Re: Visit to Allergist/ Questions for all

[Guest guest]

Hi, I can't answer any of your questions as I am new at this myself but when

you mentioned about lupus not showing up in a blood test right away my heart

sank. Lupus runs on my husbands side (My neice is losing her battle with it

now) and that is the first thing they tested my daughter for and it came

back negative so I put it to rest but now I am curious if anyone has ever

heard of it taking awhile to show up in blood work. Best of luck~

Visit to Allergist/ Questions for all

> Questions for my hiving friends:

>

> 1. blood testing. Does anyone understand what this is and how it is

> different from regular blood testing? Allergist didn't explain it very

well.

>

> 2. Can H- Pylori be detected through bloodwork, or does it have to be a

> breath test?

> 3. Has anyone had stool sample testing for ova, etc?

> 4. Has anyone ever heard that Lupus could take years to show up in

> bloodwork? This is what my allergist told me. ANA test was negative.

Thinks

> it might be worthwhile for me to go to a rheumatologist.

> 5. Has anyone ever been to a rheumatologist? What tests did this type of

> doctor do?

> 6. What is the max dosage of Allegra? I am to try that with the Doxepin.

>

> Allergist ordered a bunch of tests. They took 9 vials of blood today.

> Thankfully, I got over my fear of needles after childbirth. Not sure all

the

> details on the tests. I am sure they will all come back NEGATIVE!!!!!

UGH!!!

> Whatever info you all can share with me would be appreciated. I had my

> husband with me. I think this helped in getting the doctor to actually

> listen and answer questions, rather than rush me out the door. Think she

> might have been getting frustrated with me with all the questions I came

in

> with. Tough!! It is about time a doctor listens to me. Thank you to all of

> you for giving me the courage and ammo to push harder for more tests and

> more and more!!! I think my lifes quest will be to find an answer.

>

>

> One thing I know for sure is she said the dental link is controversial as

far

> as the mercury, but it is a possibility. She is running a test for heavy

> metals in my blood. Not sure it will show anything. In any event, I do

plan

> to have the filling removed and replaced with non-metal. I just have to

find

> a dentist to do it. This is going to take some time for me to do. Will

keep

> you all posted.

>

>

>

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> <mailto:urticaria-unsubscribeegroups>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

[Guest guest]

How long did she have the hives before finding out it was lupus?

[Guest guest]

Hi ,

Lupus is notoriously difficult to diagnose. There was a lady who was on the

list about eighteen months ago and Lupus was on her maternal grandmother's

side. All of this lady's tests for Lupus came back negative, but she was

sure she had it. She had quite a struggle with her doctors. In the end she

stopped taking all drugs for several weeks to 'clean out' her system of

pharmaceuticals and then went for another test - which came up positive.

She maintained that it was imperative to be 'drug free' before the Lupus

test was performed as drugs apparently can distort the test results. She

has experienced miscarriages, tested positive for the HIV virus when she

doesn't have it and a few other strange things to boot which were due to the

Lupus fooling her immune system and bringing up inaccurate blood test

results. I am still in touch with her so could ask her if she would mind

explaining this as I am sure she would do a much better job than me!

Visit to Allergist/ Questions for all

>

>

> > Questions for my hiving friends:

> >

> > 1. blood testing. Does anyone understand what this is and how it

is

> > different from regular blood testing? Allergist didn't explain it very

> well.

> >

> > 2. Can H- Pylori be detected through bloodwork, or does it have to be a

> > breath test?

> > 3. Has anyone had stool sample testing for ova, etc?

> > 4. Has anyone ever heard that Lupus could take years to show up in

> > bloodwork? This is what my allergist told me. ANA test was negative.

> Thinks

> > it might be worthwhile for me to go to a rheumatologist.

> > 5. Has anyone ever been to a rheumatologist? What tests did this type of

> > doctor do?

> > 6. What is the max dosage of Allegra? I am to try that with the Doxepin.

> >

> > Allergist ordered a bunch of tests. They took 9 vials of blood today.

> > Thankfully, I got over my fear of needles after childbirth. Not sure all

> the

> > details on the tests. I am sure they will all come back NEGATIVE!!!!!

> UGH!!!

