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Re: What's In a Name

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,

I really agree with you on this one. Being labeled with an illness

which you feel is scary or repulsive is a terrible thing. Manic-

depression was renamed " bi-polar " and I think it was a positive

move. People will admit to having this and I think most of the

population understands that this is an illness, can be treated and

that patients who have it should be praised for getting treatment.

I never, never have used the word " borderline " with my daughter. She

knows the diagnosis, and in a letter once wrote that she has it. But

I also know that in part of her therapy she addressed being labeled

as " crazy, freak, borderline, deviant " , etc. because it was so very

upsetting to her to be labeled. In " Walking on Eggshells " the book

suggests not giving the name of the disorder to the sufferer as a

layperson, because this could actually be damaging.

Even though it might be semantics, renaming this disorder with a

more appropriate name would probably help it in becoming accepted

publicly and understood as as illness, as bi-polar is.

Carolyn

>

> -------------------------------------------------------------------

--

> -----------

> What's in a name? In the disability community this question is a

hot

> topic. In fact, the use of negative language has proven time after

> time to be a major influence on individual and public attitudes

> towards people with disabilities and as Dahl asserts often

> constitutes " a major barrier for people with disabilities " .3

> However, despite progress being made to use less stigmatizing

> disability terms, psychiatry has not kept up with these changes.

> Borderline Personality Disorder (BPD), listed in the Axis II

section

> of Diagnostic and Statistical Manual (DSM IV), is an example of

one

> such term and the focus of this paper.4

>

> The DSM IV defines BPD as " a pervasive pattern of instability of

> interpersonal relationships, self-image, and effects, and marked

> impulsivity beginning by early adulthood… " .4 The mental health

> disability causes extreme emotional vulnerability, an unstable

sense

> of self, impulsiveness in potentially self-damaging behaviors

(e.g.,

> spending, sex, substance abuse, driving, eating, etc.), suicidal

or

> self-mutilating behavior, chronic feelings of emptiness, intense

> anger or difficulty controlling anger, and periods of feeling

> removed from reality (dissociation).

>

> This paper will discuss the negative connotations of the

term " BPD " ,

> examine the origin of the term, the effects it has on treatment

and

> ways the term shapes both individual and public perception of

people

> diagnosed with the disorder. In addition, the paper will explore

> whether or not the term is an acceptable use of language based on

> current terminology standards outlined in the government

> publication " Worthless or Wonderful " .15 Finally, it will propose

> recommendations for changing the name and identify recent progress

> towards this goal.

>

> Origin

>

> The origin of the term " BPD " dates back to the early 1900's. At

this

> time people with mental health disabilities were either

categorized

> as neurotic or psychotic. 13 As it became increasingly clear to

Dr.

> Stern (an early psychiatrist) that a growing patient body did not

> quite fit into these oversimplified diagnostic categories of the

> day, the term " borderline " was born. According to Dr. Stern's

> theory, such patient's teetered on the " borderline " between

neuroses

> and psychoses. Although this theory went out of favor shortly

after

> it was proposed, the " borderline " label stuck. 2

>

> Inaccuracy

>

> Dr. Leland Heller (M.D.), believes the BPD term is inaccurate and

> that the 'BPD' label " in and of itself is as if the whole person

> (and the personality) is flawed… " .7 He strongly objects to this

> implication because the most recent research on BPD indicates that

> the cause of the disorder is not a " flawed personality " but rather

a

> biologically based brain disorder. He believes there is a

> dysfunction of the limbic system of the brain.7 Heller backs up

his

> objection to the term with recent research on the biological

> components of BPD. Evidence linking borderline personality

> disorderjj to a limbic system dysfunction is based on current

> knowledge regarding the function of the limbic circuit and studies

> examining the biological causes of the disorder. The limbic

system,

> itself, is often thought of as the " emotional centre " of the

brain.

> 1 The amygdala and hippocampus are important components of the

> limbic system that regulate emotional expression, especially fear,

> rage and automatic reactions (such as impulsive behaviors) and

> emotional memory. Although not formally part of the limbic system

> itself, the pre-frontal cortex (located near the forehead) is

> another important structure thought to play a key role in

emotional

> regulation. Both areas of the brain have been the subject of a

> number of studies examining the neurological origin of BPD. For

> example, studies examining the connection between BPD and

> neuroanotomical differences in limbic system found that the volume

> of the hippocampus and amygdala were respectively, 16 percent and

> 7.5 percent smaller in the BPD group than those in the control

group

> (people without any form of mental illness). 5 It is hypothesized

> that these differences may be related to prior abuse experiences,

a

> common issue for people diagnosed with BPD. However, more research

> is required to prove this theory.

>

> Another study by Soloff, M.D. and his associates found a

> connection between BPD and low level brain activity in the pre-

> frontal cortex. Using Positron Emission Tomography (PET) scans,

> researchers can measure glucose levels to detect brain activity

Low

> glucose levels have been connected to deficiencies in serotonin, a

> naturally occurring chemical in the brain that helps regulate

> emotion. In this study, Soloff established two groups. The first

> group comprised of BPD patients, while the second group, served as

> the control group made up of participants with no history of

mental

> illness. Subjects from both the BPD group and the control group

were

> either given the serotonin-enhancing drug, Fenfluramine or a

> placebo. Under both conditions, researchers consistently observed

> higher level glucose activity in the frontal lobes of control

> participants than those in the BPD group. 12

>

> These biological explanations for BPD substantiate Heller's belief

> that BPD is in fact a biological disorder, and not just a

> personality flaw.

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Guest guest

I tend to disagree. Many with Bi-polar are mildly ill, many more are serverely

ill, and the general public does not understand Bi-polar any better than manic

depressive. Just as many movies about this illness as any other as well! Only

they choose to portray the severely ill bi-polar population. Bi-polar may be

more accepted, but not because anyone understands it or accepts it socially, but

because insurance pays for the diagnosis. For me manic depressive explains the

illness straight out, one day manic one day depressed! Bi-polar sounds more

like a label in my opinion.

I see many stories in the news and in the newspaper about bad things in this

world and funny thing the crazy person they are reporting and writing about

always is diagnosed as bi-polar.

A name is a name, if we cant get passed a name how can we hope to get passed the

symptoms.

Also there is no clear cut statement about whether or not to label with BPD.

Many many people were releived to finally have a name for thier problems, it

gave them something to deal with when they asked whats wrong with me? Instead

of being misdiagnosed with one mental/emotional disorder after another such as

depression, bi-polar, etc and being mistreated for those instead of the actual

problems!

So its gonna be half and half those who want the label and dont give a hoot what

it is, and those who are so damaged emotionally they would let a label further

cripple them.

