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Re: All my child does in SCREAM!! Help Please

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Dimethylglycine....it can be good for behavior.Is he taking any digestive enzymes?LoriTo: mb12 valtrex Sent: Sun, June 27, 2010 8:33:43 PMSubject: Re: All my child does in SCREAM!!

Help Please

What is DMG? I am very new to all of this. He was screaming before we started all supplements and when we did start them all, I added one at a time every three to four days. Maybe it was to fast. I am at the point of crying!!!Sent via BlackBerry from T-MobileFrom: Melinda McCauley <melmattmcyahoo (DOT) com>

Sender: mb12 valtrex@ yahoogroups. com

Date: Sun, 27 Jun 2010 18:28:46 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>ReplyTo: mb12 valtrex@ yahoogroups. com

Subject: Re: All my child does in SCREAM!! Help Please

My son went through a period where he screamed nonstop for 2 weeks and I mean unless he was asleep in bed it was NONSTOP. I called his DAN doc crying -thought I would lose my mind.The culprit for us was DMG, as soon as we took him off of it the screaming stopped in a few days.Does he have bowel issues? usually severe bowel pain or head pain can be the source as well as detoxing too quickly. If you feel diet is not the cause then try stopping all supplements and adding each one back SLOWLY.Of course you should do this under the direction of your MD. As you add back supplements, take a week to reintroduce each one.Our doc told us we could intoduce them over 3-4 days then add another,but I found thats really too quickly and when you have problems like you are having its very difficult to

identify the source,hope this helps.

From: Tom Ajello <ajellogmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Cc: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Sun, June 27, 2010 8:10:42 PMSubject: Re: All my child does in SCREAM!! Help Please

Have you tried any if the diets?

GF CF worked wonders for my oldest and I'm only a day into SCD but I have high hopes for my youngest on it who sounds a lot like your son.Sent from my iPhone

On Jun 27, 2010, at 8:57 PM, "elizabeth7899" <elizabeth7899@ yahoo.com> wrote:

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. Thank you, Springfield, MO

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I should add that some kids can't tolerate DMG because of the methyl group.Does he have any inflammation? sinus issues? runny nose/coughing, like seasonal allergy type symptoms?Have you done any recent remodeling in your home? painting? spraying for bugs? any changes recently?LoriTo: mb12 valtrex Sent: Sun, June 27, 2010 8:36:16 PMSubject: Re: All my child does in SCREAM!! Help Please

Dimethylglycine. ...it can be good for behavior.Is he taking any digestive enzymes?LoriFrom: <elizabeth7899@ yahoo.com>To: mb12 valtrex@ yahoogroups. comSent: Sun, June 27, 2010 8:33:43 PMSubject: Re: All my child does in SCREAM!!

Help Please

What is DMG? I am very new to all of this. He was screaming before we started all supplements and when we did start them all, I added one at a time every three to four days. Maybe it was to fast. I am at the point of crying!!!Sent via BlackBerry from T-MobileFrom: Melinda McCauley <melmattmcyahoo (DOT) com>

Sender: mb12 valtrex@ yahoogroups. com

Date: Sun, 27 Jun 2010 18:28:46 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>ReplyTo: mb12 valtrex@ yahoogroups. com

Subject: Re: All my child does in SCREAM!! Help Please

My son went through a period where he screamed nonstop for 2 weeks and I mean unless he was asleep in bed it was NONSTOP. I called his DAN doc crying -thought I would lose my mind.The culprit for us was DMG, as soon as we took him off of it the screaming stopped in a few days.Does he have bowel issues? usually severe bowel pain or head pain can be the source as well as detoxing too quickly. If you feel diet is not the cause then try stopping all supplements and adding each one back SLOWLY.Of course you should do this under the direction of your MD. As you add back supplements, take a week to reintroduce each one.Our doc told us we could intoduce them over 3-4 days then add another,but I found thats really too quickly and when you have problems like you are having its very difficult to

identify the source,hope this helps.

From: Tom Ajello <ajellogmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Cc: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Sun, June 27, 2010 8:10:42 PMSubject: Re: All my child does in SCREAM!! Help Please

Have you tried any if the diets?

