Re: Nicky's Appt / Considering stopping treatment

[Guest guest]

Hi ,

I just wanted to say that I am so sorry to hear what you expereinced

the other day. I'm also sorry to hear that there is a little bulge

that has formed. I'm glad that they listened to you and adjusted

it. I'm no expert but perhaps the bulge will smooth out as your son

grows and/or hair will definitely cover it. IMHO the overall shape of

his head is more important than little imperfections but I totally

understand your concerns over your ds's cute little noggin. I'd

probably be exactly the same way.

If you are happy with your ds's head shape now or in a few weeks it

is totally up to you & your dh if you want to discontinue treatment.

I'm sure he will continue to get improvement with his growth. I hope

that I have not upset you in any way with anything that I have said.

I just want you to know that we are hear to listen!

Sue

and

Colin F. 9 mos (brachy, rt plagio)

STARband in 4 days (OK, I'm getting a little nervous)

Buffalo

> Hi Cristina & welcome to our group:

> How old is Nicky? Bands are frequently outgrown, esp when the

child

> begins treatment under 6 mos of age & are rapidly growing &

headshape

> is changing. Do you have any pictures of Nicky & his band you

could

> post? Are you going to the Cranial Therapies (I think that's the

> name!) clinic for his DOCband?

> I'm happy to hear you have an appt scheduled to be seen tomorrow

> already. Have you seen his 3D " Head on a stick " /head mold yet?

> That should help you get a good idea of what his shape was BEFORE

> DOCband and what it's looking like now.

> Please let us know how the appt goes, and please add some pics of

> Nicky if you have any in our PHOTOS section!

> Debbie Abby's mom DOCGrad

> MI

>

> >

> > Hi All,

> >

> > I am also a member of another plagio group but it looks

> like you guys have more members using doc bands. My son Nicky has a

> brachy head shape. He's been in a DOC band for a little over a

month

> and while we already see improvement to the flatness, I'm starting

to

> notice that other areas on his head are literally taking the shape

of

> the helmet. Let me clarify, there seems to be a ridge all around

the

> back of his head where the helmet ends. Its almost as though the

> helmet is too small. Is it possible to outgrow these things? I saw

> the pics of an ill fitting Starband and Nick's isn't that bad but

he

> does have a large gap on the open end and hole barely fitting his

ear

> on the other side. I'm going to CT tomorrow for an adjustment and

> plan to raise these concerns but I was wondering if anyone else had

> their doc band replaced?

> >

> > BTW - we're live in Los Angeles (CT is only about a 30-45 min

> drive). Anyone else from here?

> >

> >

[Guest guest]

Hi ,

Sorry you are so frustrated right now. It is common for babies to

get a little bulge where the velcro side/opening is. Our ortho

described it to us as a fluid or soft tissue build up that would go

away after graduation. Hannah had 4 mos between band #2 and #3 and

it did go down, but now that she's been back in a band it's back. I

have no idea if this is what you are describing. I'm having trouble

visualizing what you are trying to describe w/out pictures! You

said his head was starting to take on the shape of the band, but the

band is made to a corrected (round) version of his head, so this

would be a good thing overall and thats why I'm not understanding

how it looks like it's squaring his head. LOL! Did I confuse you

yet? I think you should try and get some pics uploaded and maybe

email them to Cranial Tech's corporate office if you're really

concerned it's making his head worse. They certainly back their

product and would want to know and would definitely help you come to

a point where you were comfortable w/whats going on. Please keep us

posted.

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Hi Cristina & welcome to our group:

> How old is Nicky? Bands are frequently outgrown, esp when the

child

> begins treatment under 6 mos of age & are rapidly growing &

headshape

> is changing. Do you have any pictures of Nicky & his band you

could

> post? Are you going to the Cranial Therapies (I think that's the

> name!) clinic for his DOCband?

> I'm happy to hear you have an appt scheduled to be seen tomorrow

> already. Have you seen his 3D " Head on a stick " /head mold yet?

> That should help you get a good idea of what his shape was BEFORE

> DOCband and what it's looking like now.

> Please let us know how the appt goes, and please add some pics of

> Nicky if you have any in our PHOTOS section!

> Debbie Abby's mom DOCGrad

> MI

>

> >

> > Hi All,

> >

> > I am also a member of another plagio group but it

looks

> like you guys have more members using doc bands. My son Nicky has

a

> brachy head shape. He's been in a DOC band for a little over a

month

> and while we already see improvement to the flatness, I'm starting

to

> notice that other areas on his head are literally taking the shape

of

> the helmet. Let me clarify, there seems to be a ridge all around

the

> back of his head where the helmet ends. Its almost as though the

> helmet is too small. Is it possible to outgrow these things? I saw

> the pics of an ill fitting Starband and Nick's isn't that bad but

he

> does have a large gap on the open end and hole barely fitting his

ear

> on the other side. I'm going to CT tomorrow for an adjustment and

> plan to raise these concerns but I was wondering if anyone else

had

> their doc band replaced?