Hugs

Kelley

Re: What's In a Name

,

I really agree with you on this one. Being labeled with an illness

which you feel is scary or repulsive is a terrible thing. Manic-

depression was renamed " bi-polar " and I think it was a positive

move. People will admit to having this and I think most of the

population understands that this is an illness, can be treated and

that patients who have it should be praised for getting treatment.

I never, never have used the word " borderline " with my daughter. She

knows the diagnosis, and in a letter once wrote that she has it. But

I also know that in part of her therapy she addressed being labeled

as " crazy, freak, borderline, deviant " , etc. because it was so very

upsetting to her to be labeled. In " Walking on Eggshells " the book

suggests not giving the name of the disorder to the sufferer as a

layperson, because this could actually be damaging.

Even though it might be semantics, renaming this disorder with a

more appropriate name would probably help it in becoming accepted

publicly and understood as as illness, as bi-polar is.

Carolyn

>

> -------------------------------------------------------------------

--

> -----------

> What's in a name? In the disability community this question is a

hot

> topic. In fact, the use of negative language has proven time after

> time to be a major influence on individual and public attitudes

> towards people with disabilities and as Dahl asserts often

> constitutes " a major barrier for people with disabilities " .3

> However, despite progress being made to use less stigmatizing

> disability terms, psychiatry has not kept up with these changes.

> Borderline Personality Disorder (BPD), listed in the Axis II

section

> of Diagnostic and Statistical Manual (DSM IV), is an example of

one

> such term and the focus of this paper.4

>

> The DSM IV defines BPD as " a pervasive pattern of instability of

> interpersonal relationships, self-image, and effects, and marked

> impulsivity beginning by early adulthood. " .4 The mental health

> disability causes extreme emotional vulnerability, an unstable

sense

> of self, impulsiveness in potentially self-damaging behaviors

(e.g.,

> spending, sex, substance abuse, driving, eating, etc.), suicidal

or

> self-mutilating behavior, chronic feelings of emptiness, intense

> anger or difficulty controlling anger, and periods of feeling

> removed from reality (dissociation).

>

> This paper will discuss the negative connotations of the

term " BPD " ,

> examine the origin of the term, the effects it has on treatment

and

> ways the term shapes both individual and public perception of

people

> diagnosed with the disorder. In addition, the paper will explore

> whether or not the term is an acceptable use of language based on

> current terminology standards outlined in the government

> publication " Worthless or Wonderful " .15 Finally, it will propose

> recommendations for changing the name and identify recent progress

> towards this goal.

>

> Origin

>

> The origin of the term " BPD " dates back to the early 1900's. At

this

> time people with mental health disabilities were either

categorized

> as neurotic or psychotic. 13 As it became increasingly clear to

Dr.

> Stern (an early psychiatrist) that a growing patient body did not

> quite fit into these oversimplified diagnostic categories of the

> day, the term " borderline " was born. According to Dr. Stern's

> theory, such patient's teetered on the " borderline " between

neuroses

> and psychoses. Although this theory went out of favor shortly

after

> it was proposed, the " borderline " label stuck. 2

>

> Inaccuracy

>

> Dr. Leland Heller (M.D.), believes the BPD term is inaccurate and

> that the 'BPD' label " in and of itself is as if the whole person

> (and the personality) is flawed. " .7 He strongly objects to this

> implication because the most recent research on BPD indicates that

> the cause of the disorder is not a " flawed personality " but rather

a

> biologically based brain disorder. He believes there is a

> dysfunction of the limbic system of the brain.7 Heller backs up

his

> objection to the term with recent research on the biological

> components of BPD. Evidence linking borderline personality

> disorderjj to a limbic system dysfunction is based on current

> knowledge regarding the function of the limbic circuit and studies

> examining the biological causes of the disorder. The limbic

system,

> itself, is often thought of as the " emotional centre " of the

brain.

> 1 The amygdala and hippocampus are important components of the

> limbic system that regulate emotional expression, especially fear,

> rage and automatic reactions (such as impulsive behaviors) and

> emotional memory. Although not formally part of the limbic system

> itself, the pre-frontal cortex (located near the forehead) is

> another important structure thought to play a key role in

emotional

> regulation. Both areas of the brain have been the subject of a

> number of studies examining the neurological origin of BPD. For

> example, studies examining the connection between BPD and

> neuroanotomical differences in limbic system found that the volume

> of the hippocampus and amygdala were respectively, 16 percent and

> 7.5 percent smaller in the BPD group than those in the control

group

> (people without any form of mental illness). 5 It is hypothesized

> that these differences may be related to prior abuse experiences,

a

> common issue for people diagnosed with BPD. However, more research

> is required to prove this theory.

>

> Another study by Soloff, M.D. and his associates found a

> connection between BPD and low level brain activity in the pre-

> frontal cortex. Using Positron Emission Tomography (PET) scans,

> researchers can measure glucose levels to detect brain activity

Low

> glucose levels have been connected to deficiencies in serotonin, a

> naturally occurring chemical in the brain that helps regulate

> emotion. In this study, Soloff established two groups. The first

> group comprised of BPD patients, while the second group, served as

> the control group made up of participants with no history of

mental

> illness. Subjects from both the BPD group and the control group

were

> either given the serotonin-enhancing drug, Fenfluramine or a

> placebo. Under both conditions, researchers consistently observed

> higher level glucose activity in the frontal lobes of control

> participants than those in the BPD group. 12

>

> These biological explanations for BPD substantiate Heller's belief

> that BPD is in fact a biological disorder, and not just a

> personality flaw.

People joining this list must read the guidelines and agree to them before

posting. Send questions or concerns to WelcomeToOz-owner . " Stop

Walking on Eggshells " , a primer for non-BPs, and " Hope for Parents: Helping Your

Borderline Son or Daughter Without Sacrificing Your Family Or Yourself " can be

ordered via 1-888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

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Guest guest

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand something

or are froghtened by it.

Jean

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Guest guest

Bipolar has gained recognition and " acceptance " because famous

actors and actresses (mostly the latter) have shown that so-

called " normal " people have the illness, not because the name was

changed.

> >

> > -----------------------------------------------------------------

--

> --

> > -----------

> > What's in a name? In the disability community this question is a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability of

> > interpersonal relationships, self-image, and effects, and marked

> > impulsivity beginning by early adulthood… " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.), suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness, intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's. At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole person

> > (and the personality) is flawed… " .7 He strongly objects to this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD. For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET) scans,

> > researchers can measure glucose levels to detect brain activity

> Low

> > glucose levels have been connected to deficiencies in serotonin,

a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The first

> > group comprised of BPD patients, while the second group, served

as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

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Share on other sites

Guest guest

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

Well said and in many less words than I could get it spit out! LOL thanks,

of course that is why you are a writer !