GF CF worked wonders for my oldest and I'm only a day into SCD but I have high hopes for my youngest on it who sounds a lot like your son.Sent from my iPhone

On Jun 27, 2010, at 8:57 PM, "elizabeth7899" <elizabeth7899@ yahoo.com> wrote:

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. Thank you, Springfield, MO

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He is taking betaine with each meal. Is this something I can buy at my local health store?Sent via BlackBerry from T-MobileSender: mb12 valtrex Date: Sun, 27 Jun 2010 18:36:16 -0700 (PDT)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: Re: All my child does in SCREAM!! Help Please Dimethylglycine....it can be good for behavior.Is he taking any digestive enzymes?LoriFrom: <elizabeth7899>To: mb12 valtrex Sent: Sun, June 27, 2010 8:33:43 PMSubject: Re: All my child does in SCREAM!!Help Please What is DMG? I am very new to all of this. He was screaming before we started all supplements and when we did start them all, I added one at a time every three to four days. Maybe it was to fast. I am at the point of crying!!!Sent via BlackBerry from T-MobileFrom: Melinda McCauley <melmattmcyahoo (DOT) com>Sender: mb12 valtrex@ yahoogroups. comDate: Sun, 27 Jun 2010 18:28:46 -0700 (PDT)To: <mb12 valtrex@ yahoogroups. com>ReplyTo: mb12 valtrex@ yahoogroups. comSubject: Re: All my child does in SCREAM!! Help Please My son went through a period where he screamed nonstop for 2 weeks and I mean unless he was asleep in bed it was NONSTOP. I called his DAN doc crying -thought I would lose my mind.The culprit for us was DMG, as soon as we took him off of it the screaming stopped in a few days.Does he have bowel issues? usually severe bowel pain or head pain can be the source as well as detoxing too quickly. If you feel diet is not the cause then try stopping all supplements and adding each one back SLOWLY.Of course you should do this under the direction of your MD. As you add back supplements, take a week to reintroduce each one.Our doc told us we could intoduce them over 3-4 days then add another,but I found thats really too quickly and when you have problems like you are having its very difficult toidentify the source,hope this helps.From: Tom Ajello <ajellogmail (DOT) com>To: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Cc: "mb12 valtrex@ yahoogroups. com" <mb12 valtrex@ yahoogroups. com>Sent: Sun, June 27, 2010 8:10:42 PMSubject: Re: All my child does in SCREAM!! Help Please Have you tried any if the diets?GF CF worked wonders for my oldest and I'm only a day into SCD but I have high hopes for my youngest on it who sounds a lot like your son.Sent from my iPhoneOn Jun 27, 2010, at 8:57 PM, "elizabeth7899" <elizabeth7899@ yahoo.com> wrote: My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. Thank you, Springfield, MO

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Hi , my guess is that the screaming is multi-fold. He's 2 I think you said? So, that could account for a fair amount of tantruming. I'm not sure how verbal your child is? If he doesn't have words to express himself (or many words), he's using what he can to get his point across, more speech therapy, PECS, sign, anything to increase his ability to request and decline in more appropriate ways could be beneficial. It may have become a familiar behavior for him, sort of a habit, it may even have a sensory purpose for him (may be how he upregulates himself, may be giving him auditory stimulation that he needs?) Wondering if Listening Therapy would be good, a sensory diet, a good OT could help with this. No hearing problem? There are so many avenues your DAN can go down, PANDAS, metals, inflammation, oxidative stress, mito, virus, etc. Maybe more testing? You said his screaming was intolerable on nystatin....could that have been perhaps because his yeast was bad and you were seeing really bad die off? If that were the case-maybe more binding stuff like activated charcoal and to grin and bear it to see if it abates after a good die off period? Could be hell to go through. My son had terrible inflammation in his gut which we found on scopes with Buie. He needed meds to help bring the inflammation down and that has really helped with the pain and his behavior has improved immensely. One of the meds, a prescription digestive enzyme called Ultrase eliminated undigested food in my son's poop. Easily covered by insurance, cheap co-pay, great help. Headaches? Ear infections? My last thought - when my son was 2 he didn't have any words but he whined constantly and wanted to be carried 24/7. I worked with an amazing slp in our home and she was pretty tough about it. She taught us some pretty straight forward behavioral techniques to ignore any whining, literally turn my back and walk away, but any attempt at a verbalization or sign or appropriate gesture I would really positively reinforce with the desired thing. I had to model with words and signs, hand over hand at first for the signs. We (everyone who spends significant time with the child) had to be totally consistent and within about 2 months the whining was gone and replaced with a rough sign for 'more' and another for 'all-done', we ramped up to his needing to attempt a vocalization with the sign to get the thing he was asking for, pretty soon we had a rough verbal 'more' and within 6 months -20 words. At 5 my son is quite verbal, although his language still needs massive work. I hate to think of implementing something so tough with a child in pain though. I would want to thoroughly rule that out before you get pretty tough with him. But the screaming has to go or you'll go crazy. Best of luck with this. Ear plugs? Alison M All my child does in SCREAM!! Help Please My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. Thank you, Springfield, MO

