Re: Digest Number 680

[Guest guest]

--- You wrote:

I would like to ask you if you have been told the level(s) at which the

hearing aids are set. I haven't been given this kind of information

(although i have asked), i only have the info received from Phonak after

contacting them (and that's how i know they amplify by a maximum of 60

dB - and that's at certain frequencies, under laboratory conditions),

and then this afternoon's results from the testing done by the teacher

for the deaf.

Thank you

Cristina

--- end of quote ---

Wow. Is there any other option for you in terms of who you are seeing for care?

It sounds a bit slimey to me, the whole thing.

kirsten

[Guest guest]

--- You wrote:

e has two evaluation programs, one for infants (VIP), and another for

school aged children (CEE). had his VIP at age 2 1/2, and he was

not the youngest ever, by any means. It depends on what your objectives

are. We were trying to determine if he was capable of auditory-oral

learning, as part if the process of choosing a preschool for him.

Chris

--- end of quote ---

thanks for the info.

Kirsten

[Guest guest]

In a message dated 9/26/2000 6:05:27 AM Pacific Daylight Time,

Listen-Upegroups writes:

<<

Message: 2

Date: Mon, 25 Sep 2000 06:31:19 +0000

Subject: Re: ImpaCt hearing aid

Hi,

We also looked into the AVR ImpaCt hearing aids for my daughter's

reverse slope loss. The AVR people were willing to work with our

audiologist to make unique changes to push the low frequencies

higher. At the time it was brand new, so we went the conventional

route of power aids.

To Kay - I didn't know anyone else who had reverse slope loss. Is

JD's loss stable? My daughter's loss appears to be slowly progressive.

She is currently at 90-100 (?) db low, 85 mid, and 75 highs. She

does pretty well with her Siemen's Power Music aids (programable analog).

What is JD using? >>

Terri,

my daughter also has a condition that is most likely leading to a progressive

loss, it is called " Mondini Malformation " and can be detected in a CT scan.

The inner ear, the cohclea, usually has 2 1/2 turns, and the Mondini is 1 1/2

turns. Check with your otologist/ENT for a confirmation.

[Guest guest]

In a message dated 9/26/2000 6:05:27 AM Pacific Daylight Time,

Listen-Upegroups writes:

<< essage: 5

Date: Mon, 25 Sep 2000 17:23:53 +0100

Subject: h/aids settings

Hello, i thought i'd share the latest instalment of the hearings aids

saga at St 's Hospital. Dominic (11 months old today) had the ABR

test last Wednesday (whilst under general anaesthesia for ear wax

removal) which showed no response at 90 dB. >>

The ABR does not always give a good reading of a chidl's thresholds. Lily

was termed " profoundly deaf " at her ABR and when we had her first audiogram 1

1/2 months later, and before she had aids, we found another 10 db in each ear

which brought her up to severely-to-profoundly deaf and too much residual

hearing for the CI! Also, after the kids have worn their hearing aids and

are recognizing sounds, they often do better on their unaided audiograms as

they know how and when to respond better. Be strong - there are lots of

determinables out there, its hard because you want something to work with and

something definitive so you know where to go, but it definately takes time to

build up the tests to get a real feel for where their hearing levels are.

[Guest guest]

In a message dated 9/26/2000 6:05:27 AM Pacific Daylight Time,

Listen-Upegroups writes:

<< oday the teacher for the

deaf came round and had a look at his hearing aids. They were supposed

to give a maximum of 60 dB amplification (Phonak Pico Forte C2). In fact

they give an average of 15 dB (5-30 dB). >>

If you are wearing your sons hearing aids, they are set way to low, esp. if

he is profoundly deaf! You need to look into some better hearing aids that

have a higher output, for instance, my daughter wears Seimens Signia digitals

and they have a max output of 138 db and right now she is set at about 51 db

gain to get her into the speech banana. Most hearing aids have a 30-60 day

try-and-see period so you should be able to experiment until you find the

right ones. Also, sounds like your audiologist may be too conservative.

With these little ones you have to program them with a lot of gain at first

and then start working. Make sure you have a pediatric audiologist, makes a

big difference. Lily's gain was programmed around 17db at first, then the

pediatric audiologist got involved and re-programmed to 51 db of gain, BIG

DIFFERENCE! She's doing much better at actual differentiation of pronouncing

words instead of just verbalizing that all sounded the saem.

[Guest guest]

>From: LilysMom12@...

writes:

>

>

>You need to look into some better hearing aids that

>have a higher output,

Please keep in mind that lots of us either do not get state assistance for

hearing aids, or that hearing aids are not a benefit of our health insurance

plans, or we simply don't have $3000 plus to buy digital hearing aids. Lots

of people don't get their kids " better hearing aids " simply because the

financial resources are not available.

Thanks

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[Guest guest]

In a message dated 9/28/2000 6:58:33 AM Eastern Daylight Time,

maryemapa@... writes:

<< Please keep in mind that lots of us either do not get state assistance for

hearing aids, or that hearing aids are not a benefit of our health insurance

plans, or we simply don't have $3000 plus to buy digital hearing aids. Lots

of people don't get their kids " better hearing aids " simply because the

financial resources are not available.

Thanks

>>

I'm right there with ya! If it wasn't for Early Intervention paying for my

daughter's hearing aids, I'm not sure what we would have done. She got them

just before turning 3 which is the cut off for them covering her.

Suzette

[Guest guest]

Thanks Suzette.

I'm for getting hearing aids covered by insurance. My plan is good

medically, but because I work for the federal government, hearing aids are

DENIED, DENIED, DENIED. I do not know of one plan offered for civilians by

the federal government which covers hearing aids (excluding those enrolled

in Tricare, if you're active duty). I wrote to the White House and was sent

to the Office of Personnel - another red tape agency - and they told me to

look thru the plans - which they are well aware do not cover hearing aids.

One thing you can do, if any of you are civil service workers for the feds,

is call your congressperson and request they sponsor HR 2321 sponsored by

Connie Morella (R - MD). Because we are the largest workforce in the US,

I've heard that other plans will follow along with what the feds do.

M.

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