Hugs

Kelley

Re: What's In a Name

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

No, it is not about admiting someone has a problem, I admitted I have a problem

and so does my daugter(admits that she has one), but there is so much negative

stigma, and people that push the negative stigma about BPD...and really

borderline personality disorder don't fit it at all. My daughter and I know the

symptoms, but the stigma and name for it makes it scary to people who don't

understand it....she is being called " crazy " at school because of this label,

and it is making her have episodes, that I have to deal with at home...so I

think a name change would be good...Emotional Regulatory Disorder does sound

better and explains it better. People with BPD are full of emotions that they

don't know how to handle, especially when " triggered " ...we don't go around

abusing people or hitting people...we are not psychopathic. We might manipulate

yes, but that is part of the emotional trauma we are in......

Kelley wrote:

Well said and in many less words than I could get it spit out! LOL thanks,

of course that is why you are a writer !

Hugs

Kelley

Re: What's In a Name

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

My point is, a name change would be good, because of how sensitive people are,

especially teens...it is not easy to have your daughter come home from school,

depressed because they made fun of her disorder and called her " crazy " that

caused so much pain for my daughter, she wanted to cut herself. The name don't

bother me, but I am an adult and I can deal with other people, but a teen just

acccepting that she has a problem and having to deal with cruelty is not

easy....so a name change to something that fit it better, would help a lot.

katiehines57 wrote:

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

Even though I am not famous, I hope if enough BPD's work on it we can change the

bad stigma of BPD....I have never acted as bad as Glenn Close in Fatal

Attracation, and people who have been hurt by BPD's or others with personality

disorders, smear it too. I am a functioning person in society for most part, I

have my bad days, like today, where I just want to hit a wall and scream my

lungs out, but I write it out later, and listen to my music and relax and it

goes away.....but for the most part, I live mostly a " normal " life...

katiehines57 wrote:

Bipolar has gained recognition and " acceptance " because famous

actors and actresses (mostly the latter) have shown that so-

called " normal " people have the illness, not because the name was

changed.

> >

> > -----------------------------------------------------------------

--

> --

> > -----------

> > What's in a name? In the disability community this question is a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability of

> > interpersonal relationships, self-image, and effects, and marked

> > impulsivity beginning by early adulthood… " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.), suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness, intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's. At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole person

> > (and the personality) is flawed… " .7 He strongly objects to this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD. For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET) scans,

> > researchers can measure glucose levels to detect brain activity

> Low

> > glucose levels have been connected to deficiencies in serotonin,

a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The first

> > group comprised of BPD patients, while the second group, served

as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

People joining this list must read the guidelines and agree to them before

posting. Send questions or concerns to WelcomeToOz-owner . " Stop

Walking on Eggshells " , a primer for non-BPs, and " Hope for Parents: Helping Your

Borderline Son or Daughter Without Sacrificing Your Family Or Yourself " can be

ordered via 1-888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

Link to comment
Share on other sites

Guest guest

,

I see what you are talking about going on with my daughter . . . and

I understand your viewpoint. Of course, it is a matter of opinion

and there is no right or wrong here.

My daughter has nothing whatsoever in common with the character

in " Fatal Attraction " . She doesn't have clinging relationships, she

has lots of friends she has had for years, she doesn't rage, kill

animals, stalk or do any of the other things that character did!!

Her problems are impulsivity, poor decision making, lots of

difficulty following through with anything, tendency to be anxious,

depression, sometimes suicidal thoughts (before she went on meds),

is manipulative and has low self-esteem.

I think there is definitely a continuum of severity with this

illness. Being grouped into a category which has such stigma does

affect the sufferer, and would certainly affect getting help. I

think that if there wasn't a genuine issue with this, it would not

be such an item of discussion with professionals.

Carolyn

> > >

> > > -----------------------------------------------------------

----

> ----

> > --

> > > -----------

> > > What's in a name? In the disability community this

question is

> a

> > hot

> > > topic. In fact, the use of negative language has proven

time

> after

> > > time to be a major influence on individual and public

> attitudes

> > > towards people with disabilities and as Dahl asserts often

> > > constitutes " a major barrier for people with

disabilities " .3

> > > However, despite progress being made to use less

stigmatizing

> > > disability terms, psychiatry has not kept up with these

> changes.

> > > Borderline Personality Disorder (BPD), listed in the Axis

II

> > section

> > > of Diagnostic and Statistical Manual (DSM IV), is an

example

> of

> > one

> > > such term and the focus of this paper.4

> > >

> > > The DSM IV defines BPD as " a pervasive pattern of

instability

> of

> > > interpersonal relationships, self-image, and effects, and

> marked

> > > impulsivity beginning by early adulthood. " .4 The mental

health

> > > disability causes extreme emotional vulnerability, an

unstable

> > sense

> > > of self, impulsiveness in potentially self-damaging

behaviors

> > (e.g.,

> > > spending, sex, substance abuse, driving, eating, etc.),

> suicidal

> > or

> > > self-mutilating behavior, chronic feelings of emptiness,

> intense

> > > anger or difficulty controlling anger, and periods of

feeling

> > > removed from reality (dissociation).

> > >

> > > This paper will discuss the negative connotations of the

> > term " BPD " ,

> > > examine the origin of the term, the effects it has on

> treatment

> > and

> > > ways the term shapes both individual and public perception

of

> > people

> > > diagnosed with the disorder. In addition, the paper will

> explore

> > > whether or not the term is an acceptable use of language

based

> on

> > > current terminology standards outlined in the government

> > > publication " Worthless or Wonderful " .15 Finally, it will

> propose

> > > recommendations for changing the name and identify recent

> progress

> > > towards this goal.

> > >

> > > Origin

> > >

> > > The origin of the term " BPD " dates back to the early

1900's.

> At

> > this

> > > time people with mental health disabilities were either

> > categorized

> > > as neurotic or psychotic. 13 As it became increasingly

clear

> to

> > Dr.

> > > Stern (an early psychiatrist) that a growing patient body

did

> not

> > > quite fit into these oversimplified diagnostic categories

of

> the

> > > day, the term " borderline " was born. According to Dr.

