Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Dear CU Heros, My husband was wondering whether I am the only one taking 16 antihistimines a day. I take 4 Claritin and 4 Tavist in the AM and 4 Benadryl and 4 Zyrtec at night. Has anyone else heard of this? I still have hives even with this enormous amount of meds. Hugs from Boston Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Been there done that... I know what you mean. I'm a softwaare engineer with a degree in mathamatics. I get the same thing sometimes. It's frustrating, but keep pushing. I posted earlier about my visit to the Mayo, go look and se what you can find out. Yup, you gotta' go to the doc.! Yup, a girlfriend is as good as a husband for support, especially if she don't take any crap... bottom line, try and not go through this alone. You found the group, and everyone here has helped me alot. keep the faith... Terry > Hello...I am a 24-year-old person that has been dealing with hives > since March of '98. I was doing fine until just after New Year; my > hives are back. I found this web site and it has convinced me to get > serious about medical help. The only problem is that all the doctors > I have been to think I'm nuts. Most have told me to go to a > dermatologist(which I've done) and don't seem concerned with any > internal possibilities. I'm trying a new one Friday that sounds > like he actually cares, but I wanted to know about any specific > questions I should ask him (tests, related sysmtoms, etc.) > I am currently on Doxepin only so he won't be able to do the skin > test, but I thought he might be able to look for other problems. > I've been on every anti-histimine known to man and they don't seem to > phase it. Basically, I stay zonked out on the Dox until the hives > clear up. > > Any help you could give me would be great. I'm taking my girlfriend > with me as backup...does that work as well as a husband? It's pretty > aggrivating when they don't take us seriously. Even when I tell them > I have a B.S. in Biology, they act like I'm a moron and a pain in the > a**. Thanks everyone!!! Hang in there Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Hi, Sorry to hear you have joined this group, but glad you are not alone. I can't help with what to ask as I am learning myself because my daugther struggles with this. However, I wish you the best of luck and of course a girlfriend helps. (LOL sometimes a witness to some of the crazy stuff doctors comes up with is nice) Best of luck~ newbie with question > Hello...I am a 24-year-old person that has been dealing with hives > since March of '98. I was doing fine until just after New Year; my > hives are back. I found this web site and it has convinced me to get > serious about medical help. The only problem is that all the doctors > I have been to think I'm nuts. Most have told me to go to a > dermatologist(which I've done) and don't seem concerned with any > internal possibilities. I'm trying a new one Friday that sounds > like he actually cares, but I wanted to know about any specific > questions I should ask him (tests, related sysmtoms, etc.) > I am currently on Doxepin only so he won't be able to do the skin > test, but I thought he might be able to look for other problems. > I've been on every anti-histimine known to man and they don't seem to > phase it. Basically, I stay zonked out on the Dox until the hives > clear up. > > Any help you could give me would be great. I'm taking my girlfriend > with me as backup...does that work as well as a husband? It's pretty > aggrivating when they don't take us seriously. Even when I tell them > I have a B.S. in Biology, they act like I'm a moron and a pain in the > a**. Thanks everyone!!! Hang in there > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Hi, Barbara. When I first started with all this, I was taking 40 pills a day. 10 of those were prednisone, the rest were (probably will leave something out here, hard to remember them all): Tagamet, Benadryl, Atarax, Hismanal, Seldane, and ephedrine sulphate. Even with all the antihistamines, the only thing that was really controlling the symptoms was the prednisone. I was taking 100 mg of that every day, which is quite a lot. I was slowly weaned off all these meds over the course of 2 years, to the point where I was only taking 1 Seldane during the day and 4 Benadryl at night. Then I went into a kind of remission (still had to take the Benadryl at night, otherwise would wake up with a few hives). Every few years I have major flare-ups again and have to go back on tons of meds. Hang in there, sometimes it's necessary to take a lot of stuff to give your body a chance to " normalize " itself. Air hugs, Jackie ----Original Message Follows---- From: brilliantb@... Reply-To: urticariaegroups To: urticariaegroups Subject: Re: newbie with question Date: Wed, 17 Jan 2001 22:52:07 EST Dear CU Heros, My husband was wondering whether I am the only one taking 16 antihistimines a day. I take 4 Claritin and 4 Tavist in the AM and 4 Benadryl and 4 Zyrtec at night. Has anyone else heard of this? I still have hives even with this enormous amount of meds. Hugs from Boston Barbara _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 Not 16 antihistamines, but I'm taking up to 6 Zyrtec/day. Usually 4, but if I break out, like I'm starting to right now, then I up it to 6. Two in the morning, two after school, and two at bedtime. Mari brilliantb@... wrote: > Dear CU Heros, > My husband was wondering whether I am the only one taking 16 antihistimines a > day. I take 4 Claritin and 4 Tavist in the AM and 4 Benadryl and 4 Zyrtec at > night. Has anyone else heard of this? I still have hives even with this > enormous amount of meds. > Hugs from Boston > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 I take 8 Nalcrom, 2 Zyrtec, 4 Zantac, use a cromolyn inhaler as necessary and inject with adrenaline in emergencies Ug! Re: newbie with question > Dear CU Heros, > My husband was wondering whether I am the only one taking 16 antihistimines a > day. I take 4 Claritin and 4 Tavist in the AM and 4 Benadryl and 4 Zyrtec at > night. Has anyone else heard of this? I still have hives even with this > enormous amount of meds. > Hugs from Boston > Barbara > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Good luck at dr. Yes, they do look at us like we are morons. Doesn't matter how much you know. Anyway, I am on the doxepin too. It knocks me on my butt. I have taken to drinking coffee (I used to hate it!) just to function. It seems to be working. Trying Allegra, but not working today. Only my second day on it. My mom heard it takes 2 weeks to kick in. Wish the doctor had told me that. They truly are idiots!!! Think a friend would be helpful as well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Hi, Your not the only one taking so many. My 26 month old daughter, Alena takes 19 doses a day and also motrin. YEP 19 oral doses. Its tons of fun chasing her around all day taking these yucky tasting meds. NOT But your not alone. I am just anxious for the day when she can take her meds in pill form. Best of luck!!~ Re: newbie with question > Dear CU Heros, > My husband was wondering whether I am the only one taking 16 antihistimines a > day. I take 4 Claritin and 4 Tavist in the AM and 4 Benadryl and 4 Zyrtec at > night. Has anyone else heard of this? I still have hives even with this > enormous amount of meds. > Hugs from Boston > Barbara > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Barbara Sounds like a lot to me. Did you try doxepin or atarax? both are the strongest antihistamines around (so I am told). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2001 Report Share Posted January 18, 2001 Hi Please have your Dr. test your thyroid. alot of us with CU have underactive thyroids. I am on synthroid for 6 years and have had CU for 2 1/2 yrs. I really think there is a connection here. Let me know if you get tested. Good Luck Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 My thyroid is underactive too. I am on Levoxyl. My strength has changed 3 times during this hiving period. Conincidence?? Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2001 Report Share Posted January 19, 2001 Everyone: I am 24/female if you are still keeping tabs. Went to my first allergist today and what a relief!!! He took me completely seriously and ordered every test in the book...including all the ones you have recommened (thyroid, stomach, liver, cbc, uv, etc.) I will get the blood results in a week. For now, doc wants to try to burn them out with Prednisone, and he has me on 180mg Allegra twice a day and 30mg Prevacid for a possible ulcer. I guess that pain in my chest really was acid reflux. I'll keep everyone posted on the meds and test results when I get them. Thank you all so much for your help. I really felt prepared to go in there today and not feel so helpless. Who woulda thought I could find an informed Dr. in KS? He told me there's been a large increase in the number of hives cases locally. Wonder what Big Brother's been puttin' in the water. lol Re: newbie with question > My thyroid is underactive too. I am on Levoxyl. My strength has changed 3 > times during this hiving period. Conincidence?? > Barbara > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > <mailto:urticaria-unsubscribeegroups> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > Quote Link to comment Share on other sites More sharing options...
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