Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 I know its been given many times but Dr.H Email address would be greatly appreciated!! Thank You!! To my friends, Peace and Prayers Mark dad to 5, G-tube Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Mark, Dr. H.'s email address is mdharbis@.... In the subject area, let her know that it is important. How is ? I am so concerned about her. I understand the ketone business...we went through it with Max, but it was so many years ago, I don't remember the tests that they ran. Dr. H. just knew what to do and we did it. Please let me know what happens and what Dr. H. says! Jodi P.S. I also have her private email, so if you don't hear from her right away, let me know and I will let her know you are trying to reach her. Dr. H's Email?? > I know its been given many times but Dr.H Email address would be greatly > appreciated!! Thank You!! > > To my friends, > Peace and Prayers > Mark dad to 5, G-tube > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2000 Report Share Posted December 13, 2000 Jodi, is doing OK!! She has had few bouts of hospitalizations. All revolving around ketones. She is being seen by some Metabolic people who are very puzzled by her. She has ketones regardless of blood sugar levels. Her blood sugar did drop to 48 shortly after several vomitting episodes, other than that she has been normal. Right now it seems her doctors are trying to make the distiction between a ketone production or a ketone processing problem. We are very confident in her care right now but just wanted to touch base with Dr. Harrbison about metabolic issues she has seen in RSS patients. She will have a skin biopsy today and then hopefully discharged. I will be online this weekend with many questions for the list. To my friends, Peace and Prayers Mark dad to 5, G-tube Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 Mark, I will be interested to hear what they have to say. Max, too, produces ketones regardless of blood sugar levels. No one has ever questioned that, though. Please keep me informed. In the meantime, I heard from the gastro-enterologist that Max's H Pylori level is still high - as high as it was in September when he was in the hospital. In particular, his CO2 levels are high. The doctor is not sure why. For some strange reason, he is choosing not to treat Max just yet. I don't know anything else yet because he emailed me and I have not had a reply. These kids sure keep us puzzled! Jodi Re: Dr. H's Email?? > Jodi, > > is doing OK!! She has had few bouts of hospitalizations. All > revolving around ketones. She is being seen by some Metabolic people who are > very puzzled by her. She has ketones regardless of blood sugar levels. Her > blood sugar did drop to 48 shortly after several vomitting episodes, other > than that she has been normal. Right now it seems her doctors are trying to > make the distiction between a ketone production or a ketone processing > problem. We are very confident in her care right now but just wanted to touch > base with Dr. Harrbison about metabolic issues she has seen in RSS patients. > > She will have a skin biopsy today and then hopefully discharged. > > I will be online this weekend with many questions for the list. > > To my friends, > Peace and Prayers > Mark dad to 5, G-tube > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2000 Report Share Posted December 14, 2000 , Elyse's symptoms sound just like Max's! And this H Pylori thing is making us all crazy!!! I don't think it has anything to do with RSS, though. The difficulty with Max has been in getting it to go away. Yes, it is the same thing that causes ulcers, however, we don't think Max has one just yet. But he does produce an abnormally large amount of CO2, something that I am not too educated about just yet. I just know that his H Pylori levels are just as high as they were months ago and he is still symptomatic. I am waiting to hear from the doctor, hopefully tonight, and I will pass along anything I do learn. There were three tests that Max had to diagnose this condition. One was a blood test, but he does not produce antibodies to this bacteria, so it does not show up in bloodwork. It is the same for strep with him. No one knows why. The next thing the doctor did was an endoscopy. It was relatively easy for Max to go through, but he did have a sore throat for a few days after. The last thing they did was a breath test. Max had to eat some high fat food and then breathe into a plastic bag a few times. They then study the breath that is collected. As for your question about other gastro problems that RSS kids may have, I don't know of anything other than reflux. It is amazing how many have it now. When Max was an infant, no one thought that reflux was common among RSS kids, but it does not seem that way now. I'm not sure if it really is a characteristic or if doctors are getting better at diagnosing it all around now. Let me know what happens with the doctor tomorrow. I will let you know if I hear from Dr. Levy tonight. Jodi Re: Dr. H's Email?? > > > > Jodi, > > > > is doing OK!! She has had few bouts of hospitalizations. All > > revolving around ketones. She is being seen by some Metabolic people who > are > > very puzzled by her. She has ketones regardless of blood sugar levels. Her > > blood sugar did drop to 48 shortly after several vomitting episodes, other > > than that she has been normal. Right now it seems her doctors are trying > to > > make the distiction between a ketone production or a ketone processing > > problem. We are very confident in her care right now but just wanted to > touch > > base with Dr. Harrbison about metabolic issues she has seen in RSS > patients. > > > > She will have a skin biopsy today and then hopefully discharged. > > > > I will be online this weekend with many questions for the list. > > > > To my friends, > > Peace and Prayers > > Mark dad to 5, G-tube > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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