Re: Choanal atresia/Jody

[Guest guest]

Jody, LOL. I know, I now laugh at his words, " new and revolutionary " to be

exact. Ah well, maybe just new to him. Hey, I'd take 100%/50%! At first

when I would drive Whitney to the Dr., (yes alone), I would cry because I was

so scared for her. I really felt like I had no choice. Our insurance denied

nursing all together, and denied our appeal for nursing, and because we were

new to the area, we were just getting in touch with the state programs.

Unfortunately, all of the paperwork took this long before we were approved for

respite. (please, don't get out the violin) Whitney has now developed a pretty

strong cough, but I do sometimes have to pull over to suction her if she

just can't clear herself on her own. I think I've become tuned into her

breathing sounds to know just when she really needs help, and when to try to

let her

work it out on her own. Because she has a pulse ox at home, I know she can

tolerate some coughing before her oxygen levels drop. Anyway, I wouldn't

recommend driving a child with a trach on your own. I've just done it out of

necessity. You and Ethan take care.

DeAnn Wells, Mom to Austin 9, 6, and Whitney 22 months.

[Guest guest]

you know thought witney was 22 years not months oh well lol

>

> Jody, LOL. I know, I now laugh at his words, " new and revolutionary " to be

> exact. Ah well, maybe just new to him. Hey, I'd take 100%/50%! At first

> when I would drive Whitney to the Dr., (yes alone), I would cry because I

> was

> so scared for her. I really felt like I had no choice. Our insurance

> denied

> nursing all together, and denied our appeal for nursing, and because we

> were

> new to the area, we were just getting in touch with the state programs.

> Unfortunately, all of the paperwork took this long before we were approved

> for

> respite. (please, don't get out the violin) Whitney has now developed a

> pretty

> strong cough, but I do sometimes have to pull over to suction her if she

> just can't clear herself on her own. I think I've become tuned into her

> breathing sounds to know just when she really needs help, and when to try

> to let her

> work it out on her own. Because she has a pulse ox at home, I know she can

> tolerate some coughing before her oxygen levels drop. Anyway, I wouldn't

> recommend driving a child with a trach on your own. I've just done it out

> of

> necessity. You and Ethan take care.

>

> DeAnn Wells, Mom to Austin 9, 6, and Whitney 22 months.

>

>