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you mentioned "rotation diet," but is he gfcf, sfcf (soy free, corn free) etc, etc.,Sent from my iPhone

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help.

Thank you,

Springfield, MO

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can you list ALL of the supplements that he takes?? (we'll be able to help you better...) also, what diet is he on??? Sent from my iPhone

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help.

Thank you,

Springfield, MO

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Here is the list of everything that he is on...

We are GFCFSFCF. He only eats fish, turkey, bison, fruits and veggies.

Supplement Dosage Schedule

Breakfast

1. CoQ10 – 1 capsule daily (100mg)

2. Acetyl -L-Carnitine – 2 capsules daily (1000mg)5/22

3. B6-P5P-MAG – 1 capsule daily (50mg)

4. Sonic Cholesterol – 1 capsule daily

5. Zinc – 30 drops daily

6. Lithium – 10 drops a WEEK

7. Betaine – ½ capsule daily

Lunch

1. Biotin – 5 capsules daily (5000mcg)

2. Calcium Citrate – 2 level scoops daily (500-1000mg)

3. Magnesium Citrate – 2 level scoops daily (250-500mg)

4. Folinic Acid - __________ daily (800-1600mcg)

5. Nystatin – 4ml

6. Vitamin C – 1 capsule daily (500mg)

7. CLO – 1 teaspoon daily

8. Betaine – ½ capsule

Snack

1. Basic Nutrients Plus – 2 capsules daily

2. Vitamin E – ½ capsule daily (200 IU)

3. L-Lysine – 1 capsule daily (500mg)

4. Selenium – 3 drops daily (100mcg)

5. Vitamin C – 1 capsule (500mg)

6. Chromium – 1 capsule daily (200mcg)

7. Betaine – ½ capsule

Dinner (5:00pm)

1. L-Carnitine – 3 capsules (1000mg)

2. Betaine – ½ Capsule

Bedtime

1. Probiotics – 2 capsules

he also gets B12 shots every 3 days and a allergey shot every week.

>

> My son is 2yo and has always thrown tantrums. We have been doing biomedical

intervention since January of this year and the screaming has not stopped. He is

on 20 different supplements including B12 shots and weekly allergey shots. He is

also on a rotation diet. Is there anything that I can do to stop the screaming?

Is there any other sopplement that can help? if he is not watching baby einstein

then he is SCREAMING! My husband and I are at the end of our rope! We need help.

>

> Thank you,

>

> Springfield, MO

>

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If your are using a high phenol supplement (such aa Enhansa or OLE), add

NoPhenol.

Baths and showers helped calm my son.

Can he sign " pain " yet? My son uses it to tell me when he has a headache.

>

> My son is 2yo and has always thrown tantrums. We have been doing biomedical

intervention since January of this year and the screaming has not stopped. He is

on 20 different supplements including B12 shots and weekly allergey shots. He is

also on a rotation diet. Is there anything that I can do to stop the screaming?

Is there any other sopplement that can help? if he is not watching baby einstein

then he is SCREAMING! My husband and I are at the end of our rope! We need help.