Stern's

> > > theory, such patient's teetered on the " borderline "

between

> > neuroses

> > > and psychoses. Although this theory went out of favor

shortly

> > after

> > > it was proposed, the " borderline " label stuck. 2

> > >

> > > Inaccuracy

> > >

> > > Dr. Leland Heller (M.D.), believes the BPD term is

inaccurate

> and

> > > that the 'BPD' label " in and of itself is as if the whole

> person

> > > (and the personality) is flawed. " .7 He strongly objects to

> this

> > > implication because the most recent research on BPD

indicates

> that

> > > the cause of the disorder is not a " flawed personality "

but

> rather

> > a

> > > biologically based brain disorder. He believes there is a

> > > dysfunction of the limbic system of the brain.7 Heller

backs

> up

> > his

> > > objection to the term with recent research on the

biological

> > > components of BPD. Evidence linking borderline personality

> > > disorderjj to a limbic system dysfunction is based on

current

> > > knowledge regarding the function of the limbic circuit and

> studies

> > > examining the biological causes of the disorder. The

limbic

> > system,

> > > itself, is often thought of as the " emotional centre " of

the

> > brain.

> > > 1 The amygdala and hippocampus are important components of

the

> > > limbic system that regulate emotional expression,

especially

> fear,

> > > rage and automatic reactions (such as impulsive behaviors)

and

> > > emotional memory. Although not formally part of the limbic

> system

> > > itself, the pre-frontal cortex (located near the forehead)

is

> > > another important structure thought to play a key role in

> > emotional

> > > regulation. Both areas of the brain have been the subject

of a

> > > number of studies examining the neurological origin of

BPD.

> For

> > > example, studies examining the connection between BPD and

> > > neuroanotomical differences in limbic system found that

the

> volume

> > > of the hippocampus and amygdala were respectively, 16

percent

> and

> > > 7.5 percent smaller in the BPD group than those in the

control

> > group

> > > (people without any form of mental illness). 5 It is

> hypothesized

> > > that these differences may be related to prior abuse

> experiences,

> > a

> > > common issue for people diagnosed with BPD. However, more

> research

> > > is required to prove this theory.

> > >

> > > Another study by Soloff, M.D. and his associates

found a

> > > connection between BPD and low level brain activity in the

pre-

> > > frontal cortex. Using Positron Emission Tomography (PET)

> scans,

> > > researchers can measure glucose levels to detect brain

> activity

> > Low

> > > glucose levels have been connected to deficiencies in

> serotonin, a

> > > naturally occurring chemical in the brain that helps

regulate

> > > emotion. In this study, Soloff established two groups. The

> first

> > > group comprised of BPD patients, while the second group,

> served as

> > > the control group made up of participants with no history

of

> > mental

> > > illness. Subjects from both the BPD group and the control

> group

> > were

> > > either given the serotonin-enhancing drug, Fenfluramine or

a

> > > placebo. Under both conditions, researchers consistently

> observed

> > > higher level glucose activity in the frontal lobes of

control

> > > participants than those in the BPD group. 12

> > >

> > > These biological explanations for BPD substantiate

Heller's

> belief

> > > that BPD is in fact a biological disorder, and not just a

> > > personality flaw.

> >

> >

> >

> >

> >

> > People joining this list must read the guidelines and agree

to

> them before posting. Send questions or concerns to WelcomeToOz-

> owner " Stop Walking on Eggshells " , a primer for

non-

> BPs, and " Hope for Parents: Helping Your Borderline Son or

Daughter

> Without Sacrificing Your Family Or Yourself " can be ordered via

1-

> 888-35-SHELL (). For table of contents, go to

> http://www.BPDCentral.com

> >

> >

> >

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Share on other sites

Guest guest

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand something

or are froghtened by it.

Jean

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Guest guest

Thank you Carolyn, yes my daughter is not that bad either, she had rages before

meds, but not anymore.....and it would help so much if they changed the

name...cause neither her or I is like that character, we would never stalk, want

to kill, or anything...But, my daughter's symptoms are a lot like your

daughters, the low self esteem, being impulisive and all that other stuff, so

she don't deserve to deal with the stigma......

Yes, the professionals are discussing it, because bearing this " negative " label

can effect how the person recovers, my daughter was doing so good since on meds,

til this....her grades were coming up, she isn't so worried about " having to

have " a boyfriend anymore, she was so improving...the lying as slowed down so

much...now to start back at the very start because of people being scared of her

because of the stigma of a name...

openjoyful wrote:

,

I see what you are talking about going on with my daughter . . . and

I understand your viewpoint. Of course, it is a matter of opinion

and there is no right or wrong here.

My daughter has nothing whatsoever in common with the character

in " Fatal Attraction " . She doesn't have clinging relationships, she

has lots of friends she has had for years, she doesn't rage, kill

animals, stalk or do any of the other things that character did!!

Her problems are impulsivity, poor decision making, lots of

difficulty following through with anything, tendency to be anxious,

depression, sometimes suicidal thoughts (before she went on meds),

is manipulative and has low self-esteem.

I think there is definitely a continuum of severity with this

illness. Being grouped into a category which has such stigma does

affect the sufferer, and would certainly affect getting help. I

think that if there wasn't a genuine issue with this, it would not

be such an item of discussion with professionals.

Carolyn

> > >

> > > -----------------------------------------------------------

----

> ----

> > --

> > > -----------

> > > What's in a name? In the disability community this

question is

> a

> > hot

> > > topic. In fact, the use of negative language has proven

time

> after

> > > time to be a major influence on individual and public

> attitudes

> > > towards people with disabilities and as Dahl asserts often

> > > constitutes " a major barrier for people with

disabilities " .3

> > > However, despite progress being made to use less

stigmatizing

> > > disability terms, psychiatry has not kept up with these

> changes.

> > > Borderline Personality Disorder (BPD), listed in the Axis

II

> > section

> > > of Diagnostic and Statistical Manual (DSM IV), is an

example

> of

> > one

> > > such term and the focus of this paper.4

> > >

> > > The DSM IV defines BPD as " a pervasive pattern of

instability

> of

> > > interpersonal relationships, self-image, and effects, and

> marked

> > > impulsivity beginning by early adulthood. " .4 The mental

health

> > > disability causes extreme emotional vulnerability, an

unstable

> > sense

> > > of self, impulsiveness in potentially self-damaging

behaviors

> > (e.g.,

> > > spending, sex, substance abuse, driving, eating, etc.),

> suicidal

> > or

> > > self-mutilating behavior, chronic feelings of emptiness,

> intense

> > > anger or difficulty controlling anger, and periods of

feeling

> > > removed from reality (dissociation).

> > >

> > > This paper will discuss the negative connotations of the

> > term " BPD " ,

> > > examine the origin of the term, the effects it has on

> treatment

> > and

> > > ways the term shapes both individual and public perception

of

> > people

> > > diagnosed with the disorder. In addition, the paper will

> explore

> > > whether or not the term is an acceptable use of language

based

> on

> > > current terminology standards outlined in the government

> > > publication " Worthless or Wonderful " .15 Finally, it will

> propose

> > > recommendations for changing the name and identify recent

> progress

> > > towards this goal.

