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Dear Sue,

It's wonderful to hear this! And it's great about your lungs. After

all you've been through, you deserve it. I'm hoping you will feel

well enough to travel some one of these days.

I have not yet heard from my rheumatologist's office re: my blood

tessts, so I'm still HOPING he's a keeper! Time will tell, I suppose.

I am finding that when I don't take medication ( Vioxx) I don't feel

all that great. When I do take it, I'm better. I just don't want to

have to take it and/ or something the rest of my life. Gosh- it

wasn't all that long ago I took nothing except my prescription

antihistamine and got along just fine :)I have little to complain

about compared to many of you right now, though.

Since we're about to get another snowstorm here, I'm even more

envious of your weather!!!

Ev, your beau must be keeping you busy !

Blessings to all- S.

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Hi .... Your doctor or maybe the nurses in the office might have

forgotten to call. Try giving them a call (although I'm sure you've

already thought of that) and jog their memory. HOpe the tests are ok.

Let us know...

About your Vioxx... I get the same way when I don't take my Celebrex. I

tried to only take it every other day but about mid day I start to feel

horrible. Can't move as well and I'm really tired. So, it's back to

one pill every day.... I was on two a day but I can do it with only one.

I'm with , Ev.... your new young man must be keeping you very

busy... that's wonderful. I do hope you're feeling so much better now.

Sandy... haven't heard a word from you in a while. Please let us know

how you're holding up and how your mom is doing.

We miss talking with you.

.... same for you... how are you doing? Pop your head in and let

us know. We worry about you gals.

Take care,

Vicki

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It is wonderful news Sue. So glad to hear that you are doing so much

better. Enjoy your weekend.

Hugs,

Cari and

>From: gide672@...

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: good news

>Date: Fri, 09 Mar 2001 05:27:46 -0000

>

>Dear Sue,

>It's wonderful to hear this! And it's great about your lungs. After

>all you've been through, you deserve it. I'm hoping you will feel

>well enough to travel some one of these days.

>I have not yet heard from my rheumatologist's office re: my blood

>tessts, so I'm still HOPING he's a keeper! Time will tell, I suppose.

>I am finding that when I don't take medication ( Vioxx) I don't feel

>all that great. When I do take it, I'm better. I just don't want to

>have to take it and/ or something the rest of my life. Gosh- it

>wasn't all that long ago I took nothing except my prescription

>antihistamine and got along just fine :)I have little to complain

>about compared to many of you right now, though.

>Since we're about to get another snowstorm here, I'm even more

>envious of your weather!!!

>Ev, your beau must be keeping you busy !

>Blessings to all- S.

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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Sue--

Yipee! I am happy with you! I also got good news--a copy of my recent

blood work and my CPK is down to 83. It keeps going down even while I am

tapering the Prednisone. I never thought I'd be able to be off the darn

stuff and now it looks like that's possible. I am really excited! I still

have some pain, but if I can cut even some of the meds it would be great!

Love,

Ann-Marie

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Great news Ann-Marie! So happy to hear it!

Hugs,

Cari and

>

>Reply-To: OurMyositis

>To: OurMyositis

>Subject: Re: Re: good news

>Date: Fri, 09 Mar 2001 21:57:39 -0500

>

>Sue--

>Yipee! I am happy with you! I also got good news--a copy of my recent

>blood work and my CPK is down to 83. It keeps going down even while I am

>tapering the Prednisone. I never thought I'd be able to be off the darn

>stuff and now it looks like that's possible. I am really excited! I still

>have some pain, but if I can cut even some of the meds it would be great!

>

>Love,

>Ann-Marie

>_________________________________________________________________

>Get your FREE download of MSN Explorer at http://explorer.msn.com

>

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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  • 6 years later...
Guest guest

,

This is so encouraging to hear. I will admit to having

reservations about HC and worrying about it causing the adrenals to

work less efficiently, but stories like these show otherwise. Thanks

for sharing.

>

> Today I thought I put together my usual meds for work, plus

supplements. Took my usual stuff at 5 a.m. or so and ate and read

email then went to work. Took my 5 mgs. cortef at 9 a.m. and at 1 p.m.

discovered that I forgot to put any more cortef in! Now, this is

closing week for March, and I am coming down with some scummy virus,

so I feel yukky already. But, I was fine! No shakes, exterior or

interior. I was surprised; this isn't the first time I have had this

experience. In the past I would feel very shaky when it was almost

time for the dose, but I have been able to go a little longer between

doses. I think, after all these months of adrenal support, that they

are starting to heal. I am not there yet, but I really see light at

the end of this very long tunnel. Yay!

>

> C.

>

>

>

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Good for you ! That must feel so good :o) ... I finally realized

what others meant when they say they get the " shakes " , I just never

put two and two together. Last night when it was almost time to take

my last dose of HC, I was getting heart palps and shaky. Now I know

why, my body was telling me it was time.

Dana G

In the past I would feel very shaky when it was almost time for the

dose, but I have been able to go a little longer between doses. I

think, after all these months of adrenal support, that they are

starting to heal. I am not there yet, but I really see light at the

end of this very long tunnel. Yay!

>

> C.

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It is my understanding, , that it is pharmacologic doses, i.e. the larger

doses drs. use that are a problem. When you have AF you use physiologic doses,

and my doc confirmed this, to rest the adrenals so that they can recover and

work normally again. This can take some time. What the HC does is take over the

adrenal function until you no longer need the HC and your own adrenals start to

perform as they should. I do believe that this is starting to happen with me. I

am still hypo, but the doc has given me 5 grains of Armour to " play with " so

that I can increase if needed. Don't be afraid of HC; your body makes it, you

need it to function. It will actually help heal your adrenal glands, on the

dosage that is right for you and with enough time.

C.

<<<<< ,

This is so encouraging to hear. I will admit to having

reservations about HC and worrying about it causing the adrenals to

work less efficiently, but stories like these show otherwise. Thanks

for sharing.

>>>>>

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Thanks, Val! I coudn't have done this without you here and the thyroid boards. I

was at my wits end when I joined last summer and was desperate for information.

Now I have a dr. that is willing to work WITH me instead of dictating to me and

respects my knowledge and research, and that is such a relief. I hope to become

a normal sized person someday, lol!

Val, I hope that you are doing better; I was encouraged by the fact that your

numbers are better; it seems that T3 is what you need all around! Maybe after a

while you will be able to use a small of amount of Armour, but who knows? You

evidently have needs that are unique to you and your body. Glad to hear you have

more energy! That is definitely a bonus!

C.

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:

" I will admit to having

reservations about HC and worrying about it causing the adrenals to

work less efficiently, but stories like these show otherwise. "

I had reservations too. I was diagnosed in August. I was stage 6. When I started

joining adrenal lists, I couldn't believe people were taking HC. It just

registered as " steroids " in my mind. Then throughout the months, I saw people

getting a lot of relief while I still mostly felt like crap. i also starting

understanding the difference between what they were doing and what most doctors

prescribe.

My ND has been doing other things for my adrenals. Last month when I retested, I

think I moved from stage 6 to stage 5, but it took many months. Let me tell you,

stage 5 doesn't feel any better than stage 6 either!

I started HC 9 days ago. I had a tough time the first several days, because my

body was demanding more as I started taking it. Once I realized (with all of

Val's help) what was happening, it was easy to just listen to my body to dose.

The last 2 days I have been on 20 mg, and I feel wonderful! I really wish I had

done this some time ago.

-Olif

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