Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Congrats Christan and Lori. That is wonderful. Sandy Willow's Mom > Hello everyone! > > In light of what my 'plagiopal' Krissy is going through right now, I > feel guilty even writing this. But, I guess some positive will be > good for everyone! > > We met with the neurosurgeon today and Christian is done! It's only > been 10 weeks in a Starband, but he's achieved as much correction as > he is going to get with this band. He had not had any measurement > changes in the last two weeks at the orthotist, so we had a feeling > he was done. Christian's plagio was not all that severe, but, > because he is a tort baby and favored his right side, he had a lot of > asymmetry. His eyes are now quite equal and he only has minor > bulging of his right forehead and right cheek. Truly, it's almost > impossible to see. He has one little flat spot left on the back of > his head, but it's minor and the doctor feels that there is a good > chance that Christian's sweet head will continue to round on it's own > since he is only 8 1/2 months old. > > This site has been a blessing to me and I am so grateful to all of > you, especially Debbie (Abbys' mom) who took so much time to e- mail > me directly at the beginning of this whole ordeal. SO many of you > gave me great advice. I will be hanging around, seeing if maybe I > can be helpful to someone else, too. > > As an aside, I did mention the problems that both Krissy and I > experienced at Kast to the neurosurgeon (as coincidence would have > it, Krissy's and my Christian also have the same neuro!!) and > she took it very seriously. She is going to do some research and > does not plan to refer any more babies there until she finds out > more. > > I have been trying to post a few new pics of my sweet baby, but this > site has been giving me a hard time! I'll keep trying and let you > all know when I have success! > > THANKS AGAIN! > Lori L in FL > Mom to Christian, Starband grad 4/21/04!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi Lori!!! Congrats to you and Christian! I can't wait to see some pictures whenever you can get them posted. Welcome back to the world of non banded babies, and booh boohs on the noggin! -mom to Aidan who currently has a good know on his forehead (where is that band now?) --- In Plagiocephaly , " Lori Lovetere " <momtodom@e...> wrote: > Hello everyone! > > In light of what my 'plagiopal' Krissy is going through right now, I > feel guilty even writing this. But, I guess some positive will be > good for everyone! > > We met with the neurosurgeon today and Christian is done! It's only > been 10 weeks in a Starband, but he's achieved as much correction as > he is going to get with this band. He had not had any measurement > changes in the last two weeks at the orthotist, so we had a feeling > he was done. Christian's plagio was not all that severe, but, > because he is a tort baby and favored his right side, he had a lot of > asymmetry. His eyes are now quite equal and he only has minor > bulging of his right forehead and right cheek. Truly, it's almost > impossible to see. He has one little flat spot left on the back of > his head, but it's minor and the doctor feels that there is a good > chance that Christian's sweet head will continue to round on it's own > since he is only 8 1/2 months old. > > This site has been a blessing to me and I am so grateful to all of > you, especially Debbie (Abbys' mom) who took so much time to e-mail > me directly at the beginning of this whole ordeal. SO many of you > gave me great advice. I will be hanging around, seeing if maybe I > can be helpful to someone else, too. > > As an aside, I did mention the problems that both Krissy and I > experienced at Kast to the neurosurgeon (as coincidence would have > it, Krissy's and my Christian also have the same neuro!!) and > she took it very seriously. She is going to do some research and > does not plan to refer any more babies there until she finds out > more. > > I have been trying to post a few new pics of my sweet baby, but this > site has been giving me a hard time! I'll keep trying and let you > all know when I have success! > > THANKS AGAIN! > Lori L in FL > Mom to Christian, Starband grad 4/21/04!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Hi Lori, What great news! Congrats to you guys. Please let us know if you're able to get pics up. You could always try emailing them to to post. Thats great your neuro will be investigating your complaint. Hopefully it will keep others from going through this same problem. I'm glad you're sticking around! , mom to Hannah, DOCband #3 Cape Cod, Ma > Hello everyone! > > In light of what my 'plagiopal' Krissy is going through right now, I > feel guilty even writing this. But, I guess some positive will be > good for everyone! > > We met with the neurosurgeon today and Christian is done! It's only > been 10 weeks in a Starband, but he's achieved as much correction as > he is going to get with this band. He had not had any measurement > changes in the last two weeks at the orthotist, so we had a feeling > he was done. Christian's plagio was not all that severe, but, > because he is a tort baby and favored his right side, he had a lot of > asymmetry. His eyes are now quite equal and he only has minor > bulging of his right forehead and right cheek. Truly, it's almost > impossible to see. He has one little flat spot left on the back of > his head, but it's minor and the doctor feels that there is a good > chance that Christian's sweet head will continue to round on it's own > since he is only 8 1/2 months old. > > This site has been a blessing to me and I am so grateful to all of > you, especially Debbie (Abbys' mom) who took so much time to e- mail > me directly at the beginning of this whole ordeal. SO many of you > gave me great advice. I will be hanging around, seeing if maybe I > can be helpful to someone else, too. > > As an aside, I did mention the problems that both Krissy and I > experienced at Kast to the neurosurgeon (as coincidence would have > it, Krissy's and my Christian also have the same neuro!!) and > she took it very seriously. She is going to do some research and > does not plan to refer any more babies there until she finds out > more. > > I have been trying to post a few new pics of my sweet baby, but this > site has been giving me a hard time! I'll keep trying and let you > all know when I have success! > > THANKS AGAIN! > Lori L in FL > Mom to Christian, Starband grad 4/21/04!!!!!!!! Quote Link to comment Share on other sites More sharing options...
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