> > >

> > > Origin

> > >

> > > The origin of the term " BPD " dates back to the early

1900's.

> At

> > this

> > > time people with mental health disabilities were either

> > categorized

> > > as neurotic or psychotic. 13 As it became increasingly

clear

> to

> > Dr.

> > > Stern (an early psychiatrist) that a growing patient body

did

> not

> > > quite fit into these oversimplified diagnostic categories

of

> the

> > > day, the term " borderline " was born. According to Dr.

Stern's

> > > theory, such patient's teetered on the " borderline "

between

> > neuroses

> > > and psychoses. Although this theory went out of favor

shortly

> > after

> > > it was proposed, the " borderline " label stuck. 2

> > >

> > > Inaccuracy

> > >

> > > Dr. Leland Heller (M.D.), believes the BPD term is

inaccurate

> and

> > > that the 'BPD' label " in and of itself is as if the whole

> person

> > > (and the personality) is flawed. " .7 He strongly objects to

> this

> > > implication because the most recent research on BPD

indicates

> that

> > > the cause of the disorder is not a " flawed personality "

but

> rather

> > a

> > > biologically based brain disorder. He believes there is a

> > > dysfunction of the limbic system of the brain.7 Heller

backs

> up

> > his

> > > objection to the term with recent research on the

biological

> > > components of BPD. Evidence linking borderline personality

> > > disorderjj to a limbic system dysfunction is based on

current

> > > knowledge regarding the function of the limbic circuit and

> studies

> > > examining the biological causes of the disorder. The

limbic

> > system,

> > > itself, is often thought of as the " emotional centre " of

the

> > brain.

> > > 1 The amygdala and hippocampus are important components of

the

> > > limbic system that regulate emotional expression,

especially

> fear,

> > > rage and automatic reactions (such as impulsive behaviors)

and

> > > emotional memory. Although not formally part of the limbic

> system

> > > itself, the pre-frontal cortex (located near the forehead)

is

> > > another important structure thought to play a key role in

> > emotional

> > > regulation. Both areas of the brain have been the subject

of a

> > > number of studies examining the neurological origin of

BPD.

> For

> > > example, studies examining the connection between BPD and

> > > neuroanotomical differences in limbic system found that

the

> volume

> > > of the hippocampus and amygdala were respectively, 16

percent

> and

> > > 7.5 percent smaller in the BPD group than those in the

control

> > group

> > > (people without any form of mental illness). 5 It is

> hypothesized

> > > that these differences may be related to prior abuse

> experiences,

> > a

> > > common issue for people diagnosed with BPD. However, more

> research

> > > is required to prove this theory.

> > >

> > > Another study by Soloff, M.D. and his associates

found a

> > > connection between BPD and low level brain activity in the

pre-

> > > frontal cortex. Using Positron Emission Tomography (PET)

> scans,

> > > researchers can measure glucose levels to detect brain

> activity

> > Low

> > > glucose levels have been connected to deficiencies in

> serotonin, a

> > > naturally occurring chemical in the brain that helps

regulate

> > > emotion. In this study, Soloff established two groups. The

> first

> > > group comprised of BPD patients, while the second group,

> served as

> > > the control group made up of participants with no history

of

> > mental

> > > illness. Subjects from both the BPD group and the control

> group

> > were

> > > either given the serotonin-enhancing drug, Fenfluramine or

a

> > > placebo. Under both conditions, researchers consistently

> observed

> > > higher level glucose activity in the frontal lobes of

control

> > > participants than those in the BPD group. 12

> > >

> > > These biological explanations for BPD substantiate

Heller's

> belief

> > > that BPD is in fact a biological disorder, and not just a

> > > personality flaw.

> >

> >

> >

> >

> >

> > People joining this list must read the guidelines and agree

to

> them before posting. Send questions or concerns to WelcomeToOz-

> owner " Stop Walking on Eggshells " , a primer for

non-

> BPs, and " Hope for Parents: Helping Your Borderline Son or

Daughter

> Without Sacrificing Your Family Or Yourself " can be ordered via

1-

> 888-35-SHELL (). For table of contents, go to

> http://www.BPDCentral.com

> >

> >

> >

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Guest guest

But here's what I don't understand. What does the name of the disorder have to

do with her being teased? I'm assuming she doesn't go around telling everyone,

" I have borderline personality disorder " . If my 14-yr old daughter were to be

teased, it would be as a result of her behavior (the cutting, the immaturity,

etc.), not because of the name of her disorder - as far as I know, most people

don't even know the name, certainly her peers don't. They just know that

Chelsea has problems.

Just my 2 cents-

Deb R.

Re: Re: What's In a Name

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand

something

or are froghtened by it.

Jean

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Share on other sites

Guest guest

Brit don't either, but the kids spread it that she was hospitalized recently,

and of course the picking started because she was hospitalized, and it went from

there, there was no bad behavior...her behavior at school had much improved as

have her grades.....I realize she has to deal with this, because even adults who

don't understand, can be mean, so she has to learn to deal.....but if the name

did not have such a negative stigma to it or being hospitalized, it would make

it easier.....they ask her if she is " psycho " since she was in a psych hospital

or just how crazy she is, can you imagine what that would do to a " normal " teen,

much less one with BPD traits?

Ramacher wrote:

But here's what I don't understand. What does the name of the disorder have to

do with her being teased? I'm assuming she doesn't go around telling everyone,

" I have borderline personality disorder " . If my 14-yr old daughter were to be

teased, it would be as a result of her behavior (the cutting, the immaturity,

etc.), not because of the name of her disorder - as far as I know, most people

don't even know the name, certainly her peers don't. They just know that

Chelsea has problems.

Just my 2 cents-

Deb R.

Re: Re: What's In a Name

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand

something

or are froghtened by it.

Jean

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Share on other sites

Guest guest

The term " Borderline " is inaccurate (see 's article) - it is a

misnomer, as the condition is not on the borderline of anything.

We all know myths about bpd:

It is hopelessly incurable.

It always results from sexual molestation of children.

Parents of bp's have abused them.

There is no treatment.

Consider, for instance, how people felt in past times about someone

who had an obvious physical disability - repulsed and frightened,

because it was misunderstood. Or homosexuality, which was branded

a " mental illness " Much research has been done to show differences

in the brains of homosexuals, and investigation of whether they were

born with that orientation, rather than possessed by the devil.

Imagine if there were another, more accurate name for bpd. Imagine

if an advocacy group brought to the attention of mental health

professionals worldwide that it is many times genetic, is a chemical

inbalance, and that it is treatable. Imagine if those therapists

knew about DBT and drug treatments because they were educated on

this, and therefore recommended it to their patients, who got help.