>

> Thank you,

>

> Springfield, MO

>

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hmmm...that is a lot of carnitine, 2000mgs a day for a little guy. It can be activating, can cause hyper activity. I love carnitine, it's been a life changer for my son, but could that possibly be too high for him right now? My son is 41 lbs and 5 and takes 1500mg a day and only in the am, so it won't effect sleep. I could be way off here, but just a thought, Alison M Re: All my child does in SCREAM!! Help Please Here is the list of everything that he is on...We are GFCFSFCF. He only eats fish, turkey, bison, fruits and veggies.Supplement Dosage ScheduleBreakfast1. CoQ10 – 1 capsule daily (100mg)2. Acetyl -L-Carnitine – 2 capsules daily (1000mg)5/223. B6-P5P-MAG – 1 capsule daily (50mg)4. Sonic Cholesterol – 1 capsule daily 5. Zinc – 30 drops daily6. Lithium – 10 drops a WEEK7. Betaine – ½ capsule dailyLunch 1. Biotin – 5 capsules daily (5000mcg)2. Calcium Citrate – 2 level scoops daily (500-1000mg)3. Magnesium Citrate – 2 level scoops daily (250-500mg)4. Folinic Acid - __________ daily (800-1600mcg)5. Nystatin – 4ml6. Vitamin C – 1 capsule daily (500mg)7. CLO – 1 teaspoon daily8. Betaine – ½ capsuleSnack1. Basic Nutrients Plus – 2 capsules daily 2. Vitamin E – ½ capsule daily (200 IU)3. L-Lysine – 1 capsule daily (500mg)4. Selenium – 3 drops daily (100mcg)5. Vitamin C – 1 capsule (500mg)6. Chromium – 1 capsule daily (200mcg)7. Betaine – ½ capsuleDinner (5:00pm)1. L-Carnitine – 3 capsules (1000mg)2. Betaine – ½ Capsule Bedtime 1. Probiotics – 2 capsules he also gets B12 shots every 3 days and a allergey shot every week.> > My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. > > Thank you,> > Springfield, MO>

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is he verbal?? how is his growth? (height/weight), have you had his glucose checked? he takes a lot of supps. but has a low carb/calorie diet, hypoglycemia can present like this... (tantrums, etc.,)my son could not tolerate biotin, and folinic acid can cause problems, too (it's usually trial & error to find the right one.) do you keep a daily journal of his intake/outake every day?? (very important when trying to figure out behaviors, etc., and their relationship to the food/supps your child is consuming..)how are his bm's? is he eliminating 1, 2, 3 times daily??? (very important when detoxing..)Sent from my iPhone

Here is the list of everything that he is on...

We are GFCFSFCF. He only eats fish, turkey, bison, fruits and veggies.

Supplement Dosage Schedule

Breakfast

1. CoQ10 – 1 capsule daily (100mg)

2. Acetyl -L-Carnitine – 2 capsules daily (1000mg)5/22

3. B6-P5P-MAG – 1 capsule daily (50mg)

4. Sonic Cholesterol – 1 capsule daily

5. Zinc – 30 drops daily

6. Lithium – 10 drops a WEEK

7. Betaine – ½ capsule daily

Lunch

1. Biotin – 5 capsules daily (5000mcg)

2. Calcium Citrate – 2 level scoops daily (500-1000mg)

3. Magnesium Citrate – 2 level scoops daily (250-500mg)

4. Folinic Acid - __________ daily (800-1600mcg)

5. Nystatin – 4ml

6. Vitamin C – 1 capsule daily (500mg)

7. CLO – 1 teaspoon daily

8. Betaine – ½ capsule

Snack

1. Basic Nutrients Plus – 2 capsules daily

2. Vitamin E – ½ capsule daily (200 IU)

3. L-Lysine – 1 capsule daily (500mg)

4. Selenium – 3 drops daily (100mcg)

5. Vitamin C – 1 capsule (500mg)

6. Chromium – 1 capsule daily (200mcg)

7. Betaine – ½ capsule

Dinner (5:00pm)

1. L-Carnitine – 3 capsules (1000mg)

2. Betaine – ½ Capsule

Bedtime

1. Probiotics – 2 capsules

he also gets B12 shots every 3 days and a allergey shot every week.

>

> My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help.

