Re: Debbie/Dustie/Stacey/?

[Guest guest]

Rhonda...

You could always leave a note for the woman at daycare giving her the CT website and information on Brachy. There is a picture of a baby that was banded at 19 1/2 months with brachy and had what I think is great correction.

http://www.cranialtech.com/treatment/outcomes.html

Or just tell her that you want to give her the information for her to look over as an option for her child. I think that sometimes people don't know where to start or that there is still time or that they can do anything about it if their doctor hasn't mentioned it, etc...... If you are feeling tormented (as I would be too) this may make you feel better. At least you would have given her the information and then she could decide from there.

Debbie/Dustie/Stacey/?

I was just popping in to say hello (old friends and new ones I do not know), and I hardly recognize all the new names! I guess everyone has off and graduated...Is Dustie still around? I don't see her on the board too much (?). I have been lurking here and there, but everyone gives such great advice, that I don't think I can possibly add any more!Collin is 19 months now.. and in that terrible toddler phase. Just to update everyone, he is now 8 months post-graduation (14 wks treatment). We're excited to enjoy the band-free summer this year; it should be nice. I have emailed Charlotte and Sherri at CT in Paramus a few times and in doing so, I am reminded how wonderful they are, and how we actually enjoyed our visits to Paramus every other week. I live 15 minutes away and one of these days we will pop in to say "hello". And another update, which only the 'old-timers' may remember. My best friend's baby had severe plagio and she tried to reposition, got a referral to the neurosurgeon, etc. The neuro at 4 months did not recommend banding and said she would be fine. Well, she is now 9 months old and has severe asymmetry in her face complete with one of her eyes appearing cross-eyed/half closed. My friend's pediatrician is still concerned (as well as my friend and husband) and she is considering a second opinion from another neuro. She is very much kicking herself that she didn't pursue it at the time and I feel so badly for her. It is so difficult when you get these opinions, what to do, what is best, etc. I still say, follow your gut.My other friend from daycare that I mentioned, who was in denial for so many months about her child who had/has head flattening... Said something very poignant to me a few weeks ago and although I didn't elaborate on it for fear of upsetting her further, I understood where she is coming from. She was feeling Collin's head and said, "What you did for Collin was such a great thing. His head is so round now... What do you do --as a parent, a mother, when you realize that he has that problem?" I said, "Well, there are so many worse things out there, and this was a problem that could be corrected, so I just did what I felt was best.. It didn't hurt him, he didn't mind it...and it was over in 14 weeks." She said, "You really did a great job with that, handled it so well." I felt really bad because as I mentioned months ago, her son's head was pretty severe - brachy. And now, at 13 months, there has been literally no change, and not only is he flat on the back side, but has a large dent on the bottom right side and some ear assymetry. Will he grow out of it now, at this point? Not sure. But anyone who knows me here, knows the torment I put myself through every day, wanting to say something to this woman. I did everything I could to alert her without coming out and telling her. It became apparent to me that she probably knew, but was in denial or scared. I left it alone. Now I feel sad. But, as I have said, there are worse issues to deal with and we are lucky our children our healthy.Sorry to rant, just that my discussion with her really touched me. And while I do not come on this board (hardly ever anymore!) I stay in touch with the folks at CT and also enjoy responding to the many inquires I get through vistors on Collin's site. I will say that I am relieved and SO happy I decided on treatment for Collin. It was a period of time we will never forget as a family, and some day I can share all of this with him, and hopefully he will thank his father and I for 'roundin' his noggin'" :)I won't bore you any longer -- I miss you guys! Hope to chat again soon. Take care,RhondaMom to Collin - DOC Band grad 8/03, NJwww.collingillespie.comFor more plagio info

[Guest guest]

Thanks Dawn - I actually have already inundated daycare with my CT

information, oh, about 8+ months ago when Collin was banded. This

particular mother also got the links, etc. on the card I gave

everyone with Collin's Graduation treats... So, I think I have

covered it. It is her perogative, and if she really wants to do

something she can. I could casually mention that 'some children have

had very successfull treatment at older ages beyond a year, etc. "

Thanks for the tip

Rhonda

--- In Plagiocephaly , " Dawn s " <dmpeters@w...>

wrote:

> Rhonda...