Imagine if parents were not stigmatized as abusers because it was

revealed that bpd does not necessarily result from molestation.

Imagine if this illness was widely treated, better researched and

understood better publicly.

Knowledge is power. Much has happened as far as medical knowledge on

how to help these patients. How many people have visited this site

and found out for the first time that there is hope? How many have

learned from this group that they are not to blame for their child's

condition? This group in itself is breaking the stigma!

Will changing terms and stigmas cure anyone? No. But a forward

thinking approach to this or any illness is a positive step in

helping many people, and I think a very worthy goal.

Carolyn

> To All,

> After my daughter's fifth inpatient facility, she was

quite relieved

> to learn there was a name for what was wrong with her. Before

that all I

> ever heard was , " what is wrong with me, I don't know why I do

these things " .

> She did nothing but cut and cry. Altho, she was not a good

candidate to know,

> her reading up on it, she was able to use it to her advantage.

The drs.

> there told me she was not a good candidate to be told, but

someone there told

> her anyway. That was a long time ago, she knows what is wrong,

she knows she

> has to deal with it, and she's getting better at it. She knows

it's HER

> thinking and coping and handling, etc. that has to change and

she's getting better

> at it, she realizes it is not everyone around her that has to

change.

> Things are going so well at home now, her and my hubby talk and

get along, and I

> said to her the other day, we were talking about how well all is,

do you now

> see that neither I nor hubby have changed ourselves and look how

well we all

> get along? She smiled and knew.

> Debbie

>

>

>

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Guest guest

Thank you Carolyn.....I am glad others see on the terms I do, cause how people

look at BPD's (cause we are so sensitive) does affect our recovery. Now I have

to start over with my daughter, because of her being so sensitive to what people

think of her....and you have that to consider of BPD's too, we are so emotional

that when we get hurt feelings, it feels 10 times worse (if not more) than when

a " normal " person gets their feelings hurt.....

And knowledge is power, that is why I am trying to find out all the info I can

for my daughter and I.....

And I agree with you Carolyn, it is a worthy goal....to know that people with

BPD will have a " label " that more fits the disorder and is not as frightening to

people that don't understand it.

I don't know how many of you are on groups with " nons " , but people with BPD take

a lot of bashing and blame sometimes, and yes a lot of us do manipulate and hurt

some emotionally, but when there are articles out called " Are They Human "

talking about people with personality disorders....would you want any of your

BPD children to get their hands on that? No it would crush what little self

esteem they have. But, we only hurt others emotionally because we are too

scared too let people get too close. We want them there, but we push them away

when they get too close to our " safe zone " ....

.....

openjoyful wrote:

The term " Borderline " is inaccurate (see 's article) - it is a

misnomer, as the condition is not on the borderline of anything.

We all know myths about bpd:

It is hopelessly incurable.

It always results from sexual molestation of children.

Parents of bp's have abused them.

There is no treatment.

Consider, for instance, how people felt in past times about someone

who had an obvious physical disability - repulsed and frightened,

because it was misunderstood. Or homosexuality, which was branded

a " mental illness " Much research has been done to show differences

in the brains of homosexuals, and investigation of whether they were

born with that orientation, rather than possessed by the devil.

Imagine if there were another, more accurate name for bpd. Imagine

if an advocacy group brought to the attention of mental health

professionals worldwide that it is many times genetic, is a chemical

inbalance, and that it is treatable. Imagine if those therapists

knew about DBT and drug treatments because they were educated on

this, and therefore recommended it to their patients, who got help.

Imagine if parents were not stigmatized as abusers because it was

revealed that bpd does not necessarily result from molestation.

Imagine if this illness was widely treated, better researched and

understood better publicly.

Knowledge is power. Much has happened as far as medical knowledge on

how to help these patients. How many people have visited this site

and found out for the first time that there is hope? How many have

learned from this group that they are not to blame for their child's

condition? This group in itself is breaking the stigma!

Will changing terms and stigmas cure anyone? No. But a forward

thinking approach to this or any illness is a positive step in

helping many people, and I think a very worthy goal.

Carolyn

> To All,

> After my daughter's fifth inpatient facility, she was

quite relieved

> to learn there was a name for what was wrong with her. Before

that all I

> ever heard was , " what is wrong with me, I don't know why I do

these things " .

> She did nothing but cut and cry. Altho, she was not a good

candidate to know,

> her reading up on it, she was able to use it to her advantage.

The drs.

> there told me she was not a good candidate to be told, but

someone there told

> her anyway. That was a long time ago, she knows what is wrong,

she knows she

> has to deal with it, and she's getting better at it. She knows

it's HER

> thinking and coping and handling, etc. that has to change and

she's getting better

> at it, she realizes it is not everyone around her that has to

change.

> Things are going so well at home now, her and my hubby talk and

get along, and I

> said to her the other day, we were talking about how well all is,

do you now

> see that neither I nor hubby have changed ourselves and look how

well we all

> get along? She smiled and knew.

> Debbie

>

>

>

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Share on other sites

Guest guest

I guess what she is going through is part of the acceptance, and I know some do

physically hurt people, and I know I have emotionally hurt people, I am not

trying to play it off lightly what I have done in the past. Right now I think I

am just lost in my daughter's confusion, the thought of manipulation had crossed

my mind. I am just feeling overwhelmed with everything right now...work,

appointments, all that...I think it is time for me to tell work I need the

weekend off, so I can regroup....I have worked for a while now with out a real

day off, and was going to have Friday off, but it is booked appointments from

8:30am til 3pm...and then close saturday and off Sunday, I think I am taking off

Saturday too...work will just have to understand....I have to have a day to

myself to get my nerves back straight...

Kelley wrote:

Has it occurred to you at all that your daughters behavior at school is part of

her BPD and that maybe that is why kids say she is crazy? One of the things

BP's do well is manipulate and lie. People calling you names does not " make you

have episodes " . Sweetie why would everyone at school have even known she has

BPD?

most people have never even heard of BPD much less are they aware of a

stigma! Again, why does EVERYONE know all this about you and your daughter

unlesss you or your daughter told them for some reason? Its not something

people just go around randomly sayin, oh hi my name is susan and I have BPD for

heavens sakes.

The symptoms of BPD are what you treat not the label. And the label does not

make you worse or better. you are wrong about people with BPD not going

around hurting people, many of them do it all the time and then they turn around

and recall the incident in reverse and blame the person that they hurt. People

with BPD need to learn how to not be triggered, not make excuses and hide behind

being triggered. Yes it is an emotional disorder but may I also point out

emotions are part of your MENTAL health or illness and also the article you

posted earlier about changing the name of BPD called it a MENTAL Illness!

