Re: going off of meds-

[Guest guest]

, Thank you for the boost of confidence. It's hard on Jess and

everyone to go without any medication help when you know it is needed,

but I felt it was the best way to get her back on track. Can I ask

who long you went in between being off of all meds and before you

introduced new ones?

Sheryl

Mom to Mitch 19 & 18 CHARGEr

> Hi Sheryl,

> I don't have a lot of time to post, but I do try to read and

keep up

> with everyone. I had to take a minute to let you know that I think

you are

> on the right track with concerning her meds. Four years ago

when

> Jeff was having severe behavior problems, the neuro psychiatrist

recommended

> exactly what you are doing. He gradually took him off all

medications so

> they could look at his base behavior. Once having done that, they

would

> introduce one medication at a time, that way they could determine it's

> effects on Jeff. Fortunately for Jeff and us, it worked for him. I

hope

> you and get the same results. Wishing you the best in

finding what

> will help her the most.

>

> Smiles from Baker - Mom to Jeff (20 yrs. CHARGEr), Steve (22

> yrs.attending BYU-Provo), and others married with families of their

own,

> providing me with four handsome and active grandsons, and two

beautiful,

> curly haired granddaughters - one a special angel with CdLS.

> Preston, Idaho, USA

> http://www.caringbridge.org/me/jeffbaker

>

>

>

> [spam] Re: going off of meds---help!-Bonnie

>

>

> > Bonnie-

> >

> > I agree that meds can't fix. I have seen some work and some not work

> > and it is horrible when that happens. I have hope that the meds don't

> > change 's abilty to function, but give her the ability to

> > function with minimal frustration. You are fortunate that Patty is

> > verbal and can express what is going on. I listen to your posts with

> > great interest as I sometimes wonder what Patty is expressing might be

> > what is feeling.

> >

> > I felt that by going off of all the meds would give me a baseline of

> > " who " really is again and what areas do I need to address. I

> > felt that if I just started to change I wouldn't know if the new med

> > was the cause of it not working or it it the mix with what she is

> > already on. In the past, we have always tried replacing but I didn't

> > feel that was the best move this time. Jess maxes out on meds very

> > quickly as we start with a low dose and then to keep them working we

> > have to keep increasing them so often. If I can find another good

> > mix, I might have a chance that once she maxes out on these, we can go

> > back to the other mix we knew worked and see if the low doses can be

> > effective again.

> >

> > I'm glad you mentioned Quanfacine and Lexipro. Those two were

> > mentioned by the psych when we discussed this med change. We'll see

> > how this goes. Her 1:1 at respite this weekend called this afternoon

> > and said that she was having really high highs and very low lows

> > today. But, she said the highs are outweighing the lows for today.

> > Lacey is great with her and I trust that she is being well taken care

> > of this weekend.

> >

> > Anyway, I will keep you posted on how this goes. I'm glad Patty is

> > starting to feel better.

> >

> > Sheryl

> > Mom to Mitch 19 & 18 CHARGEr

> >

> >

> >

> >

> >

> >

> >

> > Membership of this email support groups does not constitute

membership in

> > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@c... or visit

> > the web site at http://www.chargesyndrome.org. For CHARGE Syndrome

Canada

> > information and membership, please visit

http://www.chargesyndrome.ca, or

> > email info@c...

> > 7th International

> > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> > Information will be available at www.chargesyndrome.org or by calling

> > 1-.

> >