>

> You could always leave a note for the woman at daycare giving her

the CT website and information on Brachy. There is a picture of a

baby that was banded at 19 1/2 months with brachy and had what I

think is great correction.

>

> http://www.cranialtech.com/treatment/outcomes.html

>

> Or just tell her that you want to give her the information for her

to look over as an option for her child. I think that sometimes

people don't know where to start or that there is still time or that

they can do anything about it if their doctor hasn't mentioned it,

etc...... If you are feeling tormented (as I would be too) this may

make you feel better. At least you would have given her the

information and then she could decide from there.

>

>

> Debbie/Dustie/Stacey/?

>

>

> I was just popping in to say hello (old friends and new ones I do

not

> know), and I hardly recognize all the new names! I guess

everyone

> has off and graduated...

>

> Is Dustie still around? I don't see her on the board too much

(?).

> I have been lurking here and there, but everyone gives such great

> advice, that I don't think I can possibly add any more!

>

> Collin is 19 months now.. and in that terrible toddler phase.

Just

> to update everyone, he is now 8 months post-graduation (14 wks

> treatment). We're excited to enjoy the band-free summer this

year;

> it should be nice. I have emailed Charlotte and Sherri at CT in

> Paramus a few times and in doing so, I am reminded how wonderful

they

> are, and how we actually enjoyed our visits to Paramus every

other

> week. I live 15 minutes away and one of these days we will pop

in to

> say " hello " .

>

> And another update, which only the 'old-timers' may remember. My

best

> friend's baby had severe plagio and she tried to reposition, got

a

> referral to the neurosurgeon, etc. The neuro at 4 months did not

> recommend banding and said she would be fine. Well, she is now 9

> months old and has severe asymmetry in her face complete with one

of

> her eyes appearing cross-eyed/half closed. My friend's

pediatrician

> is still concerned (as well as my friend and husband) and she is

> considering a second opinion from another neuro. She is very much

> kicking herself that she didn't pursue it at the time and I feel

so

> badly for her. It is so difficult when you get these opinions,

what

> to do, what is best, etc.

> I still say, follow your gut.

>

> My other friend from daycare that I mentioned, who was in denial

for

> so many months about her child who had/has head flattening...

Said

> something very poignant to me a few weeks ago and although I

didn't

> elaborate on it for fear of upsetting her further, I understood

where

> she is coming from. She was feeling Collin's head and

said, " What

> you did for Collin was such a great thing. His head is so round

> now... What do you do --as a parent, a mother, when you realize

that

> he has that problem? " I said, " Well, there are so many worse

things

> out there, and this was a problem that could be corrected, so I

just

> did what I felt was best.. It didn't hurt him, he didn't mind

> it...and it was over in 14 weeks. " She said, " You really did a

great

> job with that, handled it so well. "

>

> I felt really bad because as I mentioned months ago, her son's

head

> was pretty severe - brachy. And now, at 13 months, there has

been

> literally no change, and not only is he flat on the back side,

but

> has a large dent on the bottom right side and some ear

assymetry.

> Will he grow out of it now, at this point? Not sure. But anyone

who

> knows me here, knows the torment I put myself through every day,

> wanting to say something to this woman. I did everything I could

to

> alert her without coming out and telling her. It became apparent

to

> me that she probably knew, but was in denial or scared. I left

it

> alone. Now I feel sad. But, as I have said, there are worse

issues

> to deal with and we are lucky our children our healthy.

>

> Sorry to rant, just that my discussion with her really touched

me.

> And while I do not come on this board (hardly ever anymore!) I

stay

> in touch with the folks at CT and also enjoy responding to the

many

> inquires I get through vistors on Collin's site. I will say that

I

> am relieved and SO happy I decided on treatment for Collin. It

was a

> period of time we will never forget as a family, and some day I

can

> share all of this with him, and hopefully he will thank his

father

> and I for 'roundin' his noggin' "

>

> I won't bore you any longer -- I miss you guys! Hope to chat

again

> soon.

>

> Take care,

> Rhonda

> Mom to Collin - DOC Band grad 8/03, NJ

> www.collingillespie.com

>

>

>

>

>

>

>

> For more plagio info