, I think you need to re-read up on BPD, I hate you dont leave me, Stop

Walking on Eggshells, any book at all on the subject might do. You seem to have

missed the whole detrimental side to BPD that hurts everyone in thier lives.

Again if you are going to let the name get in the way of getting better, perhaps

you have some more work to do yourself. The name of the illness did not cause

it and changing the name wont cure it. It is the combination of symptoms that

are what make doctors say it is hopeless, not the name itself

Hugs

Kelley

Re: What's In a Name

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

Why did the kids at school know the name of her disorder????

Kelley

Re: Re: What's In a Name

My point is, a name change would be good, because of how sensitive people are,

especially teens...it is not easy to have your daughter come home from school,

depressed because they made fun of her disorder and called her " crazy " that

caused so much pain for my daughter, she wanted to cut herself. The name don't

bother me, but I am an adult and I can deal with other people, but a teen just

acccepting that she has a problem and having to deal with cruelty is not

easy....so a name change to something that fit it better, would help a lot.

katiehines57 wrote:

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

They started picking on her about being in the hospital and then she got mad and

told them why she went cause " she has a personality disorder " and she told me

later last night " Mom I am so tired of this disorder thing... "

Kelley wrote:

Why did the kids at school know the name of her disorder????

Kelley

Re: Re: What's In a Name

My point is, a name change would be good, because of how sensitive people are,

especially teens...it is not easy to have your daughter come home from school,

depressed because they made fun of her disorder and called her " crazy " that

caused so much pain for my daughter, she wanted to cut herself. The name don't

bother me, but I am an adult and I can deal with other people, but a teen just

acccepting that she has a problem and having to deal with cruelty is not

easy....so a name change to something that fit it better, would help a lot.

katiehines57 wrote:

This whole " what's in a name " conversation is, to me, rather

ridiculous.

If a person with cancer can't bring themselves to say, " I have

cancer, " does it make it any less true, or the prognosis any

different, or the treatment any different?

Of course not.

The problem lies not within whatever label people chose to put on

it, but the individual person's inability to accept that they are

ill and deal with the consequences.

> >

> > ---------------------------------------------------------------

----

> --

> > -----------

> > What's in a name? In the disability community this question is

a

> hot

> > topic. In fact, the use of negative language has proven time

after

> > time to be a major influence on individual and public

attitudes

> > towards people with disabilities and as Dahl asserts often

> > constitutes " a major barrier for people with disabilities " .3

> > However, despite progress being made to use less stigmatizing

> > disability terms, psychiatry has not kept up with these

changes.

> > Borderline Personality Disorder (BPD), listed in the Axis II

> section

> > of Diagnostic and Statistical Manual (DSM IV), is an example

of

> one

> > such term and the focus of this paper.4

> >

> > The DSM IV defines BPD as " a pervasive pattern of instability

of

> > interpersonal relationships, self-image, and effects, and

marked

> > impulsivity beginning by early adulthood. " .4 The mental health

> > disability causes extreme emotional vulnerability, an unstable

> sense

> > of self, impulsiveness in potentially self-damaging behaviors

> (e.g.,

> > spending, sex, substance abuse, driving, eating, etc.),

suicidal

> or

> > self-mutilating behavior, chronic feelings of emptiness,

intense

> > anger or difficulty controlling anger, and periods of feeling

> > removed from reality (dissociation).

> >

> > This paper will discuss the negative connotations of the

> term " BPD " ,

> > examine the origin of the term, the effects it has on

treatment

> and

> > ways the term shapes both individual and public perception of

> people

> > diagnosed with the disorder. In addition, the paper will

explore

> > whether or not the term is an acceptable use of language based

on

> > current terminology standards outlined in the government

> > publication " Worthless or Wonderful " .15 Finally, it will

propose

> > recommendations for changing the name and identify recent

progress

> > towards this goal.

> >

> > Origin

> >

> > The origin of the term " BPD " dates back to the early 1900's.

At

> this

> > time people with mental health disabilities were either

> categorized

> > as neurotic or psychotic. 13 As it became increasingly clear

to

> Dr.

> > Stern (an early psychiatrist) that a growing patient body did

not

> > quite fit into these oversimplified diagnostic categories of

the

> > day, the term " borderline " was born. According to Dr. Stern's

> > theory, such patient's teetered on the " borderline " between

> neuroses

> > and psychoses. Although this theory went out of favor shortly

> after

> > it was proposed, the " borderline " label stuck. 2

> >

> > Inaccuracy

> >

> > Dr. Leland Heller (M.D.), believes the BPD term is inaccurate

and

> > that the 'BPD' label " in and of itself is as if the whole

person

> > (and the personality) is flawed. " .7 He strongly objects to

this

> > implication because the most recent research on BPD indicates

that

> > the cause of the disorder is not a " flawed personality " but

rather

> a

> > biologically based brain disorder. He believes there is a

> > dysfunction of the limbic system of the brain.7 Heller backs

up

> his

> > objection to the term with recent research on the biological

> > components of BPD. Evidence linking borderline personality

> > disorderjj to a limbic system dysfunction is based on current

> > knowledge regarding the function of the limbic circuit and

studies

> > examining the biological causes of the disorder. The limbic

> system,

> > itself, is often thought of as the " emotional centre " of the

> brain.

> > 1 The amygdala and hippocampus are important components of the

> > limbic system that regulate emotional expression, especially

fear,

> > rage and automatic reactions (such as impulsive behaviors) and

> > emotional memory. Although not formally part of the limbic

system

> > itself, the pre-frontal cortex (located near the forehead) is

> > another important structure thought to play a key role in

> emotional

> > regulation. Both areas of the brain have been the subject of a

> > number of studies examining the neurological origin of BPD.

For

> > example, studies examining the connection between BPD and

> > neuroanotomical differences in limbic system found that the

volume

> > of the hippocampus and amygdala were respectively, 16 percent

and

> > 7.5 percent smaller in the BPD group than those in the control

> group

> > (people without any form of mental illness). 5 It is

hypothesized

> > that these differences may be related to prior abuse

experiences,

> a

> > common issue for people diagnosed with BPD. However, more

research

> > is required to prove this theory.

> >

> > Another study by Soloff, M.D. and his associates found a

> > connection between BPD and low level brain activity in the pre-

> > frontal cortex. Using Positron Emission Tomography (PET)

scans,

> > researchers can measure glucose levels to detect brain

activity

> Low

> > glucose levels have been connected to deficiencies in

serotonin, a

> > naturally occurring chemical in the brain that helps regulate

> > emotion. In this study, Soloff established two groups. The

first

> > group comprised of BPD patients, while the second group,

served as

> > the control group made up of participants with no history of

> mental

> > illness. Subjects from both the BPD group and the control

group

> were

> > either given the serotonin-enhancing drug, Fenfluramine or a

> > placebo. Under both conditions, researchers consistently

observed

> > higher level glucose activity in the frontal lobes of control

> > participants than those in the BPD group. 12

> >

> > These biological explanations for BPD substantiate Heller's

belief

> > that BPD is in fact a biological disorder, and not just a

> > personality flaw.