> > Whatever info you all can share with me would be appreciated. I had my

> > husband with me. I think this helped in getting the doctor to actually

> > listen and answer questions, rather than rush me out the door. Think she

> > might have been getting frustrated with me with all the questions I came

> in

> > with. Tough!! It is about time a doctor listens to me. Thank you to all

of

> > you for giving me the courage and ammo to push harder for more tests and

> > more and more!!! I think my lifes quest will be to find an answer.

> >

> >

> > One thing I know for sure is she said the dental link is controversial

as

> far

> > as the mercury, but it is a possibility. She is running a test for heavy

> > metals in my blood. Not sure it will show anything. In any event, I do

> plan

> > to have the filling removed and replaced with non-metal. I just have to

> find

> > a dentist to do it. This is going to take some time for me to do. Will

> keep

> > you all posted.

> >

> >

> >

> >

> >

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > If you do wish to unsubscribe then you can click on the following link:

> > <mailto:urticaria-unsubscribeegroups>

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> >

> > This list is in the service of those who suffer from Chronic Urticaria

> (hives). We strive to support and lift each other as a worldwide

> cyber-family.

> >

> > We share whatever needs to be shared to help one another in our struggle

> with Chronic Urticria.

> >

> > Any posting that is off the main topic of Chronic Urticaria, we post

with

> a prefix of NCU -. This is done out of respect for those who do not wish

to

> read such postings.

> >

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> <mailto:urticaria-unsubscribeegroups>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

>

[Guest guest]

Hi Thank you for that information. Its amazing what doctors won't tell

you. Anyway, yes I would love to hear anymore she could add to this. Thank

You~

Visit to Allergist/ Questions for all

> >

> >

> > > Questions for my hiving friends:

> > >

> > > 1. blood testing. Does anyone understand what this is and how it

> is

> > > different from regular blood testing? Allergist didn't explain it very

> > well.

> > >

> > > 2. Can H- Pylori be detected through bloodwork, or does it have to be

a

> > > breath test?

> > > 3. Has anyone had stool sample testing for ova, etc?

> > > 4. Has anyone ever heard that Lupus could take years to show up in

> > > bloodwork? This is what my allergist told me. ANA test was negative.

> > Thinks

> > > it might be worthwhile for me to go to a rheumatologist.

> > > 5. Has anyone ever been to a rheumatologist? What tests did this type

of

> > > doctor do?

> > > 6. What is the max dosage of Allegra? I am to try that with the

Doxepin.

> > >

> > > Allergist ordered a bunch of tests. They took 9 vials of blood today.

> > > Thankfully, I got over my fear of needles after childbirth. Not sure

all

> > the

> > > details on the tests. I am sure they will all come back NEGATIVE!!!!!

> > UGH!!!

> > > Whatever info you all can share with me would be appreciated. I had my

> > > husband with me. I think this helped in getting the doctor to actually

> > > listen and answer questions, rather than rush me out the door. Think

she

> > > might have been getting frustrated with me with all the questions I

came

> > in

> > > with. Tough!! It is about time a doctor listens to me. Thank you to

all

> of

> > > you for giving me the courage and ammo to push harder for more tests

and

> > > more and more!!! I think my lifes quest will be to find an answer.

> > >

> > >

> > > One thing I know for sure is she said the dental link is controversial

> as

> > far

> > > as the mercury, but it is a possibility. She is running a test for

heavy

> > > metals in my blood. Not sure it will show anything. In any event, I do

> > plan

> > > to have the filling removed and replaced with non-metal. I just have

to

> > find

> > > a dentist to do it. This is going to take some time for me to do. Will

> > keep

> > > you all posted.

> > >

> > >

> > >

> > >

> > >

> > >

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > > If you do wish to unsubscribe then you can click on the following

link:

> > > <mailto:urticaria-unsubscribeegroups>

> > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > >

> > > This list is in the service of those who suffer from Chronic Urticaria

> > (hives). We strive to support and lift each other as a worldwide

> > cyber-family.

> > >

> > > We share whatever needs to be shared to help one another in our

struggle

> > with Chronic Urticria.

> > >

> > > Any posting that is off the main topic of Chronic Urticaria, we post

> with

> > a prefix of NCU -. This is done out of respect for those who do not

wish

> to

> > read such postings.