> >

> > BTW - we're live in Los Angeles (CT is only about a 30-45

min

> drive). Anyone else from here?

> >

> >

[Guest guest]

Cristina,

My ds, Kody, has a buldge coming out the gap of the band, too. I

just called CT 2 days ago about it. I got the same answer everyone

is repeating. It is soft tissue, even though it feels hard, that

will go away after treatment. My friend took her son in for the next

day, and her therapist showed her the buldge in his head and told her

the same thing. They both said that there is no hard bone that can

form in that area, or something weird like that. I hope they are

right! I am sure they are, or more people would complain about it.

Good luck. I hate to see you go through all this trouble and not get

results!

Melany, Kody's Mommy, 18 mons, Plagio, tort

DOCband 6/02

Texas

> Hi Cristina & welcome to our group:

> How old is Nicky? Bands are frequently outgrown, esp when the

child

> begins treatment under 6 mos of age & are rapidly growing &

headshape

> is changing. Do you have any pictures of Nicky & his band you

could

> post? Are you going to the Cranial Therapies (I think that's the

> name!) clinic for his DOCband?

> I'm happy to hear you have an appt scheduled to be seen tomorrow

> already. Have you seen his 3D " Head on a stick " /head mold yet?

> That should help you get a good idea of what his shape was BEFORE

> DOCband and what it's looking like now.

> Please let us know how the appt goes, and please add some pics of

> Nicky if you have any in our PHOTOS section!

> Debbie Abby's mom DOCGrad

> MI

>

> >

> > Hi All,

> >

> > I am also a member of another plagio group but it looks

> like you guys have more members using doc bands. My son Nicky has a

> brachy head shape. He's been in a DOC band for a little over a

month

> and while we already see improvement to the flatness, I'm starting

to

> notice that other areas on his head are literally taking the shape

of

> the helmet. Let me clarify, there seems to be a ridge all around

the

> back of his head where the helmet ends. Its almost as though the

> helmet is too small. Is it possible to outgrow these things? I saw

> the pics of an ill fitting Starband and Nick's isn't that bad but

he

> does have a large gap on the open end and hole barely fitting his

ear

> on the other side. I'm going to CT tomorrow for an adjustment and

> plan to raise these concerns but I was wondering if anyone else had

> their doc band replaced?

> >

> > BTW - we're live in Los Angeles (CT is only about a 30-45 min

> drive). Anyone else from here?

> >

> >

[Guest guest]

Cristina,

Where are you located?

, mom to Makenna LLUMC helmet grad '03

> Hi Cristina & welcome to our group:

> How old is Nicky? Bands are frequently outgrown, esp when the

child

> begins treatment under 6 mos of age & are rapidly growing &

headshape

> is changing. Do you have any pictures of Nicky & his band you

could

> post? Are you going to the Cranial Therapies (I think that's the

> name!) clinic for his DOCband?

> I'm happy to hear you have an appt scheduled to be seen tomorrow

> already. Have you seen his 3D " Head on a stick " /head mold yet?

> That should help you get a good idea of what his shape was BEFORE

> DOCband and what it's looking like now.

> Please let us know how the appt goes, and please add some pics of

> Nicky if you have any in our PHOTOS section!

> Debbie Abby's mom DOCGrad

> MI

>

> >

> > Hi All,

> >

> > I am also a member of another plagio group but it looks

> like you guys have more members using doc bands. My son Nicky has a

> brachy head shape. He's been in a DOC band for a little over a

month

> and while we already see improvement to the flatness, I'm starting

to

> notice that other areas on his head are literally taking the shape

of

> the helmet. Let me clarify, there seems to be a ridge all around

the

> back of his head where the helmet ends. Its almost as though the

> helmet is too small. Is it possible to outgrow these things? I saw

> the pics of an ill fitting Starband and Nick's isn't that bad but

he

> does have a large gap on the open end and hole barely fitting his

ear

> on the other side. I'm going to CT tomorrow for an adjustment and

> plan to raise these concerns but I was wondering if anyone else had

> their doc band replaced?

> >

> > BTW - we're live in Los Angeles (CT is only about a 30-45 min

> drive). Anyone else from here?

> >

> >