>

>

>

>

>

> People joining this list must read the guidelines and agree to

them before posting. Send questions or concerns to WelcomeToOz-

owner " Stop Walking on Eggshells " , a primer for non-

BPs, and " Hope for Parents: Helping Your Borderline Son or Daughter

Without Sacrificing Your Family Or Yourself " can be ordered via 1-

888-35-SHELL (). For table of contents, go to

http://www.BPDCentral.com

>

>

>

Link to comment
Share on other sites

Guest guest

,

My daughter and I had the same problems you are facing to a degree. It was

good for her to learn she had BPD, but we don't go around telling everyone

that. Instead, whoever needed to know, were told that she was dealing with

some emotional/psychological issues and left it at that. We felt it was no

one's business at school as far as her fellow students were concerned. How

would

they know about it anyway, without having been told directly from a family

member. It would be okay that the faculty be made aware of her issues so they

could support and help. The facilities where she stayed and any ER's were

given her history, but in these places we didn't have to worry about the

" stigma " of a name.

Debbie

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Guest guest

Deb R.

I agree completely with your post. And changing the name doesn't change the

disorder.

Bottom line it's still the same. And because they have already been

diagnosed, changing the name doesn't change in their minds what they have and

are

dealing with. Telling others a new name, especially peers who don't have a

clue anyway, isn't going to make them think any different, they will think she

has something else on top off the BPD.

Like I posted earlier, as far as peers are concerned, it's none of their

business what my daughter has or hasn't got.

Debbie

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Guest guest

Deb

Your 2 cents makes a lot of sense. Most people dont know what BPD is and never

heard of it. The stigma is in the mind of the diagnosis, it has always been

classified as hopeless until more doctors took an interest in trying to help

thier patients with BPD. It was considered hopeless because the patient would

not continue therapy or continue meds or learn better behaviors. That is the o

nly stigma I know of that goes with the tag BPD.

BPD by the way borderline, not a bad word means on the border, bordering between

psychosis and neurosis. Some symptoms in each category. PD is correct, it is

definitely a personality disorder. Persons with BPD dont have an identity that

is prmanenant or stable until after much therapy.

My doctor shook her head when I said that my BPH had BPD, but you know what, she

is a medical doctor not in the loop of new things surrounding BPD treatment.

But she was right to shake her head and tell me to leave and that BPD's are

hopeless for the most part. She knew that many with BPD do not even get

diagnosed, much less go into treatment! I am speaking of adults here, as they

did not diagnos children and teens even with BPD traits until recently or

rarely.So you are a rarity. Most do not seek treatment and when they do

they cant stay in it because they cannot let someone like a therapist get that

close to them.

Hugs

Kelley

Re: Re: What's In a Name

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand

something

or are froghtened by it.

Jean

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Guest guest

That is normal. Not because of the label BPD. You can take her out of school

and put her in another, and that is about all you can do. Kids will be kids.

She was in psychiatric care, that is something to talk about in high school.

yes she is going to have to live past that stigma. She is going to have to be a

person the other kids see as not crazy. That will take a long time to live down.

But changing the name of her diagnoses at this point would not change what has

allready happened. Something for her to deal with with her therapist though.

Remember her disorder has a lot to do with having more severe emotions than a

Non, so anything is going to affect her harder and deeper than a teenager her

age. Until she learns to deal with these things properly. I daresay if she had

been hospitalized for cancer they would also be calling her names because her

hair fell out.

Hugs

Kelley

Re: Re: What's In a Name

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand

something

or are froghtened by it.

Jean

Link to comment
Share on other sites

Guest guest

You know speaking of docters, when my daughter and she had her last rage, before

I had her hospitalized, I told her general docter, since it was going to take a

while to get in to a psychatrist..like a month wait, and I knew my patience

couldn't hold out that long, her last rage had drained me in every way, so I

thought maybe her general docter could prescribe her something (the school

psychatrist had suggested this, since her therapist didn't prescribe meds) until

she could get into the psychatrist...when I told her general docter about the

rage and my daughter threatening to jump out the window, she just shook her head

and said, " hopeless " and walked out the room, my daughter looked at me and said,

" mommy is she saying for you to give up on me " I told my daughter, " yeah, but I

am not " so I started calling hospitals.....I reported the docter, cause her

bedside manner was not right, and I got my daughter a new general docter...

Kelley wrote:

Deb

Your 2 cents makes a lot of sense. Most people dont know what BPD is and never

heard of it. The stigma is in the mind of the diagnosis, it has always been

classified as hopeless until more doctors took an interest in trying to help

thier patients with BPD. It was considered hopeless because the patient would

not continue therapy or continue meds or learn better behaviors. That is the o

nly stigma I know of that goes with the tag BPD.

BPD by the way borderline, not a bad word means on the border, bordering between

psychosis and neurosis. Some symptoms in each category. PD is correct, it is

definitely a personality disorder. Persons with BPD dont have an identity that

is prmanenant or stable until after much therapy.

My doctor shook her head when I said that my BPH had BPD, but you know what, she

is a medical doctor not in the loop of new things surrounding BPD treatment.

But she was right to shake her head and tell me to leave and that BPD's are

hopeless for the most part. She knew that many with BPD do not even get

diagnosed, much less go into treatment! I am speaking of adults here, as they

did not diagnos children and teens even with BPD traits until recently or

rarely.So you are a rarity. Most do not seek treatment and when they do

they cant stay in it because they cannot let someone like a therapist get that

close to them.

Hugs

Kelley

Re: Re: What's In a Name

Yes, I told my daughter this, that people are scared of what they don't

understand, and teen boys make fun to make themselves look big and bad to

others, but still it hurts me to see it hurt her...call me " mental " or " crazy "

and I don't care, cause I know I have had my " crazy " days, but the name calling

set her back a good bit yesterday, and I am the one who has to deal with the

highs and lows and that come with the episode, and that affects me as her

mother. She is a teen, that wants to be like other teens, but she don't feel

she fits in anywhere, and wants to kill herself, and now she has to deal with

the negativity of this stigma....

cascorsam@... wrote:

I would tend to agree with you. Unfortunately the general population is

ignorant and many act in poor taste as well when they don't understand

something

or are froghtened by it.

Jean

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