> > >

> >

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > If you do wish to unsubscribe then you can click on the following link:

> > <mailto:urticaria-unsubscribeegroups>

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> >

> > This list is in the service of those who suffer from Chronic Urticaria

> (hives). We strive to support and lift each other as a worldwide

> cyber-family.

> >

> > We share whatever needs to be shared to help one another in our struggle

> with Chronic Urticria.

> >

> > Any posting that is off the main topic of Chronic Urticaria, we post

with

> a prefix of NCU -. This is done out of respect for those who do not wish

to

> read such postings.

> >

> >

>

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> <mailto:urticaria-unsubscribeegroups>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

[Guest guest]

In a message dated 01/17/2001 10:46:18 AM Eastern Standard Time,

ilgar@... writes:

<< I am curious if anyone has ever

heard of it taking awhile to show up in blood work. >>

Me too!

[Guest guest]

In a message dated 01/17/2001 12:08:24 PM Eastern Standard Time,

juliahoughton@... writes:

<< I am still in touch with her so could ask her if she would mind

explaining this as I am sure she would do a much better job than me!

>>

That would be great!

[Guest guest]

yes... new research indicates having many test's for CU re-run every

6 months...

> In a message dated 01/17/2001 10:46:18 AM Eastern Standard Time,

> ilgar@p... writes:

>

> << I am curious if anyone has ever

> heard of it taking awhile to show up in blood work. >>

>

> Me too!

>

[Guest guest]

Hi ,

An answer on your question regarding h-pylori blood test. The breath test is

more accurate than the blood test. My daughter had a blood test and was

positive. The problem is that there are many kits that test for this in the

blood but run from inaccurate to completely worthless. And, once you have

h-pylori and even if cured the blood test will always come back positive.

The only real test is to be scoped and have biopsies done from the stomach.

My 11 year old daughter had that done yesterday here at Texas Childrens in

Houston. She had tested positive for h-pylori and was treated 3 months ago.

She since has had no hives until a very small amount of itching on her

legs 3 days ago. But she has complained about stomach aches(lower) for the

past 6 years. The pediatric gasto dr. suggested the scope. Good thing. We

found out that she has still inflammation of the duodenum and probably has

been there for years. We are now treating her with 40mg of Prilosec daily.

Hope this helps. But I would definitely at least get a breath test done

because I think this is what caused my daughters CU for the past year. Good

luck!

Jane

P.S. , my daughter at one time took an adult doseage of Allegra 180mg/

twice a day.

>From: maxum1997@...

>Reply-To: urticariaegroups

>To: urticariaegroups

>Subject: Visit to Allergist/ Questions for all

>Date: Tue, 16 Jan 2001 22:58:36 EST

>

>Questions for my hiving friends:

>

>1. blood testing. Does anyone understand what this is and how it is

>different from regular blood testing? Allergist didn't explain it very

>well.

>

>2. Can H- Pylori be detected through bloodwork, or does it have to be a

>breath test?

>3. Has anyone had stool sample testing for ova, etc?

>4. Has anyone ever heard that Lupus could take years to show up in

>bloodwork? This is what my allergist told me. ANA test was negative. Thinks

>it might be worthwhile for me to go to a rheumatologist.

>5. Has anyone ever been to a rheumatologist? What tests did this type of

>doctor do?

>6. What is the max dosage of Allegra? I am to try that with the Doxepin.

>

>Allergist ordered a bunch of tests. They took 9 vials of blood today.

>Thankfully, I got over my fear of needles after childbirth. Not sure all

>the

>details on the tests. I am sure they will all come back NEGATIVE!!!!!

>UGH!!!

>Whatever info you all can share with me would be appreciated. I had my

>husband with me. I think this helped in getting the doctor to actually

>listen and answer questions, rather than rush me out the door. Think she

>might have been getting frustrated with me with all the questions I came in

>with. Tough!! It is about time a doctor listens to me. Thank you to all of

>you for giving me the courage and ammo to push harder for more tests and

>more and more!!! I think my lifes quest will be to find an answer.

>

>

>One thing I know for sure is she said the dental link is controversial as

>far

>as the mercury, but it is a possibility. She is running a test for heavy

>metals in my blood. Not sure it will show anything. In any event, I do plan

>to have the filling removed and replaced with non-metal. I just have to

>find

>a dentist to do it. This is going to take some time for me to do. Will keep

>you all posted.

>

>

>

>

>

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