>

> Thank you,

>

> Springfield, MO

>

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Betaine is hydrochloric acid. Maybe it's too strong for his stomach. Have you tried digestive enzymes like Houstons prime zyme of afp?nancy j

a child is diagnosed with

asd every 20 seconds

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. Thank you, Springfield, MO

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I've noticed that corn/soy allergies/sensitivities seem to be up there with the worst behavioral reactions. You might want to have him tested. Also, is he screaming to hear himself or is he screaming because he's in distress?To: "mb12 valtrex " <mb12 valtrex >Cc: "mb12 valtrex " <mb12 valtrex >Sent: Sun, June 27, 2010 9:10:42 PMSubject: Re: All my child does in SCREAM!! Help Please

Have you tried any if the diets?GF CF worked wonders for my oldest and I'm only a day into SCD but I have high hopes for my youngest on it who sounds a lot like your son.Sent from my iPhoneOn Jun 27, 2010, at 8:57 PM, "elizabeth7899" <elizabeth7899@ yahoo.com> wrote:

My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help.

Thank you,

Springfield, MO

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I agree with ,forgot about the low blood sugar but behavior would improve once he ate.I still lean towards pain somewhere causing this- someone else mentioned betaine as a culprit.I have never used that product so I cannot speak to its effects but I have seen others post problems with it also.What is Betaine prescribed for? And just so you know at least 6 of your supplements are present in Dr.N's multi powder from Lee Silsby if that would help you. I switched to it a few months ago and it greatly reduced the amount of supplements I had to give each day,we use the Sonic Cholesterol too. Also,make sure your probiotics are dairy free and some parents say they have problems with strep lines so beware of that.

To: "mb12 valtrex " <mb12 valtrex >Sent: Sun, June 27, 2010 9:33:45 PMSubject: Re: Re: All my child does in SCREAM!! Help Please

is he verbal?? how is his growth? (height/weight) , have you had his glucose checked? he takes a lot of supps. but has a low carb/calorie diet, hypoglycemia can present like this... (tantrums, etc.,)

my son could not tolerate biotin, and folinic acid can cause problems, too (it's usually trial & error to find the right one.)

do you keep a daily journal of his intake/outake every day?? (very important when trying to figure out behaviors, etc., and their relationship to the food/supps your child is consuming..)

how are his bm's? is he eliminating 1, 2, 3 times daily??? (very important when detoxing..)

Sent from my iPhone

On Jun 27, 2010, at 10:07 PM, "elizabeth7899" <elizabeth7899@ yahoo.com> wrote:

Here is the list of everything that he is on...We are GFCFSFCF. He only eats fish, turkey, bison, fruits and veggies.Supplement Dosage ScheduleBreakfast1. CoQ10 – 1 capsule daily (100mg)2. Acetyl -L-Carnitine – 2 capsules daily (1000mg)5/223. B6-P5P-MAG – 1 capsule daily (50mg)4. Sonic Cholesterol – 1 capsule daily 5. Zinc – 30 drops daily6. Lithium – 10 drops a WEEK7. Betaine – ½ capsule dailyLunch 1. Biotin – 5 capsules daily (5000mcg)2. Calcium Citrate – 2 level scoops daily (500-1000mg)3. Magnesium Citrate – 2 level scoops daily (250-500mg)4. Folinic Acid - __________ daily (800-1600mcg)5. Nystatin – 4ml6. Vitamin C – 1 capsule daily (500mg)7. CLO – 1 teaspoon daily8. Betaine – ½ capsuleSnack1. Basic Nutrients Plus – 2 capsules daily 2. Vitamin E – ½ capsule daily (200 IU)3. L-Lysine – 1 capsule daily

(500mg)4. Selenium – 3 drops daily (100mcg)5. Vitamin C – 1 capsule (500mg)6. Chromium – 1 capsule daily (200mcg)7. Betaine – ½ capsuleDinner (5:00pm)1. L-Carnitine – 3 capsules (1000mg)2. Betaine – ½ Capsule Bedtime 1. Probiotics – 2 capsules he also gets B12 shots every 3 days and a allergey shot every week.> > My son is 2yo and has always thrown tantrums. We have been doing biomedical intervention since January of this year and the screaming has not stopped. He is on 20 different supplements including B12 shots and weekly allergey shots. He is also on a rotation diet. Is there anything that I can do to stop the screaming? Is there any other sopplement that can help? if he is not watching baby einstein then he is SCREAMING! My husband and I are at the end of our rope! We need help. > > Thank you,> > Springfield, MO>

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