > from kids, adults, some people even point!!!! I get so angry, but I > know my place is to maybe inform people about this disorder not get > angry at them for being so rude, but I can't help it sometimes. I > feel bad for Abbey but I know that she doesn't know they are staring > but I do, any suggestions with this? > OK, thanks everyone! We'll talk to you soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi there and welcome to our group. Glad to hear that Abbey aside the sweating is doing well in her band. What type is it? Do the red sploches disapear within an hr? Willow my daughter was sweating alot at first as well. What I did to help her out is take the band off several times a day for just a few minutes to let her head dry and kind of wipe the band dry as well. Let us know how it goes, and if it doesn't go away maybe you want to call the ortho. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad 02/04 > Hi everyone, I am new to the group and my daughter Abbey was banded > on Tues,6-22. She has done amazing! We couldn't be happier, it > hasn't disrupted her sleep or anything, however the sweating is > terrible! But we live in VA so I am sure the humidity does not help. > Well this morning when I took her band off to give her her hour > break, I noticed her forhead was all red and as soon as I took it > off she started scratching, them it got more red. I am only cleaning > with alcohol, I don't understand it, of course her orthotist went on > vacation yesterday for a week, anyone had a similiar experience? Or > any suggestions? Thanks I can't wait to start talking to everyone > here on the board, this is great! > > Also....it's really hard to deal with the stares and whispers > from kids, adults, some people even point!!!! I get so angry, but I > know my place is to maybe inform people about this disorder not get > angry at them for being so rude, but I can't help it sometimes. I > feel bad for Abbey but I know that she doesn't know they are staring > but I do, any suggestions with this? > OK, thanks everyone! We'll talk to you soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2004 Report Share Posted June 27, 2004 Hi There. I am sure it is just a heat rash like mentioned. You might want to take the band off periodically to let her forehead dry completely. That might help too, along with the cream. Stares and comments.............you'll get used to them. After awhile I got really good at ignoring them. Keep us posted on Abbey's progress. , mom to Makenna llumc helmet grad '03 > Hi everyone, I am new to the group and my daughter Abbey was banded > on Tues,6-22. She has done amazing! We couldn't be happier, it > hasn't disrupted her sleep or anything, however the sweating is > terrible! But we live in VA so I am sure the humidity does not help. > Well this morning when I took her band off to give her her hour > break, I noticed her forhead was all red and as soon as I took it > off she started scratching, them it got more red. I am only cleaning > with alcohol, I don't understand it, of course her orthotist went on > vacation yesterday for a week, anyone had a similiar experience? Or > any suggestions? Thanks I can't wait to start talking to everyone > here on the board, this is great! > > Also....it's really hard to deal with the stares and whispers > from kids, adults, some people even point!!!! I get so angry, but I > know my place is to maybe inform people about this disorder not get > angry at them for being so rude, but I can't help it sometimes. I > feel bad for Abbey but I know that she doesn't know they are staring > but I do, any suggestions with this? > OK, thanks everyone! We'll talk to you soon! Quote Link to comment Share on other sites More sharing options...
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